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in Health · July 20, 2018

Chronically Ill Tips: Preparing for Medical Appointments + Freebies To Help

Not to brag, but with anywhere from 2 to 8 medical appointments a week, I’m pretty skilled at preparing for them. In all seriousness, I have 6 chronic illnesses – 3 of which cause chronic pain – and have been actively been preparing for them since 2001. Since this fall will mark 17 years that I’ll have been chronically ill and in pain, I thought I would share my tactics for preparing for these appointments. I’ve seen doctors, nurses, and physical therapists that haven’t believed my pain, some who supported me and I saw at least once a month, fellows and residents who have never seen a patient like me, and some who were somewhere in between.

I hope that my tactics will help you, and make sure you scroll down to the bottom to check out two free printables. One is the sheet I use to keep track of medications, conditions, my medical team, and family history, and the other is one designed to help you put all of your symptoms in one place. I hope that these will help make your appointment as productive as possible!

Medical appointments can be tricky when you're chronically ill. I've been sick for 17 years, so today I'm sharing my tips to help you prepare for your next doctor's appointment.

Chronically Ill Tips: Preparing for Medical Appointments

Organize your thoughts beforehand – I think this is the most important one and everything else on this list really comes from this. If you don’t do some kind of organization, you can forget something that is important. Some questions you can ask yourself are: What do you want to get out of the appointment? Why are you going to this appointment? What does this medical professional need to know? If this is not an appointment with a new member of your medical team, then you should also take note of anything that has changed since your last appointment. If you have a condition like fibromyalgia that can cause brain fog, I strongly suggest writing some things down. Make sure you put this list somewhere that you’ll remember to bring it. I always write these lists in my planner, as I bring that everywhere.

Talk to your loved ones/people you live with about what they’ve noticed – With several of my specialists, I see them every couple of months. A lot can happen in that time, so I always ask my parents if they have any questions for me to ask or if they’ve noticed anything different. Sometimes we’re on the same page, and some times something has happened in the previous 3 months that I’ve forgotten about in lieu of other things. If you live with your partner, you might ask them if they have any questions or things to bring up, and if you live with roommates, you might ask them if they’ve noticed anything different about your health since your last appointment. While this can help you remember something that you’ve forgotten about, it can also bring up something that you may not have noticed. For example, while those of us with chronic pain are generally more in tune with our bodies and their changes, we may miss that we’ve been turning down invitations more than usual if it happened at a slow and steady pace. Getting that feedback may help you notice what you’ve forgotten.

Gather any images or test results you have – This is especially important if your doctors are not a part of the same system. What I mean is that almost all members of my medical team are based at Massachusetts General Hospital, and with technology how it is now, they can pull up all tests or imaging done at MGH. It doesn’t matter that my cardiologist is out in Waltham and the rest of my team is in Boston; she can pull up any tests that were done in Boston. So if you’re seeing someone who is at a different office or is a second opinion, make sure you have any relevant images or testing with you. Don’t have it? This is your personal medical history, so you have a right to it. You can call the office that has what you need and they will mail it to you, or you can pick it up. Make sure you leave enough time between when you call and when your appointment is because for some offices it can take a while to get to you. I’m pretty sure it’s because they don’t send you the only copy of the information; they have to make a copy for you. I did this several years ago and it took weeks for my history to get to me. Turned out it was like 100 pages that they had copies because medical bureaucracy, you know? Also I have a very long medical history shhh

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Write down a history of the problem you’re having – I find this especially important for issues that I’ve been having for years. When did it first start? What could have contributed to it? What makes it better or worse? How has it been recently? These are all questions that you will be asked, and you want to make sure that, when you’re seeing a new doctor for this issue, you start at the beginning and go chronologically. This is something I always mess up: I start in the middle, or I skip around, or (worst of all) I forget important details. That’s why it’s so important that you write it down before you go in. If it’s a complicated issue that has been bothering you for a long time, you might write it down to give to the doctor. The other option is to write it down just to get your thoughts in order. This will help you be prepared for the appointment and hopefully not too flustered, which is a situation I’ve found myself in too often.

Organize your medical history and medications beforehand – This is one of the most important things you can do. How is this different than above? If you take more than 3 medications, it can be difficult to remember the exact dosages of them. It’s also important to share allll of your medical history and not just what you’re seeing that doctor for. You might not know if one chronic illness could influence a different part of your health or vice versa. Additionally, you need to include your family’s health history. For example, my aunt and cousin both have other autoimmune diseases. My cousin was diagnosed a few years ago, and his doctors needed to know that I and our aunt both have autoimmune diseases. We all have different ones, but that family history made sure that his doctor considered him having an autoimmune disease. You might not know that a family history of x condition could cause the same of different condition in you. And this usually takes pre-work, such as calling different family members and making notes of who has what. How can you keep track of it all? Download the free printable medication and medical history organizer. This is my #1 thing that I always have. I have a copy of it folded in my wallet. I print out new copies to give to my medical team – especially because medical offices usually only give you a couple of lines to write medications and family history. Get it here.

Organize your symptoms beforehand – How is this different than the other things mentioned in this post? I think it’s important to do a person inventory on all of your symptoms that the medical professional should know about. Many offices will give you a form to check out any symptoms that you might have, but if you’re in a rush or the doctor is in a rush, something might get missed. It’s important to figure it out before you go into your appointment. To help you, I’ve pulled together a free large symptom organizer to help you figure things out beforehand. It includes how long you’ve been having symptoms, what makes them better or worse, and more. Check out the symptom organizer here.

Why You Must Track Symptoms of Your Chronic Illness + Freebie To Help

Free Medical Symptom Organizer

What do you always do to prepare for medical appointments if you’re chronically ill?

Like this post? Share it and check out these:

Preparing for Chronic Pain Medical Appointments, Answering Questions about Being Chronically Ill, Hacks for Living with Chronic Conditions, 5 Items Every Immunosuppressed Person Needs

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Having decades-long health problems sometimes mean Having decades-long health problems sometimes means coming across something in your health history that you completely forgot about⁣
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I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
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#AlmostGreatHealth #rheumatoidarthritis #arthritis #spoonielife #healthblogger #autoimmune #autoimmunedisease #chronicallyill #healthblog #dysautonomia #fibro #fibromyalgia #endo #chronicallyill #disability #disabled #invisibleillness #spoonielife #healthblogger
Here are some ways I practice self care, aka talki Here are some ways I practice self care, aka talking care of myself AND who I am as a person separate from illness⁣
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This is my Wonderful Things jar. Every day, I write down something wonderful or good that happened that day. ⁣
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I know it looks like I'm forcing Harley to sit like this, but he was making this face before I put my arm around him. Dog snuggle time is the best!⁣
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I got a Kindle this year and it has been amazing. It's so much easier on my body than lugging around books and it makes borrowing from the library a lot easier.⁣
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Yes, I share this all the time, but filling my pill boxes every 3 weeks make it so I stick with all of my medications. But the self-care part of this is that I don't have to take the time to refill a box every single week.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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1️⃣ A glass jar on a desk with a lot of multi-color post-its inside⁣
2️⃣ Kate has her face in a golden retriever who is slumped onto her. They're in a teal room with a red rug. Kate is a brunette white woman wearing red pants and a gray sweater.⁣
3️⃣ A Kindle on dark mode in Kate's lap⁣
4️⃣ 3 open pill cases on a yellow bedspread ⁣
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#AlmostGreatHealth #AlmostGreatLife #SelfCare #ChronicallyIll #ChronicallyAwesome #SpoonieLife #Spoonie #ChronicLife #ButYouDontLookSick #InvisibleIllness #MentalHealthMatters #RetrieversOfInstagram #Readers #Kindle #WonderfulThings #GratitudePractice
What I Bring To the Doctor _______ Video: a pa What I Bring To the Doctor 

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Video: a pan of an exam room. White text reads “What I Bring To the Doctor ” and the “1. Planner/notebook
2. List of current medications 
3. Notes on my biggest concerns and questions 
4. My kindle for wait time” 
The intro to Maroon 5’s Priceless plays. 

#AlmostGreatHealth #ChronicIllness #ChronicPain #RheumatoidArthritis #SjogrensSyndrome #Fibromyalgia #Endometriosis
💃🏼 Week 17 of #2025Weekly 💃🏼⁣
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1️⃣ She’s married!! ⁣
2️⃣ She married the best person in the world for her!!!!!⁣
3️⃣ I got dressed up! ⁣
4️⃣ The reality of doing fun things with chronic illness and pain is that then you have to recover from the fun things. It took … a while. One million percent worth it, but this is why I don’t do big events on a regular basis. ⁣
5️⃣ And then I had to be a person again for an appointment!⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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1️⃣ Kate stands hugging Emmie. They're both white woman. Emmie is in a wedding dress and Kate is in a red dress and wearing round tortiseshell glasses.⁣
2️⃣ Kate and Emmie stand next to Matt, Emmie's husband. He is a white man.⁣
3️⃣ Kate takes a mirror selfie. she's in the same red dress but now also wears a jean jacket and holds a cane and mask.⁣
4️⃣ Kate takes a selfie while giving a thumbs up. She looks tired. She's now wearing a pink flowery dress. ⁣
5️⃣ Kate takes a mirror selfie. She's wearing black shorts, a gray shirt, a jean jacket, a blue mask, and black aviator sunglasses. She has a bag over her shoulder and holds a cane.⁣
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#AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #InvisibleIllness #SpoonieLife #RheumatoidArthritis #RheumatoidDisease #Autoimmune #ButYouDontLookSick #AutoimmuneDisease #SpoonieLife #InvisibleIllness #DisabledAndCute
On the one hand, you should always believe what pe On the one hand, you should always believe what people tell you about their bodies.⁣
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On the other hand, I’ve had so much ridiculous and unconnected health things happen that I do understand why people might not believe me.⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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#AlmostGreatHealth #ChronicallyIll #ChronicPain #Autoimmune #AutoimmuneDisease #RheumatoidArthritis #RheumatoidDisease #SpoonieLife #InvisibleIllness
Last week, I talked about how it surprised me how Last week, I talked about how it surprised me how systemic autoimmune arthritis can be. But something else that surprised me was how much pain can be caused by small things.⁣
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In this picture, I was getting ready to have an MRI on my knee. It has been bothering me a fair amount the last 6+ months, so I'm trying to do something about that. ⁣
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Unsurprisingly, some of the tissue is damaged, but it's not bad. What's probably causing it to bother me so much is a teeny tiny cyst. ⁣
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Baker's cysts are a type of cyst in the knee that are generally caused by arthritis. But having a cyst in my knee means that it's causing pressure on that damaged tissue. ⁣
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The body is a weird thing, and one of these weird things is developing tiny cysts that cause a lot of pain. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣
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ID: Kate takes a mirror selfie. She's a brunette white woman wearing a hospital gown, scrub bottoms, black mask, round tortoiseshell glasses, and round tortoiseshell glasses. ⁣
🌸 Week 16 of #2025Weekly 🌸 ⁣ ⁣ 1️⃣ S 🌸 Week 16 of #2025Weekly 🌸 ⁣
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1️⃣ Spring has sprung … ⁣
2️⃣ … Which means I am overheating! ⁣
3️⃣ A quick view of NYC on my travels ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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3️⃣ A picture of the New York City skyline behind a bridge.⁣
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#AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #RheumatoidArthritis #SpoonieLife #Autoimmune #AutoimmuneDisease #ChronicPain #Arthritis #RheumatoidDisease #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #POTS #InvisibleIllness
If I met my newly diagnosed self for coffee ... ⁣
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I tell her how things would get worse before they got better. ⁣
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I'd tell her to stop eating gluten, dairy, corn, soy, and eggs immediately (although that would have been a lot harder in 2010, more than it even is now). ⁣
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I'd tell her that she still needs to keep advocating for herself. ⁣
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I'd tell her that having a diagnosis unfortunately doesn't mean everything automatically falls into place. ⁣
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I'd tell her that she'll develop many more illnesses but her quality of life will actually get significantly better. ⁣
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I'd tell her that she would eventually have to get her right foot fixed, although she does expect that.⁣
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I'd tell her that using a cane is not a sign of failure, but a tool to make life better.⁣
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(I did a sort of tongue-in-cheek post about this a while ago and thought I'd post a more serious one).⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate poses for the camera holding a mug with the letter M on it. Kate is a brunette white woman wearing a blue sweater and round tortoiseshell glasses. A white text box reads "If I met my newly diagnosed self for coffee ...". ⁣
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#AlmostGreatHealth #RheumatoidArthritis #RheumatoidDisease #ChronicallyIll #Autoimmune #AutoimmuneDisease #AutoimmuneArthritis #Rheum #InvisibleIllness #Arthritis #ButYouDontLookSick #ArthritisWarrior #CureArthritis
The thing that surprised me the most about autoimm The thing that surprised me the most about autoimmune arthritis is how systemic it is. ⁣
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Like with most things, it's one thing to know the fact and it's something else to experience it. ⁣
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Yes, my joints are affected (a lot). ⁣
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But I've had enough serious infections thats I have to see an immunologist because we need to be aware of my antibodies and I sometimes need help recovering from illnesses. ⁣
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And, yes, I see pulmonology because of my asthma, but we also have to keep an eye out on developing rheumatoid nodules in my lungs. (So far so good!)⁣
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Not to mention that, when I developed POTS, the hospital admitted me to run every heart test to make sure that, at 26, I wasn't experiencing heart failure. ⁣
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Plus, when I developed endometriosis, I also went through a number of GI tests because one theory was that I had ulcerative colitis. ⁣
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Anyway, RA is so much more than "just" joints. If it wasn't, I wouldn't have to kill my immune system every 3 months like I am in this picture.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie in an infusion chair. She is a brunette white woman wearing a Boston Red Sox shirt, blue mask, and round tortoiseshell glasses.⁣⁣
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#AlmostGreatHealth #RheumatoidArthritis #RheumatoidDisease #Rheum #Autoimmune #AutoimmuneDisease #InvisibleIllness #ButYouDontLookSick #Sjogrens #SjogrensSyndrome #POTS #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia
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