• Skip to main content
  • Skip to primary sidebar
  • Skip to footer

Kate the (Almost) Great

Chronic illness blog

  • Home
  • Start Here
    • About
    • As Seen On
    • Tags & Topics
    • Popular Posts
  • Blogging Resources
  • Freebie
  • Shop the Blog
    • Products for the Chronically Ill
  • Work with Me
    • Ads and Sponsoring
  • Follow
  • Holiday
    • Gift Guides

in Health · April 17, 2020

Describing Pain Levels to a Doctor

A key part of living with chronic pain is describing pain to a doctors which can be surprisingly difficult. I still find it hard, and I’ve been doing it since 2001! With that in mind, I’ve written this post about describing pain levels to a doctor. I’m specifying doctors in this post because getting people in your life like a partner or family member to understand your pain is a different situation from explaining it to your doctor.

For one, describing pain to a doctor is for a completely different purpose. It can be to make them believe you, to explain how things have changed (positively or negatively), or to get a diagnosis. Mainly, it’s important to describe your pain accurately because different types of pain can mean different things, like aching vs. sharp. Wherever you are in your pain journey, I hope that you find this post helpful!

As a reminder, I am not a doctor. I am a chronic pain patient, and I have a lot of experience being in pain, but I don’t have a medical degree. Additionally, this post contains affiliate links. Thank you for supporting Kate the (Almost) Great!

Contents hide
Basic Terms for Describing Pain to a Doctor
How To Use Comparison for Effectively Explaining Your Pain
The Dreaded Out-of-10 Scale for Describing Your Pain
Text reads: Describing pain levels to a doctor, www. kate the almost great .com (end text). Describing pain to doctors can be difficult. In this post, long-time chronic pain patient Kate the (Almost) Great helps you prepare to do that with words to use, ideas to help you explain your pain, and, of course, the dreaded out-of-10 pain scale.

Basic Terms for Describing Pain to a Doctor

Aching or dull: It is very annoying that these are the two best ways to describe my pain when it feels like these two words minimize pain. But that isn’t necessarily the case! I would describe this as a soreness. Sometimes I’ll describe my arthritis pain as aching but strong to emphasize that it’s a lot of pain. For me, if my pain is aching or dull, it doesn’t necessarily have one strong point where the pain is the worst.

Sharp: Pretty much what it sounds like! For me, sharp pain is intense, like it takes your breath away, and it is involved with a smaller area than aching pain is.

What does endometriosis feel like?

Cramping: In this purpose, cramping pain is the kind that feels there’s a knot in the area where you’re feeling it. Maybe it’s because I associate cramping with periods (because cramps come along with periods), but when I have cramping pain, it’s pain that feels tense in the muscles specifically.

Shooting: When I have shooting pain, it has a starting point and it radiates from that point. Generally, it can radiate a long distance or a moderate one. When I’ve dislocated my knee (something that used to have allll the time, but that is thankfully not a regular occurrence any more), the pain has been shooting down my lower leg until the joint is put back in place.

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

Preparing for Chronic Pain Medical Appointments

Throbbing or pulsating: This could be described as a shooting pain that shoots to a short distance and bounces back to the starting point. Like, a really short distance. When I’ve had ovarian cysts rupture – a highlight of my endometriosis experience – after the initial rupturing, I feel throbbing pain. The rupturing itself is a sharp, stabbing pain, and then the recovery is throbbing. It’s very painful, and when using shooting a short distance as an explanation for throbbing, I would say that pain post-rupture is shooting one to two inches and bouncing back. Another word to describe this type of pain is pulsating.

Stabbing: Stabbing goes along with “sharp” to me, but to me, they’re not the same thing. I’m not sure if this will make sense, but to me, while you can’t stabbing pain without it also being sharp, you could have sharp pain not be stabbing. Another way to describe stabbing pain is by comparing it to some other terms; I think of stabbing pain as sharp throbbing. To me, throbbing pain has rounded edges, while stabbing is very angular.

Crucial Ways to Prep for Surgery Recovery Ahead of Time

Text reads: tips for explaining your pain, www. kate the almost great .com (end text). describing pain to doctor, describing pain levels, chronic pain, chronic illness, describing pain, how to describe pain, explaining pain, how to explain pain, rheumatoid arthritis, RA, arthritis, rheum, fibromyalgia, fibro, endo, endometriosis

Heavy: Heavy pain is like there’s a weight on it, whether on the area that is feeling that pain (like if it’s swollen) or on you overall, like in the pit of your stomach. Maybe heavy pain is pain that feels foreboding emotionally. I also associate heavy pain with throbbing, but like with sharp and stabbing, I feel like throbbing doesn’t have to be heavy, but heavy pain is almost always also throbbing.

Burning: This is a whole other type of pain compared to what I’ve described so far! Burning pain is hot, and it can be hot metaphorically or literally. When I’ve experienced burning pain, it has been post surgery when nerves were healing, and that pain was burning. It felt hot inside, but that area wasn’t hot to the touch, which is a symptom of inflammation.

Stinging: In my experience, stinging pain is like burning but down a couple of notches or like burning but not as sharp. It can be really intense as it is, and it’s not the exact same experience as burning (which is why it has its own entry), but it is very similar.

Tools for pain management that aren’t medications

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

How To Use Comparison for Effectively Explaining Your Pain

In recent years, I started comparing my pain when describing what I’m feeling to doctors. This isn’t something I necessarily do when I’m not at an appointment related to pain – for example, when I’m at the hematologist for my chronic anemia, they ask pain levels, but they care a lot more about my fatigue levels. But if I’m going to the rheumatologist or a joint specialist like my foot/ankle doctor, it’s a lot more important.

When I say “compare,” I mean comparing your present pain levels to previous pain experiences you’ve had. This can be specific or more general. A general example is, “My current pain is a 6, and an 8 is an ovarian cyst rupturing.” That is an experience I have had multiple times, and it’s in my medical chart, so my doctors can check and confirm that I’ve had that. I try to keep it a simple comparison (ovarian cyst rupturing) so that it’s not distracting from the point of the appointment. I try to use more general examples for general appointments like with my primary care doctor or for the unfortunate ER appointment. In ER appointments, it’s extremely important to explain my pain quickly and concisely, as 95% of the time that I’m there, it’s for something causing pain.

A more specific comparison would be using an experience that applies to that specialty. For example, when I see my knee doctor, I can compare my knee pain to various knee problems that I’ve had over the years. He has done 2 surgeries on the same knee, each surgery being for different things. When I see that doctor (which I thankfully haven’t needed to do for a while), I can compare my pain level at that time to my pre- or post-surgery pain levels.

Now that we have discussed words you can use for describing pain to a doctor and the tool of comparison for describing your pain, let’s talk about the most common way to explain what you feel: the annoying out-of-10 pain scale.

How is chronic pain different from acute pain?

Describing pain to doctors, kate the almost great .com

The Dreaded Out-of-10 Scale for Describing Your Pain

Easily the most common question I get from medical professionals when I have any appointment is how much pain I have out of 10. In my opinion, the out-of-10 pain scale is extremely annoying. Assigning numbers to my pain doesn’t provide a good description of it. Adjectives are a much better fit since there are different types of pain that could be the same number. For example, one day my pain could be a 6/10 and be dull and achy but the next day it could be a 6/10 and be burning and stinging. In both cases, I strongly believe a 6 is the right number, but the pain is very different. How can those numbers be accurate, then?

Additionally, we have no way to know if each number means the same thing to each person. And there’s no way to tell! Plus, we haven’t all experienced the same things, so we can’t all imagine the same type of pain and what of that would be a 10 (or any other number in the scale). Some hospitals or medical offices have descriptive words or phrases with the faces of an out-of-10 pain scale, but even then I’ve seen different descriptions for the same number. In some places, “mild pain” might be a 4, but in others, it’s a 2.

Plus, as I mentioned, different types of pain can be the same number, which is why all of those words I list at the beginning of this post are so needed. My pain might be a 6/10 and be achy or burning or stinging or whatever (you get the idea). But when describing my pain in each of these situations, I would without a doubt label them all a 6/10. These different situations generally mean different types of things are causing the pain, but it doesn’t change the fact that a doctor would ask me what number I would assign to my pain first and foremost. I’ve had some doctors then ask me to describe the pain, but others leave it at a number.

I don’t have a solution for replacing the out-of-10 scale or else I would be including it here. But I’m including these comments because I want to explain why it’s so important to describe your pain beyond numbers. Maybe if you use a number beyond 10 (even just out of 20) you can get more specific – 18 out of 20 seems like a more specific number than 8 out of 10.

Problems from my inflammatory arthritis + how to deal with them

Sign up for my newsletter to receive updates, free downloads, access to my resource library, ebook deals, and more. It’s free!

What are your tips for describing pain to a doctor?

Like this post? Check out:

How Arthritis Affects the Body, Why Is Endometriosis Misdiagnosed?, Chronic Illness Advice: Resources for the Newly-Diagnosed Patient, Arthritis Glossary: Frequently-Used Terms

Strategies to describe your pain, kate the almost great .com
8 tips for describing your pain to doctors, kate the almost great .com
How To Describe Your Pain Effectively Strategies That Can Help!
How to explain your pain levels to doctors
Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

Share this with your family and friends:

  • Click to share on X (Opens in new window) X
  • Click to share on Facebook (Opens in new window) Facebook
  • Click to share on Pinterest (Opens in new window) Pinterest
  • Click to email a link to a friend (Opens in new window) Email
  • Click to share on LinkedIn (Opens in new window) LinkedIn
  • Click to print (Opens in new window) Print
  • Click to share on Tumblr (Opens in new window) Tumblr

Related

Previous Post: « How Coronavirus Has Affected Blog Traffic Stats
Next Post: Advice Books To Read (That Aren’t Cheesy!) »

Reader Interactions

Comments

  1. Maryse S. Marius says

    April 20, 2020 at 6:17 pm

    Hey Kate!
    Very interesting article- it’s a unique one! These are wonderful tips which will help us explain our pain more accurately, with more descriptive words- instead of “it hurts quite a lot”.

    Loading...
    Reply
    • Kate says

      May 5, 2020 at 4:00 pm

      Exactly! Because “it hurts quite a lot” might be right, but it’s not always helpful when talking to medical professionals.

      Loading...
      Reply
  2. Katie says

    April 25, 2020 at 8:00 pm

    This is very helpful. The nuances really make a difference. Having the right language is so important.

    Loading...
    Reply
    • Kate says

      May 5, 2020 at 4:00 pm

      So glad it was helpful!

      Loading...
      Reply
  3. LJ says

    September 21, 2020 at 2:32 am

    This is really great, thank you! I feel as though people who have chronic pain will completely relate to the verbiage you used. Every descriptive made me say “Yes, I know how that one feels and know exactly how she’s differentiating between them!” We don’t often come across something that so fully describes what we all feel at different moments.
    Stay Well!

    Loading...
    Reply
  4. Jen Atwood says

    May 30, 2021 at 10:45 pm

    Excellent article! I have difficulty answering the current pain level question at doctor visits because I have multiple chronic pain disorders…sometimes I answer with the highest number of the bunch, others an average. I also appreciate it when they ask for the pain level at the beginning and at the end because many of us can change quite quickly, especially when under stressful situations. I look forward to reading your blog now that I’ve discovered it!

    Loading...
    Reply
  5. Janet Jay says

    July 8, 2024 at 11:31 am

    This subject is so important to talk about– I wrote a piece a couple years ago about pain scales that seemed to resonate with a lot of people. I think we’re all struggling to find our way on this, and the more we demand alternatives, hopefully, the more normalized it’ll become.

    Loading...
    Reply
    • Janet Jay says

      July 8, 2024 at 11:33 am

      Huh, did the link not work? Sorry about that. Either way, mine is at https://www.janetjay.com/using-pain-scale-1-10-to-explain-your-pain/ if you’re interested. Thanks again for keeping this in the conversation.

      Loading...
      Reply

Trackbacks

  1. What To Expect After Subtalar Fusion Surgery: A Patient's Perspective says:
    September 21, 2021 at 7:01 am

    […] Describing Pain Levels to a Doctor […]

    Loading...
    Reply
  2. What To Do When Chronic Pain Becomes Too Much says:
    December 27, 2021 at 11:23 am

    […] Guide: Rheumatoid Arthritis Flare Up, Describing Pain Levels to a Doctor, A Day in the Life of an Arthritis Patient, Why the Traditional Pain Scale Needs To […]

    Loading...
    Reply
  3. What's Chronic Pain? What You Should Know If You Love Someone with It says:
    May 17, 2022 at 7:01 am

    […] Describing Pain Levels to a Doctor […]

    Loading...
    Reply
  4. Why You Must Track Symptoms of Your Chronic Illness + Freebie To Help says:
    October 3, 2022 at 5:12 pm

    […] Page 1: Pain (1-10), 1 word to describe it – While I hate the 1-10 pain scale, it is how most doctors ask you to describe it. I’ve included 1 word to describe it so that you can be specific about the type of pain. A 5 that’s dull isn’t necessarily as bad as a 5 that’s sharp, for example. This is helpful because you can show a doctor what your pain is like on average over the course of a month or even just a week. Here are tips on how to describe your pain. […]

    Loading...
    Reply
  5. Do I Have a Chronic Illness? Tips for New Patients says:
    July 9, 2023 at 7:30 am

    […] in varying situations, understand. When it comes to doctors, for example, you need to be able to describe your pain in a way that they understand. Similarly, when it comes to teachers or school, you need to know the names of the laws that […]

    Loading...
    Reply
  6. How To Boost Blog Traffic in 2020 | Kate the (Almost) Great, Life + Health says:
    January 12, 2024 at 4:48 pm

    […] Describing Pain Levels to a Doctor […]

    Loading...
    Reply
  7. What's In My Tool Box for Dealing with Chronic Pain says:
    January 15, 2024 at 11:52 am

    […] Describing Pain Levels to a Doctor […]

    Loading...
    Reply
  8. What Is Endometriosis Like? An FAQ says:
    July 5, 2024 at 11:26 am

    […] Check out my tips for describing your pain to doctors here. […]

    Loading...
    Reply
  9. What No One Tells You About Autoimmune Diseases says:
    July 5, 2024 at 2:58 pm

    […] Check out my tips for describing your pain to doctors here. […]

    Loading...
    Reply
  10. What Is Considered a Chronic Illness? And Other Chronic Illness Basics says:
    July 5, 2024 at 3:00 pm

    […] Check out my tips for describing your pain to doctors here. […]

    Loading...
    Reply
  11. Can Chronic Pain Go Away? What You Should Know says:
    July 7, 2024 at 4:41 pm

    […] Check out my tips for describing your pain to doctors here. […]

    Loading...
    Reply
  12. Living Life with Chronic Illness: Common Problems & Their Solutions says:
    August 10, 2024 at 4:07 pm

    […] Describing Pain Levels to a Doctor […]

    Loading...
    Reply
  13. Living with Tarsal Coalition: My Experience says:
    September 7, 2024 at 9:13 am

    […] Describing Pain Levels to a Doctor […]

    Loading...
    Reply

Leave a ReplyCancel reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Primary Sidebar

Kate the (Almost) Great® is a chronic illness lifestyle blog. It is a resource for chronic illness patients and their loved ones.

  • Bluesky
  • Email
  • Facebook
  • Instagram
  • Pinterest
  • Twitter

Categories

Health
Lifestyle
Writing & Blogging

Pages To Start With

  • About Kate the (Almost) Great®: Meet the Health Blogger
  • As Seen On
  • Follow
  • Health Blog Resources I Actually Use + Recommend
  • Newsletter
  • Popular Posts
  • Privacy Policy & Disclaimer Policy
  • Products for the Chronically Ill: My Recommendations
  • Shop
  • Start Here
  • Tags & Topics
  • Work with Me

Search

As an Amazon Associate I earn from qualifying purchases.

This blog uses affiliate links. Thank you for supporting Kate the (Almost) Great!

Sign Up for the Newsletter

Please wait...

Thank you for sign up!


Bluehost.com Web Hosting $3.95

Health Union Patient Leader Certification

Support KTAG

If you like what I do, please support me on Ko-fi.




Footer

Sign Up for FREE Instagram Challenge

Get 25 FREE Instagram prompts for chronic health creators!

You can unsubscribe anytime. For more details, review our Privacy Policy.

Thank you!

You have successfully joined our subscriber list.

Get your FREE Instagram challenge here 

and 

For just $5 get your copy of my ebook Take Your Blog (And Income!) to the Next Level with code "greatest".

.

Kate the (Almost) Great

Chronic health lifestyle blog

Lets Go!
  • Facebook
  • Instagram
  • Pinterest
  • Twitter
Having decades-long health problems sometimes mean Having decades-long health problems sometimes means coming across something in your health history that you completely forgot about⁣
⁣
◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ID: Screenshot of a thread post written by Kate Mitchell | Kate the (Almost) Great with the username katethealmostgreat. ⁣⁣The background is dark teal. All text is what’s above the first black square.⁣⁣⁣
⁣
#AlmostGreatHealth #rheumatoidarthritis #arthritis #spoonielife #healthblogger #autoimmune #autoimmunedisease #chronicallyill #healthblog #dysautonomia #fibro #fibromyalgia #endo #chronicallyill #disability #disabled #invisibleillness #spoonielife #healthblogger
Here are some ways I practice self care, aka talki Here are some ways I practice self care, aka talking care of myself AND who I am as a person separate from illness⁣
⁣
This is my Wonderful Things jar. Every day, I write down something wonderful or good that happened that day. ⁣
⁣
I know it looks like I'm forcing Harley to sit like this, but he was making this face before I put my arm around him. Dog snuggle time is the best!⁣
⁣
I got a Kindle this year and it has been amazing. It's so much easier on my body than lugging around books and it makes borrowing from the library a lot easier.⁣
⁣
Yes, I share this all the time, but filling my pill boxes every 3 weeks make it so I stick with all of my medications. But the self-care part of this is that I don't have to take the time to refill a box every single week.⁣
⁣
◾⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
◾⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
IDs: ⁣
1️⃣ A glass jar on a desk with a lot of multi-color post-its inside⁣
2️⃣ Kate has her face in a golden retriever who is slumped onto her. They're in a teal room with a red rug. Kate is a brunette white woman wearing red pants and a gray sweater.⁣
3️⃣ A Kindle on dark mode in Kate's lap⁣
4️⃣ 3 open pill cases on a yellow bedspread ⁣
⁣
#AlmostGreatHealth #AlmostGreatLife #SelfCare #ChronicallyIll #ChronicallyAwesome #SpoonieLife #Spoonie #ChronicLife #ButYouDontLookSick #InvisibleIllness #MentalHealthMatters #RetrieversOfInstagram #Readers #Kindle #WonderfulThings #GratitudePractice
What I Bring To the Doctor _______ Video: a pa What I Bring To the Doctor 

_______ 

Video: a pan of an exam room. White text reads “What I Bring To the Doctor ” and the “1. Planner/notebook
2. List of current medications 
3. Notes on my biggest concerns and questions 
4. My kindle for wait time” 
The intro to Maroon 5’s Priceless plays. 

#AlmostGreatHealth #ChronicIllness #ChronicPain #RheumatoidArthritis #SjogrensSyndrome #Fibromyalgia #Endometriosis
💃🏼 Week 17 of #2025Weekly 💃🏼⁣
⁣
1️⃣ She’s married!! ⁣
2️⃣ She married the best person in the world for her!!!!!⁣
3️⃣ I got dressed up! ⁣
4️⃣ The reality of doing fun things with chronic illness and pain is that then you have to recover from the fun things. It took … a while. One million percent worth it, but this is why I don’t do big events on a regular basis. ⁣
5️⃣ And then I had to be a person again for an appointment!⁣
⁣
◾⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
◾⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
IDs: ⁣
1️⃣ Kate stands hugging Emmie. They're both white woman. Emmie is in a wedding dress and Kate is in a red dress and wearing round tortiseshell glasses.⁣
2️⃣ Kate and Emmie stand next to Matt, Emmie's husband. He is a white man.⁣
3️⃣ Kate takes a mirror selfie. she's in the same red dress but now also wears a jean jacket and holds a cane and mask.⁣
4️⃣ Kate takes a selfie while giving a thumbs up. She looks tired. She's now wearing a pink flowery dress. ⁣
5️⃣ Kate takes a mirror selfie. She's wearing black shorts, a gray shirt, a jean jacket, a blue mask, and black aviator sunglasses. She has a bag over her shoulder and holds a cane.⁣
⁣
#AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #InvisibleIllness #SpoonieLife #RheumatoidArthritis #RheumatoidDisease #Autoimmune #ButYouDontLookSick #AutoimmuneDisease #SpoonieLife #InvisibleIllness #DisabledAndCute
On the one hand, you should always believe what pe On the one hand, you should always believe what people tell you about their bodies.⁣
⁣
On the other hand, I’ve had so much ridiculous and unconnected health things happen that I do understand why people might not believe me.⁣
⁣
◾ ⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
◾ ⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ID: Screenshots of a thread posts written by Kate Mitchell | Kate the (Almost) Great with the username katethealmostgreat. ⁣⁣The background is dark teal. All text is what’s above the first black square.⁣⁣
⁣
#AlmostGreatHealth #ChronicallyIll #ChronicPain #Autoimmune #AutoimmuneDisease #RheumatoidArthritis #RheumatoidDisease #SpoonieLife #InvisibleIllness
Last week, I talked about how it surprised me how Last week, I talked about how it surprised me how systemic autoimmune arthritis can be. But something else that surprised me was how much pain can be caused by small things.⁣
⁣
In this picture, I was getting ready to have an MRI on my knee. It has been bothering me a fair amount the last 6+ months, so I'm trying to do something about that. ⁣
⁣
Unsurprisingly, some of the tissue is damaged, but it's not bad. What's probably causing it to bother me so much is a teeny tiny cyst. ⁣
⁣
Baker's cysts are a type of cyst in the knee that are generally caused by arthritis. But having a cyst in my knee means that it's causing pressure on that damaged tissue. ⁣
⁣
The body is a weird thing, and one of these weird things is developing tiny cysts that cause a lot of pain. ⁣
⁣
◾⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣
⁣
◾⁣⁣⁣⁣
⁣
ID: Kate takes a mirror selfie. She's a brunette white woman wearing a hospital gown, scrub bottoms, black mask, round tortoiseshell glasses, and round tortoiseshell glasses. ⁣
🌸 Week 16 of #2025Weekly 🌸 ⁣ ⁣ 1️⃣ S 🌸 Week 16 of #2025Weekly 🌸 ⁣
⁣
1️⃣ Spring has sprung … ⁣
2️⃣ … Which means I am overheating! ⁣
3️⃣ A quick view of NYC on my travels ⁣
⁣
◾⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
◾⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
IDs: ⁣
1️⃣ A flowering tree on a street ⁣
2️⃣ Kate takes a mirror selfie. She's a brunette white woman wearing a blue t-shirt saying "The Future Is Accessible," a black mask, a green hat reading "Facilities Management), black shorts, a black knee sleeve, and a black knee brace. She holds a pink cane.⁣
3️⃣ A picture of the New York City skyline behind a bridge.⁣
⁣
#AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #RheumatoidArthritis #SpoonieLife #Autoimmune #AutoimmuneDisease #ChronicPain #Arthritis #RheumatoidDisease #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #POTS #InvisibleIllness
If I met my newly diagnosed self for coffee ... ⁣
⁣
I tell her how things would get worse before they got better. ⁣
⁣
I'd tell her to stop eating gluten, dairy, corn, soy, and eggs immediately (although that would have been a lot harder in 2010, more than it even is now). ⁣
⁣
I'd tell her that she still needs to keep advocating for herself. ⁣
⁣
I'd tell her that having a diagnosis unfortunately doesn't mean everything automatically falls into place. ⁣
⁣
I'd tell her that she'll develop many more illnesses but her quality of life will actually get significantly better. ⁣
⁣
I'd tell her that she would eventually have to get her right foot fixed, although she does expect that.⁣
⁣
I'd tell her that using a cane is not a sign of failure, but a tool to make life better.⁣
⁣
(I did a sort of tongue-in-cheek post about this a while ago and thought I'd post a more serious one).⁣
⁣
◾ ⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
◾⁣
⁣
ID: Kate poses for the camera holding a mug with the letter M on it. Kate is a brunette white woman wearing a blue sweater and round tortoiseshell glasses. A white text box reads "If I met my newly diagnosed self for coffee ...". ⁣
⁣
#AlmostGreatHealth #RheumatoidArthritis #RheumatoidDisease #ChronicallyIll #Autoimmune #AutoimmuneDisease #AutoimmuneArthritis #Rheum #InvisibleIllness #Arthritis #ButYouDontLookSick #ArthritisWarrior #CureArthritis
The thing that surprised me the most about autoimm The thing that surprised me the most about autoimmune arthritis is how systemic it is. ⁣
⁣
Like with most things, it's one thing to know the fact and it's something else to experience it. ⁣
⁣
Yes, my joints are affected (a lot). ⁣
⁣
But I've had enough serious infections thats I have to see an immunologist because we need to be aware of my antibodies and I sometimes need help recovering from illnesses. ⁣
⁣
And, yes, I see pulmonology because of my asthma, but we also have to keep an eye out on developing rheumatoid nodules in my lungs. (So far so good!)⁣
⁣
Not to mention that, when I developed POTS, the hospital admitted me to run every heart test to make sure that, at 26, I wasn't experiencing heart failure. ⁣
⁣
Plus, when I developed endometriosis, I also went through a number of GI tests because one theory was that I had ulcerative colitis. ⁣
⁣
Anyway, RA is so much more than "just" joints. If it wasn't, I wouldn't have to kill my immune system every 3 months like I am in this picture.⁣
⁣
◾⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣
⁣
◾⁣⁣⁣⁣
⁣
ID: Kate takes a selfie in an infusion chair. She is a brunette white woman wearing a Boston Red Sox shirt, blue mask, and round tortoiseshell glasses.⁣⁣
⁣
#AlmostGreatHealth #RheumatoidArthritis #RheumatoidDisease #Rheum #Autoimmune #AutoimmuneDisease #InvisibleIllness #ButYouDontLookSick #Sjogrens #SjogrensSyndrome #POTS #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia
Follow on Instagram

Copyright © 2025 · Kate the (Almost) Great · Design by Studio Mommy

%d