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Schizoaffective Disorder
in Health &middot November 30, 2016

The Brain’s Despair and Ultimate Joy?

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in Health &middot November 30, 2016

The Brain’s Despair and Ultimate Joy?

I’m out having my infusion today, so please enjoy this guest post from Michelle. I think it’s one that most people should read since our perceptions of mental illnesses like schizophrenia and similar illnesses is often a stereotype; people with them are people above anything else. When I do reappear, it’ll most likely be on social media (Snapchat or Instagram probably), so be sure you’re following.

Schizoaffective Disorder

The Brain’s Despair and Ultimate Joy?

Throughout my life, there have been troubling pieces that couldn’t quite fit together because all I knew was that something was off. The sudden shifts of moods, the blankness of my stare, and finally the subconscious taking over to the point of destroying my persona, which I had crafted perfectly to react to the outside world was finally crumbling, but I still didn’t know what had happened then. The year was 2008 and finally I was responsible but tragedy struck me that would knock me to my very soul, but was it the despair of my childhood? Though trauma existed in my childhood that I suppressed, yet I couldn’t believe that words that were coming out and the ultimate sorrow my brain would impose on me for many years. The way it stood was that I had a mental illness that crossed the line and somehow came to me, but at first it was difficult to know what was reality and imaginary, so I struggled for many years not knowing the extent of my illness or the anguish I would inflict on myself and others. The road was difficult to go through and admit that my mind was damaged and hurting at the same time, so the times to try to heal were coming and they came to me so fast that years passed by. It’s a nightmare everyday even now as the effects of my mental illness still live on, but I try my hardest to manage the symptoms and function the best I can because there’s really no true healing from my nightmarish childhood and adolescence, but I couldn’t always blame my pain on that, could I? There had to be responsibility and I took it but after being misdiagnosed for many years until my first Psychiatrist, and even then I had doubts to what I truly had.

My first diagnosis was Bipolar Disorder Type II, which happens to be a mood disorder that has periods of long suffering depression mixed in with a type of grandiose feeling of hypomania that could invoke feelings of carefree days and careless ambitious that aimed to destroy the psyche and leave nothing but a husk. The problem with the diagnosis of Type II was that I was having auditory hallucinations and by that I mean voices were speaking to me on a very level that was outside of my moods, and for that, I was unsure if the meds could stop it completely. For a while I thrived on psychiatric meds, many of them that turned me into a zombie, thus hampering my quality of life, and soon I despaired. Did my life have to be like this to control these voices and mixed moods? The roller coaster of emotions kept swimming in me and I felt very much alone and uncertain about my future, and so I fought back this year. I couldn’t stand not only the auditory hallucinations but the paranoia that kept me in check, plus other behaviors that began to show through like distorted thinking and forgetting to emote in general to all things around me. I couldn’t show anything on my face because I felt drained and emotionless to the point of being a robot in the disguise of a human, and that’s not right. I was human after all, wasn’t I?

It isn’t talked about enough and often stigma exists for mental illness as in popular media paints us with one brush: deranged. There was even a treatment of mentally ill patients in horrible places like asylums and they were treated less than human because it wasn’t understood why caused the dysfunction in the brain, but as psychology and psychiatrist took root, the mind became more significant and doctors were able to see and treat those suffering, but my own journey was difficult. Most mental illness manifests in the late 20’s of a person but it can be present in early childhood, but it doesn’t bloom until then, and so I gripped the very edge of destruction and pain. I can’t recount the times I tried methods to wrestle out the emotional pain of those that didn’t want to understand and having a support system is very important, but I didn’t have one in the early days and thus suffered because of it.

[bctt tweet=”The reality of living with schizoaffective disorder” username=”kmitchellauthor”]

Yet, I pulled myself together when it seemed death could come to me, and honestly, suicide is higher for those suffering as the statistics point out. Knowing I found some sort of will in me, I decided to live for a tomorrow that could come again, for the sun will rise again the next day and I wanted to see it. The closing of my story is of joy and of happiness in that even though I struggle and have bad days than most people, I still fight, but I wanted to overcome the fear, the cowardice in me, and with the meds not working as they did before, I opted for a new psychiatrist that could confirm my suspicion and place me correctly so I could get the right treatment.

Soon, I was diagnosed with Schizoaffective Disorder, which can mask as Bipolar Disorder and be mistaken for it. Schizoaffective Disorder has a bit of the symptoms of Schizophrenia of delusions, psychosis followed by a mood disorder such as mania and/or depression. Basically it’s Schizophrenia and Bipolar Disorder rolled together into a new diagnosis, and it explained why I had trouble fitting in and was more aware than most of my peers to the point of dissociation, which is feeling like you’re out of your body and not connected to the world at large. The new diagnosis made more sense and clicked in my understanding and while it’s treated the same as Bipolar Disorder, with the same psychiatric meds, it still presents its own problems. Problems I didn’t foresee and ones I don’t wish on anyone, but I didn’t blame anyone anymore because what good what it have done? Still, with Schizoaffective Disorder which accounts for 0.3% of the population compared to Bipolar Disorder which has a higher percentage rate, yet there are no surprises to when you realize that you have it, and thus, it happens.

I guess I can take away that mental illnesses are difficult to treat, diagnosis, and manage, but that doesn’t mean life is over once you acquire one; it just means that you have to try harder to keep the same quality of life and overcome those obstacles. It’s not a death sentence, but merely something that happens, and it needs to be recognized more and bring an end to a undying stigma about it. Sure, there are several times that mental illness can be very severe and some people can get deranged but most of the time, people suffer in silence because they don’t want that label as “crazy”. We just want a bit of normalcy in our lives and while mental illnesses from Schizophrenia to Schizoaffective Disorder can be treated, they should be respected as they aren’t the fault of the sufferer; in fact they help me preserve more and help me appreciate life a little bit. While there are no definite cures, they can lead to physical symptoms as well, so mental illness in general is a bit tricky and can be misdiagnosed or missed, but don’t let it consume your life and realize that it is manageable and you can be stronger. I feel like it gives me a better understanding of the silent world of those suffering from both physical and mental disorders, but just never forget that you deserve to have a great quality of life regardless of what you’re going through. You’re never alone, just know that. You’re never alone in this and we are all human regardless.

Michelle
http://dreaming-arcadia.com/

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: Kate drinks coffee giving side eye. White text box reads "My Face When Someone Says 'You Shouldn't Need a Cane At Your Age'" ⁣
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