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in Health &middot October 2, 2020

What Does Arthritis Pain Actually Feel Like?

One of the hallmarks of arthritis is, of course, pain. If you don’t know anything about arthritis, you probably know that pain is involved. But what a lot of people don’t realize is that the pain can differ from one type of arthritis to another. And it can be different from one patient to another, even if you have the same type! So today we’re going to answer the question, “What does arthritis pain feel like?”

There are over 100 types of arthritis, and I’m not going to address all of them. I am going to share my experience with rheumatoid arthritis, and others are sharing their experience with some other types. Thank you to those who helped me with this post!

Friendly reminder that I am not a medical professional. I am speaking from my own experience, and when I share the experience of others and advice from actual medical professionals, I include citations. This post contains affiliate links and ads. Thank you for supporting Kate the (Almost) Great!

Text reads: What does arthritis pain feel like? www. kate the almost great .com

What Does Arthritis Pain Feel Like?

Contents hide
What Does Arthritis Pain Feel Like?
What My Rheumatoid Arthritis Pain Feels Like
My Experience with Pain from RA Damage
What Arthritis Feels Like (According to Others)
Leslie’s Experience with Rheumatoid Arthritis Pain
Sebastien’s Experience with Ankylosing Spondylitis Pain
Sarah’s Experience with Spondyloarthritis
Lisa’s Experience with Psoriatic Arthritis
What does arthritis feel like for you?

What My Rheumatoid Arthritis Pain Feels Like

Morning stiffness and pain – One key sign of inflammatory arthritis is morning stiffness. This means pretty much what it sounds like: I’m extra stiff in the morning. For me personally, this also means some morning pain. It’s different than pain later in the day, as it’s more like pain from my joints taking a while to warm up in the morning. When I’m doing well, my morning stiffness and pain last about 30 minutes. When I’m not, it can take at least 2 hours to wear off.

Because of this, I like to wake up way earlier than I might otherwise. If I start work at 8, for example, I want to wake up between 6 and 7. This gives me time to mentally and physically fully wake up. My morning pain is around the joints that are particularly stiff. For example, my good knee feels not-terrible most of the time, but it is difficult first thing in the morning. It is stiff and I have more pain in the morning in that knee than I do during the rest of the day.

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Daily normal pain – My traditional daily pain is like an ache focused around the particular joints that are affected and bother me. When it is really bad, that “ache” radiates out from the joint. I put ache in quotation marks because while it is the best description for it, I personally feel like it downplays the pain.

7 Arthritis Myths Busted: Do You Know The Truth?

Let me be clear: that aching can hurt incredibly badly.

But it is not sharp or shooting or stabbing. It is definitely an ache. It is an ache that at best is a constant background noise and at worst means I am unable to do anything other than watch tv.

That being said, let’s go back to what my daily pain is like.

This daily pain can be rather creaky. In fact, that’s such a staple of arthritis pain and descriptions of it that there is online community for arthritis patients called CreakyJoints! If you live with arthritis – and there’s a strong chance you are, given you’re reading this post – you should check them out. They also created an app called ArthritisPower with rheumatology researchers at the University of Alabama at Birmingham! I highly suggest that app to keep track of your arthritis symptoms. This is not sponsored: I just really like CreakyJoints and the ArthritisPower app.

Beginner’s guide: rheumatoid arthritis flare up

My Experience with Pain from RA Damage

Pain from bone erosion and/or cartilage damage – Something I have experienced several times in several joints is my RA damaging my cartilage. The abstract of a 2016 study said, “Even successful treatment with complete resolution of synovial inflammatory processes does not lead to full reversal of joint functionality, pointing to the crucial contribution of irreversibly damaged structural components, such as bone and cartilage, to restricted joint mobility” (x). Basically what this means is that even if your RA improves, if it has already damaged your cartilage or bone, there is still pain and difficulty using it.

This study found that “cartilage damage and bone erosion, but not synovial inflammation, are the most important determinants for progressive functional impairment in this chronic erosive arthritis model” (x). This means that, for people who have cartilage damage and bone erosion, those things are bigger factors in the day-to-day use of the joints than synovial inflammation itself.

(For those of you unfamiliar with how inflammatory autoimmune arthritis works, the immune system causes inflammation in synovium, or lining of the joints, and that inflammation leads to cartilage damage and bone erosion.)

Organic Bedding

Now that we’ve addressed that bone erosion and cartilage damage can be associated with RA, I want to talk about how those things feel. I have had the two of them together in both of my feet, which had to be repaired with synthetic bone grafts in both cases. That pain felt like grinding while I walked, but otherwise it was extremely sharp and stabbing.

I also have cartilage damage alone in my right wrist. Because of where it is, I actually don’t feel it too much in the wrist itself. When I do, my wrist aches, especially when holding heavy things. But I actually feel it most in the ligaments and tendons in my hand, as they are moving over and around damaged cartilage, causing strong aching pain in the knuckles of that hand. When it is particularly bad, it is particularly sharp. There are also cysts around those knuckles, but we don’t know if the cysts or the wrist cartilage damage came first.

How arthritis affects the body

What pain from different forms of arthritis feel[s] like, www. kate the almost great .com

Now that I’ve shared my experience with rheumatoid arthritis pain, let’s talk about other types of arthritis. In addition to info from reputable sources, I asked people on Twitter to share what arthritis pain feels like for them. I “only” have RA, so I can’t describe what any of the other types feels like. I’ve included their descriptions of their pain below, as well as where you can find them if you want to connect with more people with arthritis.

What Arthritis Feels Like (According to Others)

The form of arthritis that most people are familiar with is osteoarthritis. Everyday Health says that osteoarthritis includes pain that:

  • isn’t noticeable in the morning but gets worse throughout the day
  • affects your posture and gait and may cause limping
  • aches deep into the joint

That is nowhere near the extensive list of what osteoarthritis feels like. Their full list is here.

Arthritis glossary: frequently-used words | What is the difference between osteoarthritis and rheumatoid arthritis?

Leslie’s Experience with Rheumatoid Arthritis Pain

I also want to talk about other patients’ experience with rheumatoid arthritis is. Leslie says it feels like “like tiny gnomes chiseling away at my knees, elbows, shoulders, etc.”. I love that description! Unfortunately, “chiseling” is an accurate word for anyone with cartilage damage and/or bone erosion.

Follow Leslie on Twitter, Instagram, and her blog.

Sebastien’s Experience with Ankylosing Spondylitis Pain

Ankylosing spondylitis is a form of arthritis that primarily affects the spine, and overtime it fuses the spine (x). Areas affected by AS include the joint between the spine and pelvis, low-back vertebrae, places where your tendons and ligaments attach to bones, mainly in your spine, and more (x).

Sebastien is someone with ankylosing spondylitis, and he says, “The pain is variable depending on the area affected. For example in my shoulders it is a dull pain, in my spine it is radiating, in my foot it is piercing. I guess it also depends whether the pain is in the join or ligament”.

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Sarah’s Experience with Spondyloarthritis

Spondyloarthritis is inflammatory arthritis primarily in the spine, but it is in other joints (x). This is slightly different from ankylosing spondylitis as it’s a category of inflammatory arthritis. (The word “spondylitis” itself literally means inflammation of the vertebrae (x)). Ankylosing spondylitis is a form of spondyloarthritis, but just because you have spondyloarthritis doesn’t mean you have ankylosing spondylitis, if that makes sense.

Sarah is a spondyloarthritis patient, and she says, “My biggest areas of pain are back, hips, and chest (costochondritis.) The costochondritis can feel like stabbing pain when I take a deep breath or pain with pressure (like from wearing a bra). The pain in my back tends to be more dull, aching pain, while the pain in my hips/SI joints can feel more sharp or pinching. All of these types of pain are usually worse in the morning when I wake up (esp neck and shoulder stiffness/pain). Although the costochondritis and hip/knee/arm joint pain can be more severe towards the end of the day.”

Follow Sarah on Twitter and check out her website here.

Organic Bedding

The costochondritis Sarah mentions is inflammation in the rib cartilage (x). I have also experienced it over the years, and in my experience, there is a lot of stabbing pain. While it itself is not a form of arthritis, it can be caused by some forms (x). While I’m sure others could cause it as well, the more common arthritic causes of costochondritis are osteoarthritis, rheumatoid arthritis, and ankylosing spondylitis (x).

What Sjögren’s Syndrome Is: A Beginner’s Guide

Free printable to prepare you for chronic pain medical appointments

Lisa’s Experience with Psoriatic Arthritis

Another form of arthritis I want to mention is psoriatic arthritis. That can include painful “sausage-like” swelling in fingers and toes – which just sounds very painful, especially if you’re wearing rings or socks! – pain where tendons and ligaments attach to your bones, as well as spondylitis.

Lisa has psoriatic arthritis. She says, “I can best describe my pain which is all over, worse in more areas than others and at different or the same time as if you have a bruise and someone is pushing down on it”.

A form of arthritis that people don’t realize is arthritis is gout. Gout is characterized by sudden severe pain episodes. This pain is often worst in the first 12 hours of the attack. Some famous people from history with gout are Benedict Arnold, Benjamin Franklin, King George IV, King Henry VIII, and Nostradamus (x).

What Is Considered a Chronic Illness? And Other Chronic Illness Basics

ArthritisSupplies.com

Reactive arthritis is when you have an infection in one area of your body, and it triggers joint pain and swelling (x). It generally starts 1 to 4 weeks after the infection. This pain generally affects knees, ankles, and feet, but you might feel it in your heels, low back, or butt (x). On the other hand, it can also cause inflammation in soft tissue when it enters bone, causing pain in muscles, tendons, and ligaments (x).

6 Tips for How To Accept a Chronic Illness

These are only some forms of arthritis. Like I mentioned above, there are over 100 types of arthritis. Some will have pain similar to what has been described in this post, and some will have different experiences.

I wanted to share the information in this post to help patients feel less alone in their pain, but if your pain doesn’t fit what has been described in this post, that doesn’t mean that you don’t have arthritis.

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

What does arthritis feel like for you?

Like this post? Check out:

How Is Arthritis Treated?, My Rheumatoid Arthritis Treatment + How I Got There, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, What You Need To Know about Living with Chronic Pain in the Winter

What does arthritis pain feel like? kate the almost great .com
What arthritis feels like
what does arthritis pain feel like, kate the almost great .com
what arthritis pain feels like, descriptions from multiple arthritis patients, www. kate the almost great .com
Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Venus says

    October 3, 2020 at 10:27 am

    I don’t have arthritis, but I do find this very informative. I always heard of it, but never really knew what it was. I never knew there were so many different kinds.

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  2. Becky says

    October 3, 2020 at 11:47 pm

    I feel for you so much! My mom has RA, so a lot of these sounded familiar to things I know she was dealing with even while we were growing up. Thank you for sharing your experience.

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  3. Christa says

    October 4, 2020 at 12:49 pm

    I’ve recently been diagnosed with arthritis. I have so much to learn about what it is and how to deal with it.

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I personally have rheumatoid arthritis, fibromyalg I personally have rheumatoid arthritis, fibromyalgia, and Sjögren's syndrome, which makes 3 forms of arthritis.⁣
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May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖 ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis means only 1 thing.⁣
Fact⁣
There are over 100 kinds of arthritis, including osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, and more!⁣
katethealmostgreat⁣
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#ArthritisAwareness #RheumatoidArthritis #Fibromyalgia #SjogrensSyndrome #Arthritis
SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
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Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
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