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in Health &middot January 9, 2017

Preparing for Chronic Pain Medical Appointments + Printables To Help

Regardless of what causes your chronic pain, the thing that we all have in common is a large number of medical appointments. But with everything going on in our lives and our health, it’s so easy to forget something at these appointments that might be important. Since I have anywhere from one to four medical appointments a week due to a large number of specialists for the many aspects of my pain, so I’ve gotten pretty good as preparing for appointments, and I’m sharing my expertise with you in this post and with 2 free printables. Ones help you brainstorm important topics for your appointment, and the other enables you to hold all of your medical information in one document.

If you have chronic pain, you're probably used to medical appointments. Ever wish you could make them easier? Here's exactly how you can do that, and there are even 2 free printable downloads that will help you do that!

What To Do: Before your appointment, you want to think about what you want to bring up. How has your pain been recently? How is that different compared to your last appointment? Essentially, you want to brainstorm everything important before the actual appointment, as then it will be easy to forget something. You should also figure out what your other doctors have said that the one you’re going to see should know. Even if your medical team has communicated with each other, that doesn’t mean that they do it regularly. For example, if you have rheumatoid arthritis, your orthopedic specialist (let’s say a knee doctor) will want to know what your rheumatologist has to say about your knee and your health overall, and they’ll also want to know what your physical therapist thinks. Even if your doctor has the other specialists’ notes pulled up before the appointment, it will help to have what your own notes of what they have said during your appointments with them. Sometimes the notes they give to one another differ from the things they say to you, or the things they say to you will create questions for the specialist you’re seeing, so it will help if you think back over other appointments you’ve had before you go to your next one.

What To Bring: Always make sure you have an updated list of the medications you’re on, as well as the doses. If you scroll down, you can download a blank copy of the form that I use! (I also keep a copy of it in my wallet at all times in case there’s ever an emergency.) You should also be sure that you don’t forget anything by bringing your questions with you! Write them down so you don’t forget them when you’re actually in the appointment. This also includes any questions or concerns from anyone close to you who won’t be with you. For example, before my appointments, I ask my parents if there’s anything they want me to bring up.

What Your Doctor Needs To Know: They need to know of anything different, which could mean a variety of things. This could be more of one symptom, less of another, an entirely new symptom, or one that is gone. They also need to know the ways that your pain is affecting your life. Are you unable to do a task that you used to do? Are you having trouble sleeping more often than not? It will also help if they know what your pain feels like. While saying that it’s strong is somewhat helpful, it will help more if you use specific terms: sharp, dull, aching, burning, etc. Often, these words mean different things to doctors than they do to patients, or at least they help your doctor understand you better. Saying that your pain is “bad” or “strong” is only helpful if your doctor knows what that means to you.

Need some help getting organized for your appointments? Check out these two free downloads to help:

What I Want To Tell My Doctors – organize your thoughts in a sheet to bring with you to your appointment | My Medical Information – put all of your medication and family history in one page

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Meghan Capps says

    January 9, 2017 at 11:00 am

    Great point about keeping an updated medical list with you at all times! I worked in an ER for a while and that was incredibly helpful to the doctors.

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    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      That’s what I hear all the time! It makes all of our lives easier.

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  2. Rebecca @ Strength & Sunshine says

    January 9, 2017 at 3:55 pm

    Keeping updated info actually written down is so helpful!

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    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      Yes! Especially since I’m on so many medications that I always forget something haha

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  3. Bonnie McConaughy says

    January 10, 2017 at 12:44 am

    Thanks for the tips! I never know what to mention, and sometimes the doctors don’t know what to ask. They might have a good direction but then their questions don’t yield much that is actually helpful for them to help me. I do need to focus on that on my end a bit more, but I spend so much time trying to ignore my pain so I can live a halfway normal life that it’s hard to put it to words. I saved the printable sheets, thanks for those! They will be helpful!

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    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      You’re so welcome! I hope that they help!

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      Reply

Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Pain and Cold Weather: Dealing with Chronic Pain this Winter says:
    March 31, 2017 at 4:07 pm

    […] Preparing for Chronic Pain Medical Appointments + Free Printable To Help, 10 Tips To Manage Your Chronic Pain This Summer, Chronic Pain and God […]

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  2. Kate the (Almost) Great | Boston Lifestyle Blog - How To Ensure You're Getting the Best Medical Care Possible - Kate the (Almost) Great | Boston Lifestyle Blog says:
    May 4, 2017 at 10:43 am

    […] medical questions that professionals should ask either directly or on intake forms – such as the ones mentioned here – but not all professionals do. Do yourself a favor and have the answers to these questions […]

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

⬛⁣

IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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