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in Health &middot May 27, 2016

Lessons My Arthritis Taught Me

Having arthritis hasn’t been an overwhelmingly positive experience, as you can probably imagine. Aside from the constant pain I’ve lived with since fall 2001, arthritis has affected my life in so many other ways. I achieved my dream only to lose it after a year. I moved back in with my parents (something that wasn’t easy for my independent self). But arthritis has also taught me a lot of lessons that I may not have learned as soon as I did, and it made me who I am. When you start living in constant pain at the age of 10, that pain affects all of who you grow into, even when you try to prevent that. I wish that I didn’t live in the pain that I do, but I can’t change the past 15 years, and I don’t know who I would be without it. That being said, here are 8 lessons my arthritis taught me.

8 Lessons My Arthritis Taught Me

I know my body better than anyone else – I absolutely learned this the hard way. As in, I had at least 5 ankle orthopedic surgeons tell me they couldn’t find anything wrong with my ankle, 3 knee orthopedic surgeons tell me they couldn’t find anything wrong with my knee (because clearly my knee was just dislocating for the hell of it), and at least 5 other doctors tell me they didn’t know why I was in pain. Eventually, I started believing them on some level. I say “on some level” because thinking that there wasn’t anything causing it didn’t change that I was in pain. As much as I knew that it wasn’t all in my head, if you have 6+ doctors in 2 years tell you that there’s nothing wrong with you, you start believing it. I still remember my first appointment with my MGH ankle surgeon and the amount of relief I felt when he a) believed me b) knew what was going on and c) had answers. If I learned anything from that appointment – and what he found when he put a camera in my ankle a few months later; arthritis was one of the issues in my ankle – it was that I know my body and what I feel more than anyone else.

Take a day off – My body regularly needs days off for physical and mental reasons, whether that’s to be okay for an important event or because I’m trying to avoid a flare. But we all need days off because there’s no reason to be “on” all the time unless you’re the president or an ER doctor regularly called in. Your body and mind will thank you.

Get 8 hours of sleep – Sleeping less than 7 hours means I’m in more pain the next day, and sleeping at least 8 usually helps my pain. But sleeping a full 8 affects more than just pain, and the rest of my body is continually grateful that I need as much sleep as I do. Here are 23 incredible benefits of getting more sleep, including that you’ll be happier and you’ll learn better.

Drink a LOT of water – With all the medications I’m on, I get dry mouth if I don’t drink bottles of water a day. But staying hydrated helps my body as a whole, and I’m very grateful that I drink so much. The CDC says that water helps your body keep your temperature normal, protect your spinal cord, and more.

8 Lessons My Arthritis Taught Me

Achieving your goals isn’t always worth the damage you do to yourself – Like I said, I achieved my dream, and for those of you who haven’t been around here for a while, that was teaching. I wanted to be a teacher since high school when I realized how few people actually cared about studying literature, and I worked my butt off at Vanderbilt. I did my student teaching at a middle school in Nashville and then at a high school in a Nashville suburb and I loved it. I then took a job teaching 9th grade English in Nashville and with the life of a first-year teacher, the extra stress of working at an urban school that had recently lost its needs-to-be-fixed-ASAP status (I had 175 students), and my rampant autoimmune disease, I was quickly worked to the bone. I dislocated my knee at least twice that year and had multiple flares – plus I wasn’t getting the aforementioned important 8 hours of sleep and I almost never had time off. I worked 10-16 hours a day 5 days a week, and another 4-10 over the weekend. It got to the point where I was so, so sick, and a part of me wished I hadn’t done it.

But it’s ALWAYS worth fighting for what’s most important to you – Well, just a part of me wished I hadn’t. The rest of me just wished that I had worked somewhere with less stress and work because I have never felt as at home as I did in my classroom talking about Romeo and Juliet or grammar. It was second only to the feeling I got when I held Aureole for the first time.

Your body will thank you for eating right – Eating healthy doesn’t equal medicine, but it can make you feel better. In my case, it turns out that a lot of traditionally “bad” foods cause my immune system to attack me harder (I’m looking at you, gluten, dairy, corn, soy, egg, and and hydrogenated oils). But the parts of my body not ruled by my immune system also enjoy when I eat healthy, and I feel better as a result.

Listen to what your body is telling you – As I said at the beginning of this list, I know my body best, and I know when it’s trying to tell me something. Whether its message is big or small, positive or negative, related to health issues or not, your body is talking to you all the time. Listen to it, and don’t fight it.

What have your chronic health issues taught you?

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Mariam says

    May 27, 2016 at 4:56 pm

    Hi Kate,

    Thanks for writing this thoughtful post! Living with arthritis isn’t easy and sometimes telling people I feel like going home because I’m hurting is super difficult. But you are so right – it’s important to listen to what your body is telling you, a lesson I didn’t learn for a long time.

    Have a great weekend!

    xo Mariam | The Petite Bijou

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There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
Week 22 of 2026 Weekly 1️⃣ Off to see my foot doc Week 22 of 2026 Weekly

1️⃣ Off to see my foot doc … and my foot is healing! Yay!
2️⃣ A very cool notification to get!
3️⃣ This is 35 🎂
4️⃣ Featuring Harley snuggles 
5️⃣ And then it was my mom’s birthday! 
6️⃣ With Harley again 

ID: 
1️⃣ Kate takes a mirror selfie 
2️⃣ a notification from WordPress saying “Receive views from 150+ counties. The United Nations has nothing on you!”
3️⃣ Kate smiles for the camera in a cafe 
4️⃣ Kate in the same outfit with Harley the golden retriever on her lap. 
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6️⃣ Kate with Harley again 

#GoldenRetrieversOfInstagram #ChronicallyIll #ChronicPain #InvisibleIllness
Lifestyle Changes I Made for My Rheumatoid Arthrit Lifestyle Changes I Made for My Rheumatoid Arthritis⁣
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While these are not my treatments, they have made my life better in some ways. ⁣
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What lifestyle changes have you made, for RA or another condition?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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A series of pictures. Each has a text box on them related to the picture. ⁣
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1️⃣ Lifestyle changes I made for my rheumatoid arthritis⁣
2️⃣ Wearing a mask⁣
3️⃣ Using a cane⁣
4️⃣ Changing my diet⁣
5️⃣ Working from home⁣
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#ChronicIllness #RheumatoidArthritis #AutoimmuneDisease #Arthritis #ChronicallyIll
What helps you mentally get through a tough time?⁣ What helps you mentally get through a tough time?⁣
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I'm struggling right now with my broken foot, which brings back a lot of tough memories. That plus being due for Rituxan and the heat starting up has made things hard. ⁣
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Here are somethings I do: ⁣
▪ Stick with my routine⁣
▪ Make recipes that I really enjoy⁣
▪ Work on embroidery projects so I can do something productive that involves stabbing fabric⁣
▪ Cut myself slack ⁣
▪ Get Harley hugs⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate and Harley the golden retriever hugging. Kate is a redheaded white woman wearing a black dress, pink sweater, and round pink glasses.⁣
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Week 21 of 2026 Weekly 1️⃣ First real cross-stit Week 21 of 2026 Weekly 

1️⃣ First real cross-stitch project: done! 
2️⃣ The magic machine that is hopefully healing my broken foot 
3️⃣ When your 2 refrigerated medications are delivered on the same day

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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1️⃣ A completed cross-stitch project, which shows 2 bears walking past a lake, trees, and mountains.
2️⃣ An Exogen machine showing use 13 days in a row
3️⃣ A couple of styrofoam refridgerated containers for medication

#ChronicallyIll #CrossStitch #RheumatoidArthritis #SjogrensSyndrome #IVIG
You guessed it, I'm one of that 25%. ⁣ ⁣ May is Ar You guessed it, I'm one of that 25%. ⁣
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May is Arthritis Awareness Month. Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
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You only have rheumatoid arthritis if your rheumatoid factor tests positive.⁣
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As many as 25% of RA patients test negative, which is called being seronegative.⁣
katethealmostgreat
Things are tough (all over pain, heat with POTS, i Things are tough (all over pain, heat with POTS, in a walking cast waiting to see if I need my 6th foot surgery), but so am I.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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#RheumatoidArthritis #POTS #POTSie #AutoimmuneDisease #ChronicallyIll
Week 20 of #2026Weekly 1️⃣ IVIG + Kindle reading Week 20 of #2026Weekly 

1️⃣ IVIG + Kindle reading 
2️⃣ Almost done!!!!!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Infusion tubes coming out from under her shirt. There’s a Kindle on her lap.
2️⃣ An almost-finished cross-stitch project

#IVIG #ChronicallyIll #CrossStitcher #CrossStitchersOfInstagram
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