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in Health · May 5, 2017

Chronic Illness Bloggers To Follow

One of the great things about being a chronic illness patient now – in 2017 – is the community you can be a part of even if you don’t know anyone in person who has a chronic illness. It’s so easy to feel alone when you live with a chronic illness, especially if you spend most of your time in your house or live in a small town. That’s why the Internet is so great! You can connect with so many different people, all over the world, and be a part of that community. Whether you’re just starting out and looking for people to follow or you’re already a part and are looking for new people to check out, here are some great chronic illness people.

A lot of that have arthritis or related conditions because that’s what I have and what my focus has been, but most of them have other conditions as well OR are just great resources for the chronic illness life as a whole. What’s really great is that these people have awesome blogs but also have wonderful social media presences, so check them out and follow them. They can also connect you to other people if you’re looking for people with a specific condition!

Looking for online inspiration, tips, or fellowship for your chronic illness? Check out these bloggers - most of whom have an awesome online presence beyond their blogs - and many of them also have a great network so they can connect you to more people with your condition. Learn from them, and feel less alone!

Hurt Blogger – Britt

Diagnoses: rheumatoid arthritis, spondylitis, Behcet’s disease, Sjogren’s disease

Why she’s great: Fighting through ridiculous situations and shows great perspectives of working, being an athlete, managing the chronic illness life, and more.

Find here: Twitter, Instagram

Six Hips & Counting – Anna

Diagnoses: systemic juvenile rheumatoid arthritis, pericarditis

Why she’s great: She’s a freaking badass (talking several hip replacements and other surgeries) and also an athlete and an awesome advocate.

Find here: Twitter, Instagram

Not Standing Still’s Disease – Grayson

Diagnoses: system juvenile idiopathic arthritis, fibromyalgia, psoriasis, anemia, depression, anxiety, PTSD, migraines, asthma, allergies,

Why he’s great: Constantly teaching people about chronic illnesses, doesn’t take crap from anyone, actively works to educate people on love with chronic illness (physical and emotional)

Find here: Chronic Sex, Twitter, Instagram

It’s Just a Bad Day – Julie

Diagnoses: avascular necrosis, psoriatic arthritis, complex regional pain syndrome, Prothrombin Thrombophilia, depression, anxiety, Melanoma in Situ.

Why she’s great: She takes medications, but she also focuses a lot on the holistic things to help treat her arthritis. Also, she had a stem cell treatment done to her knee, so you can learn a lot about that!

Find here: Twitter, Instagram

If you have a chronic illness, you know how isolating it can be. If you're looking to learn more about the things you can do for your health or find other people with your conditions, these 6 chronic illness bloggers can help.

Life According to Kenz – Kenzie

Diagnoses: rheumatoid arthritis, depression, anxiety, fibromyalgia, unspecified inflammatory bowel disease, cervical dystonia, endometriosis

Why she’s great: With so many health conditions (and so many events that have happened over the last few years), she has been through the ringer. But she keeps a smile on most days and works hard to have an exceptional life regardless. Kenzie is honestly one of the nicest people I have ever met in my life.

Find here: Twitter, Instagram

Illness to Wellness – Emmie

Diagnoses: fibromyalgia, postural orthostatic tachychardia syndrome, bipolar disorder type II, irritable bowel syndrome, subclinical PTSD, and anxiety

Why she’s great: Emmie works so hard to help people and she’s so sweet and kind and also such a hard worker. (I have the privilege of meeting her at undergrad and adopting her as my choir little, so I know this better than most people on the Internet.) She shares her story, the story of other people, and educate her followers.

Find here: Twitter

Who are your favorite chronic illness blogs or people?

Like this post? Check out:

Accepting Your Body with Chronic Illness, How To Become an Advocate for Patients, Resources for People with Arthritis

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. PatientMD says

    August 20, 2020 at 5:54 am

    Telemedicine is making a very positive contribution to healthcare during the pandemic and is being used in a variety of ways. Thanks for sharing this informative article. Visit www.patientmd.com

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  1. Kate the (Almost) Great | Boston Lifestyle Blog - Problems from My Inflammatory Arthritis + How To Deal with Them says:
    February 26, 2018 at 8:01 am

    […] Feeling alone and like no one understands – I think this is how most people with chronic pain feel at some point, but that doesn’t make it any easier. It’s hard when you don’t know anyone in your life who knows what it’s like to live with chronic pain, especially because it makes you feel alone. Your family and friends can’t imagine what this is like unless they’ve experienced it. How do I deal with this? Get involved with the chronic illness community online. In the years since I was first diagnosed, several other people in my life were diagnosed with various other chronic illnesses, including ones that go with chronic pain. But obviously you can’t assume that will happen. There is an amazing community of people with chronic illnesses online. On sites like Twitter and Instagram, use hashtags like #chronicillness or #rheumatoidarthritis to connect with other patients. You can explore those hashtags and see the people who are posting about them and they can do the same with you. Once you find some accounts who seem to know other people with your illness, you can also ask them who you should follow. On sites like Facebook, there are groups for patients that you can join. Also, here are some chronic illness bloggers to follow. […]

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  2. Kate the (Almost) Great | Boston Lifestyle Blog - Resources for the Freshly-Diagnosed Chronic Illness Patient - Kate the (Almost) Great | Boston Lifestyle Blog says:
    March 9, 2018 at 8:01 am

    […]  Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability […]

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Having decades-long health problems sometimes mean Having decades-long health problems sometimes means coming across something in your health history that you completely forgot about⁣
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I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
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#AlmostGreatHealth #rheumatoidarthritis #arthritis #spoonielife #healthblogger #autoimmune #autoimmunedisease #chronicallyill #healthblog #dysautonomia #fibro #fibromyalgia #endo #chronicallyill #disability #disabled #invisibleillness #spoonielife #healthblogger
Here are some ways I practice self care, aka talki Here are some ways I practice self care, aka talking care of myself AND who I am as a person separate from illness⁣
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This is my Wonderful Things jar. Every day, I write down something wonderful or good that happened that day. ⁣
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I know it looks like I'm forcing Harley to sit like this, but he was making this face before I put my arm around him. Dog snuggle time is the best!⁣
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I got a Kindle this year and it has been amazing. It's so much easier on my body than lugging around books and it makes borrowing from the library a lot easier.⁣
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Yes, I share this all the time, but filling my pill boxes every 3 weeks make it so I stick with all of my medications. But the self-care part of this is that I don't have to take the time to refill a box every single week.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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1️⃣ A glass jar on a desk with a lot of multi-color post-its inside⁣
2️⃣ Kate has her face in a golden retriever who is slumped onto her. They're in a teal room with a red rug. Kate is a brunette white woman wearing red pants and a gray sweater.⁣
3️⃣ A Kindle on dark mode in Kate's lap⁣
4️⃣ 3 open pill cases on a yellow bedspread ⁣
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#AlmostGreatHealth #AlmostGreatLife #SelfCare #ChronicallyIll #ChronicallyAwesome #SpoonieLife #Spoonie #ChronicLife #ButYouDontLookSick #InvisibleIllness #MentalHealthMatters #RetrieversOfInstagram #Readers #Kindle #WonderfulThings #GratitudePractice
What I Bring To the Doctor _______ Video: a pa What I Bring To the Doctor 

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Video: a pan of an exam room. White text reads “What I Bring To the Doctor ” and the “1. Planner/notebook
2. List of current medications 
3. Notes on my biggest concerns and questions 
4. My kindle for wait time” 
The intro to Maroon 5’s Priceless plays. 

#AlmostGreatHealth #ChronicIllness #ChronicPain #RheumatoidArthritis #SjogrensSyndrome #Fibromyalgia #Endometriosis
💃🏼 Week 17 of #2025Weekly 💃🏼⁣
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1️⃣ She’s married!! ⁣
2️⃣ She married the best person in the world for her!!!!!⁣
3️⃣ I got dressed up! ⁣
4️⃣ The reality of doing fun things with chronic illness and pain is that then you have to recover from the fun things. It took … a while. One million percent worth it, but this is why I don’t do big events on a regular basis. ⁣
5️⃣ And then I had to be a person again for an appointment!⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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1️⃣ Kate stands hugging Emmie. They're both white woman. Emmie is in a wedding dress and Kate is in a red dress and wearing round tortiseshell glasses.⁣
2️⃣ Kate and Emmie stand next to Matt, Emmie's husband. He is a white man.⁣
3️⃣ Kate takes a mirror selfie. she's in the same red dress but now also wears a jean jacket and holds a cane and mask.⁣
4️⃣ Kate takes a selfie while giving a thumbs up. She looks tired. She's now wearing a pink flowery dress. ⁣
5️⃣ Kate takes a mirror selfie. She's wearing black shorts, a gray shirt, a jean jacket, a blue mask, and black aviator sunglasses. She has a bag over her shoulder and holds a cane.⁣
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#AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #InvisibleIllness #SpoonieLife #RheumatoidArthritis #RheumatoidDisease #Autoimmune #ButYouDontLookSick #AutoimmuneDisease #SpoonieLife #InvisibleIllness #DisabledAndCute
On the one hand, you should always believe what pe On the one hand, you should always believe what people tell you about their bodies.⁣
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On the other hand, I’ve had so much ridiculous and unconnected health things happen that I do understand why people might not believe me.⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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#AlmostGreatHealth #ChronicallyIll #ChronicPain #Autoimmune #AutoimmuneDisease #RheumatoidArthritis #RheumatoidDisease #SpoonieLife #InvisibleIllness
Last week, I talked about how it surprised me how Last week, I talked about how it surprised me how systemic autoimmune arthritis can be. But something else that surprised me was how much pain can be caused by small things.⁣
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In this picture, I was getting ready to have an MRI on my knee. It has been bothering me a fair amount the last 6+ months, so I'm trying to do something about that. ⁣
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Unsurprisingly, some of the tissue is damaged, but it's not bad. What's probably causing it to bother me so much is a teeny tiny cyst. ⁣
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Baker's cysts are a type of cyst in the knee that are generally caused by arthritis. But having a cyst in my knee means that it's causing pressure on that damaged tissue. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣
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ID: Kate takes a mirror selfie. She's a brunette white woman wearing a hospital gown, scrub bottoms, black mask, round tortoiseshell glasses, and round tortoiseshell glasses. ⁣
🌸 Week 16 of #2025Weekly 🌸 ⁣ ⁣ 1️⃣ S 🌸 Week 16 of #2025Weekly 🌸 ⁣
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1️⃣ Spring has sprung … ⁣
2️⃣ … Which means I am overheating! ⁣
3️⃣ A quick view of NYC on my travels ⁣
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3️⃣ A picture of the New York City skyline behind a bridge.⁣
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#AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #RheumatoidArthritis #SpoonieLife #Autoimmune #AutoimmuneDisease #ChronicPain #Arthritis #RheumatoidDisease #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #POTS #InvisibleIllness
If I met my newly diagnosed self for coffee ... ⁣
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I tell her how things would get worse before they got better. ⁣
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I'd tell her to stop eating gluten, dairy, corn, soy, and eggs immediately (although that would have been a lot harder in 2010, more than it even is now). ⁣
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I'd tell her that she still needs to keep advocating for herself. ⁣
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I'd tell her that having a diagnosis unfortunately doesn't mean everything automatically falls into place. ⁣
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I'd tell her that she'll develop many more illnesses but her quality of life will actually get significantly better. ⁣
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I'd tell her that she would eventually have to get her right foot fixed, although she does expect that.⁣
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I'd tell her that using a cane is not a sign of failure, but a tool to make life better.⁣
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(I did a sort of tongue-in-cheek post about this a while ago and thought I'd post a more serious one).⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate poses for the camera holding a mug with the letter M on it. Kate is a brunette white woman wearing a blue sweater and round tortoiseshell glasses. A white text box reads "If I met my newly diagnosed self for coffee ...". ⁣
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#AlmostGreatHealth #RheumatoidArthritis #RheumatoidDisease #ChronicallyIll #Autoimmune #AutoimmuneDisease #AutoimmuneArthritis #Rheum #InvisibleIllness #Arthritis #ButYouDontLookSick #ArthritisWarrior #CureArthritis
The thing that surprised me the most about autoimm The thing that surprised me the most about autoimmune arthritis is how systemic it is. ⁣
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Like with most things, it's one thing to know the fact and it's something else to experience it. ⁣
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Yes, my joints are affected (a lot). ⁣
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But I've had enough serious infections thats I have to see an immunologist because we need to be aware of my antibodies and I sometimes need help recovering from illnesses. ⁣
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And, yes, I see pulmonology because of my asthma, but we also have to keep an eye out on developing rheumatoid nodules in my lungs. (So far so good!)⁣
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Not to mention that, when I developed POTS, the hospital admitted me to run every heart test to make sure that, at 26, I wasn't experiencing heart failure. ⁣
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Plus, when I developed endometriosis, I also went through a number of GI tests because one theory was that I had ulcerative colitis. ⁣
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Anyway, RA is so much more than "just" joints. If it wasn't, I wouldn't have to kill my immune system every 3 months like I am in this picture.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie in an infusion chair. She is a brunette white woman wearing a Boston Red Sox shirt, blue mask, and round tortoiseshell glasses.⁣⁣
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#AlmostGreatHealth #RheumatoidArthritis #RheumatoidDisease #Rheum #Autoimmune #AutoimmuneDisease #InvisibleIllness #ButYouDontLookSick #Sjogrens #SjogrensSyndrome #POTS #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia
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