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in Health, Uncategorized &middot March 14, 2015

Chronic Illness While a Graduate Student

Hi everyone! I’m Alison from Simply A, and I’m really excited to be guest-posting today on Kate’s blog! When Kate asked what kind of guest post I wanted to write, I had a few ideas floating around. I first started reading Kate’s blog because I was looking for people who understood what it was like to have a chronic illness, especially one that was difficult to diagnose. Kate’s blog really spoke to me, because not only is she a smart and funny woman, she has a lot of big life goals and she doesn’t let her illness get in her way. I knew that I wanted to write something that would be a good fit with Kate’s usual blog topics, and since Kate is in the process of going  back to school, I felt like a post about being a graduate/professional student while managing a chronic illness would be just the thing!

The “Reader’s Digest Condensed Version” of my health story is that in 2005, I was a freshman in college and after a particularly bad bout with the flu, I never quite bounced back. I had a lot of joint and bone pain, fevers, rashes, and I was so tired that I could barely go to class. In the intervening 10 years between then and now, my symptoms have come and gone, and I have seen countless physicians, most of whom had no idea what to do with me. Finally, in 2013, I found an excellent rheumatologist and I was diagnosed with Undifferentiated Connective Tissue Disease, which is essentially a bunch of fancy words for, “Some autoimmune disease that could possible be Lupus or RA, but we’re really not sure, but there’s definitely something not right here.” 
As you can imagine, I haven’t exactly been sitting around for 10 years doing nothing, and in fact, graduated with my BS in Biology, my MPH in Epidemiology, and am now a first year medical student. It wasn’t always easy, and in fact, I had quite a few bumps along the way, but I also learned a lot. Obviously, everyone’s health situation is different, but these are just some of the things I’ve figured out about having a chronic illness and still rocking the grad school life.

1. Learn to say no.

I am a people-pleaser. I also love to be involved in a lot of things. In fact, I can safely say that I have an over-responsibility problem that started in middle school and has been going strong ever since. This has been great for a lot of reasons (not the least of which being some of the things in which I was involved got me some significant scholarship money for college), but it’s also a recipe for disaster when you’re trying to be a good grad student and also not end up in a puddle of pain and exhaustion at the end of the day. If you haven’t read The Spoon Theory, it’s a great way to explain to someone what it’s like to have a chronic illness. Once I realized that med school was going to take practically all of my spoons (and then some), saying “no” became slightly easier. I have to prioritize my health first, and then rearrange everything underneath that as things change. It’s hard, but I actually get to do more this way, and I really appreciate any time I spend doing something that isn’t school-related!


2. Get help!

Reach out to your school’s disability services office, preferably before the school year starts. This was really difficult for me to do, mainly because I don’t really think of myself as having a disability. However, after being burned in undergrad by not having documentation of a chronic illness, I always make sure that I know who is in charge of the office and what I need to do to document my illness and what I may need. Even if I never use the accomodations I have, I know that if I were to get sick or need assistance, the paperwork is all on the books and I can get the help that I need. And don’t worry; anything you tell your disability services office or student affairs is strictly confidential!

3. Prevention is best, but have a contingency plan. (Or 3)

You always want things to go the way they’re supposed to, but sometimes (a lot of the time, if you have a chronic illness), it just doesn’t happen that way. Graduate or professional school can be incredibly stressful for long periods of time, and also very isolating. I know from personal experience that eating right, getting enough sleep, and maintaining any sort of normal schedule often goes out the window during exam weeks, and that means that I am basically asking for a flare. I have fortunately only had 2 relatively minor flares since starting med school, but I was able to handle them thanks to my rheumatologist, my husband, and my classmates. If you don’t have a plan for what happens when you get sick or feel a flare coming on, now is the time to make one. When do you need to call your doctor? When should you go straight to the ER? What kind of over-the-counter medications can you take for your various symptoms? If you do have one, make sure to go over it with your doctors and your family. Obviously, try your best to take care of yourself physically and mentally (more on that in a bit), but if the inevitable happens, it’s way less stressful to know that there’s a plan in place to help you out.

4. Don’t neglect your mental and emotional health!

Having completed one graduate program and began another (ahem, twice), I cannot overstate the importance of taking care of your mental health in addition to your physical health. I have dealt with anxiety and depression for most of my life, and even though I was really well-controlled prior to entering med school the first time, I nearly lost it all when I didn’t take care of myself. The stress of being a graduate student comes from many places – finances, social and family relationships, the schoolwork itself, and the pressure to achieve and do well can be overwhelming. If you’re like me and already have a history of mental illness, this can quickly turn into a perfect storm situation. I see a therapist on a weekly basis, and I also see a psychiatrist every 6 weeks (or more frequently, if necessary). I also have an awesome support network of both med school and non-med school people that I can talk to or lean on. I tell people to “keep a finger on their emotional pulse” and make sure that if you feel something starting to go wrong that you address it early. If you find yourself in need of a counselor during the school year, your school’s student health office should be able to help you. Counseling at the school is kept entirely confidential, and they will be able to refer you to a outside therapist or counselor if you need it. Your brain is just one part of you that got you into grad school; don’t let it be the undoing of your success!

5. Take ownership.

It was your hard work and dedication that got you into graduate school, and the way you’ll finish is by being responsible. Only you can be responsible for your health and wellness. This means making sure that you get enough sleep, eat well, exercise, (which… is something I’m not good at, so… do as I say, not as I do!) and try to regulate your stress levels. There have been a few times this semester where things haven’t gone my way, healthwise, and my grades definitely suffered for it. My school was really supportive of me with rescheduling exams from when I was sick, but I knew that I was the only person who could fix the issue going forward. No one else can manage your life, and if you do take responsibility for it, you get to also take responsibility for your achievements!

6. Find the good!

It’s really easy to get bogged down in how hard graduate or professional school can be. There are a few good things that having a chronic illness has done for me though. Having been a patient for so long, I feel like I really understand the frustration that someone can feel while trying to wade through the medical system to get proper care. I feel like I am more empathic than I was before, and that I can use that in my practice as a physician. For better or worse, my patience has been tested time and time again, so I am learning how to be less anxious while waiting for things to happen, or when things are out of my control (definitely still learning, though!) I’ve also really been able to take pride in what I’ve accomplished or been able to get through, despite the health issues that have come up along the way. Having a chronic illness is dertainly a facet of my life that colors a lot of my interactions, but it has shaped the woman I am and the woman I’m becoming, and that woman is pretty cool.

There are so many more things that I could talk about with regards to chronic illness, mental health, and med school, and if you want to read about it, you can start here, here, or here! Thanks again to Kate for letting me take over her space here on the internet, and I hope to see you around on Simply A!

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Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: Kate drinks coffee giving side eye. White text box reads "My Face When Someone Says 'You Shouldn't Need a Cane At Your Age'" ⁣
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#ChronicPain #ChronicallyIll #RheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Fibromyalgia
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