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in Health, Uncategorized &middot August 7, 2015

Arthritis: 5 Years since Diagnosis

In July 2010, I was diagnosed with inflammatory arthritis. It’s crazy to think about everything the past 5 years has held. When I was diagnosed, I thought that I was close to relief. That’s true for many people, but for me it was just the beginning. I’ve already shared my story, so today I thought that I would look at my years of pain in numbers.

Arthritis in Numbers

My Arthritis By the Numbers

FIFTY-EIGHT: The number of joints that were affected by arthritis when I was diagnosed.

FIFTY-FOUR: The lowest number of my joints that have been affected.

THIRTY-SOMETHING: The number of medical professionals I’ve seen.

FOURTEEN: The years since the pain started.

TWENTY-FIVE: The number of pills I take a day.

TWENTY: How long, in minutes, it took for my rheumatologist to diagnose me.

NINETEEN: The age I was when I was diagnosed.

TEN: The age I was when I started being in pain daily and the number of scars I have from surgeries.

NINE: How many years it took to be diagnosed with arthritis.

SIX: The number of arthritis treatments I’ve been on in the past five years.

FIVE: The years since I was diagnosed, the number of surgeries I’ve had, and the number of rheumatologists that I’ve seen in my lifetime.

FOUR: How long (in inches) the screw was in my ankle when it was fused, how many months are in between my infusions, and how many joints have been permanently damaged because I wasn’t diagnosed sooner.

THREE: The types of arthritis my doctor has thought I’ve had.

TWO: The types of chemotherapy I’ve been on and the surgeries I could have avoided if I was diagnosed sooner.

ONE: The number of screws I have in my ankle now, the number of rheumatoid arthritis treatments that have worked for me, and the number of rheumatologists who listened to me.

Learn More about Arthritis:

 

Arthritis National Research Foundation | Arthritis Foundation | Arthritis FAQ

 

What You Can Do

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Lindsey says

    August 7, 2015 at 11:41 am

    oh gosh! Thank you so much for sharing! I’m in daily pain too and it hasn’t been diagnosed why (we think it’s just from previous injuries that didn’t heal correctly). It’s nice to know you aren’t alone though.

    HCBN love,
    xx, Lindsey
    http://www.lmartthoughts.com

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    • Kate Mitchell says

      August 7, 2015 at 12:49 pm

      You’re so welcome! Not feeling alone is a huge relief, of course. Have you ever seen a rheumatologist, by the way? It can’t hurt to get checked out, especially because early diagnosis can prevent it from getting too awful.

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  2. Kenzie Negron // sincerelykenz says

    August 7, 2015 at 12:38 pm

    so brave of you to post this xx, kenz

    http://sincerelykenz.com

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    • Kate Mitchell says

      August 7, 2015 at 12:49 pm

      Thank you!

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    • Kate Mitchell says

      August 25, 2015 at 9:32 am

      Thank you! I’m more than happy to share it, especially because I know what it feels like to be in pain and to feel like no one else understands what you’re going through.

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  3. Nichole says

    August 7, 2015 at 10:34 pm

    You have an inspiring story! Thank you for sharing it!

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    • Kate Mitchell says

      August 25, 2015 at 9:32 am

      Thank you!

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  4. Chelsea W says

    August 9, 2015 at 10:51 pm

    One thing I caught here, like with so many illnesses, is how crucial it is to get help early on! I think that’s mainly on the doctors’ shoulders (trying not to point any fingers here but hey), but some people might not like to go to the doctor, some might just brush off symptoms, you never know. There’s various reasons people might not seek treatment first thing. So I think that’s why it’s so important to push others to really be persistent if they think something is up with their bodies. Thanks for writing this!

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    • Kate Mitchell says

      August 25, 2015 at 9:22 am

      Yes! Listen to your body and don’t stop pushing until you have an answer. If the idea of seronegative rheumatoid arthritis had been more widespread when I was in high school, I definitely would have been diagnosed sooner.

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Trackbacks

  1. World Arthritis Day says:
    October 9, 2015 at 8:02 am

    […] Series | More Info About Arthritis | Is Arthritis a Big Deal? | The Complications of Arthritis | My Life in Pain By The Numbers | To the Loved Ones of People with Arthritis | The 8 Things a Millennial with Arthritis Wants You […]

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  2. What's Up with My Current Health? - Kate the (Almost) Great | Boston Lifestyle Blog says:
    January 27, 2016 at 11:41 am

    […] regularly shortly after I had been relabeled as seronegative rheumatoid arthritis – but I was diagnosed back in July 2010 with psoriatic arthritis. There are very few differences between the two; on the surface, pretty much the only difference is […]

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    Reply
  3. Kate the (Almost) Great | Boston Lifestyle Blog - 4 Questions To Ask Before Traveling with Chronic Health Problems says:
    October 7, 2017 at 6:15 pm

    […] spent nearly 10 years dealing with that while I traveled, and then things got ticked up a notch when I was diagnosed with arthritis. Plus, I went to college in (and then lived in) Nashville, Tennessee, so I spent a LOT of time […]

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    Reply
  4. What You Should Know About TMJ Arthritis | Chronic Illness Blog says:
    January 20, 2025 at 9:28 am

    […] the arthritis. That doctor helped get me off the MGH rheumatology wait list – which resulted in my RA diagnosis – but he is also the one that helped me recover from my jaw arthritis flare. (Keep reading if you […]

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

⬛⁣

IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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