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Myths about Going Gluten-Free
in Health &middot March 30, 2018

Myths about Going Gluten-Free

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in Health &middot March 30, 2018

Myths about Going Gluten-Free

After feeling pretty icky for several months, I was willing to try anything. I’d been experiencing joint pain, and exhaustion, and what sure felt like a gallbladder attack. My hair was falling out, my teeth were causing me problems, and I lost use of my hands in the cold. I was on the list to see a rheumatologist, but in the mean time, I was suffering. So when my friend, a registered nurse, suggested I experiment with going Gluten Free to see if that reduced my symptoms, I figured I would give it a shot. What could it hurt?

As it turned out, going Gluten Free hurt nothing but my pride.

While I noticed a drastic reduction in joint pain, fatigue, and stomach problems, I noticed a HUGE increase in the shade thrown my way by well-intentioned- and very, very ignorant- bystanders. Turns out, there are TONS of myths and misconceptions circulating about how and why a person might be on a gluten free diet…here’s the six that happen to drive me the craziest.

Note from Kate: Thank you so much to Jaymi for writing this guest post while I’m recovering from surgery!

Myths about Going Gluten-Free

1. I’m Hopping on the GF Bandwagon

Gluten Free is SO on trend. Which is A.) Actually super helpful, because GF options are popping up all over the place and B.) Super annoying to this little renegade. This mama hates a trend, so it about kills me when I have to ask a restaurant if they carry any Gluten Free alternatives. I can literally see the servers shiver. I doubt they’d have the same reaction to a peanut or parsley allergy (Sex and the City reference, anyone?). But something about avoiding Gluten just seems so obnoxious that I can tell I’m getting pigeon-holed right away.

2. That Gluten is Another Word for Bread

Somewhere along the way, things got twisted, and Gluten became a codename for carbs. Which, I guess kind of…but also, no. Gluten is a protein that is found in certain grains, such as wheat and barley. Since most bread is made from wheat, people are right in assuming that this means dinner rolls and ham sandwiches are mostly out for me. That doesn’t annoy me so much. But then I hear, “Oh, you’re gluten free? Psht, that’s easy. You can eat everything except wheat.”

Except red vines are made of wheat (I mean, seriously, Red Vines??? Whyyyy???) I don’t know if I can face the next sixty years without Red Vines. I mean, take my bread, take my brownies, take my soy sauce (yes, SOY SAUCE!). But Red Vines? Gluten, you’ve gone too far.

Myths about Going Gluten-Free

3. That “A Little Bit” Won’t Hurt Me

This one bugs me the most- because a little bit WILL hurt me, actually. Small amounts of gluten- like when I forget my restrictions and polish off my daughter’s peanut butter and jelly, for example- can be enough to ruin my day. And the day that follows. My hands cramp up, my brain is foggy, and I spend a LOT more time than I can afford to spend lying on my couch watching mindless TV. (Which doesn’t sound SO bad, now that I think about it, but stay with me here.) At any rate, whatever plans we had are now out of the question as I work the gluten out of my system. So I know a few bites of something isn’t a big deal to you- but I assure you, it is a big deal for me.

4. Gluten Free Means Low Carb/Organic/Healthy Somehow

Red Robin offers THE BEST gluten free bun I have ever tasted. But I have to order it off of the “Lighter Fare” menu. At a curvy size 10, I feel like a walking New Year’s Resolution every time I order it. And since I eat my weight in bottomless fries every time I go there (I mean, have you had their fries? So. Good.) I really couldn’t care less about “lightening up” my 1,100 calorie burger.

But the myth persists- going GF is healthier somehow, or lower calorie, or means that you only eat organic food. Which, for some people, I’m sure it does. But for me, it’s about swapping out my chocolate chip cookies for Skittles and my pretzels for potato chips. So yeah, I’m unlikely to start consuming organic kale smoothies anytime soon.

Myths about Going Gluten-Free

5. That I Have to Do EVERYTHING Differently Now

The people that do understand what being Gluten Free means, and the impact it has on my life, are so, so appreciated. They choose Mexican restaurants over burger places, stock up on Cheerios when I come to visit, and know a great little place we can go to with a flourless chocolate cake. And it makes me feel grateful. But I also want them to know that I am an adaptable creature, and that EVERYTHING doesn’t have to revolve around my food sensitivities. I keep a stash of almonds with me at all times, and have become very good at teasing out GF options from almost any menu. So while I greatly- GREATLY- appreciate the support, we don’t need to plan everything to revolve around my diet restrictions.

6. That I Have Celiac Disease

An increasing amount of people are aware of Celiac disease. So when I tell them that I actually tested negative for Celiac, I get looks of total puzzlement. “So then you CAN have Gluten.” Well, yes and no. I am lucky that I don’t have Celiac disease, and the heavy restrictions (and intestinal damage!) that can come along with it. I don’t have to worry as much about cross contamination or if a product is certified GF. My reactions are less severe, and I’m very unlikely to have severe reactions that impact my health and safety in the long-term. But just because I “passed” the test doesn’t mean I’m in the clear- there are levels of Gluten sensitivity, and figuring out where I am on the spectrum has been an adventure, to say the least.

Jaymi is a wife, mama, mystery-illness sufferer, and lover of coffee and refined sugar. She blogs at thesaltymamas.com with her best friend Christine, where they are all about embracing parenting with humor and good grace. You can find her on Instagram @TheSaltyMamas, on Twitter at @SaltyMamas, or on Facebook at facebook.com/thesaltymamas.

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Saturday Six – The Salty Mamas says:
    April 14, 2018 at 11:08 am

    […] hard for people to understand.  Check out her guest post over at Kate the Almost Great about the 6 Biggest Misconceptions she’s encountered since going Gluten-Free (and what’s annoyed her most about the […]

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

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What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

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There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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