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in Health, Uncategorized &middot February 1, 2015

Spoonie Spotlight: Jess

Happy Sunday! Hope you’re all having a good weekend. Today’s feature on Spoonie Spotlight is Jess Cochran! Spoonie Spotlight is my way to use my platform to share the stories of others living with arthritis or an arthritis-related condition. The point is to share the realities of living with arthritis and to make others’ voices heard. (New posts every 2 weeks.) If you would like to participate, fill out the form!

Spoonie Spotlight

What’s your diagnosis?

Psoriatic Arthritis

When were you diagnosed?

2013

How long have you had symptoms?

Since 2006 but have other conditions

Have you been limited in any way from your illness? If so, how?

Most definitely; I use a walker at home and wheelchair out of home and require full time care with ADLs

What’s your story?

I was diagnosed with Psoriatic Arthritis in 2013 after many years of horrendous pain, clicks, grinds, sleepless nights and tears. So far the journey still has a long way to go as I have been fully resistant to every medication thrown my way and the only two things that seem to give the slightest relief are ketamine infusions and Methotrexate injections. As a 24 year old who loved my blossoming nursing career and the prospect of children, these two things along with permanent wheels to help me get around….well that was a hard pill to swallow!

How has your illness changed your life?

In so many ways, more than I ever knew possible.

Jess - Spoonie Spotlight

What are your goals for the future? (Not related to your health)

I have discovered artistic modeling which has been a major positive “fighting force” in my life. I also want to have children because that has been something I know I am made for. And just some sort of inspirational career where I can touch the hearts of others, and hopefully go and volunteer overseas too!

What are your goals for the future? (Health related)

Get well enough to have children, to work a little and to be able to get out there and enjoy every moment life has to offer!!!

Do you consider yourself handicapped or disabled? Why or why not?

Haha funny question…you want to know why? I don’t consider myself disabled as such I write that I’m disABLED!

What would you like readers to take from your experience?

Anything is possible, these struggles are here for a reason though it does take a lot of time and patience to see why, hold on and be strong, there are people out there just as cooky as you looking for a fellow fighter to stand strong with….we are here!

Find Jess Online
Facebook
All Spoonie Spotlight posts // Fill out the form to participate

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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There's beauty everywhere, not just in the Maine w There's beauty everywhere, not just in the Maine woods. (Shocking to me, I know.) ⁣⁣⁣
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There's beauty in little things, medium things. There's beauty in ordinary things. ⁣⁣⁣
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In the first cup of coffee of the day with the sun shining into the kitchen. ⁣⁣⁣
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In a completed checklist.⁣
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In a freshly cleaned house. ⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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Weeks 15 of 2026 Weekly Just trying to get throug Weeks 15 of 2026 Weekly

Just trying to get through!

1️⃣ IVIG time
2️⃣ I got a hair cut last week and then I looked nice at one point!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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⁣⁣⁣⁣⁣⁣1️⃣ Looking at Kate’s lap. There’s a pump with tubes attached that go under Kate’s shirt.
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FAQ: What Is Subtalar Fusion Surgery? Background FAQ: What Is Subtalar Fusion Surgery? 

Background: I have tarsal coalition and rheumatoid arthritis and had subtalar fusion in my left foot in 2009 and in my right in 2018. While this was started because of the tarsal coalitions, it is a surgery that can help rheumatoid arthritis, too. 

Video: Kate talks to the camera. There are captions. A black text box at the binning reads “FAQ: What Is Subtalar Fusion Surgery?”. 

#TarsalCoalition #RheumatoidArthritis #SubtalarFusion #AutoimmuneDisease
There will be times when you do everything you can There will be times when you do everything you can to feel better and it won't work. That's not a failing on your part.⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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Weeks 13 and 14 of 2026 Weekly Had some rough pai Weeks 13 and 14 of 2026 Weekly

Had some rough pain days in here so I didn’t do a lot and I combined the weeks in 1 post!

1️⃣ Hematology appointment 
2️⃣ PCP, after which an x-ray showed stress fractures in 3 bones 
3️⃣ Tea and cross-stitching

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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1️⃣ Looking at Kate’s lap. There’s a medical bracelet on her wrist and a Kindle on her lap.
2️⃣ Kate takes a selfie in a doctor’s office. She’s a white woman with auburn hair wearing a black t-shirt, silver Celtic knot necklace, apricot mask, and green glasses.
3️⃣ Looking at a table on which is an orchid, an in-progress cross-stitch project, and a mug of tea.

#ChronicallyIll #RheumatoidArthritis #CrossStitcher #DisabledAndCute
Background: I have tarsal coalitions and rheumatoi Background: I have tarsal coalitions and rheumatoid arthritis in both of my feet, and I’ve had resection surgery and subtalar fusion surgeries. I am not a medical professional and am sharing my experience! 

Video: Kate talks to the camera. There are captions. Text reads at the beginning “FAQ: What Was the Recovery from Tarsal Coalition Surgeries Like?”. 

#TarsalCoalition #RheumatoidArthritis #ChronicPain
We've all made this mistake once (or twice or a hu We've all made this mistake once (or twice or a hundred times ...) ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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SELF-IMAGE WITH CHRONIC ILLNESS⁣⁣⁣ ⁣ It can be rea SELF-IMAGE WITH CHRONIC ILLNESS⁣⁣⁣
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It can be really easy to feel like chronic illness has taken over everything about you and that all you are is a patient. ⁣⁣⁣
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You might be different than you were before you developed symptoms, but that doesn't mean that everything about you is different, even if everything about your life is different. ⁣⁣⁣
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There is no one aspect of our lives that defines all that we are. That's true for LITERALLY EVERYONE! No one is just one thing. We're all many, many things. ⁣⁣⁣
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For example: yes, I'm a chronic illness patient, and yes, I talk about it a lot online. But I'm also someone who is passionate about education, who played 1-3 instruments for 12 years, who is obsessed with her home state, who reads a ridiculous amount of historical fiction, and who has been writing in some capacity for decades. ⁣⁣⁣
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Even if all you know about me is that I'm a chronic illness patient, that doesn't mean that all I am is a chronic illness patient. ⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣
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