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in Health &middot March 9, 2018

Resources for the Freshly-Diagnosed Chronic Illness Patient

If you’re at this blog post, you or someone you know has probably recently been diagnosed with a chronic illness. It can be scary but freeing – you finally have an answer, but you don’t know what your future will look like with this illness. In an attempt to help you, I’ve pulled together a whole bunch of posts that will help you adjust to this life. I hope this helps!

Were you recently diagnosed with a chronic illness? This is for you! It has over 30 posts about multiple aspects of living with a chronic illness so you know as much as you can going forward.

Understanding Chronic Illness

10 Misconceptions of Chronic Illness

Denial and Chronic Illness

What To Do When Others Don’t Understand Your Chronic Illness

5 Essential Steps to Understanding Chronic Illness

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

Fatigue

How I’m Overcoming Chronic Exhaustion

9 Ways To Help Manage Your Fatigue

Chronic Pain

How To Cope with a Chronic Pain Flare Up

A Note on Living with Acute Chronic Pain

Flare Kit for Chronic Pain

Tools for Pain Management That Aren’t Medications

Preparing for Chronic Pain Medical Appointments + Free Printables To Help

Pain and Cold Weather: Dealing with Chronic Pain This Winter

Learning

10 Faith-Filled Books for the Chronically Ill

The Good and Bad of Support Groups for Chronic Illness

What To Do If a Doctor Doesn’t Believe You

Chronic illness, chronic pain, rheumatoid arthritis, ra, rheum, arthritis, psoriatic arthritis, fibromyalgia, endometriosis, postural orthostatic tachycardia syndrome, asthma

Life

7 Tips for Coping with Chronic Illness

6 Chronic Illness Fears

When Chronic Illness Feels Like Chronic Failure

Leaving the “What If’s Behind

5 Items Every Immunosuppressed Person Needs

How To Have a Productive Day: Living with Chronic Illness

Surviving the Storm of Chronic Illness

Comfy Clothes Every Spoonie Needs

When Your Illness Makes You Feel Guilty

Making the Most of a Life with a Chronic Illness

How To Plan for the Future with a Chronic Illness

Dating with a Chronic Illness

Does Illness Form Part of Your Identity

How To Talk about Your Chronic Illness

4 Questions To Ask Before Traveling with Chronic Health Problems

How To Succeed As a Spoonie Student

5 Tips for Better Medication Management

College Tips for Disabled Students

What aspect of chronic illness do you wish you knew more about?

Like this post? Check out:

 Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: Kate drinks coffee giving side eye. White text box reads "My Face When Someone Says 'You Shouldn't Need a Cane At Your Age'" ⁣
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#ChronicPain #ChronicallyIll #RheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Fibromyalgia
There's beauty everywhere, not just in the Maine w There's beauty everywhere, not just in the Maine woods. (Shocking to me, I know.) ⁣⁣⁣
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There's beauty in little things, medium things. There's beauty in ordinary things. ⁣⁣⁣
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In the first cup of coffee of the day with the sun shining into the kitchen. ⁣⁣⁣
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In a completed checklist.⁣
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In a freshly cleaned house. ⁣⁣⁣
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In discovering a new-to-you genre of television that you LOVE. ⁣⁣
In quiet moments with people you care about. ⁣⁣⁣
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There's beauty everywhere. ⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: A beautiful lake and a mossy bank. ⁣
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#MaineLife #207 #MaineLiving #IGNewEngland #Vacationland
Weeks 15 of 2026 Weekly Just trying to get throug Weeks 15 of 2026 Weekly

Just trying to get through!

1️⃣ IVIG time
2️⃣ I got a hair cut last week and then I looked nice at one point!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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⁣⁣⁣⁣⁣⁣1️⃣ Looking at Kate’s lap. There’s a pump with tubes attached that go under Kate’s shirt.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair wearing a navy dress with flowers, a silver Celtic knot necklace, and green glasses. 

#ChronicallyIll #RheumatoidArthritis #SjogrensSyndrome #Fibromyalgia #IVIG
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