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Text reads - Alike: The Best Way To Feel Less Alone & Better Manage Your Chronic Illness Journey (text ends).
in Health &middot February 11, 2022

Alike: The Best Way To Feel Less Alone & Better Manage Your Chronic Illness Journey

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in Health &middot February 11, 2022

Alike: The Best Way To Feel Less Alone & Better Manage Your Chronic Illness Journey

This post has been written in partnership with Alike, but all opinions are my own. Thank you for supporting Kate the (Almost) Great!

Did you know that you’re missing out if you’re looking for people with the same medical experience as you just by searching “Chronic Illness” on the web and FB groups? You’re also missing out if you’re just looking through the hashtag for your condition such as #RheumatoidArthritis. These strategies can help you find people in general with chronic illness, but they won’t help you find others with a lot in common with you and your health. What you really need is Alike.

Text reads - Alike: The Best Way To Feel Less Alone & Better Manage Your Chronic Illness Journey (text ends).

What is Alike?

Alike is a free app that helps you to find people who are, well, like you. You get to connect to patients with a similar background, which could be people with the exact same illnesses as you, people who have the same medical condition(s) and keep a similar diet, people who are on the same medication as you, and so much more. 

Think of it as a social media app meets Yelp meets patient matching. You ever want to know what someone who treats rheumatoid arthritis with Humira has experienced? Before Alike, you had to include hashtags your target audience might be following and hope for the best. And even then, if you found the answer, you might be getting it from someone who is completely different from you other than your 1 shared condition. With Alike you can directly ask people who have RA and have tried Humira what their experience was, and best of all – your advice will come from someone who shares more than just a diagnosis with you

Plus, Alike combines clinical data with patient testimonials, which is the first app I’ve ever seen do so! I can see the prevalence of my condition over all, check out my medical records and get info about my condition and meds from the app itself and then interact with real people who share real tried-and-tested stories on top of it!. 

You know there are people out there like you who can help you; you just need to find them. Alike makes that happen.

When would I use Alike? 

There are plenty of times when you might use Alike! It’s an app designed to help you feel empowered when making decisions about your health and life, and it also helps you feel less alone. 

Some examples include:

  • When you receive a new diagnosis
  • When you’re prescribed a new medication
  • When you want to know what medications are available for a condition
  • When you’re thinking about making a lifestyle change for your condition
  • When you’re going to have a medical test and you want to know what it’s like from people who have actually had it
  • When you want to talk to other patients who are just like you

Basically, any time you want to talk to other chronic illness patients who are similar to you, you’re going to want to use Alike. 

How it works 

When you sign up, you can manually input your health information or you can connect your Alike account with your health provider’s app, such as MyChart. This way, you can input not only your diagnosable conditions but also when you had a certain type of surgery or when you were hospitalized. Again, though, you can manually input your medical history. 

I know that you might be worried about your privacy, but don’t worry too much: not only is all of your information on the back-end of Alike anonymized, but Alike doesn’t keep personally identifiable information. They couldn’t even backtrack your profile to you. You don’t even input personal information like your name. You set up a fictional username and your birth year – required by most apps – but you don’t submit your name or anything like that.

When you’re setting up your profile, Alike also has spaces for you to add if you follow a special diet, how much you exercise, topics you relate to, and more. Basically, it has ways for you to get the most out of your app as possible. 

What affects and impacts my life is different from what affects and impacts yours, so our app experiences should be different. Alike is definitely set up to optimize that! 

Once you’re all set up, you can peruse what other patients are asking. You can sort your home screen to show all posts – which means you see all questions that all patients with similar health to yours have asked, which could be a question about rheumatoid arthritis or endometriosis – or posts just by patients asking a question about a specific question. 

When you see a person has asked a question, you’ll see a ring around the icon by their username. How full that ring is shows how similar to you they are! So someone with a ring that goes a quarter way around is 25% similar to you, but someone with a ring that goes three quarters around is 75% similar to you. 

This is important because it helps you identify if a particular suggestion or question might be applicable to you. If someone suggests you try a treatment, but they’re only kinda similar to you, it might not be as helpful as a suggestion from someone extremely similar to you. 

If you’re going to ask a question, Alike asks you if you want to ask “More Alikes,” which means a more diverse group of people who have some things similar to you but not many, or “Fewer Alikes,” which means a smaller group of people who are way more similar to you. So if I asked More Alikes, it might send my question to people who have rheumatoid arthritis or fibromyalgia, whereas if I asked Fewer Alikes, it might send it to people with rheumatoid arthritis and fibromyalgia.

But Alike isn’t just for asking questions generally. You can also message people directly and build relationships that way. So if you come across someone who has everything you have, you can directly connect with them without publicly asking a question. 
Alike is free and is a great resource for making meaningful connections with people similar to you on your path to better health outcomes. Download it today!

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Reader Interactions

Comments

  1. Sarah says

    February 11, 2022 at 7:08 am

    Thank you, Kate. This is interesting and something to think about. Do you use Alike?

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    • kmitchellauthor says

      February 11, 2022 at 7:10 am

      Yes, I do! Actually, I was trying it out for this post, and then I actually received a new chronic illness diagnosis 🙁 . I haven’t talked about that too much because I’m still processing, but the app (and people on it) really helped me deal the first couple of weeks.

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  2. Chronically Gina says

    February 13, 2022 at 10:08 am

    This app sounds amazing and is a great way to help with the isolating feeling many people with a chronic illness experience. Finally a way to connect with people that really know what you are going through.

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  3. Katie Krejci says

    February 14, 2022 at 7:16 am

    This is super interested and informative! There’s always new technology coming out. Thanks for keeping us informed and up to date on this awesome app!

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  4. Flawless World says

    February 14, 2022 at 10:13 am

    Who knew there was an app where people suffering from chronic illness could connect and feel less alone?! What a wonderful invention! Sounds very interesting. Thanks for sharing!

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  5. Meghan says

    February 14, 2022 at 5:29 pm

    This app sounds really helpful! I’m going to check it out. Thank you for sharing!

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  6. Tamara says

    February 15, 2022 at 2:21 am

    A lot of immunocompromised people are not able to get out with the pandemic raging, so they are dealing with these extra issues alone right now. This seems like it would be a lot of help.

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  7. Lucy says

    February 19, 2022 at 4:42 am

    Thank you for sharing about Alike, it sounds like such a great app. Even people with the same diagnosis can have vastly difference experiences so being able to connect with people who are on a similar path and doing similar treatments will make such a big difference to people’s overall wellbeing. Chronic illness can be so isolating so being able to connect with people who can relate and understand is so vital.

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I personally have rheumatoid arthritis, fibromyalg I personally have rheumatoid arthritis, fibromyalgia, and Sjögren's syndrome, which makes 3 forms of arthritis.⁣
⁣
May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖 ⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis means only 1 thing.⁣
Fact⁣
There are over 100 kinds of arthritis, including osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, and more!⁣
katethealmostgreat⁣
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#ArthritisAwareness #RheumatoidArthritis #Fibromyalgia #SjogrensSyndrome #Arthritis
SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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⬛⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

⬛⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛ 

IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
⁣
Like, comment, and share to spread awareness 💖⁣
⁣
⬛⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛

IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
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