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in Health &middot October 6, 2014

Welcome to Arthritis Week

Welcome to a very special week here on Kate the (Almost) Great! Next Sunday, October 12, is World Arthritis Day. It is a day devoted to raising awareness and demonstrating support for the millions of people around the world who suffer from a form of arthritis. Therefore, I want to spend this week on the importance and impact of this day.

World Arthritis Day 2014 Kate the (Almost) Great
Here is what’s coming up this week: 
Monday (today) – an overview of World Arthritis Day (WAD) and the affects of arthritis as a whole
Tuesday – my story of life with arthritis
Wednesday – a video about WAD and a giveaway
Thursday – my friend’s story of her life with an arthritis-related condition
Friday – what you can do to help

Facts About Arthritis Kate the (Almost) Great

World Arthritis Day: What It Is

There are millions of people all across the world who live with arthritis and its related disease and conditions. October 12 is a day where these people and the people who know and love them can come together to be heard. This day is also for the various organizations to come together to raise awareness of the disease(s) and their effects.

Arthritis Facts

Who has it? 1 in 5 adults and over 300,000 children.

What is the cure? There isn’t one

Isn’t arthritis just something you get when you get older? Nope! Arthritis is a large number of musculoskeletal diseases and conditions. There are over 100 different diseases and conditions. And it doesn’t discriminate – anyone of any age can get it. Two thirds of people with arthritis are under 65 and, again, over 300,000 children have it.

Over 100 disease and conditions?! Yup! The most common form is osteoarthritis. That’s the one usually associated with older people since it has to do with the breakdown of the joint cartilage. But you don’t have to be older to get it. Risk factors like being overweight and a history of joint injury go along with that, too. (So think of athletes who get arthritis.)

Rheumatoid arthritis is also a very common (this is the type that I have). This deals with inflammation of the lining of the joint. The immune system basically gets messed up and thinks that the membranes of the joint are bad, so it attacks them. That’s why we call it and other similar forms autoimmune arthritis. When the immune system does this, it causes pain, stiffness, warmth, swelling, and sometimes joint damage. I’ll talk more about this tomorrow, but this is what has caused my cartilage damage requiring surgery.

Juvenile arthritis is the term used to talk about the autoimmune and inflammatory conditions in children age 16 and under.

Other types of disease and conditions associated with arthritis: ankylosing spondylitis, Ehlers-Danlos syndrome, fibromyalgia, gout, lyme disease, lupus, and psoriatic arthritis.

So that’s just a lot of pain, right? You should just suck it up and be quiet. First of all, rude. (By the way, I have gotten that response before.) Second, you are so very, very wrong. Did you know that arthritis is the leading cause of disability in the US? Or that it causes over 44 million outpatient visits and over 990,000 hospitalizations every year? Arthritis causes more limitations that heart disease, cancer, or diabetes.

What can be done for people with arthritis? There are many medications that allow people with arthritis to live normal lives. These range from pills to injections to infusions. One of the most common medications for arthritis is methotrexate – a form of chemotherapy. Arthritis patients are also regularly prescribed forms of steroids. The treatment that I am on is another form of chemotherapy – Rituxan.

There are also other ways to manage arthritis pain. Other than medications, there are lifestyle changes. Changing diet, practicing yoga, staying active to a degree … these can all make the lives of people with arthritis better.

But, like I said, there is no cure.

What can I do to help? I will go into much more detail about this on Friday, but I will say that I big thing you can do is make sure you are knowledgeable and know the truth. Correct (kindly) people who share the incorrect information. When you come across someone who has arthritis or a related condition, keep this information in mind. Your friend may need to cancel plans last minute because they aren’t feeling well. Your colleague may need to sit or stand during a meeting or seem constantly tired. You may need to make accommodations for your student who misses class regularly or struggles to learn during class because they are in so much pain.

I finished my college degree in 4 years with a good GPA because of professors who allowed me to turn in papers late, complete independent studies, miss class more than regularly allowed without losing credit, etc. Just understanding this information, sharing it, and allowing it to make you better understand someone’s struggle will make an incredible difference in the lives of someone living with arthritis.

Thanks for joining and I hope you return back for the rest of Arthritis Week! And even if you don’t – wear blue on October 12 to help raise awareness!

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Ashlee says

    October 6, 2014 at 2:59 pm

    Kate, I am SO excited to read your posts this arthritis week! 🙂 I too have RA and knowing that other people are going through similar things as me, makes me feel a whole lot more positive! 🙂

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    • Kate says

      October 6, 2014 at 5:52 pm

      I am SO happy to hear this, Ashlee! That is a huge reason why I talk about it and why I share my story (coming tomorrow). I hope this week will help you feel even more positive!

      PS – You're a "no-reply blogger," which means that I can't email you my response. Fix it here: http://www.venustrappedinmars.com/2013/06/google-ultimate-no-reply-blogger.html

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  2. Kenji is Here says

    October 6, 2014 at 4:55 pm

    LOVE this! I have been anxiously await October 12th, I love that you are making it into a week long thing! I'll be sharing your blog all week!

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  1. Arthritis: Five Years since Diagnosis says:
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SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
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Arthritis can affect anyone at any age, including kids as young as 3.⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: Kate drinks coffee giving side eye. White text box reads "My Face When Someone Says 'You Shouldn't Need a Cane At Your Age'" ⁣
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#ChronicPain #ChronicallyIll #RheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Fibromyalgia
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