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in Lifestyle &middot January 7, 2016

Currently

currently-january-2016-kate-the-almost-great

What I’m Up To

Reading: I just finished Big Magic by Elizabeth Gilbert (yes, I’m reviewing it next week because you may know that I’m obsessed with it) and I’m either going to finish The Magicians or I’m going to listen to Stephen King’s On Writing. Also I’m reading A King’s Ransom because I’ve somehow become that person who reads multiple books at a time?

Watching: I’m rewatching Supernatural and it’s amazing. It’s the closest I get to watching scary movies.

Writing: You may or may not know that I’m trying to finish TLM, my second novel, by the time classes start again at the end of the month! I’m around 49,000 words in right now.

winter-hat-2-kate-the-almost-great

Wearing: All the winter clothes! Winter finally showed up in Boston, although we’ve barely had any snow. I am displeased about that. I absolutely love this hat because it’s warm and cozy and it’s in Patriot’s colors! But it comes in loads of different colors, so you can get one in your team’s colors without the price of buying official gear. Apparelnbags has so many brands with so many great styles! I can’t recommend them enough.

winter-hat-kate-the-almost-great

Feeling: A bit pessimistic, to be honest. I’ve been in a fair amount of pain recently, mostly because I’m trying to spend a week or more off steroids for the first time in around a year. It turns out that the steroids were the only thing keeping my chest pain from costochondritis – inflammation of the lining of the ribs – at bay. But steroids are horrible for you long-term, and I’ll be back on them in February when my last infusion runs out. Oh, and I’m changing medications, so I’m sure you’ll hear a lot about that in the coming months. Because I’m changing medications, I’ll feel horrible from February to the end of June at the latest. And that’s assuming that the new medication will work. So January is supposed to be the month that I’m doing better, and so far that is not true.

Listening to: Creativity Boost playlist on Spotify, plus the TLM novel playlist and the playlists for Becky, Elizabeth, and Nicholas. I’ll talk more about novel playlists next week, hopefully!

This post contains affiliate links. This means that if you click them and buy something, I will receive a small profit. I also received the hat in this post for free in exchange for an honest review. All opinions are my own. For more information, check out my disclosure policy. Thank you for supporting Kate the (Almost) Great!
Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Reader Interactions

Comments

  1. Meghan Farrell says

    January 7, 2016 at 8:30 am

    I love that pom pom hat! Congrats on getting so far in your novel!

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    • Kate Mitchell says

      January 11, 2016 at 12:08 pm

      Thank you! Getting even farther, even if I’m not exactly on track.

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  2. Chelsea W says

    January 7, 2016 at 9:35 am

    Oh costochondritis is SUCH a pain. When I first had it, I thought I was having a heart attack!

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    • Kate Mitchell says

      January 11, 2016 at 12:10 pm

      Yes! It’s actually commonly mistaken for a heart attack. Everyone expects us to act normally and function while we feel like we’re dying. So fun!

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  3. Emily of Em Busy Living says

    January 7, 2016 at 1:23 pm

    I’ve been waiting to start reading “Big Magic” and I’m excited to hear how much people are loving it!

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    • Kate Mitchell says

      January 11, 2016 at 12:10 pm

      It is amazing! I actually published a review of it today, so check that out.

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  4. Amanda @ Anchored to Sunshine says

    January 7, 2016 at 4:15 pm

    I’m so excited to hear you loved Big Magic! I just downloaded it on Audible, I’m about an hour in, and am obsessed with it too!

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    • Kate Mitchell says

      January 11, 2016 at 12:10 pm

      Isn’t it amazing?!

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      • Amanda @ Anchored to Sunshine says

        January 12, 2016 at 11:12 am

        It really really exceeded my expectations! One of the better books I’ve read in a while about creativity.

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  5. Taylor Corbett says

    January 7, 2016 at 7:12 pm

    I love Supernatural! and your puppy is too cute!

    http://www.repressingthecrazy.com

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    • Kate Mitchell says

      January 11, 2016 at 12:11 pm

      Thank you! She’s hilarious and I love her.

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  6. Heidi Kokborg says

    January 8, 2016 at 8:48 am

    You puppy is so cute! I just bought Big Magic and I can’t wait to read it!

    http://www.thesparklingdarling.com

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    • Kate Mitchell says

      January 11, 2016 at 12:12 pm

      Thank you! And it’s an amazing book. I hope you enjoy it, too!

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  7. India H. says

    January 8, 2016 at 3:46 pm

    I’ll pray for the pain you’re enduring. I need to go back and read old posts so i can be caught up with what you are going through. And you’re puppy is adorable!

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    • Kate Mitchell says

      January 11, 2016 at 12:14 pm

      Thank you so much. The short version is I have inflammatory arthritis, originally diagnosed as psoriatic arthritis, then rheumatoid, and now back to psoriatic. I’ve been in pain since the fall of 2001 but wasn’t diagnosed until 2010, so it was caught way too late and it’s pretty much irreversible. We’re trying to stop it from getting worse, but I’m pretty much the definition of a serious case of arthritis.

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  8. Meghan says

    January 10, 2016 at 10:43 pm

    I can’t wait to hear what you have to say about novel playlists 🙂

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    • Kate Mitchell says

      January 11, 2016 at 12:14 pm

      Thank you! I’m planning on a post for Friday. Hope you enjoy it!

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I don’t know the exact date of my RA diagnosis, bu I don’t know the exact date of my RA diagnosis, but this is from right around then in July 2010. ⁣
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When I was diagnosed, I had been having symptoms for 9 years. ⁣
- 9 years of foot pain (partially from tarsal coalition)⁣
- Arthritic damage in said food⁣
- Carpal tunnel off and on for several years⁣
- And more⁣
⁣
I was finally diagnosed because I woke up one morning and was unable to open my jaw more than 8 mm. It turned out that I had horrible arthritic damage to my TMJs, which got me off the waiting list at MGH rheumatology. I left that appointment with an autoimmune arthritis diagnosis. ⁣
⁣
The fact that July is not only my diagnosis anniversary but also Juvenile Arthritis Awareness Month has always seemed right. I may not have been diagnosed with JA, but given the amount of arthritis I had along with my many years of symptoms, it's generally accepted that I had it. ⁣
⁣
This year marks 16 years since diagnosis and this fall marks 25 years since my symptoms started. It's pretty weird that so much time has already passed!⁣
⁣
⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate at 19 at Fenway Park for a Red Sox game. ⁣
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#RheumatoidArthritis #AutoimmuneDisease #Arthritis #JuvenileArthritis #JRA
Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
⁣
ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
⁣
#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

⬛⁣⁣⁣

IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

⬛⁣⁣⁣

IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
⁣
ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
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