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in Health &middot May 27, 2016

Lessons My Arthritis Taught Me

Having arthritis hasn’t been an overwhelmingly positive experience, as you can probably imagine. Aside from the constant pain I’ve lived with since fall 2001, arthritis has affected my life in so many other ways. I achieved my dream only to lose it after a year. I moved back in with my parents (something that wasn’t easy for my independent self). But arthritis has also taught me a lot of lessons that I may not have learned as soon as I did, and it made me who I am. When you start living in constant pain at the age of 10, that pain affects all of who you grow into, even when you try to prevent that. I wish that I didn’t live in the pain that I do, but I can’t change the past 15 years, and I don’t know who I would be without it. That being said, here are 8 lessons my arthritis taught me.

8 Lessons My Arthritis Taught Me

I know my body better than anyone else – I absolutely learned this the hard way. As in, I had at least 5 ankle orthopedic surgeons tell me they couldn’t find anything wrong with my ankle, 3 knee orthopedic surgeons tell me they couldn’t find anything wrong with my knee (because clearly my knee was just dislocating for the hell of it), and at least 5 other doctors tell me they didn’t know why I was in pain. Eventually, I started believing them on some level. I say “on some level” because thinking that there wasn’t anything causing it didn’t change that I was in pain. As much as I knew that it wasn’t all in my head, if you have 6+ doctors in 2 years tell you that there’s nothing wrong with you, you start believing it. I still remember my first appointment with my MGH ankle surgeon and the amount of relief I felt when he a) believed me b) knew what was going on and c) had answers. If I learned anything from that appointment – and what he found when he put a camera in my ankle a few months later; arthritis was one of the issues in my ankle – it was that I know my body and what I feel more than anyone else.

Take a day off – My body regularly needs days off for physical and mental reasons, whether that’s to be okay for an important event or because I’m trying to avoid a flare. But we all need days off because there’s no reason to be “on” all the time unless you’re the president or an ER doctor regularly called in. Your body and mind will thank you.

Get 8 hours of sleep – Sleeping less than 7 hours means I’m in more pain the next day, and sleeping at least 8 usually helps my pain. But sleeping a full 8 affects more than just pain, and the rest of my body is continually grateful that I need as much sleep as I do. Here are 23 incredible benefits of getting more sleep, including that you’ll be happier and you’ll learn better.

Drink a LOT of water – With all the medications I’m on, I get dry mouth if I don’t drink bottles of water a day. But staying hydrated helps my body as a whole, and I’m very grateful that I drink so much. The CDC says that water helps your body keep your temperature normal, protect your spinal cord, and more.

8 Lessons My Arthritis Taught Me

Achieving your goals isn’t always worth the damage you do to yourself – Like I said, I achieved my dream, and for those of you who haven’t been around here for a while, that was teaching. I wanted to be a teacher since high school when I realized how few people actually cared about studying literature, and I worked my butt off at Vanderbilt. I did my student teaching at a middle school in Nashville and then at a high school in a Nashville suburb and I loved it. I then took a job teaching 9th grade English in Nashville and with the life of a first-year teacher, the extra stress of working at an urban school that had recently lost its needs-to-be-fixed-ASAP status (I had 175 students), and my rampant autoimmune disease, I was quickly worked to the bone. I dislocated my knee at least twice that year and had multiple flares – plus I wasn’t getting the aforementioned important 8 hours of sleep and I almost never had time off. I worked 10-16 hours a day 5 days a week, and another 4-10 over the weekend. It got to the point where I was so, so sick, and a part of me wished I hadn’t done it.

But it’s ALWAYS worth fighting for what’s most important to you – Well, just a part of me wished I hadn’t. The rest of me just wished that I had worked somewhere with less stress and work because I have never felt as at home as I did in my classroom talking about Romeo and Juliet or grammar. It was second only to the feeling I got when I held Aureole for the first time.

Your body will thank you for eating right – Eating healthy doesn’t equal medicine, but it can make you feel better. In my case, it turns out that a lot of traditionally “bad” foods cause my immune system to attack me harder (I’m looking at you, gluten, dairy, corn, soy, egg, and and hydrogenated oils). But the parts of my body not ruled by my immune system also enjoy when I eat healthy, and I feel better as a result.

Listen to what your body is telling you – As I said at the beginning of this list, I know my body best, and I know when it’s trying to tell me something. Whether its message is big or small, positive or negative, related to health issues or not, your body is talking to you all the time. Listen to it, and don’t fight it.

What have your chronic health issues taught you?

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Mariam says

    May 27, 2016 at 4:56 pm

    Hi Kate,

    Thanks for writing this thoughtful post! Living with arthritis isn’t easy and sometimes telling people I feel like going home because I’m hurting is super difficult. But you are so right – it’s important to listen to what your body is telling you, a lesson I didn’t learn for a long time.

    Have a great weekend!

    xo Mariam | The Petite Bijou

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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