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120 resources for living a better life with chronic illness, www. kate the almost great .com
in Health &middot March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

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in Health &middot March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

Check out these 120 resources that will help those living with chronic illness through helping patients and helping patients’ loved ones. I’ve meant to do this for a while, but I have finally compiled an updated breakdown of my health blog posts. This is not all of them, but it’s most of my health posts from the last 6-7 years. I’ve broken them down into groupings, and some posts are in multiple groupings if applicable. And, at the end of the post, I’m telling you all about my newest product: The Chronically Ill Workbook. 

This post contains affiliate links. Thank you for supporting Kate the (Almost) Great®! 

120 resources for living a better life with chronic illness, www. kate the almost great .com
Contents hide
Chronic Illness Generally
Chronic Pain
Illness Guides
POTS
Endometriosis
Arthritis
Tarsal Coalition
Living with Chronic Illness
Newsletter
Advocacy
Holidays
Mental Health
Gift Guides
COVID
Surgeries
Recipes
About The Chronically Ill Workbook

Chronic Illness Generally

What Immunocompromised Patients Need To Know

What No One Tells You About Autoimmune Diseases

Hacks for Chronic Disease Management That You Need

Do I Have a Chronic Illness? What You Should Know If You’re a New Patient

Tips To Make Independently Living with a Chronic Illness Easier

What Is Considered a Chronic Illness? And Other Chronic Illness Basics

6 Tips for How To Accept a Chronic Illness

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

So Someone Healthy Has Given You Health Advice

Living with a Suppressed Immune System in a Pandemic

What Is a Chronic Illness? And Other Frequently Asked Questions

Self-Care Tips That Chronic Illness Patients Need

What Is Self-Advocacy? An Answer + Strategies To Help

Living Life with Chronic Illness: Common Problems & Their Solutions

We Need To Talk about the “Disease Warrior” Model

Why You Must Track Symptoms of Your Chronic Illness + Freebie To Help

The Impact of Chronic Illness on an Individual

How Chronic Illness Affects Relationships

Chronic Illness and the Holidays: 10 Rules for a Great Season

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

How To Stay Healthy in Flu Season

Chronic Illness Advice: Resources for the Newly-Diagnosed Patient

Chronically Ill Tips: What To Do When a Doctor Isn’t Listening to You

Building Self Confidence When Chronically Ill

About the Americans with Disabilities Act

Is Chronic Illness a Disability?

Chronically Ill Tips: Preparing for Medical Appointments + Freebies To Help

Answering Questions about Being Chronically Ill

Resources for the Freshly-Diagnosed Chronic Illness Patient

Questions Not To Ask Someone with a Chronic Illness

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

Dating with a Chronic Illness

Chronic Pain 

Can Chronic Pain Go Away? What You Should Know

What’s Chronic Pain? What You Should Know If You Love Someone with It

What’s In My Tool Box for Dealing with Chronic Pain

What You Need To Know about Living with Chronic Pain in the Winter

What To Do When Chronic Pain Becomes Too Much

Describing Pain Levels to a Doctor

How Is Chronic Pain Different from Acute Pain?

Tools for Pain Management that Aren’t Medications

What you should know about chronic illness, www. kate the almost great .com

Illness Guides 

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What Is Endometriosis Like? An FAQ

What Sjögren’s Syndrome Is: A Beginner’s Guide

What Is POTS? A POTS Frequently Asked Questions Post

What You Should Know About TMJ Arthritis

Endometriosis: The Disease Women Aren’t Talking About

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Free printable to help you prepare for chronic illness medical appointments

POTS 

8 Essential Tips for Living with POTS

The Connection Between Dysautonomia and Anxiety

What Is POTS? A POTS Frequently Asked Questions Post

What’s Heat Intolerance? An Explanation

How Does Postural Orthostatic Tachycardia Syndrome Work?

POTS Exercise Protocol Diary: Month 1

POTS Exercise Protocol Diary: Month 2

POTS Exercise Protocol Diary: Month 3

POTS Exercise Protocol Diary: Month 4

POTS Exercise Protocol Diary: Month 5

What Every POTS Syndrome Patient Needs for the Summer

POTS and Heat Intolerance

The Essential POTS Symptom Journal

Endometriosis

What Is Endometriosis Like? An FAQ

Why Is Endometriosis Misdiagnosed?

What Does Endometriosis Feel Like?

Endometriosis: The Disease Women Aren’t Talking About

Arthritis 

7 Arthritis Myths Busted: Do You Know The Truth?

What Sjögren’s Syndrome Is: A Beginner’s Guide

9 Arthritis Products That Help My Rheumatoid Arthritis

Arthritis Diagnosis: Diagnosis Stories + The Diagnostic Process Explained

What You Should Know About TMJ Arthritis

What Does Arthritis Pain Feel Like?

Beginner’s Guide: Rheumatoid Arthritis Flare Up

Free Medical Symptom Organizer

How Arthritis Affects the Body

Beginner’s Guide: Infusion for Arthritis

How Is Arthritis Treated?

Arthritis Glossary: Frequently Used Words

Caring for Rheumatoid Arthritis Patients

What Is the Difference between Osteoarthritis and Rheumatoid Arthritis?

Why Is Rheumatoid Arthritis Hard to Diagnose?

Helping Someone with RA

My Rheumatoid Arthritis Treatment + How I Got There

Problems from My Inflammatory Arthritis + How To Deal with Them

10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis

10 Ways To Find Fibromyalgia Relief

What You Need To Know about Arthritis

A Day in the Life of an Arthritis Patient

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Living with chronic illness, advice for and by patients, www. kate the almost great .com

Tarsal Coalition

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

The Emotional Side to My Tarsal Coalition Surgery Recovery

On My March 26 Ankle Surgery

Living with Chronic Illness 

Tips To Make Independently Living with a Chronic Illness Easier

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

Living Life with Chronic Illness: Common Problems & Their Solutions

Holiday Survival Guide: Living Well with Chronic Disease

How To Actually Rest When You Take Breaks

Hacks for Living with Chronic Conditions

Newsletter

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Advocacy 

What Is Advocacy? A Patient Advocate’s Guide

9 Ways To Advocate for Disability Rights

What Is Self-Advocacy? An Answer + Strategies To Help

How To Become an Advocate for Patients

Holidays

Celebrating Easter with Chronic Illness

Surviving the Holidays with Chronic Illness: How To Survive, Thrive, & Have a Great Time

10 Ideas for Self Care You Need This Holiday Season

Holiday Survival Guide: Living Well with Chronic Disease

Chronic Illness and the Holidays: 10 Rules for a Great Season

Chronic Illness Hacks for the Holidays

Text reads: free chronic illness symptom journal kate the almost great dot com Image is of someone writing in a notebook while sitting on a couch.

Mental Health

10 Ideas for Self Care You Need This Holiday Season

Mental Health and Chronic Disease Management: What You Should Know

The Connection Between Dysautonomia and Anxiety

Self-Care Tips That Chronic Illness Patients Need

Mental Health And COVID-19: How I’ve Been Managing Mine

Building Self Confidence When Chronically Ill

Chronic Illness and Mental Health

10 Simple Self Care Methods That Will Improve Your Life

Why You Should Try Meditation

The Art of Managing Anxiety

Gift Guides

Best Gift Ideas for the Holidays: New Chronic Illness Patients

Gift Ideas: Chronic Illness Must-Haves

Holiday Gift Ideas: Best Gifts for Someone with Chronic Pain & Illness

Gift Guide: Gift Ideas for Chronically Ill People

Holiday Gift Guide: Gifts for Chronic Illness Patients

Gift Guide: Chronic Illness Gifts

Text reads: Get 25 Instagram Prompts Designed To Connect with Your Chronic Illness Audience

COVID

COVID Diaries of an Immunosuppressed Patient

Mental Health And COVID-19: How I’ve Been Managing Mine

Surgeries

Crucial Ways to Prep for Surgery Recovery Ahead of Time

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

On My March 26 Ankle Surgery

Recipes

Food for TMJ Flares: The Best Recipes To Help Heal

14 Amazing Simple Healthy Recipes for Dinner

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

About The Chronically Ill Workbook

I have a new product for chronic illness patients! In fact, this is the first time I have ever charged for a chronic illness product. 

These worksheets are designed to live your best life. They can help you better understand your body and your symptoms. They can help you have better doctor’s appointments.

These worksheets are based on things I have tried to figure out about my body. They are based on documents that I’ve used for myself.

(As a reminder, though, I am not a doctor, and you should always discuss your medical treatment with a medical professional.)

There are 30+ pages of worksheets, trackers, and journals. Contents include:

  • Chronic Illness Strategies
  • Symptom Inventory
  • Symptoms & Their Impact
  • Illness & Pain Journals
  • Holiday Self-Care Plan
  • Medical Info One-Pager
  • When To Talk To Your Doctor about a Symptom
  • What I Want To Tell My Doctors

Altogether, this workbook is worth over $150 based on the work put into it and the minimum wage. Please pay what you can, whether that be the minimum of $1 or the full $150.

Get it now. 

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Amy Mayfield-Beyer says

    April 8, 2024 at 9:17 am

    Great list of resources!

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    October 19, 2025 at 8:57 am

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What helps you mentally get through a tough time?⁣ What helps you mentally get through a tough time?⁣
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I'm struggling right now with my broken foot, which brings back a lot of tough memories. That plus being due for Rituxan and the heat starting up has made things hard. ⁣
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Here are somethings I do: ⁣
▪ Stick with my routine⁣
▪ Make recipes that I really enjoy⁣
▪ Work on embroidery projects so I can do something productive that involves stabbing fabric⁣
▪ Cut myself slack ⁣
▪ Get Harley hugs⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate and Harley the golden retriever hugging. Kate is a redheaded white woman wearing a black dress, pink sweater, and round pink glasses.⁣
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#GoldenRetrievers #RheumatoidArthritis #Fibromyalgia #POTS #SjogrensSyndrome
Week 21 of 2026 Weekly 1️⃣ First real cross-stit Week 21 of 2026 Weekly 

1️⃣ First real cross-stitch project: done! 
2️⃣ The magic machine that is hopefully healing my broken foot 
3️⃣ When your 2 refrigerated medications are delivered on the same day

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛

1️⃣ A completed cross-stitch project, which shows 2 bears walking past a lake, trees, and mountains.
2️⃣ An Exogen machine showing use 13 days in a row
3️⃣ A couple of styrofoam refridgerated containers for medication

#ChronicallyIll #CrossStitch #RheumatoidArthritis #SjogrensSyndrome #IVIG
You guessed it, I'm one of that 25%. ⁣ ⁣ May is Ar You guessed it, I'm one of that 25%. ⁣
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May is Arthritis Awareness Month. Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
You only have rheumatoid arthritis if your rheumatoid factor tests positive.⁣
Fact⁣
As many as 25% of RA patients test negative, which is called being seronegative.⁣
katethealmostgreat
Things are tough (all over pain, heat with POTS, i Things are tough (all over pain, heat with POTS, in a walking cast waiting to see if I need my 6th foot surgery), but so am I.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie. She's a white woman with auburn hair wearing a navy-based floral dress, green glasses, and silver Celtic knot necklace.⁣
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#RheumatoidArthritis #POTS #POTSie #AutoimmuneDisease #ChronicallyIll
Week 20 of #2026Weekly 1️⃣ IVIG + Kindle reading Week 20 of #2026Weekly 

1️⃣ IVIG + Kindle reading 
2️⃣ Almost done!!!!!

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Infusion tubes coming out from under her shirt. There’s a Kindle on her lap.
2️⃣ An almost-finished cross-stitch project

#IVIG #ChronicallyIll #CrossStitcher #CrossStitchersOfInstagram
FAQ: Have you tried [insert supplement here]? As FAQ: Have you tried [insert supplement here]?

As with all things, what’s true for me might not be true for others. I’m sure there are plenty of RA patients who do respond well to supplements; I’m just not one of them. 

Additionally, at one point, I refer to being on chemo since 2012. As always, the chemo I’m referring to is Rituxan, which is my RA treatment. I do not have cancer nor have I ever claimed to. 

Video: Kate talks to the camera. Text at the beginning reads “FAQ: Have you tried [insert supplement here]?” and other text later reads “*24” to correct when she says “symptoms for 21 years”. There are captions. 

#RheumatoidArthritis #AutoimmuneDisease #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
Unfortunately, arthritis doesn't see that you have Unfortunately, arthritis doesn't see that you have one type of arthritis and go, "Darn, guess I'll have to go to someone else."⁣
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May is Arthritis Awareness Month. Like, comment, and share to help spread awareness 💖⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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⬛⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
You can only have 1 type of arthritis.⁣
Fact⁣
You can have several different types of arthritis. katethealmostgreat⁣
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#Arthritis #ArthritisAwareness #RheumatoidArthritis #ArthritisAwarenessMonth #ChronicPain
Week 19 of #2026Weekly I’m not going to lie - my Week 19 of #2026Weekly 

I’m not going to lie - my life now focuses even more on maintaining my body. Trying to avoid foot surgery + keep my bone density up so I don’t break another bone for a while on top of all the other things I do to manage my 10+ illnesses … it’s a lot of work. I did go to actual work this week lol but my camera roll is all chronic illness stuff this week. 

1️⃣ The machine that will hopefully prevent surgery!!! Every day, I do 40 minutes of this ultrasound machine (20 min on 1 fracture, 20 min on the other) and it will speed up healing 🤞🏻🤞🏻🤞🏻 
2️⃣ Continuing my exercise routine per my endocrinologist. Up to 30 minutes of Pilates 4 days a week … and since I don’t do exercises requiring pressure on my feet, the cast comes off. 

◾ 

IDs:
1️⃣ Looking at an at-home ultrasound treatment machine 
2️⃣ Kate’s cast next to her yoga mat 

#Osteoporosis #RheumatoidArthritis #ChronicIllness #ChronicPain
I personally have rheumatoid arthritis, fibromyalg I personally have rheumatoid arthritis, fibromyalgia, and Sjögren's syndrome, which makes 3 forms of arthritis.⁣
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May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖 ⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis means only 1 thing.⁣
Fact⁣
There are over 100 kinds of arthritis, including osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, and more!⁣
katethealmostgreat⁣
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#ArthritisAwareness #RheumatoidArthritis #Fibromyalgia #SjogrensSyndrome #Arthritis
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