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in Health &middot May 5, 2017

Chronic Illness Bloggers To Follow

One of the great things about being a chronic illness patient now – in 2017 – is the community you can be a part of even if you don’t know anyone in person who has a chronic illness. It’s so easy to feel alone when you live with a chronic illness, especially if you spend most of your time in your house or live in a small town. That’s why the Internet is so great! You can connect with so many different people, all over the world, and be a part of that community. Whether you’re just starting out and looking for people to follow or you’re already a part and are looking for new people to check out, here are some great chronic illness people.

A lot of that have arthritis or related conditions because that’s what I have and what my focus has been, but most of them have other conditions as well OR are just great resources for the chronic illness life as a whole. What’s really great is that these people have awesome blogs but also have wonderful social media presences, so check them out and follow them. They can also connect you to other people if you’re looking for people with a specific condition!

Looking for online inspiration, tips, or fellowship for your chronic illness? Check out these bloggers - most of whom have an awesome online presence beyond their blogs - and many of them also have a great network so they can connect you to more people with your condition. Learn from them, and feel less alone!

Hurt Blogger – Britt

Diagnoses: rheumatoid arthritis, spondylitis, Behcet’s disease, Sjogren’s disease

Why she’s great: Fighting through ridiculous situations and shows great perspectives of working, being an athlete, managing the chronic illness life, and more.

Find here: Twitter, Instagram

Six Hips & Counting – Anna

Diagnoses: systemic juvenile rheumatoid arthritis, pericarditis

Why she’s great: She’s a freaking badass (talking several hip replacements and other surgeries) and also an athlete and an awesome advocate.

Find here: Twitter, Instagram

Not Standing Still’s Disease – Grayson

Diagnoses: system juvenile idiopathic arthritis, fibromyalgia, psoriasis, anemia, depression, anxiety, PTSD, migraines, asthma, allergies,

Why he’s great: Constantly teaching people about chronic illnesses, doesn’t take crap from anyone, actively works to educate people on love with chronic illness (physical and emotional)

Find here: Chronic Sex, Twitter, Instagram

It’s Just a Bad Day – Julie

Diagnoses: avascular necrosis, psoriatic arthritis, complex regional pain syndrome, Prothrombin Thrombophilia, depression, anxiety, Melanoma in Situ.

Why she’s great: She takes medications, but she also focuses a lot on the holistic things to help treat her arthritis. Also, she had a stem cell treatment done to her knee, so you can learn a lot about that!

Find here: Twitter, Instagram

If you have a chronic illness, you know how isolating it can be. If you're looking to learn more about the things you can do for your health or find other people with your conditions, these 6 chronic illness bloggers can help.

Life According to Kenz – Kenzie

Diagnoses: rheumatoid arthritis, depression, anxiety, fibromyalgia, unspecified inflammatory bowel disease, cervical dystonia, endometriosis

Why she’s great: With so many health conditions (and so many events that have happened over the last few years), she has been through the ringer. But she keeps a smile on most days and works hard to have an exceptional life regardless. Kenzie is honestly one of the nicest people I have ever met in my life.

Find here: Twitter, Instagram

Illness to Wellness – Emmie

Diagnoses: fibromyalgia, postural orthostatic tachychardia syndrome, bipolar disorder type II, irritable bowel syndrome, subclinical PTSD, and anxiety

Why she’s great: Emmie works so hard to help people and she’s so sweet and kind and also such a hard worker. (I have the privilege of meeting her at undergrad and adopting her as my choir little, so I know this better than most people on the Internet.) She shares her story, the story of other people, and educate her followers.

Find here: Twitter

Who are your favorite chronic illness blogs or people?

Like this post? Check out:

Accepting Your Body with Chronic Illness, How To Become an Advocate for Patients, Resources for People with Arthritis

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. PatientMD says

    August 20, 2020 at 5:54 am

    Telemedicine is making a very positive contribution to healthcare during the pandemic and is being used in a variety of ways. Thanks for sharing this informative article. Visit www.patientmd.com

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  1. Kate the (Almost) Great | Boston Lifestyle Blog - Problems from My Inflammatory Arthritis + How To Deal with Them says:
    February 26, 2018 at 8:01 am

    […] Feeling alone and like no one understands – I think this is how most people with chronic pain feel at some point, but that doesn’t make it any easier. It’s hard when you don’t know anyone in your life who knows what it’s like to live with chronic pain, especially because it makes you feel alone. Your family and friends can’t imagine what this is like unless they’ve experienced it. How do I deal with this? Get involved with the chronic illness community online. In the years since I was first diagnosed, several other people in my life were diagnosed with various other chronic illnesses, including ones that go with chronic pain. But obviously you can’t assume that will happen. There is an amazing community of people with chronic illnesses online. On sites like Twitter and Instagram, use hashtags like #chronicillness or #rheumatoidarthritis to connect with other patients. You can explore those hashtags and see the people who are posting about them and they can do the same with you. Once you find some accounts who seem to know other people with your illness, you can also ask them who you should follow. On sites like Facebook, there are groups for patients that you can join. Also, here are some chronic illness bloggers to follow. […]

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  2. Kate the (Almost) Great | Boston Lifestyle Blog - Resources for the Freshly-Diagnosed Chronic Illness Patient - Kate the (Almost) Great | Boston Lifestyle Blog says:
    March 9, 2018 at 8:01 am

    […]  Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability […]

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July is: ⁣ - Disability Pride Month ⁣ - Juvenile A July is: ⁣
- Disability Pride Month ⁣
- Juvenile Arthritis Awareness Month ⁣
- the anniversary of when I was diagnosed with autoimmune arthritis at age 19 after 9 years of symptoms ⁣
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As you can imagine, that makes me very aware of my disability via juvenile arthritis⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Screenshot of a Bluesky post. The background is dark teal, and it's written by Kate Mitchell | Kate the (Almost) Great with the username katethealmostgreat.bsky.social. ⁣The text reads what's above the first black box.⁣⁣⁣⁣⁣
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#DisabilityPride #JuvenileArthritis #RheumatoidArthritis #AutoimmuneDisease
There are a lot of reasons why you shouldn't doubt There are a lot of reasons why you shouldn't doubt someone's chronic illness, but this is one of them. ⁣
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I'm always amazed by how people can have the exact same illness or set of illnesses and still have different experiences. Sure, there will be similarities, but which symptoms are the worst, what medications you respond to, and your quality of life can vary significantly. ⁣
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It doesn't mean that one person is necessarily worse off than another; they're just different.⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie. A white text box reads "Chronic Illness Looks Different in Each Person"⁣
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#ChronicallyIll #RheumatoidArthritis #Endometriosis #Fibromyalgia #POTS
This basically sums up my summer so far: Harley, a This basically sums up my summer so far: Harley, a sewing project, and my foot in a cast⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Harley the golden retriever has his head on Kate's lap. Also on her lap is an in-progress needlepoint project and Kate's leg (in a walking cast) is elevated.⁣
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#Osteoporosis #RheumatoidArthritis #GoldenRetrievers #Needlepoint #Needlework
Week 28 of 2026 Weekly A very busy week! 1️⃣ Foo Week 28 of 2026 Weekly

A very busy week!

1️⃣ Foot checkup! Walking boot is on occasionally from now until September 
2️⃣ Boston 
3️⃣ IVIG
4️⃣ Dentist 🦷 All good! 
5️⃣ Not a filter - this was the Boston area the second half of the week 
6️⃣ Physical time!

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⁣⁣⬛⁣⁣

IDs:
1️⃣ Kate takes a selfie in a doctor’s office
2️⃣ Looking at TD Garden, the bear statue for the Bruins, and Zakim Bridge in the background 
3️⃣ Looking at tubes coming out from under Kate’s clothes. There’s a Kindle on her stomach
4️⃣ Kate takes a mirror selfie before leaving
5️⃣ Medford Square looking like there’s a yellow filter over it
6️⃣ Kate takes a selfie in a doctor’s office

#ChronicallyIll #InvisibleIllness #AutoimmuneDisease #Bostonian #IVIG
Also, if this is how you’re finding out, I’m sorry Also, if this is how you’re finding out, I’m sorry. I’m fortunate enough to have a lot of people who care about me and this is the fastest way to tell everyone. 

Video: Kate talks to the camera while putting on makeup. There are captions. 

#RheumatoidArthritis #AutoimnuneDisease #ChronicIllness #Arthritis #ChronicPain
Week 27 of 2026 Weekly (Delayed because last Sund Week 27 of 2026 Weekly

(Delayed because last Sunday was baaaaad)

1️⃣ Due airport difficulties, we got a few more days with Emma. Harley was THRILLED!
2️⃣ Beautiful bird/squirrel visitors
3️⃣ A beautiful Maine summer day

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⁣⁣⬛⁣⁣

1️⃣ Harley the golden retriever putting his front legs up on Emma’s legs to demand hugs.
2️⃣ A bird feeder and hummingbird feeder on a deck. There is a hummingbird at one and squirrel at the other.
3️⃣ A barn, a pond, and the Maine woods

#207 #MaineLife #MaineTheWay #NewEnglandSummer #IGMaine
Reminder: you can be proud of your disability comm Reminder: you can be proud of your disability community while wishing your body cooperated more⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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 ID: Screenshot of a thread post. The background is dark teal, and it's written by katethealmostgreat. ⁣The text reads what's above the first black box.⁣⁣⁣⁣⁣
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#DisabilityPride #ChronicallyIll #InvisibleIllness #Disabled #Disability
I don’t know the exact date of my RA diagnosis, bu I don’t know the exact date of my RA diagnosis, but this is from right around then in July 2010. ⁣
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When I was diagnosed, I had been having symptoms for 9 years. ⁣
- 9 years of foot pain (partially from tarsal coalition)⁣
- Arthritic damage in said food⁣
- Carpal tunnel off and on for several years⁣
- And more⁣
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I was finally diagnosed because I woke up one morning and was unable to open my jaw more than 8 mm. It turned out that I had horrible arthritic damage to my TMJs, which got me off the waiting list at MGH rheumatology. I left that appointment with an autoimmune arthritis diagnosis. ⁣
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The fact that July is not only my diagnosis anniversary but also Juvenile Arthritis Awareness Month has always seemed right. I may not have been diagnosed with JA, but given the amount of arthritis I had along with my many years of symptoms, it's generally accepted that I had it. ⁣
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This year marks 16 years since diagnosis and this fall marks 25 years since my symptoms started. It's pretty weird that so much time has already passed!⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate at 19 at Fenway Park for a Red Sox game. ⁣
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#RheumatoidArthritis #AutoimmuneDisease #Arthritis #JuvenileArthritis #JRA
Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
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