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in Health, Uncategorized &middot January 2, 2015

Leaky Gut and Anemia

Hey, guess what? I’m leaking.

Literally.

Leaky Gut Syndrome Kate the (Almost) Great

Let me back up a bit. As you probably know if you’ve been following me on this blog or on social media, you know that I have rheumatoid arthritis and fibromyalgia and I’ve been in pain since 2001. Well, one component of my health that has been generally unaddressed is that I’m anemic and have been for a very long time. We first found out my junior year of high school (8 years ago), and since then I have tried everything possible to fix it.

But nothing worked and I remained stably anemic since then. With my more serious health concerns and frequent ER trips for pain, it was pretty much ignored. No one was really concerned except for my mother. Would we have been concerned if I hadn’t been dealing with other issues? Absolutely. But that wasn’t the case, and I just didn’t have room in my brain to think about something that had become just a part of my normal life.

Over the past year or two, my mother started talking about the anemia more and more. While I completely understood, I felt that I should focus on other aspects of my health. Then I started seeing a chiropractor. His goal is to help me with my fibromyalgia pain and my joints that tend to float out of their designated spot in my body. So when we first met, we talked about my fibromyalgia treatment.

He suggested that I see a naturopath who he knew. Since the whole point of me not working now is to get my health in order, I was on board.

Leaky Gut Syndrome Kate the (Almost) Great

The appointment was incredible. We talked about my medical history, looked at my blood under a microscope, and just generally had a whole bunch of medical revelations.

1. My body is constant in flight-or-flight mode.

2. I definitely 100% have RA (shocking, I know)

3. I most likely also have leaky gut syndrome

Fight or Flight – What Happens To Me

Essentially, my body is just constantly on edge. I’m always moving at least a little bit. My eyes don’t dilate properly. This may have to do with my anxiety or may be due to some medications that I’m on.

What I Need To Do

I get to wear sunglasses even if it’s mildly bright so that I don’t “damage my eyes” or some nonsense. (Note: actually not nonsense.)

Rheumatoid Arthritis – What Happens To Me

Like I said, we looked at my blood under a microscope when it was fresh and when it was dried. Also, as soon as he pricked my finger it started bleeding significantly. As in he asked if I was on blood thinners. So that’s great.

The red blood cells were stuck together, which is not supposed to happen. That doesn’t allow nutrients to be absorbed. There were brown spots in the dried blood, which means yeast. And there was a white cloud, which means inflammation.

What I Need To Do

Continue with my RA treatment, but I’m also trying to be better and eat an anti-inflammatory diet, which I’ll talk more about later.

Leaky Gut Syndrome Kate the (Almost) Great
Leaky Gut – What Happens To Me

Leaky gut syndrome is also known as increased intestinal permeability. It is something that doctors are recognizing more now, but still don’t know a whole lot about it. The problem is that the gut is the biggest immune system organ (how weird is that?), but it isn’t completely understood. It has been mentioned a couple of times to me over the past few years, but never seriously addressed or considered.

What happens is that the lining of the small intestine doesn’t work properly and it can let substances into the blood stream, hence the name “leaky gut.” So it’s a cycle: there’s intestinal inflammation of the gut lining, which leads to nutrient malabsorption, leading to an immune response. So the immune system responds, causing GI issues and food intolerance, which leads to autoimmune disease, which starts the cycle all over again by causing intestinal inflammation of gut lining.

This means that I could have been dealing with this for a very long time and it could have caused the arthritis. That just blows my mind.

What I Need To Do

Treatment for leaky gut involves cutting more foods out. Like I said earlier, I need to really stick to an anti-inflammatory diet. So some of the foods I’ll cut out will be only gone for a few months while the gut heals and some of them will be gone for good. My naturopath will be giving me a full list of what I should and shouldn’t eat when we get some more tests back from the lab.
The steps are that 1) I’ll remove food and factors that damage the gut, 2) replace them with healing foods, 3) repair with supplements, and 4) rebalance with probiotics. I already don’t eat gluten and dairy, but I’ve now cut out corn and soy. Soon, I’ll cut more out, maybe including sugar and grains.
Leaky Gut Syndrome Kate the (Almost) Great
As a whole, I’m excited. I’m excited to feel better and to give my body a fresh start. I’ve felt for a while that I’m right on the edge of feeling a lot better, but my current treatments weren’t doing enough. This will hopefully settle things and make life a whole lot better. Ideally, it will also help me get off of some of the 23 pills a day I take. It’s definitely not going to be easy, but I know it will be worth it. 

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Previous Post: « Either I Will Find A Way, Or I Will Make One
Next Post: Spoonie Spotlight: Leanne »

Reader Interactions

Comments

  1. Laura says

    January 2, 2015 at 7:45 pm

    Hi Kate! So sorry you've been dealing with all that! You might want to check out the FODMAP diet (Kate Scarlata's blog has a lot of info) – that along with cutting out gluten really helped me with my health issues!

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  2. Katie @ Chalk it up to Better Luck says

    January 2, 2015 at 9:51 pm

    I'm glad that you've possibly found the source of all your pain! I hope you start to feel better soon.

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  3. Natalie B. says

    January 6, 2015 at 12:01 pm

    I'm impressed with your dedication toward getting well. I too suffer with fibromyalgia, chronic fatigue syndrome, and anemia. It's not easy. Several years ago I learned that I am always in fight or flight too. My anxiety comes out by always moving my fingers. lol What really helped with my anxiety was CBT (cognitive behavioral therapy). I, literally, reprogrammed my brain into thinking differently. Weird huh? I sincerely hope you're on the way to improved health. 🙂

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  4. Marla Rogers says

    January 6, 2015 at 5:40 pm

    I'm so happy you've made such a big health revelation! I hope 2015 sees you heal :]

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  5. hi says

    October 5, 2020 at 9:25 am

    I go to see day-to-day some blogs and sites to read content, however
    this weblog provides quality based articles.

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    Reply
  6. REBECCA LYNN BAILEY says

    September 27, 2021 at 10:11 am

    Hi Kate,
    If you have leaky gut you may also have b12 anemia, which contributes to anxiety and a lot of other cognitive conditions like brain fog, fatigue, memory issues as well as nerve issues etc. Worth checking out

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    Reply

Trackbacks

  1. Beginner's Guide: Autoimmune Paleo Diet | Kate the (Almost) Great says:
    February 15, 2024 at 3:20 pm

    […] autoimmune paleo – or autoimmune protocol diet or some variation thereof – is the belief that leaky gut is the cause of autoimmune illnesses. By eating this particular diet, the thought is that you can […]

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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