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in Health, Uncategorized &middot June 26, 2015

How To Make Having an Infusion Easier

I’m so happy – today, Friday, June 26, 2015, I’m having my arthritis treatment. Every 4 months, I have an infusion therapy of chemotherapy, and it works wonders. Of course, it takes a few weeks to kick in, but it is what it is. It’s still better than not being on a working treatment at all!

Anyway, I felt like it would be appropriate to discuss how to make infusions – chemotherapy or otherwise – easier. If you’re asking, “What is infusion therapy?”, it’s when you have an IV in and receive medications directly to your bloodstream. I know that there are tons of patients who receive an infusion of some kind, and there are even more who might receive one at some point in their life. I hope that you can take my experiences (today’s infusion will be my tenth) and make your life easier!

How To Make Having an Infusion Easier - Kate the (Almost) Great

At least 24 hours before your infusion, start drinking a ton of water. The more hydrated you are, the better your veins are for having needles in them, and that makes you more comfortable for receiving your medication. I always am sure to drink as much water as possible in the 24 hours leading up to my infusion, and it makes a huge difference.

I also suggest avoiding caffeine that day. In most cases, you’ll be given a heavy dose of Benadryl to counteract any possible allergic reactions. If you don’t have caffeine, it will knock you out and you’ll sleep through most of the the infusion. If you do, you’ll be really tired but unable to actually fall asleep. Talking from personal experience here, so take that as you will.

The day of your infusion, there are several things you’ll want to have with you. Definitely have a list of your medications, as many times they will go over that. You’ll also want things to do. I used to bring a whole big bag of things, but now that I’m a couple years into this, I’m pretty much just bringing my computer and a book. I really don’t need anything other than that, especially if I sleep through the first hour or two. What and how much you bring will depend on how long you’ll be at the hospital, so definitely check that out beforehand.

How To Make Having an Infusion Easier - Kate the (Almost) Great
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I also suggest that you bring some snacks. Many people will feel a little off during or for a few days after their infusion, so you might want to make them bland snacks like rice cakes, chips, etc. If you’re going to be at the hospital for at least 2 hours, you’ll probably get hungry at some point.

Make sure you also wear comfortable clothes. I usually go for yoga pants and a t-shirt or athletic shorts and a t-shirt. And I always, always have a sweatshirt. Hospitals get cold, man! (Oh, and you can ask the nurse to use one of your wrist or hand veins instead of your elbow if you want to wear the sweatshirt on both arms! If you’re hydrated enough, your veins should be good enough for that.)

Last but not least, have someone to take you home. Don’t take yourself home if possible. You’ll be tired and uncomfortable and perhaps still affected by Benadryl.

Do you have any questions about having infusions? How about anything else to add to my suggestions? I’d love to hear them!


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Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Sarah @ Seriously, Sarah? says

    June 26, 2015 at 10:19 pm

    Those are good tips! I've never had infusions, but as someone who gets regular outpatient procedures, I can attest to how cold the hospital is! I also just spent a few days in the hospital (unexpectedly) and some of it was in ICU. I had to have two IVs in at all times, which was hard because I wasn't hydrated when I got there, they would fall out, and apparently I had bad veins. It felt like half of anesthesia came to my room. I got scolded like a 12 year old for cussing when one didn't work in my shoulder. I'm sorry. I've been a human pin cushion for the last day. Go back to the sleepers! 🙂

    Your good attitude is probably your biggest asset. It always is with any chronic condition and repeated treatment! I know people don't tend to comment on these, but I hope people will find this through a search engine and it'll help them!

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  2. Brita Long says

    July 7, 2015 at 3:28 am

    I had my second Remicaid infusion last week for my Crohn's Disease. For my first one, the Benadryl was really strong because it was via my IV. I sort of slept the whole time, but the nurses checked my vitals every 15 minutes… so I didn't sleep well. The second time I brought caffeine with me, and I took my Benadryl by pill. It was much better! I stayed awake the whole time and read a book. I also brought snacks the second time. My snacks are better than the snacks the hospital provides.

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

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Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

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