• Skip to main content
  • Skip to primary sidebar
  • Skip to footer

Kate the (Almost) Great

Chronic illness blog

  • Home
  • Start Here
    • About
    • As Seen On
    • Tags & Topics
    • Popular Posts
  • Blogging Resources
  • Freebie
  • Shop the Blog
    • Products for the Chronically Ill
  • Contact & Work with Me
    • Ads and Sponsoring
  • Follow
  • Holiday
    • Gift Guides

in Health &middot January 9, 2017

Preparing for Chronic Pain Medical Appointments + Printables To Help

Regardless of what causes your chronic pain, the thing that we all have in common is a large number of medical appointments. But with everything going on in our lives and our health, it’s so easy to forget something at these appointments that might be important. Since I have anywhere from one to four medical appointments a week due to a large number of specialists for the many aspects of my pain, so I’ve gotten pretty good as preparing for appointments, and I’m sharing my expertise with you in this post and with 2 free printables. Ones help you brainstorm important topics for your appointment, and the other enables you to hold all of your medical information in one document.

If you have chronic pain, you're probably used to medical appointments. Ever wish you could make them easier? Here's exactly how you can do that, and there are even 2 free printable downloads that will help you do that!

What To Do: Before your appointment, you want to think about what you want to bring up. How has your pain been recently? How is that different compared to your last appointment? Essentially, you want to brainstorm everything important before the actual appointment, as then it will be easy to forget something. You should also figure out what your other doctors have said that the one you’re going to see should know. Even if your medical team has communicated with each other, that doesn’t mean that they do it regularly. For example, if you have rheumatoid arthritis, your orthopedic specialist (let’s say a knee doctor) will want to know what your rheumatologist has to say about your knee and your health overall, and they’ll also want to know what your physical therapist thinks. Even if your doctor has the other specialists’ notes pulled up before the appointment, it will help to have what your own notes of what they have said during your appointments with them. Sometimes the notes they give to one another differ from the things they say to you, or the things they say to you will create questions for the specialist you’re seeing, so it will help if you think back over other appointments you’ve had before you go to your next one.

What To Bring: Always make sure you have an updated list of the medications you’re on, as well as the doses. If you scroll down, you can download a blank copy of the form that I use! (I also keep a copy of it in my wallet at all times in case there’s ever an emergency.) You should also be sure that you don’t forget anything by bringing your questions with you! Write them down so you don’t forget them when you’re actually in the appointment. This also includes any questions or concerns from anyone close to you who won’t be with you. For example, before my appointments, I ask my parents if there’s anything they want me to bring up.

What Your Doctor Needs To Know: They need to know of anything different, which could mean a variety of things. This could be more of one symptom, less of another, an entirely new symptom, or one that is gone. They also need to know the ways that your pain is affecting your life. Are you unable to do a task that you used to do? Are you having trouble sleeping more often than not? It will also help if they know what your pain feels like. While saying that it’s strong is somewhat helpful, it will help more if you use specific terms: sharp, dull, aching, burning, etc. Often, these words mean different things to doctors than they do to patients, or at least they help your doctor understand you better. Saying that your pain is “bad” or “strong” is only helpful if your doctor knows what that means to you.

Need some help getting organized for your appointments? Check out these two free downloads to help:

What I Want To Tell My Doctors – organize your thoughts in a sheet to bring with you to your appointment | My Medical Information – put all of your medication and family history in one page

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

Share this with your family and friends:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Email a link to a friend (Opens in new window) Email
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Print (Opens in new window) Print
  • Share on Tumblr (Opens in new window) Tumblr

Related

Previous Post: « Winter Beauty Staples
Next Post: How To Succeed in College: Getting Set for a Great Semester »

Reader Interactions

Comments

  1. Meghan Capps says

    January 9, 2017 at 11:00 am

    Great point about keeping an updated medical list with you at all times! I worked in an ER for a while and that was incredibly helpful to the doctors.

    Loading...
    Reply
    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      That’s what I hear all the time! It makes all of our lives easier.

      Loading...
      Reply
  2. Rebecca @ Strength & Sunshine says

    January 9, 2017 at 3:55 pm

    Keeping updated info actually written down is so helpful!

    Loading...
    Reply
    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      Yes! Especially since I’m on so many medications that I always forget something haha

      Loading...
      Reply
  3. Bonnie McConaughy says

    January 10, 2017 at 12:44 am

    Thanks for the tips! I never know what to mention, and sometimes the doctors don’t know what to ask. They might have a good direction but then their questions don’t yield much that is actually helpful for them to help me. I do need to focus on that on my end a bit more, but I spend so much time trying to ignore my pain so I can live a halfway normal life that it’s hard to put it to words. I saved the printable sheets, thanks for those! They will be helpful!

    Loading...
    Reply
    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      You’re so welcome! I hope that they help!

      Loading...
      Reply

Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Pain and Cold Weather: Dealing with Chronic Pain this Winter says:
    March 31, 2017 at 4:07 pm

    […] Preparing for Chronic Pain Medical Appointments + Free Printable To Help, 10 Tips To Manage Your Chronic Pain This Summer, Chronic Pain and God […]

    Loading...
    Reply
  2. Kate the (Almost) Great | Boston Lifestyle Blog - How To Ensure You're Getting the Best Medical Care Possible - Kate the (Almost) Great | Boston Lifestyle Blog says:
    May 4, 2017 at 10:43 am

    […] medical questions that professionals should ask either directly or on intake forms – such as the ones mentioned here – but not all professionals do. Do yourself a favor and have the answers to these questions […]

    Loading...
    Reply
  3. Kate the (Almost) Great | Boston Lifestyle Blog - Endometriosis: The Disease Women Aren't Talking About says:
    May 23, 2018 at 9:12 am

    […] So You Were Diagnosed with a Chronic Illness: What You Should Do Next, Why the Traditional Pain Scale Needs To Go, Preparing for Chronic Pain Medical Appointments + Free Printables […]

    Loading...
    Reply
  4. Kate the (Almost) Great | Boston Lifestyle Blog - Chronically Ill Tips: Preparing for Medical Appointments + Freebies To Help says:
    July 20, 2018 at 7:31 am

    […] Preparing for Chronic Pain Medical Appointments, Answering Questions about Being Chronically Ill, Hacks for Living with Chronic Conditions, 5 Items Every Immunosuppressed Person Needs […]

    Loading...
    Reply
  5. Chronic Pain And Loving Someone with It says:
    October 11, 2022 at 5:29 pm

    […] Preparing for Chronic Pain Medial Appointments + Free Printables To Help, Pain and Cold Weather: Preparing for Chronic Pain this Winter, Managing Your Chronic Pain this Summer, Relationships and Chronic Pain […]

    Loading...
    Reply
  6. Chronic Illness Advice: Resources for the Newly-Diagnosed Patient says:
    January 11, 2024 at 7:16 am

    […] Preparing for Chronic Pain Medial Appointments + Printables To Help […]

    Loading...
    Reply
  7. Resources for the Freshly-Diagnosed Chronic Illness Patient - Kate the (Almost) Great says:
    May 9, 2025 at 11:59 am

    […] Preparing for Chronic Pain Medical Appointments + Free Printables To Help […]

    Loading...
    Reply

Leave a ReplyCancel reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Primary Sidebar

Kate the (Almost) Great® is a chronic illness lifestyle blog. It is a resource for chronic illness patients and their loved ones.

  • Bluesky
  • Email
  • Facebook
  • Instagram
  • Pinterest
  • Threads
  • TikTok
  • Twitter

Categories

Health
Lifestyle
Writing & Blogging

Pages To Start With

  • About Kate the (Almost) Great®: Meet the Health Blogger
  • As Seen On
  • Contact & Work with Me
  • Follow
  • Health Blog Resources I Actually Use + Recommend
  • Newsletter
  • Popular Posts
  • Privacy Policy & Disclaimer Policy
  • Products for the Chronically Ill: My Recommendations
  • Shop
  • Start Here
  • Tags & Topics

Search

As an Amazon Associate I earn from qualifying purchases.

This blog uses affiliate links. Thank you for supporting Kate the (Almost) Great!

Sign Up for the Newsletter

Please wait...

Thank you for sign up!

Most Popular Posts

  • 9 Arthritis Products That Help My Rheumatoid Arthritis
  • Seronegative Rheumatoid Arthritis Diagnosis: What I’ve Learned
  • Beginner’s Guide: Rheumatoid Arthritis Flare Up
  • What Sjögren’s Syndrome Is: A Beginner’s Guide
  • What Does Arthritis Pain Actually Feel Like?
  • What Is the Difference between Osteoarthritis and Rheumatoid Arthritis?
  • The Lifestyle Changes I Made for My Rheumatoid Arthritis
  • The Products I Loved (And Wanted) in Grad School
  • What Every POTS Syndrome Patient Needs for the Summer


Bluehost.com Web Hosting $3.95

Health Union Patient Leader Certification

Support KTAG

If you like what I do, please support me on Ko-fi.




Footer

Sign Up for FREE Instagram Challenge

Get 25 FREE Instagram prompts for chronic health creators!

You can unsubscribe anytime. For more details, review our Privacy Policy.

Thank you!

You have successfully joined our subscriber list.

Get your FREE Instagram challenge here 

and 

For just $5 get your copy of my ebook Take Your Blog (And Income!) to the Next Level with code "greatest".

.

Kate the (Almost) Great

Chronic health lifestyle blog

Lets Go!
  • Facebook
  • Instagram
  • Pinterest
  • Twitter
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
⁣
I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
⁣
This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
⁣
I can finish my treatment and then go about my day, which I'm very grateful for.⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
⁣
ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
⁣
#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

⬛⁣

IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
Week 22 of 2026 Weekly 1️⃣ Off to see my foot doc Week 22 of 2026 Weekly

1️⃣ Off to see my foot doc … and my foot is healing! Yay!
2️⃣ A very cool notification to get!
3️⃣ This is 35 🎂
4️⃣ Featuring Harley snuggles 
5️⃣ And then it was my mom’s birthday! 
6️⃣ With Harley again 

ID: 
1️⃣ Kate takes a mirror selfie 
2️⃣ a notification from WordPress saying “Receive views from 150+ counties. The United Nations has nothing on you!”
3️⃣ Kate smiles for the camera in a cafe 
4️⃣ Kate in the same outfit with Harley the golden retriever on her lap. 
5️⃣ Kate’s mom smiling in a restaurant 
6️⃣ Kate with Harley again 

#GoldenRetrieversOfInstagram #ChronicallyIll #ChronicPain #InvisibleIllness
Lifestyle Changes I Made for My Rheumatoid Arthrit Lifestyle Changes I Made for My Rheumatoid Arthritis⁣
⁣
While these are not my treatments, they have made my life better in some ways. ⁣
⁣
What lifestyle changes have you made, for RA or another condition?⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
IDs: ⁣
A series of pictures. Each has a text box on them related to the picture. ⁣
⁣
1️⃣ Lifestyle changes I made for my rheumatoid arthritis⁣
2️⃣ Wearing a mask⁣
3️⃣ Using a cane⁣
4️⃣ Changing my diet⁣
5️⃣ Working from home⁣
⁣
#ChronicIllness #RheumatoidArthritis #AutoimmuneDisease #Arthritis #ChronicallyIll
What helps you mentally get through a tough time?⁣ What helps you mentally get through a tough time?⁣
⁣
I'm struggling right now with my broken foot, which brings back a lot of tough memories. That plus being due for Rituxan and the heat starting up has made things hard. ⁣
⁣
Here are somethings I do: ⁣
▪ Stick with my routine⁣
▪ Make recipes that I really enjoy⁣
▪ Work on embroidery projects so I can do something productive that involves stabbing fabric⁣
▪ Cut myself slack ⁣
▪ Get Harley hugs⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
ID: Kate and Harley the golden retriever hugging. Kate is a redheaded white woman wearing a black dress, pink sweater, and round pink glasses.⁣
⁣
#GoldenRetrievers #RheumatoidArthritis #Fibromyalgia #POTS #SjogrensSyndrome
Week 21 of 2026 Weekly 1️⃣ First real cross-stit Week 21 of 2026 Weekly 

1️⃣ First real cross-stitch project: done! 
2️⃣ The magic machine that is hopefully healing my broken foot 
3️⃣ When your 2 refrigerated medications are delivered on the same day

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛

1️⃣ A completed cross-stitch project, which shows 2 bears walking past a lake, trees, and mountains.
2️⃣ An Exogen machine showing use 13 days in a row
3️⃣ A couple of styrofoam refridgerated containers for medication

#ChronicallyIll #CrossStitch #RheumatoidArthritis #SjogrensSyndrome #IVIG
You guessed it, I'm one of that 25%. ⁣ ⁣ May is Ar You guessed it, I'm one of that 25%. ⁣
⁣
May is Arthritis Awareness Month. Like, comment, and share to spread awareness 💖⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
You only have rheumatoid arthritis if your rheumatoid factor tests positive.⁣
Fact⁣
As many as 25% of RA patients test negative, which is called being seronegative.⁣
katethealmostgreat
Things are tough (all over pain, heat with POTS, i Things are tough (all over pain, heat with POTS, in a walking cast waiting to see if I need my 6th foot surgery), but so am I.⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
⁣
ID: Kate takes a selfie. She's a white woman with auburn hair wearing a navy-based floral dress, green glasses, and silver Celtic knot necklace.⁣
⁣
#RheumatoidArthritis #POTS #POTSie #AutoimmuneDisease #ChronicallyIll
Week 20 of #2026Weekly 1️⃣ IVIG + Kindle reading Week 20 of #2026Weekly 

1️⃣ IVIG + Kindle reading 
2️⃣ Almost done!!!!!

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛ 

IDs: 
1️⃣ Infusion tubes coming out from under her shirt. There’s a Kindle on her lap.
2️⃣ An almost-finished cross-stitch project

#IVIG #ChronicallyIll #CrossStitcher #CrossStitchersOfInstagram
Follow on Instagram

Copyright © 2026 · Kate the (Almost) Great · Design by Studio Mommy

%d