• Skip to main content
  • Skip to primary sidebar
  • Skip to footer

Kate the (Almost) Great

Chronic illness blog

  • Home
  • Start Here
    • About
    • As Seen On
    • Tags & Topics
    • Popular Posts
  • Blogging Resources
  • Freebie
  • Shop the Blog
    • Products for the Chronically Ill
  • Contact & Work with Me
    • Ads and Sponsoring
  • Follow
  • Holiday
    • Gift Guides

in Health &middot January 9, 2017

Preparing for Chronic Pain Medical Appointments + Printables To Help

Regardless of what causes your chronic pain, the thing that we all have in common is a large number of medical appointments. But with everything going on in our lives and our health, it’s so easy to forget something at these appointments that might be important. Since I have anywhere from one to four medical appointments a week due to a large number of specialists for the many aspects of my pain, so I’ve gotten pretty good as preparing for appointments, and I’m sharing my expertise with you in this post and with 2 free printables. Ones help you brainstorm important topics for your appointment, and the other enables you to hold all of your medical information in one document.

If you have chronic pain, you're probably used to medical appointments. Ever wish you could make them easier? Here's exactly how you can do that, and there are even 2 free printable downloads that will help you do that!

What To Do: Before your appointment, you want to think about what you want to bring up. How has your pain been recently? How is that different compared to your last appointment? Essentially, you want to brainstorm everything important before the actual appointment, as then it will be easy to forget something. You should also figure out what your other doctors have said that the one you’re going to see should know. Even if your medical team has communicated with each other, that doesn’t mean that they do it regularly. For example, if you have rheumatoid arthritis, your orthopedic specialist (let’s say a knee doctor) will want to know what your rheumatologist has to say about your knee and your health overall, and they’ll also want to know what your physical therapist thinks. Even if your doctor has the other specialists’ notes pulled up before the appointment, it will help to have what your own notes of what they have said during your appointments with them. Sometimes the notes they give to one another differ from the things they say to you, or the things they say to you will create questions for the specialist you’re seeing, so it will help if you think back over other appointments you’ve had before you go to your next one.

What To Bring: Always make sure you have an updated list of the medications you’re on, as well as the doses. If you scroll down, you can download a blank copy of the form that I use! (I also keep a copy of it in my wallet at all times in case there’s ever an emergency.) You should also be sure that you don’t forget anything by bringing your questions with you! Write them down so you don’t forget them when you’re actually in the appointment. This also includes any questions or concerns from anyone close to you who won’t be with you. For example, before my appointments, I ask my parents if there’s anything they want me to bring up.

What Your Doctor Needs To Know: They need to know of anything different, which could mean a variety of things. This could be more of one symptom, less of another, an entirely new symptom, or one that is gone. They also need to know the ways that your pain is affecting your life. Are you unable to do a task that you used to do? Are you having trouble sleeping more often than not? It will also help if they know what your pain feels like. While saying that it’s strong is somewhat helpful, it will help more if you use specific terms: sharp, dull, aching, burning, etc. Often, these words mean different things to doctors than they do to patients, or at least they help your doctor understand you better. Saying that your pain is “bad” or “strong” is only helpful if your doctor knows what that means to you.

Need some help getting organized for your appointments? Check out these two free downloads to help:

What I Want To Tell My Doctors – organize your thoughts in a sheet to bring with you to your appointment | My Medical Information – put all of your medication and family history in one page

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

Share this with your family and friends:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Email a link to a friend (Opens in new window) Email
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Print (Opens in new window) Print
  • Share on Tumblr (Opens in new window) Tumblr

Related

Previous Post: « Winter Beauty Staples
Next Post: How To Succeed in College: Getting Set for a Great Semester »

Reader Interactions

Comments

  1. Meghan Capps says

    January 9, 2017 at 11:00 am

    Great point about keeping an updated medical list with you at all times! I worked in an ER for a while and that was incredibly helpful to the doctors.

    Loading...
    Reply
    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      That’s what I hear all the time! It makes all of our lives easier.

      Loading...
      Reply
  2. Rebecca @ Strength & Sunshine says

    January 9, 2017 at 3:55 pm

    Keeping updated info actually written down is so helpful!

    Loading...
    Reply
    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      Yes! Especially since I’m on so many medications that I always forget something haha

      Loading...
      Reply
  3. Bonnie McConaughy says

    January 10, 2017 at 12:44 am

    Thanks for the tips! I never know what to mention, and sometimes the doctors don’t know what to ask. They might have a good direction but then their questions don’t yield much that is actually helpful for them to help me. I do need to focus on that on my end a bit more, but I spend so much time trying to ignore my pain so I can live a halfway normal life that it’s hard to put it to words. I saved the printable sheets, thanks for those! They will be helpful!

    Loading...
    Reply
    • Kate Mitchell says

      February 4, 2017 at 8:57 am

      You’re so welcome! I hope that they help!

      Loading...
      Reply

Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Pain and Cold Weather: Dealing with Chronic Pain this Winter says:
    March 31, 2017 at 4:07 pm

    […] Preparing for Chronic Pain Medical Appointments + Free Printable To Help, 10 Tips To Manage Your Chronic Pain This Summer, Chronic Pain and God […]

    Loading...
    Reply
  2. Kate the (Almost) Great | Boston Lifestyle Blog - How To Ensure You're Getting the Best Medical Care Possible - Kate the (Almost) Great | Boston Lifestyle Blog says:
    May 4, 2017 at 10:43 am

    […] medical questions that professionals should ask either directly or on intake forms – such as the ones mentioned here – but not all professionals do. Do yourself a favor and have the answers to these questions […]

    Loading...
    Reply
  3. Kate the (Almost) Great | Boston Lifestyle Blog - Endometriosis: The Disease Women Aren't Talking About says:
    May 23, 2018 at 9:12 am

    […] So You Were Diagnosed with a Chronic Illness: What You Should Do Next, Why the Traditional Pain Scale Needs To Go, Preparing for Chronic Pain Medical Appointments + Free Printables […]

    Loading...
    Reply
  4. Kate the (Almost) Great | Boston Lifestyle Blog - Chronically Ill Tips: Preparing for Medical Appointments + Freebies To Help says:
    July 20, 2018 at 7:31 am

    […] Preparing for Chronic Pain Medical Appointments, Answering Questions about Being Chronically Ill, Hacks for Living with Chronic Conditions, 5 Items Every Immunosuppressed Person Needs […]

    Loading...
    Reply
  5. Chronic Pain And Loving Someone with It says:
    October 11, 2022 at 5:29 pm

    […] Preparing for Chronic Pain Medial Appointments + Free Printables To Help, Pain and Cold Weather: Preparing for Chronic Pain this Winter, Managing Your Chronic Pain this Summer, Relationships and Chronic Pain […]

    Loading...
    Reply
  6. Chronic Illness Advice: Resources for the Newly-Diagnosed Patient says:
    January 11, 2024 at 7:16 am

    […] Preparing for Chronic Pain Medial Appointments + Printables To Help […]

    Loading...
    Reply
  7. Resources for the Freshly-Diagnosed Chronic Illness Patient - Kate the (Almost) Great says:
    May 9, 2025 at 11:59 am

    […] Preparing for Chronic Pain Medical Appointments + Free Printables To Help […]

    Loading...
    Reply

Leave a ReplyCancel reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Primary Sidebar

Kate the (Almost) Great® is a chronic illness lifestyle blog. It is a resource for chronic illness patients and their loved ones.

  • Bluesky
  • Email
  • Facebook
  • Instagram
  • Pinterest
  • Threads
  • TikTok
  • Twitter

Categories

Health
Lifestyle
Writing & Blogging

Pages To Start With

  • About Kate the (Almost) Great®: Meet the Health Blogger
  • As Seen On
  • Contact & Work with Me
  • Follow
  • Health Blog Resources I Actually Use + Recommend
  • Newsletter
  • Popular Posts
  • Privacy Policy & Disclaimer Policy
  • Products for the Chronically Ill: My Recommendations
  • Shop
  • Start Here
  • Tags & Topics

Search

As an Amazon Associate I earn from qualifying purchases.

This blog uses affiliate links. Thank you for supporting Kate the (Almost) Great!

Sign Up for the Newsletter

Please wait...

Thank you for sign up!

Most Popular Posts

  • What Does Arthritis Pain Actually Feel Like?
  • What Sjögren’s Syndrome Is: A Beginner’s Guide
  • Seronegative Rheumatoid Arthritis Diagnosis: What I’ve Learned
  • The Products I Loved (And Wanted) in Grad School
  • What Every POTS Syndrome Patient Needs for the Summer
  • The Lifestyle Changes I Made for My Rheumatoid Arthritis
  • 9 Arthritis Products That Help My Rheumatoid Arthritis
  • Beginner’s Guide: Rheumatoid Arthritis Flare Up
  • What Is the Difference between Osteoarthritis and Rheumatoid Arthritis?


Bluehost.com Web Hosting $3.95

Health Union Patient Leader Certification

Support KTAG

If you like what I do, please support me on Ko-fi.




Footer

Sign Up for FREE Instagram Challenge

Get 25 FREE Instagram prompts for chronic health creators!

You can unsubscribe anytime. For more details, review our Privacy Policy.

Thank you!

You have successfully joined our subscriber list.

Get your FREE Instagram challenge here 

and 

For just $5 get your copy of my ebook Take Your Blog (And Income!) to the Next Level with code "greatest".

.

Kate the (Almost) Great

Chronic health lifestyle blog

Lets Go!
  • Facebook
  • Instagram
  • Pinterest
  • Twitter
I personally have rheumatoid arthritis, fibromyalg I personally have rheumatoid arthritis, fibromyalgia, and Sjögren's syndrome, which makes 3 forms of arthritis.⁣
⁣
May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
⁣
Like, comment, and share to spread awareness 💖 ⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis means only 1 thing.⁣
Fact⁣
There are over 100 kinds of arthritis, including osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, and more!⁣
katethealmostgreat⁣
⁣
#ArthritisAwareness #RheumatoidArthritis #Fibromyalgia #SjogrensSyndrome #Arthritis
SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
⁣
I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
⁣
If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
⁣
That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
⁣
For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
⁣
And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
⁣
#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛ 

IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
⁣
Like, comment, and share to spread awareness 💖⁣
⁣
⬛⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
⁣
#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
⁣
*This is all just for me and my case!*⁣
⁣
1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
ID: A bunch of IVIG supplies, including a pump. ⁣
⁣
#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛

IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
⁣
Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
⁣
It's a lot. ⁣⁣⁣⁣
⁣
It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
⁣
This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
⁣
⬛⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
⬛⁣⁣
⁣
ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
⁣
#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛

IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
Follow on Instagram

Copyright © 2026 · Kate the (Almost) Great · Design by Studio Mommy

%d