I like to think that the big reason why so many people say rude things about disability and disabled people is that they just don’t know much about it. In that vein, today I want to talk about what abled people (aka not disabled) should know about disability.
What’s the Deal with Disability?
What does it mean to be disabled? Stanford University defines disability as “a health condition or physical impairment that prevents an individual from taking full advantage of life’s opportunities such as education, vocation, recreation, and activities of daily living” (x). As you can tell, this is a really broad term that covers a variety of conditions. It includes people with physical or mental health issues such as: problems seeing, both those who are completely blind and those with partial blindness; those with difficulty hearing; those with Alzheimer’s or another form of dementia; those with depression or anxiety to the extent that it interferes with daily life; and more (x). According to the World Health Organization, disability has 3 elements: impairments in a person’s body structure, function, or mental functioning; activity limitation, like trouble seeing, hearing, walking, or problem solving; and participation restrictions in normal daily activities (x).
How many people are disabled? Nearly 1 in 5 Americans are disabled (x), and 1 in 10 Americans are severely disabled (x). In fact, 1 in 4 of today’s 20 year-olds will become disabled before they retire (x). Many people assume that most disabilities are from accidents, but most are actually from illnesses (x).
How many people use assistive devices? The official statistic is 96% of people with a disability have an invisible one (x). 6.8 million Americans use a mobility device, which is 11.99% of disabled Americans (x). I offer these two statistics because I know people who technically have an invisible disability (arthritis), but they use a scooter.
What You, an Abled Person, Should Especially Be Aware Of
Someone doesn’t have to “look” disabled to be disabled – Hopefully, you figured this out from that assistive device statistic. If your idea of “disabled” is someone in a wheelchair, you have a very narrow view of disability.
Ableism is a huge problem – (Ableist language to come FYI.) Ableism, or the discrimination of disabled people, is unfortunately imbedded in most of our society. Our comments about someone being dumb, stupid, crazy, an idiot, a moron, etc. are all ableist comments. These comments are thrown around like nothing, but they’re based in the fact that people who have a low IQ or who have a mental illness are lesser than the rest of people. I’ve written a lot about ableism, so I’ll leave these pieces here for you to read instead of repeating myself: Everyday Ableism, Examples of Ableist Language in Everyday Life, and On Inspiration Porn.
(Ableist language over.)
The government is trying to roll back our rights – HR 620 was recently introduced to the US House of Representatives, which would reduce the value of the American’s with Disabilities Act. The ADA is responsible for making it the law that businesses need to be accessible. By reducing that, the government is saying, “We don’t care about disabled people.” And of course we can’t forget all of the attempts to repeal the ACA. Is the ACA perfect? No. But it makes it illegal for insurance companies to deny us coverage if we have a pre-existing condition, among other things.
Preference of disabled vs. person with disabilities depends on the person – I prefer to be called disabled. It saves time and it doesn’t make a difference to me. But there are a lot of people who prefer the person-first language of “person with disabilities.” Basically, if a disabled person corrects you on how you refer to them, go with what they prefer. That might be different from what another disabled person prefers; go with what that person prefers.
Disabled is not a dirty word – Disabled is an adjective. It describes one aspect of what my life is like. It isn’t a terrible to thing to be disabled. Would I love to not be in pain all of the time? Absolutely. But if for some reason all of my pain went away but I was still for some reason disabled, the world would not end. Every now and then someone will say, “Don’t call yourself disabled!” But I am disabled. If you have a problem with that, you have some issues of your own.
Wheelchairs are freeing – By the way, wheelchairs are often freeing. They are a way of being out in the world and doing things instead of being confined to our houses. I wouldn’t have been able to go to Washington, D.C., for the Advocacy Summit the last three years if it wasn’t for the scooter I rented. Don’t assume that using a wheelchair is a bad thing.
If you are an abled person and have a question, feel free to comment below with it and I will do my best to answer you. If you’re a disabled person and have something you want to add, comment with it!
Like this post? Share it and check out these posts:
A Letter to the Mom Who Yelled at Me on the Bus for My Disability, Traveling with an Invisible Disability: How To Deal with Rude People, On Inspiration Porn, Not All Disabilities Are Visible
Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.
elizabeth says
Aw such an amazing post, thank you so much for this! I suffer from ME and it can be absolute hell, luckily I am on some great meds so on a good few days I can feel normal and not feeling intense flu; but even members of my family don’t accept it as a proper illness, it sucks so much >< xx
elizabeth ♡ ”Ice Cream” whispers Clara
(I would love to follow each other on bloglovin if you like! :D)
Kate Mitchell says
Thank you so much! I’m so sorry that some of your family members don’t accept it. That’s ridiculous.
Alexandra Aulum says
This is a really good post! I just discovered your blog, and it’s so nice to not feel alone. I am in my 20s with EDS and probably some form of arthritis. I cannot wait to get approved for a wheelchair. It can be so hard to communicate everything that I deal with on a daily basis to the people around me.
mel odra says
Thank you for all the insight you provide. I don’t necessarily have a problem with standing up for myself and needs. it is only in the last 8 years or so I came to the realization that I am disabled. I am USAF veteran and suffer from several ailments. PTSD – but not the military but from my mom being murdered by her boyfriend the same year I was honorably discharged and awaited coming home to see her. I also know am very involved in my MDD/bipolar diagnosis which only came about 5 years ago – that when it manifested its not so pretty self. I am educated enough now with my tools and medication management to see that it was always there. Moreover, I had a surgery right after the military that left me severely anemic and vitamin deficient in b-12, iron, and vitamin -D. It is a malabsorbtion issue. Yet I keep on fighting. however, I am starting to feel defeated. Last week I was delivered more news… I have had chronic GERD my entire life – which has took its toll piece by piece and now I have advance Barrett Esophagus. during this same time I gained a large amount of with (80lbs) in 12 months and began to experience leg and ankle swelling and asthma and now pain all over my body.
I am frustrate! When is enough – enough! I sat back and thought to myself – why is that the VA is not listening to me, when my body is speaking to me. My heart and gut knows it not good news it is telling me – why dont the doctors know that. I have spent the last 12 months trying to obtain disability benefits. I cant keep a in office and high volume job anymore and I will daily work as hard as I can to keep going. I have a husband of 30 years and 3 children that I want to stay around for.
I am going to take all that I have spent 3 hours reading in your blogs and put it to work – I need the doctors and VA to listen to me – to hear me say darn it – I am disabled, with too many symptoms to count- to much medication to manage and struggle day to day to care for myself and live the best life I can. I feel in my heart that doctors have the ability to assist me in my journey to live the best life and provide the correct care in guidance to live the longest life I can – but when will they listen and help my journey move forward.
Don’t take my disposition negatively – I am so glad I came across your material – to feel like someone else gets it too. It is inspiring me. It felt good to say it out load and share my words — Thank You!