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Schizoaffective Disorder
in Health &middot November 30, 2016

The Brain’s Despair and Ultimate Joy?

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in Health &middot November 30, 2016

The Brain’s Despair and Ultimate Joy?

I’m out having my infusion today, so please enjoy this guest post from Michelle. I think it’s one that most people should read since our perceptions of mental illnesses like schizophrenia and similar illnesses is often a stereotype; people with them are people above anything else. When I do reappear, it’ll most likely be on social media (Snapchat or Instagram probably), so be sure you’re following.

Schizoaffective Disorder

The Brain’s Despair and Ultimate Joy?

Throughout my life, there have been troubling pieces that couldn’t quite fit together because all I knew was that something was off. The sudden shifts of moods, the blankness of my stare, and finally the subconscious taking over to the point of destroying my persona, which I had crafted perfectly to react to the outside world was finally crumbling, but I still didn’t know what had happened then. The year was 2008 and finally I was responsible but tragedy struck me that would knock me to my very soul, but was it the despair of my childhood? Though trauma existed in my childhood that I suppressed, yet I couldn’t believe that words that were coming out and the ultimate sorrow my brain would impose on me for many years. The way it stood was that I had a mental illness that crossed the line and somehow came to me, but at first it was difficult to know what was reality and imaginary, so I struggled for many years not knowing the extent of my illness or the anguish I would inflict on myself and others. The road was difficult to go through and admit that my mind was damaged and hurting at the same time, so the times to try to heal were coming and they came to me so fast that years passed by. It’s a nightmare everyday even now as the effects of my mental illness still live on, but I try my hardest to manage the symptoms and function the best I can because there’s really no true healing from my nightmarish childhood and adolescence, but I couldn’t always blame my pain on that, could I? There had to be responsibility and I took it but after being misdiagnosed for many years until my first Psychiatrist, and even then I had doubts to what I truly had.

My first diagnosis was Bipolar Disorder Type II, which happens to be a mood disorder that has periods of long suffering depression mixed in with a type of grandiose feeling of hypomania that could invoke feelings of carefree days and careless ambitious that aimed to destroy the psyche and leave nothing but a husk. The problem with the diagnosis of Type II was that I was having auditory hallucinations and by that I mean voices were speaking to me on a very level that was outside of my moods, and for that, I was unsure if the meds could stop it completely. For a while I thrived on psychiatric meds, many of them that turned me into a zombie, thus hampering my quality of life, and soon I despaired. Did my life have to be like this to control these voices and mixed moods? The roller coaster of emotions kept swimming in me and I felt very much alone and uncertain about my future, and so I fought back this year. I couldn’t stand not only the auditory hallucinations but the paranoia that kept me in check, plus other behaviors that began to show through like distorted thinking and forgetting to emote in general to all things around me. I couldn’t show anything on my face because I felt drained and emotionless to the point of being a robot in the disguise of a human, and that’s not right. I was human after all, wasn’t I?

It isn’t talked about enough and often stigma exists for mental illness as in popular media paints us with one brush: deranged. There was even a treatment of mentally ill patients in horrible places like asylums and they were treated less than human because it wasn’t understood why caused the dysfunction in the brain, but as psychology and psychiatrist took root, the mind became more significant and doctors were able to see and treat those suffering, but my own journey was difficult. Most mental illness manifests in the late 20’s of a person but it can be present in early childhood, but it doesn’t bloom until then, and so I gripped the very edge of destruction and pain. I can’t recount the times I tried methods to wrestle out the emotional pain of those that didn’t want to understand and having a support system is very important, but I didn’t have one in the early days and thus suffered because of it.

[bctt tweet=”The reality of living with schizoaffective disorder” username=”kmitchellauthor”]

Yet, I pulled myself together when it seemed death could come to me, and honestly, suicide is higher for those suffering as the statistics point out. Knowing I found some sort of will in me, I decided to live for a tomorrow that could come again, for the sun will rise again the next day and I wanted to see it. The closing of my story is of joy and of happiness in that even though I struggle and have bad days than most people, I still fight, but I wanted to overcome the fear, the cowardice in me, and with the meds not working as they did before, I opted for a new psychiatrist that could confirm my suspicion and place me correctly so I could get the right treatment.

Soon, I was diagnosed with Schizoaffective Disorder, which can mask as Bipolar Disorder and be mistaken for it. Schizoaffective Disorder has a bit of the symptoms of Schizophrenia of delusions, psychosis followed by a mood disorder such as mania and/or depression. Basically it’s Schizophrenia and Bipolar Disorder rolled together into a new diagnosis, and it explained why I had trouble fitting in and was more aware than most of my peers to the point of dissociation, which is feeling like you’re out of your body and not connected to the world at large. The new diagnosis made more sense and clicked in my understanding and while it’s treated the same as Bipolar Disorder, with the same psychiatric meds, it still presents its own problems. Problems I didn’t foresee and ones I don’t wish on anyone, but I didn’t blame anyone anymore because what good what it have done? Still, with Schizoaffective Disorder which accounts for 0.3% of the population compared to Bipolar Disorder which has a higher percentage rate, yet there are no surprises to when you realize that you have it, and thus, it happens.

I guess I can take away that mental illnesses are difficult to treat, diagnosis, and manage, but that doesn’t mean life is over once you acquire one; it just means that you have to try harder to keep the same quality of life and overcome those obstacles. It’s not a death sentence, but merely something that happens, and it needs to be recognized more and bring an end to a undying stigma about it. Sure, there are several times that mental illness can be very severe and some people can get deranged but most of the time, people suffer in silence because they don’t want that label as “crazy”. We just want a bit of normalcy in our lives and while mental illnesses from Schizophrenia to Schizoaffective Disorder can be treated, they should be respected as they aren’t the fault of the sufferer; in fact they help me preserve more and help me appreciate life a little bit. While there are no definite cures, they can lead to physical symptoms as well, so mental illness in general is a bit tricky and can be misdiagnosed or missed, but don’t let it consume your life and realize that it is manageable and you can be stronger. I feel like it gives me a better understanding of the silent world of those suffering from both physical and mental disorders, but just never forget that you deserve to have a great quality of life regardless of what you’re going through. You’re never alone, just know that. You’re never alone in this and we are all human regardless.

Michelle
http://dreaming-arcadia.com/

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

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There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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