• Skip to main content
  • Skip to primary sidebar
  • Skip to footer

Kate the (Almost) Great

Chronic illness blog

  • Home
  • Start Here
    • About
    • As Seen On
    • Tags & Topics
    • Popular Posts
  • Blogging Resources
  • Freebie
  • Shop the Blog
    • Products for the Chronically Ill
  • Contact & Work with Me
    • Ads and Sponsoring
  • Follow
  • Holiday
    • Gift Guides

in Health &middot October 2, 2020

What Does Arthritis Pain Actually Feel Like?

One of the hallmarks of arthritis is, of course, pain. If you don’t know anything about arthritis, you probably know that pain is involved. But what a lot of people don’t realize is that the pain can differ from one type of arthritis to another. And it can be different from one patient to another, even if you have the same type! So today we’re going to answer the question, “What does arthritis pain feel like?”

There are over 100 types of arthritis, and I’m not going to address all of them. I am going to share my experience with rheumatoid arthritis, and others are sharing their experience with some other types. Thank you to those who helped me with this post!

Friendly reminder that I am not a medical professional. I am speaking from my own experience, and when I share the experience of others and advice from actual medical professionals, I include citations. This post contains affiliate links and ads. Thank you for supporting Kate the (Almost) Great!

Text reads: What does arthritis pain feel like? www. kate the almost great .com

What Does Arthritis Pain Feel Like?

Contents hide
What Does Arthritis Pain Feel Like?
What My Rheumatoid Arthritis Pain Feels Like
My Experience with Pain from RA Damage
What Arthritis Feels Like (According to Others)
Leslie’s Experience with Rheumatoid Arthritis Pain
Sebastien’s Experience with Ankylosing Spondylitis Pain
Sarah’s Experience with Spondyloarthritis
Lisa’s Experience with Psoriatic Arthritis
What does arthritis feel like for you?

What My Rheumatoid Arthritis Pain Feels Like

Morning stiffness and pain – One key sign of inflammatory arthritis is morning stiffness. This means pretty much what it sounds like: I’m extra stiff in the morning. For me personally, this also means some morning pain. It’s different than pain later in the day, as it’s more like pain from my joints taking a while to warm up in the morning. When I’m doing well, my morning stiffness and pain last about 30 minutes. When I’m not, it can take at least 2 hours to wear off.

Because of this, I like to wake up way earlier than I might otherwise. If I start work at 8, for example, I want to wake up between 6 and 7. This gives me time to mentally and physically fully wake up. My morning pain is around the joints that are particularly stiff. For example, my good knee feels not-terrible most of the time, but it is difficult first thing in the morning. It is stiff and I have more pain in the morning in that knee than I do during the rest of the day.

Why you must track chronic illness symptoms + freebie to help

WrightStuff.biz

Daily normal pain – My traditional daily pain is like an ache focused around the particular joints that are affected and bother me. When it is really bad, that “ache” radiates out from the joint. I put ache in quotation marks because while it is the best description for it, I personally feel like it downplays the pain.

7 Arthritis Myths Busted: Do You Know The Truth?

Let me be clear: that aching can hurt incredibly badly.

But it is not sharp or shooting or stabbing. It is definitely an ache. It is an ache that at best is a constant background noise and at worst means I am unable to do anything other than watch tv.

That being said, let’s go back to what my daily pain is like.

This daily pain can be rather creaky. In fact, that’s such a staple of arthritis pain and descriptions of it that there is online community for arthritis patients called CreakyJoints! If you live with arthritis – and there’s a strong chance you are, given you’re reading this post – you should check them out. They also created an app called ArthritisPower with rheumatology researchers at the University of Alabama at Birmingham! I highly suggest that app to keep track of your arthritis symptoms. This is not sponsored: I just really like CreakyJoints and the ArthritisPower app.

Beginner’s guide: rheumatoid arthritis flare up

My Experience with Pain from RA Damage

Pain from bone erosion and/or cartilage damage – Something I have experienced several times in several joints is my RA damaging my cartilage. The abstract of a 2016 study said, “Even successful treatment with complete resolution of synovial inflammatory processes does not lead to full reversal of joint functionality, pointing to the crucial contribution of irreversibly damaged structural components, such as bone and cartilage, to restricted joint mobility” (x). Basically what this means is that even if your RA improves, if it has already damaged your cartilage or bone, there is still pain and difficulty using it.

This study found that “cartilage damage and bone erosion, but not synovial inflammation, are the most important determinants for progressive functional impairment in this chronic erosive arthritis model” (x). This means that, for people who have cartilage damage and bone erosion, those things are bigger factors in the day-to-day use of the joints than synovial inflammation itself.

(For those of you unfamiliar with how inflammatory autoimmune arthritis works, the immune system causes inflammation in synovium, or lining of the joints, and that inflammation leads to cartilage damage and bone erosion.)

Organic Bedding

Now that we’ve addressed that bone erosion and cartilage damage can be associated with RA, I want to talk about how those things feel. I have had the two of them together in both of my feet, which had to be repaired with synthetic bone grafts in both cases. That pain felt like grinding while I walked, but otherwise it was extremely sharp and stabbing.

I also have cartilage damage alone in my right wrist. Because of where it is, I actually don’t feel it too much in the wrist itself. When I do, my wrist aches, especially when holding heavy things. But I actually feel it most in the ligaments and tendons in my hand, as they are moving over and around damaged cartilage, causing strong aching pain in the knuckles of that hand. When it is particularly bad, it is particularly sharp. There are also cysts around those knuckles, but we don’t know if the cysts or the wrist cartilage damage came first.

How arthritis affects the body

What pain from different forms of arthritis feel[s] like, www. kate the almost great .com

Now that I’ve shared my experience with rheumatoid arthritis pain, let’s talk about other types of arthritis. In addition to info from reputable sources, I asked people on Twitter to share what arthritis pain feels like for them. I “only” have RA, so I can’t describe what any of the other types feels like. I’ve included their descriptions of their pain below, as well as where you can find them if you want to connect with more people with arthritis.

What Arthritis Feels Like (According to Others)

The form of arthritis that most people are familiar with is osteoarthritis. Everyday Health says that osteoarthritis includes pain that:

  • isn’t noticeable in the morning but gets worse throughout the day
  • affects your posture and gait and may cause limping
  • aches deep into the joint

That is nowhere near the extensive list of what osteoarthritis feels like. Their full list is here.

Arthritis glossary: frequently-used words | What is the difference between osteoarthritis and rheumatoid arthritis?

Leslie’s Experience with Rheumatoid Arthritis Pain

I also want to talk about other patients’ experience with rheumatoid arthritis is. Leslie says it feels like “like tiny gnomes chiseling away at my knees, elbows, shoulders, etc.”. I love that description! Unfortunately, “chiseling” is an accurate word for anyone with cartilage damage and/or bone erosion.

Follow Leslie on Twitter, Instagram, and her blog.

Sebastien’s Experience with Ankylosing Spondylitis Pain

Ankylosing spondylitis is a form of arthritis that primarily affects the spine, and overtime it fuses the spine (x). Areas affected by AS include the joint between the spine and pelvis, low-back vertebrae, places where your tendons and ligaments attach to bones, mainly in your spine, and more (x).

Sebastien is someone with ankylosing spondylitis, and he says, “The pain is variable depending on the area affected. For example in my shoulders it is a dull pain, in my spine it is radiating, in my foot it is piercing. I guess it also depends whether the pain is in the join or ligament”.

Tips To Make Independently Living with a Chronic Illness Easier

Mobility-Aids.com

Sarah’s Experience with Spondyloarthritis

Spondyloarthritis is inflammatory arthritis primarily in the spine, but it is in other joints (x). This is slightly different from ankylosing spondylitis as it’s a category of inflammatory arthritis. (The word “spondylitis” itself literally means inflammation of the vertebrae (x)). Ankylosing spondylitis is a form of spondyloarthritis, but just because you have spondyloarthritis doesn’t mean you have ankylosing spondylitis, if that makes sense.

Sarah is a spondyloarthritis patient, and she says, “My biggest areas of pain are back, hips, and chest (costochondritis.) The costochondritis can feel like stabbing pain when I take a deep breath or pain with pressure (like from wearing a bra). The pain in my back tends to be more dull, aching pain, while the pain in my hips/SI joints can feel more sharp or pinching. All of these types of pain are usually worse in the morning when I wake up (esp neck and shoulder stiffness/pain). Although the costochondritis and hip/knee/arm joint pain can be more severe towards the end of the day.”

Follow Sarah on Twitter and check out her website here.

Organic Bedding

The costochondritis Sarah mentions is inflammation in the rib cartilage (x). I have also experienced it over the years, and in my experience, there is a lot of stabbing pain. While it itself is not a form of arthritis, it can be caused by some forms (x). While I’m sure others could cause it as well, the more common arthritic causes of costochondritis are osteoarthritis, rheumatoid arthritis, and ankylosing spondylitis (x).

What Sjögren’s Syndrome Is: A Beginner’s Guide

Free printable to prepare you for chronic pain medical appointments

Lisa’s Experience with Psoriatic Arthritis

Another form of arthritis I want to mention is psoriatic arthritis. That can include painful “sausage-like” swelling in fingers and toes – which just sounds very painful, especially if you’re wearing rings or socks! – pain where tendons and ligaments attach to your bones, as well as spondylitis.

Lisa has psoriatic arthritis. She says, “I can best describe my pain which is all over, worse in more areas than others and at different or the same time as if you have a bruise and someone is pushing down on it”.

A form of arthritis that people don’t realize is arthritis is gout. Gout is characterized by sudden severe pain episodes. This pain is often worst in the first 12 hours of the attack. Some famous people from history with gout are Benedict Arnold, Benjamin Franklin, King George IV, King Henry VIII, and Nostradamus (x).

What Is Considered a Chronic Illness? And Other Chronic Illness Basics

ArthritisSupplies.com

Reactive arthritis is when you have an infection in one area of your body, and it triggers joint pain and swelling (x). It generally starts 1 to 4 weeks after the infection. This pain generally affects knees, ankles, and feet, but you might feel it in your heels, low back, or butt (x). On the other hand, it can also cause inflammation in soft tissue when it enters bone, causing pain in muscles, tendons, and ligaments (x).

6 Tips for How To Accept a Chronic Illness

These are only some forms of arthritis. Like I mentioned above, there are over 100 types of arthritis. Some will have pain similar to what has been described in this post, and some will have different experiences.

I wanted to share the information in this post to help patients feel less alone in their pain, but if your pain doesn’t fit what has been described in this post, that doesn’t mean that you don’t have arthritis.

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

What does arthritis feel like for you?

Like this post? Check out:

How Is Arthritis Treated?, My Rheumatoid Arthritis Treatment + How I Got There, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, What You Need To Know about Living with Chronic Pain in the Winter

What does arthritis pain feel like? kate the almost great .com
What arthritis feels like
what does arthritis pain feel like, kate the almost great .com
what arthritis pain feels like, descriptions from multiple arthritis patients, www. kate the almost great .com
Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

Share this with your family and friends:

  • Share on X (Opens in new window) X
  • Share on Facebook (Opens in new window) Facebook
  • Share on Pinterest (Opens in new window) Pinterest
  • Email a link to a friend (Opens in new window) Email
  • Share on LinkedIn (Opens in new window) LinkedIn
  • Print (Opens in new window) Print
  • Share on Tumblr (Opens in new window) Tumblr

Related

Previous Post: « 12 Boston Small Businesses To Support
Next Post: 4 Creative Ways To Grow Blog Traffic: September Blog Traffic Report »

Reader Interactions

Comments

  1. Venus says

    October 3, 2020 at 10:27 am

    I don’t have arthritis, but I do find this very informative. I always heard of it, but never really knew what it was. I never knew there were so many different kinds.

    Loading...
    Reply
  2. Becky says

    October 3, 2020 at 11:47 pm

    I feel for you so much! My mom has RA, so a lot of these sounded familiar to things I know she was dealing with even while we were growing up. Thank you for sharing your experience.

    Loading...
    Reply
  3. Christa says

    October 4, 2020 at 12:49 pm

    I’ve recently been diagnosed with arthritis. I have so much to learn about what it is and how to deal with it.

    Loading...
    Reply

Trackbacks

  1. What You Should Know About TMJ Arthritis | Chronic Illness Blog says:
    June 22, 2021 at 7:00 am

    […] What Does Arthritis Pain Feel Like?  […]

    Loading...
    Reply
  2. Arthritis Diagnosis: Diagnosis Stories + The Diagnosis Process Explained says:
    July 27, 2021 at 7:01 am

    […] What Does Arthritis Pain Feel Like? […]

    Loading...
    Reply
  3. The Lifestyle Changes I Made for My Rheumatoid Arthritis Management says:
    October 2, 2022 at 9:27 am

    […] What Does Arthritis Pain Feel Like? […]

    Loading...
    Reply
  4. 9 Arthritis Products That Help My Rheumatoid Arthritis says:
    October 3, 2022 at 7:51 am

    […] What Does Arthritis Pain Feel Like? […]

    Loading...
    Reply
  5. Why Is Rheumatoid Arthritis Hard to Diagnose? - Kate the (Almost) Great says:
    October 3, 2022 at 1:52 pm

    […] What Does Arthritis Pain Feel Like? […]

    Loading...
    Reply
  6. Food for TMJ Flares: The Best Recipes To Help Heal says:
    January 3, 2023 at 7:00 am

    […] In My Tool Box for Dealing with Chronic Pain, What Does Arthritis Pain Feel Like?, Arthritis Glossary: Frequently Used Words, What Is the Difference between Osteoarthritis and […]

    Loading...
    Reply
  7. 7 Arthritis Myths Busted: Do You Know The Truth? says:
    January 28, 2023 at 2:22 pm

    […] All of these things feel differently, so arthritis doesn’t only feel one way. And this is all just rheumatoid arthritis! You can learn how other forms of arthritis feel in this post.  […]

    Loading...
    Reply
  8. How Is Arthritis Treated? | Kate the (Almost) Great, Boston Lifestyle Blog says:
    January 11, 2024 at 7:18 am

    […] What does arthritis pain feel like? […]

    Loading...
    Reply
  9. What You Need To Know about Living with Chronic Pain in the Winter says:
    January 12, 2024 at 6:34 pm

    […] What Does Arthritis Pain Feel Like?, Describing Pain Levels to a Doctor, Answering Questions about Being Chronically Ill, What You Need To Know about Arthritis […]

    Loading...
    Reply
  10. Can Chronic Pain Go Away? What You Should Know says:
    January 24, 2024 at 5:15 pm

    […] healthline says that bone pain is “often described as a deep or penetrating pain” (x). This is often due to “decreased bone density or an injury to your bone […] Bone pain or tenderness could be the result of infection, an interruption in the blood supply, or cancer” (x). This is generally the kind of pain that I have from arthritis. […]

    Loading...
    Reply
  11. 3 Types of Chronic Pain that Sound Bearable, but are Not says:
    June 3, 2024 at 12:03 pm

    […] What Does Arthritis Pain Feel Like? (katethealmostgreat.com) […]

    Loading...
    Reply
  12. Osteoarthritis vs Rheumatoid Arthritis: What's the Difference? says:
    July 5, 2024 at 3:52 pm

    […] What Does Arthritis Pain Feel Like? […]

    Loading...
    Reply
  13. 120 Resources for Living with Chronic Illness says:
    August 21, 2024 at 11:12 am

    […] What Does Arthritis Pain Feel Like? […]

    Loading...
    Reply
  14. What's In My Tool Box for Dealing with Chronic Pain says:
    April 11, 2026 at 11:06 am

    […] Beginner’s Guide: Rheumatoid Arthritis Flare Up | What Does Arthritis Pain Feel Like? […]

    Loading...
    Reply
  15. Rheumatoid Arthritis Guide: Part Two says:
    May 31, 2026 at 7:52 am

    […] What Does Arthritis Pain Actually Feel Like? […]

    Loading...
    Reply

Leave a ReplyCancel reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Primary Sidebar

Kate the (Almost) Great® is a chronic illness lifestyle blog. It is a resource for chronic illness patients and their loved ones.

  • Bluesky
  • Email
  • Facebook
  • Instagram
  • Pinterest
  • Threads
  • TikTok
  • Twitter

Categories

Health
Lifestyle
Writing & Blogging

Pages To Start With

  • About Kate the (Almost) Great®: Meet the Health Blogger
  • As Seen On
  • Contact & Work with Me
  • Follow
  • Health Blog Resources I Actually Use + Recommend
  • Newsletter
  • Popular Posts
  • Privacy Policy & Disclaimer Policy
  • Products for the Chronically Ill: My Recommendations
  • Shop
  • Start Here
  • Tags & Topics

Search

As an Amazon Associate I earn from qualifying purchases.

This blog uses affiliate links. Thank you for supporting Kate the (Almost) Great!

Sign Up for the Newsletter

Please wait...

Thank you for sign up!

Most Popular Posts

  • What Every POTS Syndrome Patient Needs for the Summer
  • 9 Arthritis Products That Help My Rheumatoid Arthritis
  • The Products I Loved (And Wanted) in Grad School
  • Seronegative Rheumatoid Arthritis Diagnosis: What I’ve Learned
  • Beginner’s Guide: Rheumatoid Arthritis Flare Up
  • The Lifestyle Changes I Made for My Rheumatoid Arthritis
  • What Is the Difference between Osteoarthritis and Rheumatoid Arthritis?
  • What Sjögren’s Syndrome Is: A Beginner’s Guide


Bluehost.com Web Hosting $3.95

Health Union Patient Leader Certification

Support KTAG

If you like what I do, please support me on Ko-fi.




Footer

Sign Up for FREE Instagram Challenge

Get 25 FREE Instagram prompts for chronic health creators!

You can unsubscribe anytime. For more details, review our Privacy Policy.

Thank you!

You have successfully joined our subscriber list.

Get your FREE Instagram challenge here 

and 

For just $5 get your copy of my ebook Take Your Blog (And Income!) to the Next Level with code "greatest".

.

Kate the (Almost) Great

Chronic health lifestyle blog

Lets Go!
  • Facebook
  • Instagram
  • Pinterest
  • Twitter
Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
⁣
ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
⁣
#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

⬛⁣⁣⁣

IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
⁣
ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
⁣
#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
⁣
I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
⁣
Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
⁣
I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
⁣
We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
⁣
This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
⁣
PTSD is a bitch.⁣
⁣
(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣ ⁣
⁣
ID: Kate takes a selfie in a doctor's office. ⁣
⁣
#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

⬛⁣⁣⁣

IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
⁣
For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣
⁣
ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
⁣
#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
⁣
I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
⁣
This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
⁣
I can finish my treatment and then go about my day, which I'm very grateful for.⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
⁣
ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
⁣
#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

⬛⁣

IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
Follow on Instagram

Copyright © 2026 · Kate the (Almost) Great · Design by Studio Mommy

%d