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How To Ensure You're Getting the Best Medical Care Possible
in Health &middot April 19, 2017

How To Ensure You’re Getting the Best Medical Care Possible

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in Health &middot April 19, 2017

How To Ensure You’re Getting the Best Medical Care Possible

This is a guest post. I’m dealing with finals and Cassie graciously wrote this post for you. I hope you enjoy it!

How To Ensure You're Getting the Best Medical Care Possible

The current model dominating the field of healthcare makes it both difficult and confusing to get the kind of quality care each of us deserves. Knowing how to navigate the field is thus an essential part of avoiding stress and frustration and making sure you are getting the best care possible. Like anything else, you need a plan of attack. For example, you need to understand how to relay your concerns to friends and healthcare providers. Above all things, communication should be your most important tool when it comes to getting the best care.

You also need to have some goals and understand what it takes to get to them. Some problems—acute illnesses or even acute pain—can be remedied fairly quickly, whereas chronic conditions are going to take longer and will likely require specialty treatment. Each step in the diagnosis and treatment process is important, so it is crucial to know what is expected of you and your healthcare provider so that you can be certain your treatment is the best for you.

Explaining the Problem

Something not all patients understand is how to accurately describe their problems. This is no fault of their own—few doctors take the time needed to educate their patients. As a result, doctors inadvertently end up allowing themselves to be led into the wrong diagnosis simply due to faulty communication.

Describing your problem is a learning process. Just saying that you have pain doesn’t tell the physician much. They might ask you about the quality of the pain by using terms such as “burning” or “aching,” but how are you to know what the few examples they give even mean? Start by taking inventory of your problems. This can save you time at the office and make your doctor’s job easier. There are many standard medical questions that professionals should ask either directly or on intake forms – such as the ones mentioned here – but not all professionals do. Do yourself a favor and have the answers to these questions ready. Metaphors can help if you’re having difficulty describing something precisely. Accurately describing to your doctor what is wrong is a critical first step to getting quality treatment.

Understanding Your Condition

Nearly all treatment paths begin with some form of primary care physician. Doctors such as family physicians and chiropractors are trained as “portal of entry” practitioners; for you, that means they should be the first step before visiting a specialist, should that become necessary.

There are a few reasons for this. First, some specialists won’t even see you if you haven’t visited a primary care doctor first to rule out any basic problems (minor infections, mechanical pain, etc.) Second, primary care doctors usually charge considerably less than specialists. The difference is frequently on the order of hundreds of dollars, depending on whether or not you have insurance. If you do have insurance, specialists usually won’t see you until you come with a referral from your primary care doctor. The sole exception is paying out of pocket, but this isn’t recommended unless you’re certain about what the problem is. It makes sense if you think about it—you wouldn’t go straight to an orthopedic surgeon for knee pain without trying more conservative treatments first, right?

With a proper diagnosis, you’re set to make better decisions about treatment, and you’ll be more certain the care your getting the best possible care. The next step is actually finding the right doctor.

How To Ensure You're Getting the Best Medical Care Possible

Finding the Appropriate Physician

This part can really try your patience. Even with a referral, the right doctor doesn’t always immediately avail themselves to you. The problem tends to happen when there are no specialists in your area to treat your condition, leading you to an under-qualified specialist. Hopefully, that doesn’t happen, but if it does, the ball moves back into your court. You may need to do some online research to find the right person for treatment.

Some more unusual conditions may require you to visit doctors with different kinds of training, such as functional medicine or even those in the realm of CAM (complementary and alternative medicine). Doctors working with new treatments sometimes post testimonials or videos about conditions they deal with on YouTube. It can be a good place to get an idea about how a doctor works and whether their treatments are right for you.

Another good place to look is on social media. Facebook has many groups dedicated to supporting various conditions, and these groups are often good places to get physician recommendations. The downside is that you may need to travel to find the right doctor. The important thing is to not settle. If you aren’t comfortable with a doctor or think you would do better with someone else, do all you can to find the right one—you’ll know it when you do.

Setting Treatment Goals

When you do find the right doctor for your condition, you want to set some goals. Your first goal might be something very straightforward, such as reducing or eliminating pain. Or, it might be to walk to the mailbox without falling over. Decide what your goals are, and make sure to communicate them to your physician. Having a goal will help tailor the treatment to reaching it. In the same way that more modest goals such as losing weight or building muscle work best with a plan, the same goes with treatment. This also keeps your doctor from deciding for you as they may have very different outcome goals than you. If you reach your goals and decide you want to improve further, don’t keep that information to yourself.

You should also set new goals and make plans with your physician to reach them. Remember that health is a team effort—we have to do things together to get truly impressive results. Having a physician who respects your goals and aligns his or her efforts with them is an important indicator of quality care.

The Value of Attitude

No matter how serious your condition might be, always know that if you control nothing else, you can always control your attitude about the situation. Holding a positive view on outcomes can and does have dramatic effects on treatment. So while you shouldn’t be satisfied with poor-quality care, don’t let the situation bog you down. There’s hope out there—it may not be a short journey, but it’s one we all have to make one way or the other.

About the Author: Cassie is an experienced nurse and technology enthusiast. In seeing numerous patients and conditions, she’s learned some of the ins and outs of healthcare and how best to help patients optimize their time and experience. You can find her here

Like this post? Check out:

 Preparing for Chronic Pain Medical Appointments, How To Talk about Your Chronic Illness, What To Do If a Doctor Doesn’t Believe You

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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