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in Lifestyle &middot November 11, 2015

A Life Update

Things have been a little crazy around here. I’m starting the process for final exams, I’m waiting on my most recent infusion to kick in, and more. So I thought that it was time for a little life update.

A Life Update - Kate the (Almost) Great

Life Update

Health: Hanging in there, but not doing great. I had my infusion at the end of October and I’m just waiting now for it to kick in. This means that my pain is very high pretty much all of the time. On the plus side, my iron infusion seems to have worked! My blood work at the end of October looked so great that my rheumatologist used an exclamation point (this is a big freaking deal)! My blood and iron counts still aren’t within normal range, but there’s still hope. I seem the hematologist next week, and from now on it just looks like monitoring my blood counts – which we do anyway because we have to make sure that my organs keep working and my white blood cells don’t nose dive thanks to my medications – and seeing how long the iron infusion works. I could need an iron infusion every couple of months or never again. No idea yet.

School: We are in the midst of finals since this is grad school. I have research to do and outlines to make for 2 papers, both of which will be 15-20 pages. Things are going okay. The problem is that grad school, working, and serious autoimmune disease is a lot to all manage. It’s so discouraging to love what you’re studying but feel so awful doing any of it.

General Stuff: We’re moving! Still living with my parents (that’s what happens when you have health issues and are paying for grad school), but we are moving to another place within our same neighborhood. So get ready to hear a lot about that over the next couple of months!

Currently …

reading: Edward II by Christopher Marlowe for class and I just loved it

watching: beauty videos on YouTube and rewatching Blue Bloods on Netflix

wearing: pixie pants from J.Crew (my absolute favorites), oversized sweaters, and new glasses from Firmoo (see below!)

feeling: tired, like the deep, emotional exhaustion that comes with living in constant pain

wanting: a book deal and a working body

drinking: coffee, duh

Currently Wearing

Preppy Glasses from Firmoo

Preppy Glasses from Firmoo

Pants | Sweater | Glasses | Sneakers

These pants are the best item of clothing that I have ever bought. They’re not cheap, but they are so comfortable and high quality. I recommend them to everyone! I picked up this sweater from Primark in September, and it’s so comfortable.

And, of course, let’s talk about my classes. Ever since an eczema outbreak under one of my eyes in September, I’ve been wearing my glasses the majority of the time. The eczema has since cleared up, but my eyes still are very uncomfortable. I’m heading to the optometrist tomorrow to figure out what’s going on, but hopefully I just need to change contact brands. In the mean time, I’m so obsessed with the glasses Firmoo sent me! I loved the pair they sent in May, but these are even more me. Firmoo has so many great styles and they’re not expensive, so if you want to change your frames without spending a fortune, I’d go with them. Even if I get contacts that aren’t uncomfortable, I’ll still be wearing my glasses a lot because I love them so much! Check Firmoo out, especially their page of daily new arrivals, and new customers can get 15% off their first pair. See what they have available and maybe you’ll find frames that make you a glasses person.

I was sent these glasses for free in change for an honest review. All opinions are mine. There are also some links in this post that are affiliate links, meaning that if you click on them and purchase something, I will receive a very small profit. If you have any questions, check out my disclosure policy. Thank you for supporting the brands that make Kate the (Almost) Great possible!
Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Chelsea says

    November 11, 2015 at 9:47 am

    You look adorable in those glasses! Glad to hear that the iron seems to be doing it’s job!

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  2. The Grits says

    November 11, 2015 at 5:40 pm

    It makes me sad to read that you are in so much pain. I’m hoping your infusion kicks in sooner rather than later! On the positive side you look gorgeous and so sophisticated in the glasses!

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  3. Emily of Em Busy Living says

    November 11, 2015 at 8:00 pm

    The glasses look great on you!

    I’m sorry you’re dealing with so much all at one time. I hope your health matters become more manageable sometime soon. Good luck writing your papers!

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  4. Meghan says

    November 12, 2015 at 10:48 am

    Sounds like a lot on your plate! Sorry to hear about the extreme pain, that’s never a good thing 🙁 Also, Blue Bloods is probably my favorite show on TV at the moment!

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I personally have rheumatoid arthritis, fibromyalg I personally have rheumatoid arthritis, fibromyalgia, and Sjögren's syndrome, which makes 3 forms of arthritis.⁣
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May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖 ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis means only 1 thing.⁣
Fact⁣
There are over 100 kinds of arthritis, including osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, and more!⁣
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#ArthritisAwareness #RheumatoidArthritis #Fibromyalgia #SjogrensSyndrome #Arthritis
SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
⁣
Like, comment, and share to spread awareness 💖⁣
⁣
⬛⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

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