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in Health, Uncategorized &middot February 1, 2015

Spoonie Spotlight: Jess

Happy Sunday! Hope you’re all having a good weekend. Today’s feature on Spoonie Spotlight is Jess Cochran! Spoonie Spotlight is my way to use my platform to share the stories of others living with arthritis or an arthritis-related condition. The point is to share the realities of living with arthritis and to make others’ voices heard. (New posts every 2 weeks.) If you would like to participate, fill out the form!

Spoonie Spotlight

What’s your diagnosis?

Psoriatic Arthritis

When were you diagnosed?

2013

How long have you had symptoms?

Since 2006 but have other conditions

Have you been limited in any way from your illness? If so, how?

Most definitely; I use a walker at home and wheelchair out of home and require full time care with ADLs

What’s your story?

I was diagnosed with Psoriatic Arthritis in 2013 after many years of horrendous pain, clicks, grinds, sleepless nights and tears. So far the journey still has a long way to go as I have been fully resistant to every medication thrown my way and the only two things that seem to give the slightest relief are ketamine infusions and Methotrexate injections. As a 24 year old who loved my blossoming nursing career and the prospect of children, these two things along with permanent wheels to help me get around….well that was a hard pill to swallow!

How has your illness changed your life?

In so many ways, more than I ever knew possible.

Jess - Spoonie Spotlight

What are your goals for the future? (Not related to your health)

I have discovered artistic modeling which has been a major positive “fighting force” in my life. I also want to have children because that has been something I know I am made for. And just some sort of inspirational career where I can touch the hearts of others, and hopefully go and volunteer overseas too!

What are your goals for the future? (Health related)

Get well enough to have children, to work a little and to be able to get out there and enjoy every moment life has to offer!!!

Do you consider yourself handicapped or disabled? Why or why not?

Haha funny question…you want to know why? I don’t consider myself disabled as such I write that I’m disABLED!

What would you like readers to take from your experience?

Anything is possible, these struggles are here for a reason though it does take a lot of time and patience to see why, hold on and be strong, there are people out there just as cooky as you looking for a fellow fighter to stand strong with….we are here!

Find Jess Online
Facebook
All Spoonie Spotlight posts // Fill out the form to participate

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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July is: ⁣ - Disability Pride Month ⁣ - Juvenile A July is: ⁣
- Disability Pride Month ⁣
- Juvenile Arthritis Awareness Month ⁣
- the anniversary of when I was diagnosed with autoimmune arthritis at age 19 after 9 years of symptoms ⁣
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As you can imagine, that makes me very aware of my disability via juvenile arthritis⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Screenshot of a Bluesky post. The background is dark teal, and it's written by Kate Mitchell | Kate the (Almost) Great with the username katethealmostgreat.bsky.social. ⁣The text reads what's above the first black box.⁣⁣⁣⁣⁣
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#DisabilityPride #JuvenileArthritis #RheumatoidArthritis #AutoimmuneDisease
There are a lot of reasons why you shouldn't doubt There are a lot of reasons why you shouldn't doubt someone's chronic illness, but this is one of them. ⁣
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I'm always amazed by how people can have the exact same illness or set of illnesses and still have different experiences. Sure, there will be similarities, but which symptoms are the worst, what medications you respond to, and your quality of life can vary significantly. ⁣
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It doesn't mean that one person is necessarily worse off than another; they're just different.⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie. A white text box reads "Chronic Illness Looks Different in Each Person"⁣
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#ChronicallyIll #RheumatoidArthritis #Endometriosis #Fibromyalgia #POTS
This basically sums up my summer so far: Harley, a This basically sums up my summer so far: Harley, a sewing project, and my foot in a cast⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Harley the golden retriever has his head on Kate's lap. Also on her lap is an in-progress needlepoint project and Kate's leg (in a walking cast) is elevated.⁣
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#Osteoporosis #RheumatoidArthritis #GoldenRetrievers #Needlepoint #Needlework
Week 28 of 2026 Weekly A very busy week! 1️⃣ Foo Week 28 of 2026 Weekly

A very busy week!

1️⃣ Foot checkup! Walking boot is on occasionally from now until September 
2️⃣ Boston 
3️⃣ IVIG
4️⃣ Dentist 🦷 All good! 
5️⃣ Not a filter - this was the Boston area the second half of the week 
6️⃣ Physical time!

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⁣⁣⬛⁣⁣

IDs:
1️⃣ Kate takes a selfie in a doctor’s office
2️⃣ Looking at TD Garden, the bear statue for the Bruins, and Zakim Bridge in the background 
3️⃣ Looking at tubes coming out from under Kate’s clothes. There’s a Kindle on her stomach
4️⃣ Kate takes a mirror selfie before leaving
5️⃣ Medford Square looking like there’s a yellow filter over it
6️⃣ Kate takes a selfie in a doctor’s office

#ChronicallyIll #InvisibleIllness #AutoimmuneDisease #Bostonian #IVIG
Also, if this is how you’re finding out, I’m sorry Also, if this is how you’re finding out, I’m sorry. I’m fortunate enough to have a lot of people who care about me and this is the fastest way to tell everyone. 

Video: Kate talks to the camera while putting on makeup. There are captions. 

#RheumatoidArthritis #AutoimnuneDisease #ChronicIllness #Arthritis #ChronicPain
Week 27 of 2026 Weekly (Delayed because last Sund Week 27 of 2026 Weekly

(Delayed because last Sunday was baaaaad)

1️⃣ Due airport difficulties, we got a few more days with Emma. Harley was THRILLED!
2️⃣ Beautiful bird/squirrel visitors
3️⃣ A beautiful Maine summer day

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⁣⁣⬛⁣⁣

1️⃣ Harley the golden retriever putting his front legs up on Emma’s legs to demand hugs.
2️⃣ A bird feeder and hummingbird feeder on a deck. There is a hummingbird at one and squirrel at the other.
3️⃣ A barn, a pond, and the Maine woods

#207 #MaineLife #MaineTheWay #NewEnglandSummer #IGMaine
Reminder: you can be proud of your disability comm Reminder: you can be proud of your disability community while wishing your body cooperated more⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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 ID: Screenshot of a thread post. The background is dark teal, and it's written by katethealmostgreat. ⁣The text reads what's above the first black box.⁣⁣⁣⁣⁣
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#DisabilityPride #ChronicallyIll #InvisibleIllness #Disabled #Disability
I don’t know the exact date of my RA diagnosis, bu I don’t know the exact date of my RA diagnosis, but this is from right around then in July 2010. ⁣
⁣
When I was diagnosed, I had been having symptoms for 9 years. ⁣
- 9 years of foot pain (partially from tarsal coalition)⁣
- Arthritic damage in said food⁣
- Carpal tunnel off and on for several years⁣
- And more⁣
⁣
I was finally diagnosed because I woke up one morning and was unable to open my jaw more than 8 mm. It turned out that I had horrible arthritic damage to my TMJs, which got me off the waiting list at MGH rheumatology. I left that appointment with an autoimmune arthritis diagnosis. ⁣
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The fact that July is not only my diagnosis anniversary but also Juvenile Arthritis Awareness Month has always seemed right. I may not have been diagnosed with JA, but given the amount of arthritis I had along with my many years of symptoms, it's generally accepted that I had it. ⁣
⁣
This year marks 16 years since diagnosis and this fall marks 25 years since my symptoms started. It's pretty weird that so much time has already passed!⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate at 19 at Fenway Park for a Red Sox game. ⁣
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#RheumatoidArthritis #AutoimmuneDisease #Arthritis #JuvenileArthritis #JRA
Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
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