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in Health &middot October 6, 2014

Welcome to Arthritis Week

Welcome to a very special week here on Kate the (Almost) Great! Next Sunday, October 12, is World Arthritis Day. It is a day devoted to raising awareness and demonstrating support for the millions of people around the world who suffer from a form of arthritis. Therefore, I want to spend this week on the importance and impact of this day.

World Arthritis Day 2014 Kate the (Almost) Great
Here is what’s coming up this week: 
Monday (today) – an overview of World Arthritis Day (WAD) and the affects of arthritis as a whole
Tuesday – my story of life with arthritis
Wednesday – a video about WAD and a giveaway
Thursday – my friend’s story of her life with an arthritis-related condition
Friday – what you can do to help

Facts About Arthritis Kate the (Almost) Great

World Arthritis Day: What It Is

There are millions of people all across the world who live with arthritis and its related disease and conditions. October 12 is a day where these people and the people who know and love them can come together to be heard. This day is also for the various organizations to come together to raise awareness of the disease(s) and their effects.

Arthritis Facts

Who has it? 1 in 5 adults and over 300,000 children.

What is the cure? There isn’t one

Isn’t arthritis just something you get when you get older? Nope! Arthritis is a large number of musculoskeletal diseases and conditions. There are over 100 different diseases and conditions. And it doesn’t discriminate – anyone of any age can get it. Two thirds of people with arthritis are under 65 and, again, over 300,000 children have it.

Over 100 disease and conditions?! Yup! The most common form is osteoarthritis. That’s the one usually associated with older people since it has to do with the breakdown of the joint cartilage. But you don’t have to be older to get it. Risk factors like being overweight and a history of joint injury go along with that, too. (So think of athletes who get arthritis.)

Rheumatoid arthritis is also a very common (this is the type that I have). This deals with inflammation of the lining of the joint. The immune system basically gets messed up and thinks that the membranes of the joint are bad, so it attacks them. That’s why we call it and other similar forms autoimmune arthritis. When the immune system does this, it causes pain, stiffness, warmth, swelling, and sometimes joint damage. I’ll talk more about this tomorrow, but this is what has caused my cartilage damage requiring surgery.

Juvenile arthritis is the term used to talk about the autoimmune and inflammatory conditions in children age 16 and under.

Other types of disease and conditions associated with arthritis: ankylosing spondylitis, Ehlers-Danlos syndrome, fibromyalgia, gout, lyme disease, lupus, and psoriatic arthritis.

So that’s just a lot of pain, right? You should just suck it up and be quiet. First of all, rude. (By the way, I have gotten that response before.) Second, you are so very, very wrong. Did you know that arthritis is the leading cause of disability in the US? Or that it causes over 44 million outpatient visits and over 990,000 hospitalizations every year? Arthritis causes more limitations that heart disease, cancer, or diabetes.

What can be done for people with arthritis? There are many medications that allow people with arthritis to live normal lives. These range from pills to injections to infusions. One of the most common medications for arthritis is methotrexate – a form of chemotherapy. Arthritis patients are also regularly prescribed forms of steroids. The treatment that I am on is another form of chemotherapy – Rituxan.

There are also other ways to manage arthritis pain. Other than medications, there are lifestyle changes. Changing diet, practicing yoga, staying active to a degree … these can all make the lives of people with arthritis better.

But, like I said, there is no cure.

What can I do to help? I will go into much more detail about this on Friday, but I will say that I big thing you can do is make sure you are knowledgeable and know the truth. Correct (kindly) people who share the incorrect information. When you come across someone who has arthritis or a related condition, keep this information in mind. Your friend may need to cancel plans last minute because they aren’t feeling well. Your colleague may need to sit or stand during a meeting or seem constantly tired. You may need to make accommodations for your student who misses class regularly or struggles to learn during class because they are in so much pain.

I finished my college degree in 4 years with a good GPA because of professors who allowed me to turn in papers late, complete independent studies, miss class more than regularly allowed without losing credit, etc. Just understanding this information, sharing it, and allowing it to make you better understand someone’s struggle will make an incredible difference in the lives of someone living with arthritis.

Thanks for joining and I hope you return back for the rest of Arthritis Week! And even if you don’t – wear blue on October 12 to help raise awareness!

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Previous Post: « See, Eat, Do: CambridgeSide Galleria
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Comments

  1. Ashlee says

    October 6, 2014 at 2:59 pm

    Kate, I am SO excited to read your posts this arthritis week! 🙂 I too have RA and knowing that other people are going through similar things as me, makes me feel a whole lot more positive! 🙂

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    • Kate says

      October 6, 2014 at 5:52 pm

      I am SO happy to hear this, Ashlee! That is a huge reason why I talk about it and why I share my story (coming tomorrow). I hope this week will help you feel even more positive!

      PS – You're a "no-reply blogger," which means that I can't email you my response. Fix it here: http://www.venustrappedinmars.com/2013/06/google-ultimate-no-reply-blogger.html

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  2. Kenji is Here says

    October 6, 2014 at 4:55 pm

    LOVE this! I have been anxiously await October 12th, I love that you are making it into a week long thing! I'll be sharing your blog all week!

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  1. Arthritis: Five Years since Diagnosis says:
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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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