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120 resources for living a better life with chronic illness, www. kate the almost great .com
in Health &middot March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

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in Health &middot March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

Check out these 120 resources that will help those living with chronic illness through helping patients and helping patients’ loved ones. I’ve meant to do this for a while, but I have finally compiled an updated breakdown of my health blog posts. This is not all of them, but it’s most of my health posts from the last 6-7 years. I’ve broken them down into groupings, and some posts are in multiple groupings if applicable. And, at the end of the post, I’m telling you all about my newest product: The Chronically Ill Workbook. 

This post contains affiliate links. Thank you for supporting Kate the (Almost) Great®! 

120 resources for living a better life with chronic illness, www. kate the almost great .com
Contents hide
Chronic Illness Generally
Chronic Pain
Illness Guides
POTS
Endometriosis
Arthritis
Tarsal Coalition
Living with Chronic Illness
Newsletter
Advocacy
Holidays
Mental Health
Gift Guides
COVID
Surgeries
Recipes
About The Chronically Ill Workbook

Chronic Illness Generally

What Immunocompromised Patients Need To Know

What No One Tells You About Autoimmune Diseases

Hacks for Chronic Disease Management That You Need

Do I Have a Chronic Illness? What You Should Know If You’re a New Patient

Tips To Make Independently Living with a Chronic Illness Easier

What Is Considered a Chronic Illness? And Other Chronic Illness Basics

6 Tips for How To Accept a Chronic Illness

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

So Someone Healthy Has Given You Health Advice

Living with a Suppressed Immune System in a Pandemic

What Is a Chronic Illness? And Other Frequently Asked Questions

Self-Care Tips That Chronic Illness Patients Need

What Is Self-Advocacy? An Answer + Strategies To Help

Living Life with Chronic Illness: Common Problems & Their Solutions

We Need To Talk about the “Disease Warrior” Model

Why You Must Track Symptoms of Your Chronic Illness + Freebie To Help

The Impact of Chronic Illness on an Individual

How Chronic Illness Affects Relationships

Chronic Illness and the Holidays: 10 Rules for a Great Season

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

How To Stay Healthy in Flu Season

Chronic Illness Advice: Resources for the Newly-Diagnosed Patient

Chronically Ill Tips: What To Do When a Doctor Isn’t Listening to You

Building Self Confidence When Chronically Ill

About the Americans with Disabilities Act

Is Chronic Illness a Disability?

Chronically Ill Tips: Preparing for Medical Appointments + Freebies To Help

Answering Questions about Being Chronically Ill

Resources for the Freshly-Diagnosed Chronic Illness Patient

Questions Not To Ask Someone with a Chronic Illness

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

Dating with a Chronic Illness

Chronic Pain 

Can Chronic Pain Go Away? What You Should Know

What’s Chronic Pain? What You Should Know If You Love Someone with It

What’s In My Tool Box for Dealing with Chronic Pain

What You Need To Know about Living with Chronic Pain in the Winter

What To Do When Chronic Pain Becomes Too Much

Describing Pain Levels to a Doctor

How Is Chronic Pain Different from Acute Pain?

Tools for Pain Management that Aren’t Medications

What you should know about chronic illness, www. kate the almost great .com

Illness Guides 

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What Is Endometriosis Like? An FAQ

What Sjögren’s Syndrome Is: A Beginner’s Guide

What Is POTS? A POTS Frequently Asked Questions Post

What You Should Know About TMJ Arthritis

Endometriosis: The Disease Women Aren’t Talking About

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Free printable to help you prepare for chronic illness medical appointments

POTS 

8 Essential Tips for Living with POTS

The Connection Between Dysautonomia and Anxiety

What Is POTS? A POTS Frequently Asked Questions Post

What’s Heat Intolerance? An Explanation

How Does Postural Orthostatic Tachycardia Syndrome Work?

POTS Exercise Protocol Diary: Month 1

POTS Exercise Protocol Diary: Month 2

POTS Exercise Protocol Diary: Month 3

POTS Exercise Protocol Diary: Month 4

POTS Exercise Protocol Diary: Month 5

What Every POTS Syndrome Patient Needs for the Summer

POTS and Heat Intolerance

The Essential POTS Symptom Journal

Endometriosis

What Is Endometriosis Like? An FAQ

Why Is Endometriosis Misdiagnosed?

What Does Endometriosis Feel Like?

Endometriosis: The Disease Women Aren’t Talking About

Arthritis 

7 Arthritis Myths Busted: Do You Know The Truth?

What Sjögren’s Syndrome Is: A Beginner’s Guide

9 Arthritis Products That Help My Rheumatoid Arthritis

Arthritis Diagnosis: Diagnosis Stories + The Diagnostic Process Explained

What You Should Know About TMJ Arthritis

What Does Arthritis Pain Feel Like?

Beginner’s Guide: Rheumatoid Arthritis Flare Up

Free Medical Symptom Organizer

How Arthritis Affects the Body

Beginner’s Guide: Infusion for Arthritis

How Is Arthritis Treated?

Arthritis Glossary: Frequently Used Words

Caring for Rheumatoid Arthritis Patients

What Is the Difference between Osteoarthritis and Rheumatoid Arthritis?

Why Is Rheumatoid Arthritis Hard to Diagnose?

Helping Someone with RA

My Rheumatoid Arthritis Treatment + How I Got There

Problems from My Inflammatory Arthritis + How To Deal with Them

10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis

10 Ways To Find Fibromyalgia Relief

What You Need To Know about Arthritis

A Day in the Life of an Arthritis Patient

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Living with chronic illness, advice for and by patients, www. kate the almost great .com

Tarsal Coalition

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

The Emotional Side to My Tarsal Coalition Surgery Recovery

On My March 26 Ankle Surgery

Living with Chronic Illness 

Tips To Make Independently Living with a Chronic Illness Easier

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

Living Life with Chronic Illness: Common Problems & Their Solutions

Holiday Survival Guide: Living Well with Chronic Disease

How To Actually Rest When You Take Breaks

Hacks for Living with Chronic Conditions

Newsletter

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Advocacy 

What Is Advocacy? A Patient Advocate’s Guide

9 Ways To Advocate for Disability Rights

What Is Self-Advocacy? An Answer + Strategies To Help

How To Become an Advocate for Patients

Holidays

Celebrating Easter with Chronic Illness

Surviving the Holidays with Chronic Illness: How To Survive, Thrive, & Have a Great Time

10 Ideas for Self Care You Need This Holiday Season

Holiday Survival Guide: Living Well with Chronic Disease

Chronic Illness and the Holidays: 10 Rules for a Great Season

Chronic Illness Hacks for the Holidays

Text reads: free chronic illness symptom journal kate the almost great dot com Image is of someone writing in a notebook while sitting on a couch.

Mental Health

10 Ideas for Self Care You Need This Holiday Season

Mental Health and Chronic Disease Management: What You Should Know

The Connection Between Dysautonomia and Anxiety

Self-Care Tips That Chronic Illness Patients Need

Mental Health And COVID-19: How I’ve Been Managing Mine

Building Self Confidence When Chronically Ill

Chronic Illness and Mental Health

10 Simple Self Care Methods That Will Improve Your Life

Why You Should Try Meditation

The Art of Managing Anxiety

Gift Guides

Best Gift Ideas for the Holidays: New Chronic Illness Patients

Gift Ideas: Chronic Illness Must-Haves

Holiday Gift Ideas: Best Gifts for Someone with Chronic Pain & Illness

Gift Guide: Gift Ideas for Chronically Ill People

Holiday Gift Guide: Gifts for Chronic Illness Patients

Gift Guide: Chronic Illness Gifts

Text reads: Get 25 Instagram Prompts Designed To Connect with Your Chronic Illness Audience

COVID

COVID Diaries of an Immunosuppressed Patient

Mental Health And COVID-19: How I’ve Been Managing Mine

Surgeries

Crucial Ways to Prep for Surgery Recovery Ahead of Time

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

On My March 26 Ankle Surgery

Recipes

Food for TMJ Flares: The Best Recipes To Help Heal

14 Amazing Simple Healthy Recipes for Dinner

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

About The Chronically Ill Workbook

I have a new product for chronic illness patients! In fact, this is the first time I have ever charged for a chronic illness product. 

These worksheets are designed to live your best life. They can help you better understand your body and your symptoms. They can help you have better doctor’s appointments.

These worksheets are based on things I have tried to figure out about my body. They are based on documents that I’ve used for myself.

(As a reminder, though, I am not a doctor, and you should always discuss your medical treatment with a medical professional.)

There are 30+ pages of worksheets, trackers, and journals. Contents include:

  • Chronic Illness Strategies
  • Symptom Inventory
  • Symptoms & Their Impact
  • Illness & Pain Journals
  • Holiday Self-Care Plan
  • Medical Info One-Pager
  • When To Talk To Your Doctor about a Symptom
  • What I Want To Tell My Doctors

Altogether, this workbook is worth over $150 based on the work put into it and the minimum wage. Please pay what you can, whether that be the minimum of $1 or the full $150.

Get it now. 

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Amy Mayfield-Beyer says

    April 8, 2024 at 9:17 am

    Great list of resources!

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    October 19, 2025 at 8:57 am

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

⬛⁣⁣⁣

IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

⬛⁣⁣⁣

IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

⬛⁣

IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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