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in Health &middot March 9, 2018

Resources for the Freshly-Diagnosed Chronic Illness Patient

If you’re at this blog post, you or someone you know has probably recently been diagnosed with a chronic illness. It can be scary but freeing – you finally have an answer, but you don’t know what your future will look like with this illness. In an attempt to help you, I’ve pulled together a whole bunch of posts that will help you adjust to this life. I hope this helps!

Were you recently diagnosed with a chronic illness? This is for you! It has over 30 posts about multiple aspects of living with a chronic illness so you know as much as you can going forward.

Understanding Chronic Illness

10 Misconceptions of Chronic Illness

Denial and Chronic Illness

What To Do When Others Don’t Understand Your Chronic Illness

5 Essential Steps to Understanding Chronic Illness

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

Fatigue

How I’m Overcoming Chronic Exhaustion

9 Ways To Help Manage Your Fatigue

Chronic Pain

How To Cope with a Chronic Pain Flare Up

A Note on Living with Acute Chronic Pain

Flare Kit for Chronic Pain

Tools for Pain Management That Aren’t Medications

Preparing for Chronic Pain Medical Appointments + Free Printables To Help

Pain and Cold Weather: Dealing with Chronic Pain This Winter

Learning

10 Faith-Filled Books for the Chronically Ill

The Good and Bad of Support Groups for Chronic Illness

What To Do If a Doctor Doesn’t Believe You

Chronic illness, chronic pain, rheumatoid arthritis, ra, rheum, arthritis, psoriatic arthritis, fibromyalgia, endometriosis, postural orthostatic tachycardia syndrome, asthma

Life

7 Tips for Coping with Chronic Illness

6 Chronic Illness Fears

When Chronic Illness Feels Like Chronic Failure

Leaving the “What If’s Behind

5 Items Every Immunosuppressed Person Needs

How To Have a Productive Day: Living with Chronic Illness

Surviving the Storm of Chronic Illness

Comfy Clothes Every Spoonie Needs

When Your Illness Makes You Feel Guilty

Making the Most of a Life with a Chronic Illness

How To Plan for the Future with a Chronic Illness

Dating with a Chronic Illness

Does Illness Form Part of Your Identity

How To Talk about Your Chronic Illness

4 Questions To Ask Before Traveling with Chronic Health Problems

How To Succeed As a Spoonie Student

5 Tips for Better Medication Management

College Tips for Disabled Students

What aspect of chronic illness do you wish you knew more about?

Like this post? Check out:

 Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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You guessed it, I'm one of that 25%. ⁣ ⁣ May is Ar You guessed it, I'm one of that 25%. ⁣
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May is Arthritis Awareness Month. Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
You only have rheumatoid arthritis if your rheumatoid factor tests positive.⁣
Fact⁣
As many as 25% of RA patients test negative, which is called being seronegative.⁣
katethealmostgreat
Things are tough (all over pain, heat with POTS, i Things are tough (all over pain, heat with POTS, in a walking cast waiting to see if I need my 6th foot surgery), but so am I.⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie. She's a white woman with auburn hair wearing a navy-based floral dress, green glasses, and silver Celtic knot necklace.⁣
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#RheumatoidArthritis #POTS #POTSie #AutoimmuneDisease #ChronicallyIll
Week 20 of #2026Weekly 1️⃣ IVIG + Kindle reading Week 20 of #2026Weekly 

1️⃣ IVIG + Kindle reading 
2️⃣ Almost done!!!!!

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛ 

IDs: 
1️⃣ Infusion tubes coming out from under her shirt. There’s a Kindle on her lap.
2️⃣ An almost-finished cross-stitch project

#IVIG #ChronicallyIll #CrossStitcher #CrossStitchersOfInstagram
FAQ: Have you tried [insert supplement here]? As FAQ: Have you tried [insert supplement here]?

As with all things, what’s true for me might not be true for others. I’m sure there are plenty of RA patients who do respond well to supplements; I’m just not one of them. 

Additionally, at one point, I refer to being on chemo since 2012. As always, the chemo I’m referring to is Rituxan, which is my RA treatment. I do not have cancer nor have I ever claimed to. 

Video: Kate talks to the camera. Text at the beginning reads “FAQ: Have you tried [insert supplement here]?” and other text later reads “*24” to correct when she says “symptoms for 21 years”. There are captions. 

#RheumatoidArthritis #AutoimmuneDisease #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
Unfortunately, arthritis doesn't see that you have Unfortunately, arthritis doesn't see that you have one type of arthritis and go, "Darn, guess I'll have to go to someone else."⁣
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May is Arthritis Awareness Month. Like, comment, and share to help spread awareness 💖⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
You can only have 1 type of arthritis.⁣
Fact⁣
You can have several different types of arthritis. katethealmostgreat⁣
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#Arthritis #ArthritisAwareness #RheumatoidArthritis #ArthritisAwarenessMonth #ChronicPain
Week 19 of #2026Weekly I’m not going to lie - my Week 19 of #2026Weekly 

I’m not going to lie - my life now focuses even more on maintaining my body. Trying to avoid foot surgery + keep my bone density up so I don’t break another bone for a while on top of all the other things I do to manage my 10+ illnesses … it’s a lot of work. I did go to actual work this week lol but my camera roll is all chronic illness stuff this week. 

1️⃣ The machine that will hopefully prevent surgery!!! Every day, I do 40 minutes of this ultrasound machine (20 min on 1 fracture, 20 min on the other) and it will speed up healing 🤞🏻🤞🏻🤞🏻 
2️⃣ Continuing my exercise routine per my endocrinologist. Up to 30 minutes of Pilates 4 days a week … and since I don’t do exercises requiring pressure on my feet, the cast comes off. 

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IDs:
1️⃣ Looking at an at-home ultrasound treatment machine 
2️⃣ Kate’s cast next to her yoga mat 

#Osteoporosis #RheumatoidArthritis #ChronicIllness #ChronicPain
I personally have rheumatoid arthritis, fibromyalg I personally have rheumatoid arthritis, fibromyalgia, and Sjögren's syndrome, which makes 3 forms of arthritis.⁣
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May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖 ⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis means only 1 thing.⁣
Fact⁣
There are over 100 kinds of arthritis, including osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, and more!⁣
katethealmostgreat⁣
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#ArthritisAwareness #RheumatoidArthritis #Fibromyalgia #SjogrensSyndrome #Arthritis
SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛ 

IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
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