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in Health &middot March 9, 2018

Resources for the Freshly-Diagnosed Chronic Illness Patient

If you’re at this blog post, you or someone you know has probably recently been diagnosed with a chronic illness. It can be scary but freeing – you finally have an answer, but you don’t know what your future will look like with this illness. In an attempt to help you, I’ve pulled together a whole bunch of posts that will help you adjust to this life. I hope this helps!

Were you recently diagnosed with a chronic illness? This is for you! It has over 30 posts about multiple aspects of living with a chronic illness so you know as much as you can going forward.

Understanding Chronic Illness

10 Misconceptions of Chronic Illness

Denial and Chronic Illness

What To Do When Others Don’t Understand Your Chronic Illness

5 Essential Steps to Understanding Chronic Illness

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

Fatigue

How I’m Overcoming Chronic Exhaustion

9 Ways To Help Manage Your Fatigue

Chronic Pain

How To Cope with a Chronic Pain Flare Up

A Note on Living with Acute Chronic Pain

Flare Kit for Chronic Pain

Tools for Pain Management That Aren’t Medications

Preparing for Chronic Pain Medical Appointments + Free Printables To Help

Pain and Cold Weather: Dealing with Chronic Pain This Winter

Learning

10 Faith-Filled Books for the Chronically Ill

The Good and Bad of Support Groups for Chronic Illness

What To Do If a Doctor Doesn’t Believe You

Chronic illness, chronic pain, rheumatoid arthritis, ra, rheum, arthritis, psoriatic arthritis, fibromyalgia, endometriosis, postural orthostatic tachycardia syndrome, asthma

Life

7 Tips for Coping with Chronic Illness

6 Chronic Illness Fears

When Chronic Illness Feels Like Chronic Failure

Leaving the “What If’s Behind

5 Items Every Immunosuppressed Person Needs

How To Have a Productive Day: Living with Chronic Illness

Surviving the Storm of Chronic Illness

Comfy Clothes Every Spoonie Needs

When Your Illness Makes You Feel Guilty

Making the Most of a Life with a Chronic Illness

How To Plan for the Future with a Chronic Illness

Dating with a Chronic Illness

Does Illness Form Part of Your Identity

How To Talk about Your Chronic Illness

4 Questions To Ask Before Traveling with Chronic Health Problems

How To Succeed As a Spoonie Student

5 Tips for Better Medication Management

College Tips for Disabled Students

What aspect of chronic illness do you wish you knew more about?

Like this post? Check out:

 Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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July is: ⁣ - Disability Pride Month ⁣ - Juvenile A July is: ⁣
- Disability Pride Month ⁣
- Juvenile Arthritis Awareness Month ⁣
- the anniversary of when I was diagnosed with autoimmune arthritis at age 19 after 9 years of symptoms ⁣
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As you can imagine, that makes me very aware of my disability via juvenile arthritis⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Screenshot of a Bluesky post. The background is dark teal, and it's written by Kate Mitchell | Kate the (Almost) Great with the username katethealmostgreat.bsky.social. ⁣The text reads what's above the first black box.⁣⁣⁣⁣⁣
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#DisabilityPride #JuvenileArthritis #RheumatoidArthritis #AutoimmuneDisease
There are a lot of reasons why you shouldn't doubt There are a lot of reasons why you shouldn't doubt someone's chronic illness, but this is one of them. ⁣
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I'm always amazed by how people can have the exact same illness or set of illnesses and still have different experiences. Sure, there will be similarities, but which symptoms are the worst, what medications you respond to, and your quality of life can vary significantly. ⁣
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It doesn't mean that one person is necessarily worse off than another; they're just different.⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
⁣
ID: Kate takes a selfie. A white text box reads "Chronic Illness Looks Different in Each Person"⁣
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#ChronicallyIll #RheumatoidArthritis #Endometriosis #Fibromyalgia #POTS
This basically sums up my summer so far: Harley, a This basically sums up my summer so far: Harley, a sewing project, and my foot in a cast⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣ ⁣
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ID: Harley the golden retriever has his head on Kate's lap. Also on her lap is an in-progress needlepoint project and Kate's leg (in a walking cast) is elevated.⁣
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#Osteoporosis #RheumatoidArthritis #GoldenRetrievers #Needlepoint #Needlework
Week 28 of 2026 Weekly A very busy week! 1️⃣ Foo Week 28 of 2026 Weekly

A very busy week!

1️⃣ Foot checkup! Walking boot is on occasionally from now until September 
2️⃣ Boston 
3️⃣ IVIG
4️⃣ Dentist 🦷 All good! 
5️⃣ Not a filter - this was the Boston area the second half of the week 
6️⃣ Physical time!

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⁣⁣⬛⁣⁣

IDs:
1️⃣ Kate takes a selfie in a doctor’s office
2️⃣ Looking at TD Garden, the bear statue for the Bruins, and Zakim Bridge in the background 
3️⃣ Looking at tubes coming out from under Kate’s clothes. There’s a Kindle on her stomach
4️⃣ Kate takes a mirror selfie before leaving
5️⃣ Medford Square looking like there’s a yellow filter over it
6️⃣ Kate takes a selfie in a doctor’s office

#ChronicallyIll #InvisibleIllness #AutoimmuneDisease #Bostonian #IVIG
Also, if this is how you’re finding out, I’m sorry Also, if this is how you’re finding out, I’m sorry. I’m fortunate enough to have a lot of people who care about me and this is the fastest way to tell everyone. 

Video: Kate talks to the camera while putting on makeup. There are captions. 

#RheumatoidArthritis #AutoimnuneDisease #ChronicIllness #Arthritis #ChronicPain
Week 27 of 2026 Weekly (Delayed because last Sund Week 27 of 2026 Weekly

(Delayed because last Sunday was baaaaad)

1️⃣ Due airport difficulties, we got a few more days with Emma. Harley was THRILLED!
2️⃣ Beautiful bird/squirrel visitors
3️⃣ A beautiful Maine summer day

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⁣⁣⬛⁣⁣

1️⃣ Harley the golden retriever putting his front legs up on Emma’s legs to demand hugs.
2️⃣ A bird feeder and hummingbird feeder on a deck. There is a hummingbird at one and squirrel at the other.
3️⃣ A barn, a pond, and the Maine woods

#207 #MaineLife #MaineTheWay #NewEnglandSummer #IGMaine
Reminder: you can be proud of your disability comm Reminder: you can be proud of your disability community while wishing your body cooperated more⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
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 ID: Screenshot of a thread post. The background is dark teal, and it's written by katethealmostgreat. ⁣The text reads what's above the first black box.⁣⁣⁣⁣⁣
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#DisabilityPride #ChronicallyIll #InvisibleIllness #Disabled #Disability
I don’t know the exact date of my RA diagnosis, bu I don’t know the exact date of my RA diagnosis, but this is from right around then in July 2010. ⁣
⁣
When I was diagnosed, I had been having symptoms for 9 years. ⁣
- 9 years of foot pain (partially from tarsal coalition)⁣
- Arthritic damage in said food⁣
- Carpal tunnel off and on for several years⁣
- And more⁣
⁣
I was finally diagnosed because I woke up one morning and was unable to open my jaw more than 8 mm. It turned out that I had horrible arthritic damage to my TMJs, which got me off the waiting list at MGH rheumatology. I left that appointment with an autoimmune arthritis diagnosis. ⁣
⁣
The fact that July is not only my diagnosis anniversary but also Juvenile Arthritis Awareness Month has always seemed right. I may not have been diagnosed with JA, but given the amount of arthritis I had along with my many years of symptoms, it's generally accepted that I had it. ⁣
⁣
This year marks 16 years since diagnosis and this fall marks 25 years since my symptoms started. It's pretty weird that so much time has already passed!⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate at 19 at Fenway Park for a Red Sox game. ⁣
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#RheumatoidArthritis #AutoimmuneDisease #Arthritis #JuvenileArthritis #JRA
Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
⁣
ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
⁣
#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
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