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in Health, Uncategorized &middot August 2, 2015

Spoonie Spotlight: Ashley

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Spoonie Spotlight is my way to use my platform to share the stories of others living with arthritis or an arthritis-related condition. The point is to share the realities of living with arthritis and to make others’ voices heard. (New posts every 2 weeks.) If you would like to participate, fill out the form!

What’s your diagnosis?

Fibromyalgia, Chronic Migraines, Cluster Headaches, IBS, PMDD, anxiety

When were you diagnosed?

Migraines, IBS, anxiety- Childhood Fibromyalgia, PMDD- 20s

How long have you had symptoms?

As long as I can remember

Have you been limited in any way from your illness? If so, how?

Yes – being in crowded places is difficult, stay away from loud noises and bright/ flashing lights, shorten outings and car rides, etc.

What’s your story?

When I was younger, I battled low self esteem and addiction issues because I didn’t know how to handle anxiety and being an HSP. It wasn’t until after my diagnosis of fibromyalgia that I realized that I needed to make some major life changes. Now, I am happier an healthier than I’d ever been before and I love myself more than I ever thought possible.

How has your illness changed your life?

Positively

Ashley Thomas

What are your goals for the future? (Not related to your health)

My goal is to help uplift and restore confidence in as many chronically ill people as possible. I know what it’s like to feel worthless. The pain and all the changes having a chronic illness brings can really make you feel worse and lower your self-esteem even more. I don’t want to see anyone going down the same dark path that I was on because they’re depressed or feeling useless. No one should ever feel that way.

What are your goals for the future? (Health related)

I’ve got some hormone issues I am trying to get worked out. I plan to continue to strengthen my body and mind in order to be the best I possibly can.

Do you consider yourself handicapped or disabled? Why or why not?

Only when I get lost in the grocery store because my mind literally just went completely blank or when I have to pull over while driving because I suddenly don’t know where I am or where I am going. Only when I get overwhelmed to the point I have an embarrassing panic attack or I have to wake my significant other in the middle of the night because my irrational fear is spiraling out of control and I can’t sleep. Only when I am too fatigued from nightmares and night sweats to get out of bed or when my head hurts so much its too painful to cry or when I forget how to speak right in the middle of a sentence or when I have to spend days in bed after an outing but not most of the time!

What would you like readers to take from your experience?

That if I can do it, if I can change, improve my life, my quality of life, then anyone can!

Find Ashley Online!

Blog | Facebook
All Spoonie Spotlight Posts / Participate

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Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
Week 22 of 2026 Weekly 1️⃣ Off to see my foot doc Week 22 of 2026 Weekly

1️⃣ Off to see my foot doc … and my foot is healing! Yay!
2️⃣ A very cool notification to get!
3️⃣ This is 35 🎂
4️⃣ Featuring Harley snuggles 
5️⃣ And then it was my mom’s birthday! 
6️⃣ With Harley again 

ID: 
1️⃣ Kate takes a mirror selfie 
2️⃣ a notification from WordPress saying “Receive views from 150+ counties. The United Nations has nothing on you!”
3️⃣ Kate smiles for the camera in a cafe 
4️⃣ Kate in the same outfit with Harley the golden retriever on her lap. 
5️⃣ Kate’s mom smiling in a restaurant 
6️⃣ Kate with Harley again 

#GoldenRetrieversOfInstagram #ChronicallyIll #ChronicPain #InvisibleIllness
Lifestyle Changes I Made for My Rheumatoid Arthrit Lifestyle Changes I Made for My Rheumatoid Arthritis⁣
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While these are not my treatments, they have made my life better in some ways. ⁣
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What lifestyle changes have you made, for RA or another condition?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: ⁣
A series of pictures. Each has a text box on them related to the picture. ⁣
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1️⃣ Lifestyle changes I made for my rheumatoid arthritis⁣
2️⃣ Wearing a mask⁣
3️⃣ Using a cane⁣
4️⃣ Changing my diet⁣
5️⃣ Working from home⁣
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#ChronicIllness #RheumatoidArthritis #AutoimmuneDisease #Arthritis #ChronicallyIll
What helps you mentally get through a tough time?⁣ What helps you mentally get through a tough time?⁣
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I'm struggling right now with my broken foot, which brings back a lot of tough memories. That plus being due for Rituxan and the heat starting up has made things hard. ⁣
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Here are somethings I do: ⁣
▪ Stick with my routine⁣
▪ Make recipes that I really enjoy⁣
▪ Work on embroidery projects so I can do something productive that involves stabbing fabric⁣
▪ Cut myself slack ⁣
▪ Get Harley hugs⁣
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⬛⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate and Harley the golden retriever hugging. Kate is a redheaded white woman wearing a black dress, pink sweater, and round pink glasses.⁣
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#GoldenRetrievers #RheumatoidArthritis #Fibromyalgia #POTS #SjogrensSyndrome
Week 21 of 2026 Weekly 1️⃣ First real cross-stit Week 21 of 2026 Weekly 

1️⃣ First real cross-stitch project: done! 
2️⃣ The magic machine that is hopefully healing my broken foot 
3️⃣ When your 2 refrigerated medications are delivered on the same day

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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1️⃣ A completed cross-stitch project, which shows 2 bears walking past a lake, trees, and mountains.
2️⃣ An Exogen machine showing use 13 days in a row
3️⃣ A couple of styrofoam refridgerated containers for medication

#ChronicallyIll #CrossStitch #RheumatoidArthritis #SjogrensSyndrome #IVIG
You guessed it, I'm one of that 25%. ⁣ ⁣ May is Ar You guessed it, I'm one of that 25%. ⁣
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May is Arthritis Awareness Month. Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
You only have rheumatoid arthritis if your rheumatoid factor tests positive.⁣
Fact⁣
As many as 25% of RA patients test negative, which is called being seronegative.⁣
katethealmostgreat
Things are tough (all over pain, heat with POTS, i Things are tough (all over pain, heat with POTS, in a walking cast waiting to see if I need my 6th foot surgery), but so am I.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie. She's a white woman with auburn hair wearing a navy-based floral dress, green glasses, and silver Celtic knot necklace.⁣
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#RheumatoidArthritis #POTS #POTSie #AutoimmuneDisease #ChronicallyIll
Week 20 of #2026Weekly 1️⃣ IVIG + Kindle reading Week 20 of #2026Weekly 

1️⃣ IVIG + Kindle reading 
2️⃣ Almost done!!!!!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

⬛ 

IDs: 
1️⃣ Infusion tubes coming out from under her shirt. There’s a Kindle on her lap.
2️⃣ An almost-finished cross-stitch project

#IVIG #ChronicallyIll #CrossStitcher #CrossStitchersOfInstagram
FAQ: Have you tried [insert supplement here]? As FAQ: Have you tried [insert supplement here]?

As with all things, what’s true for me might not be true for others. I’m sure there are plenty of RA patients who do respond well to supplements; I’m just not one of them. 

Additionally, at one point, I refer to being on chemo since 2012. As always, the chemo I’m referring to is Rituxan, which is my RA treatment. I do not have cancer nor have I ever claimed to. 

Video: Kate talks to the camera. Text at the beginning reads “FAQ: Have you tried [insert supplement here]?” and other text later reads “*24” to correct when she says “symptoms for 21 years”. There are captions. 

#RheumatoidArthritis #AutoimmuneDisease #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
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