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in Health, Uncategorized &middot January 2, 2015

Leaky Gut and Anemia

Hey, guess what? I’m leaking.

Literally.

Leaky Gut Syndrome Kate the (Almost) Great

Let me back up a bit. As you probably know if you’ve been following me on this blog or on social media, you know that I have rheumatoid arthritis and fibromyalgia and I’ve been in pain since 2001. Well, one component of my health that has been generally unaddressed is that I’m anemic and have been for a very long time. We first found out my junior year of high school (8 years ago), and since then I have tried everything possible to fix it.

But nothing worked and I remained stably anemic since then. With my more serious health concerns and frequent ER trips for pain, it was pretty much ignored. No one was really concerned except for my mother. Would we have been concerned if I hadn’t been dealing with other issues? Absolutely. But that wasn’t the case, and I just didn’t have room in my brain to think about something that had become just a part of my normal life.

Over the past year or two, my mother started talking about the anemia more and more. While I completely understood, I felt that I should focus on other aspects of my health. Then I started seeing a chiropractor. His goal is to help me with my fibromyalgia pain and my joints that tend to float out of their designated spot in my body. So when we first met, we talked about my fibromyalgia treatment.

He suggested that I see a naturopath who he knew. Since the whole point of me not working now is to get my health in order, I was on board.

Leaky Gut Syndrome Kate the (Almost) Great

The appointment was incredible. We talked about my medical history, looked at my blood under a microscope, and just generally had a whole bunch of medical revelations.

1. My body is constant in flight-or-flight mode.

2. I definitely 100% have RA (shocking, I know)

3. I most likely also have leaky gut syndrome

Fight or Flight – What Happens To Me

Essentially, my body is just constantly on edge. I’m always moving at least a little bit. My eyes don’t dilate properly. This may have to do with my anxiety or may be due to some medications that I’m on.

What I Need To Do

I get to wear sunglasses even if it’s mildly bright so that I don’t “damage my eyes” or some nonsense. (Note: actually not nonsense.)

Rheumatoid Arthritis – What Happens To Me

Like I said, we looked at my blood under a microscope when it was fresh and when it was dried. Also, as soon as he pricked my finger it started bleeding significantly. As in he asked if I was on blood thinners. So that’s great.

The red blood cells were stuck together, which is not supposed to happen. That doesn’t allow nutrients to be absorbed. There were brown spots in the dried blood, which means yeast. And there was a white cloud, which means inflammation.

What I Need To Do

Continue with my RA treatment, but I’m also trying to be better and eat an anti-inflammatory diet, which I’ll talk more about later.

Leaky Gut Syndrome Kate the (Almost) Great
Leaky Gut – What Happens To Me

Leaky gut syndrome is also known as increased intestinal permeability. It is something that doctors are recognizing more now, but still don’t know a whole lot about it. The problem is that the gut is the biggest immune system organ (how weird is that?), but it isn’t completely understood. It has been mentioned a couple of times to me over the past few years, but never seriously addressed or considered.

What happens is that the lining of the small intestine doesn’t work properly and it can let substances into the blood stream, hence the name “leaky gut.” So it’s a cycle: there’s intestinal inflammation of the gut lining, which leads to nutrient malabsorption, leading to an immune response. So the immune system responds, causing GI issues and food intolerance, which leads to autoimmune disease, which starts the cycle all over again by causing intestinal inflammation of gut lining.

This means that I could have been dealing with this for a very long time and it could have caused the arthritis. That just blows my mind.

What I Need To Do

Treatment for leaky gut involves cutting more foods out. Like I said earlier, I need to really stick to an anti-inflammatory diet. So some of the foods I’ll cut out will be only gone for a few months while the gut heals and some of them will be gone for good. My naturopath will be giving me a full list of what I should and shouldn’t eat when we get some more tests back from the lab.
The steps are that 1) I’ll remove food and factors that damage the gut, 2) replace them with healing foods, 3) repair with supplements, and 4) rebalance with probiotics. I already don’t eat gluten and dairy, but I’ve now cut out corn and soy. Soon, I’ll cut more out, maybe including sugar and grains.
Leaky Gut Syndrome Kate the (Almost) Great
As a whole, I’m excited. I’m excited to feel better and to give my body a fresh start. I’ve felt for a while that I’m right on the edge of feeling a lot better, but my current treatments weren’t doing enough. This will hopefully settle things and make life a whole lot better. Ideally, it will also help me get off of some of the 23 pills a day I take. It’s definitely not going to be easy, but I know it will be worth it. 

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Previous Post: « Either I Will Find A Way, Or I Will Make One
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Reader Interactions

Comments

  1. Laura says

    January 2, 2015 at 7:45 pm

    Hi Kate! So sorry you've been dealing with all that! You might want to check out the FODMAP diet (Kate Scarlata's blog has a lot of info) – that along with cutting out gluten really helped me with my health issues!

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  2. Katie @ Chalk it up to Better Luck says

    January 2, 2015 at 9:51 pm

    I'm glad that you've possibly found the source of all your pain! I hope you start to feel better soon.

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  3. Natalie B. says

    January 6, 2015 at 12:01 pm

    I'm impressed with your dedication toward getting well. I too suffer with fibromyalgia, chronic fatigue syndrome, and anemia. It's not easy. Several years ago I learned that I am always in fight or flight too. My anxiety comes out by always moving my fingers. lol What really helped with my anxiety was CBT (cognitive behavioral therapy). I, literally, reprogrammed my brain into thinking differently. Weird huh? I sincerely hope you're on the way to improved health. 🙂

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  4. Marla Rogers says

    January 6, 2015 at 5:40 pm

    I'm so happy you've made such a big health revelation! I hope 2015 sees you heal :]

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  5. hi says

    October 5, 2020 at 9:25 am

    I go to see day-to-day some blogs and sites to read content, however
    this weblog provides quality based articles.

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    Reply
  6. REBECCA LYNN BAILEY says

    September 27, 2021 at 10:11 am

    Hi Kate,
    If you have leaky gut you may also have b12 anemia, which contributes to anxiety and a lot of other cognitive conditions like brain fog, fatigue, memory issues as well as nerve issues etc. Worth checking out

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    Reply

Trackbacks

  1. Beginner's Guide: Autoimmune Paleo Diet | Kate the (Almost) Great says:
    February 15, 2024 at 3:20 pm

    […] autoimmune paleo – or autoimmune protocol diet or some variation thereof – is the belief that leaky gut is the cause of autoimmune illnesses. By eating this particular diet, the thought is that you can […]

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I personally have rheumatoid arthritis, fibromyalg I personally have rheumatoid arthritis, fibromyalgia, and Sjögren's syndrome, which makes 3 forms of arthritis.⁣
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May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖 ⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis means only 1 thing.⁣
Fact⁣
There are over 100 kinds of arthritis, including osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, and more!⁣
katethealmostgreat⁣
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#ArthritisAwareness #RheumatoidArthritis #Fibromyalgia #SjogrensSyndrome #Arthritis
SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛ 

IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
⁣
Like, comment, and share to spread awareness 💖⁣
⁣
⬛⁣
⁣
I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⬛⁣
⁣
ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛

IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
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