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in Health · January 9, 2017

Preparing for Chronic Pain Medical Appointments + Printables To Help

Regardless of what causes your chronic pain, the thing that we all have in common is a large number of medical appointments. But with everything going on in our lives and our health, it’s so easy to forget something at these appointments that might be important. Since I have anywhere from one to four medical appointments a week due to a large number of specialists for the many aspects of my pain, so I’ve gotten pretty good as preparing for appointments, and I’m sharing my expertise with you in this post and with 2 free printables. Ones help you brainstorm important topics for your appointment, and the other enables you to hold all of your medical information in one document.

If you have chronic pain, you're probably used to medical appointments. Ever wish you could make them easier? Here's exactly how you can do that, and there are even 2 free printable downloads that will help you do that!

What To Do: Before your appointment, you want to think about what you want to bring up. How has your pain been recently? How is that different compared to your last appointment? Essentially, you want to brainstorm everything important before the actual appointment, as then it will be easy to forget something. You should also figure out what your other doctors have said that the one you’re going to see should know. Even if your medical team has communicated with each other, that doesn’t mean that they do it regularly. For example, if you have rheumatoid arthritis, your orthopedic specialist (let’s say a knee doctor) will want to know what your rheumatologist has to say about your knee and your health overall, and they’ll also want to know what your physical therapist thinks. Even if your doctor has the other specialists’ notes pulled up before the appointment, it will help to have what your own notes of what they have said during your appointments with them. Sometimes the notes they give to one another differ from the things they say to you, or the things they say to you will create questions for the specialist you’re seeing, so it will help if you think back over other appointments you’ve had before you go to your next one.

What To Bring: Always make sure you have an updated list of the medications you’re on, as well as the doses. If you scroll down, you can download a blank copy of the form that I use! (I also keep a copy of it in my wallet at all times in case there’s ever an emergency.) You should also be sure that you don’t forget anything by bringing your questions with you! Write them down so you don’t forget them when you’re actually in the appointment. This also includes any questions or concerns from anyone close to you who won’t be with you. For example, before my appointments, I ask my parents if there’s anything they want me to bring up.

What Your Doctor Needs To Know: They need to know of anything different, which could mean a variety of things. This could be more of one symptom, less of another, an entirely new symptom, or one that is gone. They also need to know the ways that your pain is affecting your life. Are you unable to do a task that you used to do? Are you having trouble sleeping more often than not? It will also help if they know what your pain feels like. While saying that it’s strong is somewhat helpful, it will help more if you use specific terms: sharp, dull, aching, burning, etc. Often, these words mean different things to doctors than they do to patients, or at least they help your doctor understand you better. Saying that your pain is “bad” or “strong” is only helpful if your doctor knows what that means to you.

Need some help getting organized for your appointments? Check out these two free downloads to help:

What I Want To Tell My Doctors – organize your thoughts in a sheet to bring with you to your appointment | My Medical Information – put all of your medication and family history in one page

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Meghan Capps says

    January 9, 2017 at 11:00 am

    Great point about keeping an updated medical list with you at all times! I worked in an ER for a while and that was incredibly helpful to the doctors.

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    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      That’s what I hear all the time! It makes all of our lives easier.

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      Reply
  2. Rebecca @ Strength & Sunshine says

    January 9, 2017 at 3:55 pm

    Keeping updated info actually written down is so helpful!

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    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      Yes! Especially since I’m on so many medications that I always forget something haha

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  3. Bonnie McConaughy says

    January 10, 2017 at 12:44 am

    Thanks for the tips! I never know what to mention, and sometimes the doctors don’t know what to ask. They might have a good direction but then their questions don’t yield much that is actually helpful for them to help me. I do need to focus on that on my end a bit more, but I spend so much time trying to ignore my pain so I can live a halfway normal life that it’s hard to put it to words. I saved the printable sheets, thanks for those! They will be helpful!

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    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      You’re so welcome! I hope that they help!

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      Reply

Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Pain and Cold Weather: Dealing with Chronic Pain this Winter says:
    March 31, 2017 at 4:07 pm

    […] Preparing for Chronic Pain Medical Appointments + Free Printable To Help, 10 Tips To Manage Your Chronic Pain This Summer, Chronic Pain and God […]

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  2. Kate the (Almost) Great | Boston Lifestyle Blog - How To Ensure You're Getting the Best Medical Care Possible - Kate the (Almost) Great | Boston Lifestyle Blog says:
    May 4, 2017 at 10:43 am

    […] medical questions that professionals should ask either directly or on intake forms – such as the ones mentioned here – but not all professionals do. Do yourself a favor and have the answers to these questions […]

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Having decades-long health problems sometimes mean Having decades-long health problems sometimes means coming across something in your health history that you completely forgot about⁣
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Here are some ways I practice self care, aka talki Here are some ways I practice self care, aka talking care of myself AND who I am as a person separate from illness⁣
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What I Bring To the Doctor _______ Video: a pa What I Bring To the Doctor 

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Video: a pan of an exam room. White text reads “What I Bring To the Doctor ” and the “1. Planner/notebook
2. List of current medications 
3. Notes on my biggest concerns and questions 
4. My kindle for wait time” 
The intro to Maroon 5’s Priceless plays. 

#AlmostGreatHealth #ChronicIllness #ChronicPain #RheumatoidArthritis #SjogrensSyndrome #Fibromyalgia #Endometriosis
💃🏼 Week 17 of #2025Weekly 💃🏼⁣
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1️⃣ She’s married!! ⁣
2️⃣ She married the best person in the world for her!!!!!⁣
3️⃣ I got dressed up! ⁣
4️⃣ The reality of doing fun things with chronic illness and pain is that then you have to recover from the fun things. It took … a while. One million percent worth it, but this is why I don’t do big events on a regular basis. ⁣
5️⃣ And then I had to be a person again for an appointment!⁣
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3️⃣ Kate takes a mirror selfie. she's in the same red dress but now also wears a jean jacket and holds a cane and mask.⁣
4️⃣ Kate takes a selfie while giving a thumbs up. She looks tired. She's now wearing a pink flowery dress. ⁣
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On the one hand, you should always believe what pe On the one hand, you should always believe what people tell you about their bodies.⁣
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On the other hand, I’ve had so much ridiculous and unconnected health things happen that I do understand why people might not believe me.⁣
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Last week, I talked about how it surprised me how Last week, I talked about how it surprised me how systemic autoimmune arthritis can be. But something else that surprised me was how much pain can be caused by small things.⁣
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In this picture, I was getting ready to have an MRI on my knee. It has been bothering me a fair amount the last 6+ months, so I'm trying to do something about that. ⁣
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Unsurprisingly, some of the tissue is damaged, but it's not bad. What's probably causing it to bother me so much is a teeny tiny cyst. ⁣
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Baker's cysts are a type of cyst in the knee that are generally caused by arthritis. But having a cyst in my knee means that it's causing pressure on that damaged tissue. ⁣
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The body is a weird thing, and one of these weird things is developing tiny cysts that cause a lot of pain. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣
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🌸 Week 16 of #2025Weekly 🌸 ⁣ ⁣ 1️⃣ S 🌸 Week 16 of #2025Weekly 🌸 ⁣
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1️⃣ Spring has sprung … ⁣
2️⃣ … Which means I am overheating! ⁣
3️⃣ A quick view of NYC on my travels ⁣
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If I met my newly diagnosed self for coffee ... ⁣
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I tell her how things would get worse before they got better. ⁣
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I'd tell her to stop eating gluten, dairy, corn, soy, and eggs immediately (although that would have been a lot harder in 2010, more than it even is now). ⁣
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I'd tell her that she still needs to keep advocating for herself. ⁣
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I'd tell her that having a diagnosis unfortunately doesn't mean everything automatically falls into place. ⁣
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I'd tell her that she'll develop many more illnesses but her quality of life will actually get significantly better. ⁣
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I'd tell her that she would eventually have to get her right foot fixed, although she does expect that.⁣
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I'd tell her that using a cane is not a sign of failure, but a tool to make life better.⁣
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(I did a sort of tongue-in-cheek post about this a while ago and thought I'd post a more serious one).⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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The thing that surprised me the most about autoimm The thing that surprised me the most about autoimmune arthritis is how systemic it is. ⁣
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Like with most things, it's one thing to know the fact and it's something else to experience it. ⁣
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Yes, my joints are affected (a lot). ⁣
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But I've had enough serious infections thats I have to see an immunologist because we need to be aware of my antibodies and I sometimes need help recovering from illnesses. ⁣
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And, yes, I see pulmonology because of my asthma, but we also have to keep an eye out on developing rheumatoid nodules in my lungs. (So far so good!)⁣
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Not to mention that, when I developed POTS, the hospital admitted me to run every heart test to make sure that, at 26, I wasn't experiencing heart failure. ⁣
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Plus, when I developed endometriosis, I also went through a number of GI tests because one theory was that I had ulcerative colitis. ⁣
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Anyway, RA is so much more than "just" joints. If it wasn't, I wouldn't have to kill my immune system every 3 months like I am in this picture.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣
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