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· March 4, 2022

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For those who only think I’m ill when I look it

For those who only think I’m ill when I look it 💁🏼‍♀️

_______

Video: 2 videos of Kate. She’s put together and looks nice and the first and looks really miserable in the same. The first is labeled “chronically ill” and the second it labeled “(visibly) chronically ill”. Music with a beat plays.

#AlmostGreatHealth #InvisiblyIll #AutoimmuneDisease

(1) An Incomplete List of Things I Do Daily for My

Growing up, I wanted to be a fiction writer. While $Growing up, I wanted to be a fiction writer. While I don't do too much fiction writing these days, this year I wrote over 50,000 words for the fourth year in a row. ⁣ ⁣ For those of you who don't know, 50,000 is the amount at which a book officially counts as a novel. And between blog posts and newsletters, I've written a novel's worth once again. ⁣ ⁣ Things have felt weird this year. Getting and recovering from COVID took up a lot of my time and energy. I also had 3 stress fractures in my foot over the summer and I was on high steroids for a lot of the year. Last week was the anniversary of the closest I've come to death (this entire month is, but November 28-December 5th is the big PTSD time for my brain). Thanksgiving was so late that Christmas is SO SOON. ⁣ ⁣ But what has been normal? The blog and my love of writing. ⁣ ⁣ Here's to writing another book's worth of words next year.⁣ ⁣ ◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣ I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣ ⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣ ID: Kate smiles at the camera holding a pen. She's a redheaded white woman wearing a sparkly navy sweater, silver claddagh necklace, and round tortoiseshell glasses.⁣ ⁣ #AlmostGreatLife #AlmostGreatBlog #ChronicIllnessBlogger #HealthBlogger #HealthBlog #ChronicallyIll #SpoonieBlogger #SpoonieBlog #SpoonieLife$

One of the medical advances that I hope will happe

One of the medical advances that I hope will happen in my lifetime is that more treatments that work for me become available AND not all of them are infusions. ⁣
⁣
I am outrageously grateful that Rituxan and its biosimilars are available (and thatI respond to the less-expensive biosimilars) but I would love to not deal with the process of actually getting an infusion. They're not bad - and I'm on a much-shorter infusion these days because I can't be on a full dose any more - but it is a hassle. ⁣
⁣
What medical advances (other than a cure) do you hope will happen in your lifetime?⁣
⁣
◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
ID: Kate's arm on which is an Apple Watch with a blue flowery band, silver bracelet, and the view of an IV tube (no sign of the IV).⁣

Here are some insights into what I talk to my rheu

Here are some insights into what I talk to my rheumatologist about! I will also say that my rheumatologist has been my doctor since 2010 and he’s one of the only doctors that I trust implicitly.

_______

Video: Kate talks to the camera. She is a redheaded white woman wearing a yellow shirt with a navy flannel, round tortoiseshell glasses, and a silver claddagh necklace. White text reads “What I Tell My Rheumatologist” and there are captions in a black box.

#RheumatoidDisease #RheumatoidArthritis

“I will only mask if a vulnerable person asks me

“I will only mask if a vulnerable person asks me 1 on 1” ⁣
⁣
Okay, well I almost never ask people to mask because I don’t want the experience of constantly asking people to allow me to live and almost always being told “no” so write that down⁣
⁣
◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
ID: Screenshot of a tweet. The background is dark teal, and it's written by Kate Mitchell | Kate the (Almost) Great with the username kmitchellauthor. ⁣The text reads what's above the first box.⁣
⁣
#AlmostGreatHealth #AutoimmuneDisease #InvisibleIllness #ChronicallyIll

Holidays you love can be extra hard with dealing w

Holidays you love can be extra hard with dealing with chronic illness and pain. Don’t beat yourself up.

_______

Video: a Christmas tree with a crackling fire behind it. White text reads what’s above the line. “Christmas time is here” from Charlie Brown Christmas plays.

chronic illness, Christmas tree, Christmas, chronically ill

"Kate, I'm buying gifts for people with chronic pa

"Kate, I'm buying gifts for people with chronic pain. As someone who has lived with pain since 2001, do you have any suggestions?"⁣
⁣
I am so glad you asked! ⁣
⁣
I have pulled together a gift guide specifically for chronic pain patients, and it's up on my site at katethealmostgreat.com. ⁣
⁣
Some of them are products I use or want that make day-to-day life easier. Some of them are things that make dealing with specific types of pain easier. ⁣
⁣
There are a lot of things that make living with chronic pain easier, but it can be hard to figure out where to start. So make sure you head to katethealmostgreat.com to get some ideas.⁣
⁣
◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
ID: Kate sits in a doctor's office. She's wearing a navy-based Fair Isley sweater, blue surgical mask, and round tortoiseshell glasses.⁣
⁣
chronic pain, invisible illness, rheumatoid disease, rheumatoid arthritis, fibro, fibromyalgia, endo, endometriosis, autoimmune arthritis, Sjögren's syndrome, tarsal coalition

This is your reminder to drink water. _______ V

This is your reminder to drink water.

_______

Video: Kate drinks from a sticker-covered Stanley. White text reads “This is your reminder to drink water.” Kate is a redheaded white woman wearing a green sweater. Audio says “Rule number 2”

postural orthostatic tachycardia syndrome, dysautonomia, POTS, chronically ill

Follow on Instagram

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Kate the (Almost) Great

Chronic health lifestyle blog

For those who only think I’m ill when I look it

For those who only think I’m ill when I look it 💁🏼‍♀️

_______

Video: 2 videos of Kate. She’s put together and looks nice and the first and looks really miserable in the same. The first is labeled “chronically ill” and the second it labeled “(visibly) chronically ill”. Music with a beat plays.

#AlmostGreatHealth #InvisiblyIll #AutoimmuneDisease

(1) An Incomplete List of Things I Do Daily for My

Growing up, I wanted to be a fiction writer. While $Growing up, I wanted to be a fiction writer. While I don't do too much fiction writing these days, this year I wrote over 50,000 words for the fourth year in a row. ⁣ ⁣ For those of you who don't know, 50,000 is the amount at which a book officially counts as a novel. And between blog posts and newsletters, I've written a novel's worth once again. ⁣ ⁣ Things have felt weird this year. Getting and recovering from COVID took up a lot of my time and energy. I also had 3 stress fractures in my foot over the summer and I was on high steroids for a lot of the year. Last week was the anniversary of the closest I've come to death (this entire month is, but November 28-December 5th is the big PTSD time for my brain). Thanksgiving was so late that Christmas is SO SOON. ⁣ ⁣ But what has been normal? The blog and my love of writing. ⁣ ⁣ Here's to writing another book's worth of words next year.⁣ ⁣ ◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣ I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣ ⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣ ID: Kate smiles at the camera holding a pen. She's a redheaded white woman wearing a sparkly navy sweater, silver claddagh necklace, and round tortoiseshell glasses.⁣ ⁣ #AlmostGreatLife #AlmostGreatBlog #ChronicIllnessBlogger #HealthBlogger #HealthBlog #ChronicallyIll #SpoonieBlogger #SpoonieBlog #SpoonieLife$

One of the medical advances that I hope will happe

One of the medical advances that I hope will happen in my lifetime is that more treatments that work for me become available AND not all of them are infusions. ⁣
⁣
I am outrageously grateful that Rituxan and its biosimilars are available (and thatI respond to the less-expensive biosimilars) but I would love to not deal with the process of actually getting an infusion. They're not bad - and I'm on a much-shorter infusion these days because I can't be on a full dose any more - but it is a hassle. ⁣
⁣
What medical advances (other than a cure) do you hope will happen in your lifetime?⁣
⁣
◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
ID: Kate's arm on which is an Apple Watch with a blue flowery band, silver bracelet, and the view of an IV tube (no sign of the IV).⁣

Here are some insights into what I talk to my rheu

Here are some insights into what I talk to my rheumatologist about! I will also say that my rheumatologist has been my doctor since 2010 and he’s one of the only doctors that I trust implicitly.

_______

Video: Kate talks to the camera. She is a redheaded white woman wearing a yellow shirt with a navy flannel, round tortoiseshell glasses, and a silver claddagh necklace. White text reads “What I Tell My Rheumatologist” and there are captions in a black box.

#RheumatoidDisease #RheumatoidArthritis

“I will only mask if a vulnerable person asks me

“I will only mask if a vulnerable person asks me 1 on 1” ⁣
⁣
Okay, well I almost never ask people to mask because I don’t want the experience of constantly asking people to allow me to live and almost always being told “no” so write that down⁣
⁣
◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
ID: Screenshot of a tweet. The background is dark teal, and it's written by Kate Mitchell | Kate the (Almost) Great with the username kmitchellauthor. ⁣The text reads what's above the first box.⁣
⁣
#AlmostGreatHealth #AutoimmuneDisease #InvisibleIllness #ChronicallyIll

Holidays you love can be extra hard with dealing w

Holidays you love can be extra hard with dealing with chronic illness and pain. Don’t beat yourself up.

_______

Video: a Christmas tree with a crackling fire behind it. White text reads what’s above the line. “Christmas time is here” from Charlie Brown Christmas plays.

chronic illness, Christmas tree, Christmas, chronically ill

"Kate, I'm buying gifts for people with chronic pa

"Kate, I'm buying gifts for people with chronic pain. As someone who has lived with pain since 2001, do you have any suggestions?"⁣
⁣
I am so glad you asked! ⁣
⁣
I have pulled together a gift guide specifically for chronic pain patients, and it's up on my site at katethealmostgreat.com. ⁣
⁣
Some of them are products I use or want that make day-to-day life easier. Some of them are things that make dealing with specific types of pain easier. ⁣
⁣
There are a lot of things that make living with chronic pain easier, but it can be hard to figure out where to start. So make sure you head to katethealmostgreat.com to get some ideas.⁣
⁣
◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
⁣
⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣◾ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
ID: Kate sits in a doctor's office. She's wearing a navy-based Fair Isley sweater, blue surgical mask, and round tortoiseshell glasses.⁣
⁣
chronic pain, invisible illness, rheumatoid disease, rheumatoid arthritis, fibro, fibromyalgia, endo, endometriosis, autoimmune arthritis, Sjögren's syndrome, tarsal coalition

This is your reminder to drink water. _______ V

This is your reminder to drink water.

_______

Video: Kate drinks from a sticker-covered Stanley. White text reads “This is your reminder to drink water.” Kate is a redheaded white woman wearing a green sweater. Audio says “Rule number 2”

postural orthostatic tachycardia syndrome, dysautonomia, POTS, chronically ill

Follow on Instagram

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