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chronic illness, chronic pain, rheumatoid arthritis, arthritis, autoimmune arthritis, autoimmune disease, rheum, RA, endometriosis, endo, fibromyalgia, fibro, asthma, anemia, dysautonomia, postural orthostatic tachycardia syndrome, POTS
&middot June 9, 2020

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Looking for a spoonie Instagram following? Looking for a more engaged following? Get both by completing this 25-day Instagram challenge!

If you’re just posting about your health randomly or occasionally talking about it, you’re missing out.

Take a more direct approach by addressing some of the many parts of the chronic illness life.

Get this challenge when you sign up for my free newsletter. Check it out here.

chronic illness, chronic pain, rheumatoid arthritis, arthritis, autoimmune arthritis, autoimmune disease, rheum, RA, endometriosis, endo, fibromyalgia, fibro, asthma, anemia, dysautonomia, postural orthostatic tachycardia syndrome, POTS

If you’re just posting about your health randomly or occasionally talking about it, you’re missing out.

Take a more direct approach by addressing some of the many parts of the chronic illness life.

I’ve seen a lot of Instagram prompts and ideas over social media, especially on Pinterest. But none of them have been specifically focused on chronic illness.

Whether you want to get more followers or get your current followers to be more engaged, this 25-day challenge will help you do this. Post every day Monday through Friday or space them out to get 2 months of prompts. And make it even easier by trying Tailwind for Instagram (this free trial gives you 30 posts to try it out!).

These prompts are absolutely free. All you have to do is sign up for my FREE email newsletter, and I don’t even spam you. (If I’m on top of my stuff, I send 4 or 5 emails a month.)

Don’t forget image descriptions when you post for people who use screen readers. (I mean, what’s the point of trying to get more spoonie followers if they can’t even access your content?)

Use the hashtag #AlmostGreatHealth when you post through this challenge so I (and anyone else also doing it) know that you’re doing it and can follow along.

Hashtags to use:

  • #AlmostGreatHealth
  • #chronicillness 
  • #chronicpain 
  • #chronicbabe 
  • #chronicpainwarrior 
  • #chronicallyill 
  • #chronicwarrior
  • #chronicdisease
  • #spoonie 
  • #spoonielife
  • #autoimmune 
  • #autoimmunedisease 
  • #healthblogger 
  • #inflammation 
  • #endometriosis 
  • #endo
  • #endometriosisawareness
  • #endometriosiswarrior
  • #endogirls 
  • #POTS 
  • #posturalorthostatictachycardiasyndrome 
  • #potsie
  • #potswarrior
  • #dysautonomia
  • #dysautonomiaawareness 
  • #dysautonomiawarrior
  • #dysautonomiasucks
  • #fibro 
  • #fibromyalgia 
  • #fibromyalgiawarrior 
  • #fibromyalgiafighter 
  • #fibromyalgiasucks
  • #rheumatoidarthritis 
  • #RA 
  • #rheum 
  • #rheumatoiddisease 
  • #arthritis 
  • #curearthritis
  • #arthritisawareness 
  • #arthritissucks
  • #arthritiswarrior 
  • #arthritisproblems
  • #healthandwellbeing 
  • #mentalhealthawarness 
  • #immunesystem 
  • #healthjourney 

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Kate the (Almost) Great® is a chronic illness lifestyle blog. It is a resource for chronic illness patients and their loved ones.

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Kate the (Almost) Great

Chronic health lifestyle blog

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There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
Week 22 of 2026 Weekly 1️⃣ Off to see my foot doc Week 22 of 2026 Weekly

1️⃣ Off to see my foot doc … and my foot is healing! Yay!
2️⃣ A very cool notification to get!
3️⃣ This is 35 🎂
4️⃣ Featuring Harley snuggles 
5️⃣ And then it was my mom’s birthday! 
6️⃣ With Harley again 

ID: 
1️⃣ Kate takes a mirror selfie 
2️⃣ a notification from WordPress saying “Receive views from 150+ counties. The United Nations has nothing on you!”
3️⃣ Kate smiles for the camera in a cafe 
4️⃣ Kate in the same outfit with Harley the golden retriever on her lap. 
5️⃣ Kate’s mom smiling in a restaurant 
6️⃣ Kate with Harley again 

#GoldenRetrieversOfInstagram #ChronicallyIll #ChronicPain #InvisibleIllness
Lifestyle Changes I Made for My Rheumatoid Arthrit Lifestyle Changes I Made for My Rheumatoid Arthritis⁣
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While these are not my treatments, they have made my life better in some ways. ⁣
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What lifestyle changes have you made, for RA or another condition?⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: ⁣
A series of pictures. Each has a text box on them related to the picture. ⁣
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1️⃣ Lifestyle changes I made for my rheumatoid arthritis⁣
2️⃣ Wearing a mask⁣
3️⃣ Using a cane⁣
4️⃣ Changing my diet⁣
5️⃣ Working from home⁣
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#ChronicIllness #RheumatoidArthritis #AutoimmuneDisease #Arthritis #ChronicallyIll
What helps you mentally get through a tough time?⁣ What helps you mentally get through a tough time?⁣
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I'm struggling right now with my broken foot, which brings back a lot of tough memories. That plus being due for Rituxan and the heat starting up has made things hard. ⁣
⁣
Here are somethings I do: ⁣
▪ Stick with my routine⁣
▪ Make recipes that I really enjoy⁣
▪ Work on embroidery projects so I can do something productive that involves stabbing fabric⁣
▪ Cut myself slack ⁣
▪ Get Harley hugs⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate and Harley the golden retriever hugging. Kate is a redheaded white woman wearing a black dress, pink sweater, and round pink glasses.⁣
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#GoldenRetrievers #RheumatoidArthritis #Fibromyalgia #POTS #SjogrensSyndrome
Week 21 of 2026 Weekly 1️⃣ First real cross-stit Week 21 of 2026 Weekly 

1️⃣ First real cross-stitch project: done! 
2️⃣ The magic machine that is hopefully healing my broken foot 
3️⃣ When your 2 refrigerated medications are delivered on the same day

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛

1️⃣ A completed cross-stitch project, which shows 2 bears walking past a lake, trees, and mountains.
2️⃣ An Exogen machine showing use 13 days in a row
3️⃣ A couple of styrofoam refridgerated containers for medication

#ChronicallyIll #CrossStitch #RheumatoidArthritis #SjogrensSyndrome #IVIG
You guessed it, I'm one of that 25%. ⁣ ⁣ May is Ar You guessed it, I'm one of that 25%. ⁣
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May is Arthritis Awareness Month. Like, comment, and share to spread awareness 💖⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
You only have rheumatoid arthritis if your rheumatoid factor tests positive.⁣
Fact⁣
As many as 25% of RA patients test negative, which is called being seronegative.⁣
katethealmostgreat
Things are tough (all over pain, heat with POTS, i Things are tough (all over pain, heat with POTS, in a walking cast waiting to see if I need my 6th foot surgery), but so am I.⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
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ID: Kate takes a selfie. She's a white woman with auburn hair wearing a navy-based floral dress, green glasses, and silver Celtic knot necklace.⁣
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#RheumatoidArthritis #POTS #POTSie #AutoimmuneDisease #ChronicallyIll
Week 20 of #2026Weekly 1️⃣ IVIG + Kindle reading Week 20 of #2026Weekly 

1️⃣ IVIG + Kindle reading 
2️⃣ Almost done!!!!!

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛ 

IDs: 
1️⃣ Infusion tubes coming out from under her shirt. There’s a Kindle on her lap.
2️⃣ An almost-finished cross-stitch project

#IVIG #ChronicallyIll #CrossStitcher #CrossStitchersOfInstagram
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