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in Health &middot May 5, 2017

Chronic Illness Bloggers To Follow

One of the great things about being a chronic illness patient now – in 2017 – is the community you can be a part of even if you don’t know anyone in person who has a chronic illness. It’s so easy to feel alone when you live with a chronic illness, especially if you spend most of your time in your house or live in a small town. That’s why the Internet is so great! You can connect with so many different people, all over the world, and be a part of that community. Whether you’re just starting out and looking for people to follow or you’re already a part and are looking for new people to check out, here are some great chronic illness people.

A lot of that have arthritis or related conditions because that’s what I have and what my focus has been, but most of them have other conditions as well OR are just great resources for the chronic illness life as a whole. What’s really great is that these people have awesome blogs but also have wonderful social media presences, so check them out and follow them. They can also connect you to other people if you’re looking for people with a specific condition!

Looking for online inspiration, tips, or fellowship for your chronic illness? Check out these bloggers - most of whom have an awesome online presence beyond their blogs - and many of them also have a great network so they can connect you to more people with your condition. Learn from them, and feel less alone!

Hurt Blogger – Britt

Diagnoses: rheumatoid arthritis, spondylitis, Behcet’s disease, Sjogren’s disease

Why she’s great: Fighting through ridiculous situations and shows great perspectives of working, being an athlete, managing the chronic illness life, and more.

Find here: Twitter, Instagram

Six Hips & Counting – Anna

Diagnoses: systemic juvenile rheumatoid arthritis, pericarditis

Why she’s great: She’s a freaking badass (talking several hip replacements and other surgeries) and also an athlete and an awesome advocate.

Find here: Twitter, Instagram

Not Standing Still’s Disease – Grayson

Diagnoses: system juvenile idiopathic arthritis, fibromyalgia, psoriasis, anemia, depression, anxiety, PTSD, migraines, asthma, allergies,

Why he’s great: Constantly teaching people about chronic illnesses, doesn’t take crap from anyone, actively works to educate people on love with chronic illness (physical and emotional)

Find here: Chronic Sex, Twitter, Instagram

It’s Just a Bad Day – Julie

Diagnoses: avascular necrosis, psoriatic arthritis, complex regional pain syndrome, Prothrombin Thrombophilia, depression, anxiety, Melanoma in Situ.

Why she’s great: She takes medications, but she also focuses a lot on the holistic things to help treat her arthritis. Also, she had a stem cell treatment done to her knee, so you can learn a lot about that!

Find here: Twitter, Instagram

If you have a chronic illness, you know how isolating it can be. If you're looking to learn more about the things you can do for your health or find other people with your conditions, these 6 chronic illness bloggers can help.

Life According to Kenz – Kenzie

Diagnoses: rheumatoid arthritis, depression, anxiety, fibromyalgia, unspecified inflammatory bowel disease, cervical dystonia, endometriosis

Why she’s great: With so many health conditions (and so many events that have happened over the last few years), she has been through the ringer. But she keeps a smile on most days and works hard to have an exceptional life regardless. Kenzie is honestly one of the nicest people I have ever met in my life.

Find here: Twitter, Instagram

Illness to Wellness – Emmie

Diagnoses: fibromyalgia, postural orthostatic tachychardia syndrome, bipolar disorder type II, irritable bowel syndrome, subclinical PTSD, and anxiety

Why she’s great: Emmie works so hard to help people and she’s so sweet and kind and also such a hard worker. (I have the privilege of meeting her at undergrad and adopting her as my choir little, so I know this better than most people on the Internet.) She shares her story, the story of other people, and educate her followers.

Find here: Twitter

Who are your favorite chronic illness blogs or people?

Like this post? Check out:

Accepting Your Body with Chronic Illness, How To Become an Advocate for Patients, Resources for People with Arthritis

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. PatientMD says

    August 20, 2020 at 5:54 am

    Telemedicine is making a very positive contribution to healthcare during the pandemic and is being used in a variety of ways. Thanks for sharing this informative article. Visit www.patientmd.com

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  1. Kate the (Almost) Great | Boston Lifestyle Blog - Problems from My Inflammatory Arthritis + How To Deal with Them says:
    February 26, 2018 at 8:01 am

    […] Feeling alone and like no one understands – I think this is how most people with chronic pain feel at some point, but that doesn’t make it any easier. It’s hard when you don’t know anyone in your life who knows what it’s like to live with chronic pain, especially because it makes you feel alone. Your family and friends can’t imagine what this is like unless they’ve experienced it. How do I deal with this? Get involved with the chronic illness community online. In the years since I was first diagnosed, several other people in my life were diagnosed with various other chronic illnesses, including ones that go with chronic pain. But obviously you can’t assume that will happen. There is an amazing community of people with chronic illnesses online. On sites like Twitter and Instagram, use hashtags like #chronicillness or #rheumatoidarthritis to connect with other patients. You can explore those hashtags and see the people who are posting about them and they can do the same with you. Once you find some accounts who seem to know other people with your illness, you can also ask them who you should follow. On sites like Facebook, there are groups for patients that you can join. Also, here are some chronic illness bloggers to follow. […]

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  2. Kate the (Almost) Great | Boston Lifestyle Blog - Resources for the Freshly-Diagnosed Chronic Illness Patient - Kate the (Almost) Great | Boston Lifestyle Blog says:
    March 9, 2018 at 8:01 am

    […]  Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability […]

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Kate the (Almost) Great

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SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: Kate drinks coffee giving side eye. White text box reads "My Face When Someone Says 'You Shouldn't Need a Cane At Your Age'" ⁣
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#ChronicPain #ChronicallyIll #RheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Fibromyalgia
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