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in Lifestyle &middot July 14, 2014

How Much Should We Share? Internet Tips for Website Safety

Remember when the Internet became a common thing and everyone and their mother was concerned with how much Internet users were sharing online? We are far away from that now. The pure existence of social networks shows that. The prevalence of blogs, where people literally share their lives with strangers, provides another example.

But the question still lives – how much should we share about ourselves online? And at what point does website safety become a concern?

Internet tips for website safety

Pretty much everyone avoids posting about bodily functions. You can usually tell when someone’s Facebook has been “hacked” when they post a status about poop. And when it comes to health conditions, it’s pretty hit or miss. I know friends who have a chronic illness, but you would never know it from their social media presence. I personally talk about it (more on Twitter than Facebook) because 1) that’s a huge part of my life and I’m not going to ignore it online and 2) it’s an easy way to update everyone on what’s going on.

We all know people who post about family or relationship problems online, and everyone cringes at them and wished they didn’t post it. (If you’re one of those people who posts passive aggressive things about friends or relationship issues, please know that it makes everyone uncomfortable.) Sometimes, we see older family members post things online that we really wish they hadn’t. But how do we explain that to them? It’s not like there are hard and fast rules for everyone to abide by on the Internet.

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Then there’s the logical side of too much sharing. You don’t want to post pictures of your credit card, for example. Or, similarly, information that could lead to your identity being stolen or you being robbed. It’s a bad idea to post your address as well as all your expensive items (TVs, electronics, jewelry, etc.) and how long you’re going to be out of town, unless you’re looking to invite robbers. Those are both two important elements of website safety.

But the thing is that the Internet is forever. Even if you delete something, it doesn’t mean that it can’t be found or that it was truly gone in the first place. I feel like this was drilled into our heads last decade, and then it stopped being talked about as much because all Internet users knew it. And now we have a new generation arriving to the Internet in the past 5 years or so who don’t know as much about website safety as we do.

This is a bit of a rambling post. The point is that we need to remember that what we post online can stay with us. When future employers look for us, what will they come up with? What will they find? How will they feel about what they see? And if you don’t care about what your employers think, ask yourself what your children or grandchildren or future spouse’s family will find if they search for you. If you legitimately do not care, that’s great, and congratulations. Just remember that nothing you put online can ever truly go away.

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Linè Waterson says

    July 14, 2014 at 1:32 pm

    This is so true. When I look at my social media, a lot of people seem to forget what to keep private and what is worth sharing. Great post! 🙂

    http://nei01.blogspot.com/

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  2. eHa says

    July 17, 2014 at 12:09 am

    I try to keep my blog relatively anonymous though I am sure if anyone really wanted to they could find out where I live and work. So I feel comfortable sharing more personal things since I try to paint a full and realistic picture of my life good and bad. I never post about traveling until I've gotten back unless I am traveling to visit my family and my husband is staying home so the house isn't empty.

    For social media identified with me I am trying to be more careful. I've stopped posting about politics. No body needs to be offended by my opinions. But I post generally about my health conditions that don't involve my reproductive organs or anything in that part of my body. But my allergies, asthma, and eczema get mentioned when they're acting up. People need to know why I'll be staying inside this weekend (tree pollen + allergy triggered asthma = disaster) and that the hideous looking rash on my arms isn't contagious.

    I've been thinking about social media privacy for my future children recently though. Should I share pictures of my as of yet unborn children toddling around in their diapers on Facebook?

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SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: Kate drinks coffee giving side eye. White text box reads "My Face When Someone Says 'You Shouldn't Need a Cane At Your Age'" ⁣
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#ChronicPain #ChronicallyIll #RheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Fibromyalgia
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