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in Health · May 27, 2016

Lessons My Arthritis Taught Me

Having arthritis hasn’t been an overwhelmingly positive experience, as you can probably imagine. Aside from the constant pain I’ve lived with since fall 2001, arthritis has affected my life in so many other ways. I achieved my dream only to lose it after a year. I moved back in with my parents (something that wasn’t easy for my independent self). But arthritis has also taught me a lot of lessons that I may not have learned as soon as I did, and it made me who I am. When you start living in constant pain at the age of 10, that pain affects all of who you grow into, even when you try to prevent that. I wish that I didn’t live in the pain that I do, but I can’t change the past 15 years, and I don’t know who I would be without it. That being said, here are 8 lessons my arthritis taught me.

8 Lessons My Arthritis Taught Me

I know my body better than anyone else – I absolutely learned this the hard way. As in, I had at least 5 ankle orthopedic surgeons tell me they couldn’t find anything wrong with my ankle, 3 knee orthopedic surgeons tell me they couldn’t find anything wrong with my knee (because clearly my knee was just dislocating for the hell of it), and at least 5 other doctors tell me they didn’t know why I was in pain. Eventually, I started believing them on some level. I say “on some level” because thinking that there wasn’t anything causing it didn’t change that I was in pain. As much as I knew that it wasn’t all in my head, if you have 6+ doctors in 2 years tell you that there’s nothing wrong with you, you start believing it. I still remember my first appointment with my MGH ankle surgeon and the amount of relief I felt when he a) believed me b) knew what was going on and c) had answers. If I learned anything from that appointment – and what he found when he put a camera in my ankle a few months later; arthritis was one of the issues in my ankle – it was that I know my body and what I feel more than anyone else.

Take a day off – My body regularly needs days off for physical and mental reasons, whether that’s to be okay for an important event or because I’m trying to avoid a flare. But we all need days off because there’s no reason to be “on” all the time unless you’re the president or an ER doctor regularly called in. Your body and mind will thank you.

Get 8 hours of sleep – Sleeping less than 7 hours means I’m in more pain the next day, and sleeping at least 8 usually helps my pain. But sleeping a full 8 affects more than just pain, and the rest of my body is continually grateful that I need as much sleep as I do. Here are 23 incredible benefits of getting more sleep, including that you’ll be happier and you’ll learn better.

Drink a LOT of water – With all the medications I’m on, I get dry mouth if I don’t drink bottles of water a day. But staying hydrated helps my body as a whole, and I’m very grateful that I drink so much. The CDC says that water helps your body keep your temperature normal, protect your spinal cord, and more.

8 Lessons My Arthritis Taught Me

Achieving your goals isn’t always worth the damage you do to yourself – Like I said, I achieved my dream, and for those of you who haven’t been around here for a while, that was teaching. I wanted to be a teacher since high school when I realized how few people actually cared about studying literature, and I worked my butt off at Vanderbilt. I did my student teaching at a middle school in Nashville and then at a high school in a Nashville suburb and I loved it. I then took a job teaching 9th grade English in Nashville and with the life of a first-year teacher, the extra stress of working at an urban school that had recently lost its needs-to-be-fixed-ASAP status (I had 175 students), and my rampant autoimmune disease, I was quickly worked to the bone. I dislocated my knee at least twice that year and had multiple flares – plus I wasn’t getting the aforementioned important 8 hours of sleep and I almost never had time off. I worked 10-16 hours a day 5 days a week, and another 4-10 over the weekend. It got to the point where I was so, so sick, and a part of me wished I hadn’t done it.

But it’s ALWAYS worth fighting for what’s most important to you – Well, just a part of me wished I hadn’t. The rest of me just wished that I had worked somewhere with less stress and work because I have never felt as at home as I did in my classroom talking about Romeo and Juliet or grammar. It was second only to the feeling I got when I held Aureole for the first time.

Your body will thank you for eating right – Eating healthy doesn’t equal medicine, but it can make you feel better. In my case, it turns out that a lot of traditionally “bad” foods cause my immune system to attack me harder (I’m looking at you, gluten, dairy, corn, soy, egg, and and hydrogenated oils). But the parts of my body not ruled by my immune system also enjoy when I eat healthy, and I feel better as a result.

Listen to what your body is telling you – As I said at the beginning of this list, I know my body best, and I know when it’s trying to tell me something. Whether its message is big or small, positive or negative, related to health issues or not, your body is talking to you all the time. Listen to it, and don’t fight it.

What have your chronic health issues taught you?

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Mariam says

    May 27, 2016 at 4:56 pm

    Hi Kate,

    Thanks for writing this thoughtful post! Living with arthritis isn’t easy and sometimes telling people I feel like going home because I’m hurting is super difficult. But you are so right – it’s important to listen to what your body is telling you, a lesson I didn’t learn for a long time.

    Have a great weekend!

    xo Mariam | The Petite Bijou

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Having decades-long health problems sometimes mean Having decades-long health problems sometimes means coming across something in your health history that you completely forgot about⁣
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Here are some ways I practice self care, aka talki Here are some ways I practice self care, aka talking care of myself AND who I am as a person separate from illness⁣
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1️⃣ She’s married!! ⁣
2️⃣ She married the best person in the world for her!!!!!⁣
3️⃣ I got dressed up! ⁣
4️⃣ The reality of doing fun things with chronic illness and pain is that then you have to recover from the fun things. It took … a while. One million percent worth it, but this is why I don’t do big events on a regular basis. ⁣
5️⃣ And then I had to be a person again for an appointment!⁣
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On the one hand, you should always believe what pe On the one hand, you should always believe what people tell you about their bodies.⁣
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On the other hand, I’ve had so much ridiculous and unconnected health things happen that I do understand why people might not believe me.⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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Last week, I talked about how it surprised me how Last week, I talked about how it surprised me how systemic autoimmune arthritis can be. But something else that surprised me was how much pain can be caused by small things.⁣
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In this picture, I was getting ready to have an MRI on my knee. It has been bothering me a fair amount the last 6+ months, so I'm trying to do something about that. ⁣
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Unsurprisingly, some of the tissue is damaged, but it's not bad. What's probably causing it to bother me so much is a teeny tiny cyst. ⁣
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Baker's cysts are a type of cyst in the knee that are generally caused by arthritis. But having a cyst in my knee means that it's causing pressure on that damaged tissue. ⁣
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The body is a weird thing, and one of these weird things is developing tiny cysts that cause a lot of pain. ⁣
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If I met my newly diagnosed self for coffee ... ⁣
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I tell her how things would get worse before they got better. ⁣
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I'd tell her to stop eating gluten, dairy, corn, soy, and eggs immediately (although that would have been a lot harder in 2010, more than it even is now). ⁣
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I'd tell her that she still needs to keep advocating for herself. ⁣
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I'd tell her that having a diagnosis unfortunately doesn't mean everything automatically falls into place. ⁣
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I'd tell her that she'll develop many more illnesses but her quality of life will actually get significantly better. ⁣
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I'd tell her that she would eventually have to get her right foot fixed, although she does expect that.⁣
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I'd tell her that using a cane is not a sign of failure, but a tool to make life better.⁣
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(I did a sort of tongue-in-cheek post about this a while ago and thought I'd post a more serious one).⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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The thing that surprised me the most about autoimm The thing that surprised me the most about autoimmune arthritis is how systemic it is. ⁣
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Like with most things, it's one thing to know the fact and it's something else to experience it. ⁣
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Yes, my joints are affected (a lot). ⁣
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But I've had enough serious infections thats I have to see an immunologist because we need to be aware of my antibodies and I sometimes need help recovering from illnesses. ⁣
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And, yes, I see pulmonology because of my asthma, but we also have to keep an eye out on developing rheumatoid nodules in my lungs. (So far so good!)⁣
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Not to mention that, when I developed POTS, the hospital admitted me to run every heart test to make sure that, at 26, I wasn't experiencing heart failure. ⁣
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Plus, when I developed endometriosis, I also went through a number of GI tests because one theory was that I had ulcerative colitis. ⁣
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Anyway, RA is so much more than "just" joints. If it wasn't, I wouldn't have to kill my immune system every 3 months like I am in this picture.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣
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