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Text reads - Alike: The Best Way To Feel Less Alone & Better Manage Your Chronic Illness Journey (text ends).
in Health &middot February 11, 2022

Alike: The Best Way To Feel Less Alone & Better Manage Your Chronic Illness Journey

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in Health &middot February 11, 2022

Alike: The Best Way To Feel Less Alone & Better Manage Your Chronic Illness Journey

This post has been written in partnership with Alike, but all opinions are my own. Thank you for supporting Kate the (Almost) Great!

Did you know that you’re missing out if you’re looking for people with the same medical experience as you just by searching “Chronic Illness” on the web and FB groups? You’re also missing out if you’re just looking through the hashtag for your condition such as #RheumatoidArthritis. These strategies can help you find people in general with chronic illness, but they won’t help you find others with a lot in common with you and your health. What you really need is Alike.

Text reads - Alike: The Best Way To Feel Less Alone & Better Manage Your Chronic Illness Journey (text ends).

What is Alike?

Alike is a free app that helps you to find people who are, well, like you. You get to connect to patients with a similar background, which could be people with the exact same illnesses as you, people who have the same medical condition(s) and keep a similar diet, people who are on the same medication as you, and so much more. 

Think of it as a social media app meets Yelp meets patient matching. You ever want to know what someone who treats rheumatoid arthritis with Humira has experienced? Before Alike, you had to include hashtags your target audience might be following and hope for the best. And even then, if you found the answer, you might be getting it from someone who is completely different from you other than your 1 shared condition. With Alike you can directly ask people who have RA and have tried Humira what their experience was, and best of all – your advice will come from someone who shares more than just a diagnosis with you

Plus, Alike combines clinical data with patient testimonials, which is the first app I’ve ever seen do so! I can see the prevalence of my condition over all, check out my medical records and get info about my condition and meds from the app itself and then interact with real people who share real tried-and-tested stories on top of it!. 

You know there are people out there like you who can help you; you just need to find them. Alike makes that happen.

When would I use Alike? 

There are plenty of times when you might use Alike! It’s an app designed to help you feel empowered when making decisions about your health and life, and it also helps you feel less alone. 

Some examples include:

  • When you receive a new diagnosis
  • When you’re prescribed a new medication
  • When you want to know what medications are available for a condition
  • When you’re thinking about making a lifestyle change for your condition
  • When you’re going to have a medical test and you want to know what it’s like from people who have actually had it
  • When you want to talk to other patients who are just like you

Basically, any time you want to talk to other chronic illness patients who are similar to you, you’re going to want to use Alike. 

How it works 

When you sign up, you can manually input your health information or you can connect your Alike account with your health provider’s app, such as MyChart. This way, you can input not only your diagnosable conditions but also when you had a certain type of surgery or when you were hospitalized. Again, though, you can manually input your medical history. 

I know that you might be worried about your privacy, but don’t worry too much: not only is all of your information on the back-end of Alike anonymized, but Alike doesn’t keep personally identifiable information. They couldn’t even backtrack your profile to you. You don’t even input personal information like your name. You set up a fictional username and your birth year – required by most apps – but you don’t submit your name or anything like that.

When you’re setting up your profile, Alike also has spaces for you to add if you follow a special diet, how much you exercise, topics you relate to, and more. Basically, it has ways for you to get the most out of your app as possible. 

What affects and impacts my life is different from what affects and impacts yours, so our app experiences should be different. Alike is definitely set up to optimize that! 

Once you’re all set up, you can peruse what other patients are asking. You can sort your home screen to show all posts – which means you see all questions that all patients with similar health to yours have asked, which could be a question about rheumatoid arthritis or endometriosis – or posts just by patients asking a question about a specific question. 

When you see a person has asked a question, you’ll see a ring around the icon by their username. How full that ring is shows how similar to you they are! So someone with a ring that goes a quarter way around is 25% similar to you, but someone with a ring that goes three quarters around is 75% similar to you. 

This is important because it helps you identify if a particular suggestion or question might be applicable to you. If someone suggests you try a treatment, but they’re only kinda similar to you, it might not be as helpful as a suggestion from someone extremely similar to you. 

If you’re going to ask a question, Alike asks you if you want to ask “More Alikes,” which means a more diverse group of people who have some things similar to you but not many, or “Fewer Alikes,” which means a smaller group of people who are way more similar to you. So if I asked More Alikes, it might send my question to people who have rheumatoid arthritis or fibromyalgia, whereas if I asked Fewer Alikes, it might send it to people with rheumatoid arthritis and fibromyalgia.

But Alike isn’t just for asking questions generally. You can also message people directly and build relationships that way. So if you come across someone who has everything you have, you can directly connect with them without publicly asking a question. 
Alike is free and is a great resource for making meaningful connections with people similar to you on your path to better health outcomes. Download it today!

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Reader Interactions

Comments

  1. Sarah says

    February 11, 2022 at 7:08 am

    Thank you, Kate. This is interesting and something to think about. Do you use Alike?

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    • kmitchellauthor says

      February 11, 2022 at 7:10 am

      Yes, I do! Actually, I was trying it out for this post, and then I actually received a new chronic illness diagnosis 🙁 . I haven’t talked about that too much because I’m still processing, but the app (and people on it) really helped me deal the first couple of weeks.

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  2. Chronically Gina says

    February 13, 2022 at 10:08 am

    This app sounds amazing and is a great way to help with the isolating feeling many people with a chronic illness experience. Finally a way to connect with people that really know what you are going through.

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  3. Katie Krejci says

    February 14, 2022 at 7:16 am

    This is super interested and informative! There’s always new technology coming out. Thanks for keeping us informed and up to date on this awesome app!

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  4. Flawless World says

    February 14, 2022 at 10:13 am

    Who knew there was an app where people suffering from chronic illness could connect and feel less alone?! What a wonderful invention! Sounds very interesting. Thanks for sharing!

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  5. Meghan says

    February 14, 2022 at 5:29 pm

    This app sounds really helpful! I’m going to check it out. Thank you for sharing!

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  6. Tamara says

    February 15, 2022 at 2:21 am

    A lot of immunocompromised people are not able to get out with the pandemic raging, so they are dealing with these extra issues alone right now. This seems like it would be a lot of help.

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  7. Lucy says

    February 19, 2022 at 4:42 am

    Thank you for sharing about Alike, it sounds like such a great app. Even people with the same diagnosis can have vastly difference experiences so being able to connect with people who are on a similar path and doing similar treatments will make such a big difference to people’s overall wellbeing. Chronic illness can be so isolating so being able to connect with people who can relate and understand is so vital.

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

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What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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