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in Health &middot October 6, 2017

What Abled People Need To Know about Disability

I like to think that the big reason why so many people say rude things about disability and disabled people is that they just don’t know much about it. In that vein, today I want to talk about what abled people (aka not disabled) should know about disability.

There are some things about disability that every abled person needs to know. These disability facts will help you understand who is disabled and what that means, as well as some other things you should know about disabled people.

What’s the Deal with Disability?

What does it mean to be disabled? Stanford University defines disability as “a health condition or physical impairment that prevents an individual from taking full advantage of life’s opportunities such as education, vocation, recreation, and activities of daily living” (x). As you can tell, this is a really broad term that covers a variety of conditions. It includes people with physical or mental health issues such as: problems seeing, both those who are completely blind and those with partial blindness; those with difficulty hearing; those with Alzheimer’s or another form of dementia; those with depression or anxiety to the extent that it interferes with daily life; and more (x). According to the World Health Organization, disability has 3 elements: impairments in a person’s body structure, function, or mental functioning; activity limitation, like trouble seeing, hearing, walking, or problem solving; and participation restrictions in normal daily activities (x).

How many people are disabled? Nearly 1 in 5 Americans are disabled (x), and 1 in 10 Americans are severely disabled (x). In fact, 1 in 4 of today’s 20 year-olds will become disabled before they retire (x). Many people assume that most disabilities are from accidents, but most are actually from illnesses (x).

How many people use assistive devices? The official statistic is 96% of people with a disability have an invisible one (x). 6.8 million Americans use a mobility device, which is 11.99% of disabled Americans (x). I offer these two statistics because I know people who technically have an invisible disability (arthritis), but they use a scooter.

There are a lot of disability facts that you should know in order to understand what living life with a disability is all about. And also what you should know so you don't say anything rude to a disabled person.

What You, an Abled Person, Should Especially Be Aware Of

Someone doesn’t have to “look” disabled to be disabled – Hopefully, you figured this out from that assistive device statistic. If your idea of “disabled” is someone in a wheelchair, you have a very narrow view of disability.

Ableism is a huge problem – (Ableist language to come FYI.) Ableism, or the discrimination of disabled people, is unfortunately imbedded in most of our society. Our comments about someone being dumb, stupid, crazy, an idiot, a moron, etc. are all ableist comments. These comments are thrown around like nothing, but they’re based in the fact that people who have a low IQ or who have a mental illness are lesser than the rest of people. I’ve written a lot about ableism, so I’ll leave these pieces here for you to read instead of repeating myself: Everyday Ableism, Examples of Ableist Language in Everyday Life, and On Inspiration Porn.

(Ableist language over.)

The government is trying to roll back our rights – HR 620 was recently introduced to the US House of Representatives, which would reduce the value of the American’s with Disabilities Act. The ADA is responsible for making it the law that businesses need to be accessible. By reducing that, the government is saying, “We don’t care about disabled people.” And of course we can’t forget all of the attempts to repeal the ACA. Is the ACA perfect? No. But it makes it illegal for insurance companies to deny us coverage if we have a pre-existing condition, among other things.

Preference of disabled vs. person with disabilities depends on the person – I prefer to be called disabled. It saves time and it doesn’t make a difference to me. But there are a lot of people who prefer the person-first language of “person with disabilities.” Basically, if a disabled person corrects you on how you refer to them, go with what they prefer. That might be different from what another disabled person prefers; go with what that person prefers.

Disabled is not a dirty word – Disabled is an adjective. It describes one aspect of what my life is like. It isn’t a terrible to thing to be disabled. Would I love to not be in pain all of the time? Absolutely. But if for some reason all of my pain went away but I was still for some reason disabled, the world would not end. Every now and then someone will say, “Don’t call yourself disabled!” But I am disabled. If you have a problem with that, you have some issues of your own.

Wheelchairs are freeing – By the way, wheelchairs are often freeing. They are a way of being out in the world and doing things instead of being confined to our houses. I wouldn’t have been able to go to Washington, D.C., for the Advocacy Summit the last three years if it wasn’t for the scooter I rented. Don’t assume that using a wheelchair is a bad thing.

If you are an abled person and have a question, feel free to comment below with it and I will do my best to answer you. If you’re a disabled person and have something you want to add, comment with it!

Like this post? Share it and check out these posts:

A Letter to the Mom Who Yelled at Me on the Bus for My Disability, Traveling with an Invisible Disability: How To Deal with Rude People, On Inspiration Porn, Not All Disabilities Are Visible

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Reader Interactions

Comments

  1. elizabeth says

    October 9, 2017 at 12:14 pm

    Aw such an amazing post, thank you so much for this! I suffer from ME and it can be absolute hell, luckily I am on some great meds so on a good few days I can feel normal and not feeling intense flu; but even members of my family don’t accept it as a proper illness, it sucks so much >< xx

    elizabeth ♡ ”Ice Cream” whispers Clara
    (I would love to follow each other on bloglovin if you like! :D)

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    • Kate Mitchell says

      October 17, 2017 at 10:49 am

      Thank you so much! I’m so sorry that some of your family members don’t accept it. That’s ridiculous.

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  2. Alexandra Aulum says

    December 17, 2017 at 5:01 pm

    This is a really good post! I just discovered your blog, and it’s so nice to not feel alone. I am in my 20s with EDS and probably some form of arthritis. I cannot wait to get approved for a wheelchair. It can be so hard to communicate everything that I deal with on a daily basis to the people around me.

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  3. mel odra says

    October 11, 2021 at 6:03 am

    Thank you for all the insight you provide. I don’t necessarily have a problem with standing up for myself and needs. it is only in the last 8 years or so I came to the realization that I am disabled. I am USAF veteran and suffer from several ailments. PTSD – but not the military but from my mom being murdered by her boyfriend the same year I was honorably discharged and awaited coming home to see her. I also know am very involved in my MDD/bipolar diagnosis which only came about 5 years ago – that when it manifested its not so pretty self. I am educated enough now with my tools and medication management to see that it was always there. Moreover, I had a surgery right after the military that left me severely anemic and vitamin deficient in b-12, iron, and vitamin -D. It is a malabsorbtion issue. Yet I keep on fighting. however, I am starting to feel defeated. Last week I was delivered more news… I have had chronic GERD my entire life – which has took its toll piece by piece and now I have advance Barrett Esophagus. during this same time I gained a large amount of with (80lbs) in 12 months and began to experience leg and ankle swelling and asthma and now pain all over my body.

    I am frustrate! When is enough – enough! I sat back and thought to myself – why is that the VA is not listening to me, when my body is speaking to me. My heart and gut knows it not good news it is telling me – why dont the doctors know that. I have spent the last 12 months trying to obtain disability benefits. I cant keep a in office and high volume job anymore and I will daily work as hard as I can to keep going. I have a husband of 30 years and 3 children that I want to stay around for.

    I am going to take all that I have spent 3 hours reading in your blogs and put it to work – I need the doctors and VA to listen to me – to hear me say darn it – I am disabled, with too many symptoms to count- to much medication to manage and struggle day to day to care for myself and live the best life I can. I feel in my heart that doctors have the ability to assist me in my journey to live the best life and provide the correct care in guidance to live the longest life I can – but when will they listen and help my journey move forward.

    Don’t take my disposition negatively – I am so glad I came across your material – to feel like someone else gets it too. It is inspiring me. It felt good to say it out load and share my words — Thank You!

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Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Questions Not To Ask Someone with a Chronic Illness - Kate the (Almost) Great | Boston Lifestyle Blog says:
    November 29, 2017 at 8:00 am

    […]  What Abled People Need To Know about Disability, The Deadly Consequences of Incorrect Healthcare Reform, 4 More Things a Millennial with Arthritis Wants You To Know, Everyday Ableism […]

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  2. Resources for the Freshly-Diagnosed Chronic Illness Patient - Kate the (Almost) Great says:
    August 10, 2024 at 4:09 pm

    […]  Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability […]

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Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
Week 22 of 2026 Weekly 1️⃣ Off to see my foot doc Week 22 of 2026 Weekly

1️⃣ Off to see my foot doc … and my foot is healing! Yay!
2️⃣ A very cool notification to get!
3️⃣ This is 35 🎂
4️⃣ Featuring Harley snuggles 
5️⃣ And then it was my mom’s birthday! 
6️⃣ With Harley again 

ID: 
1️⃣ Kate takes a mirror selfie 
2️⃣ a notification from WordPress saying “Receive views from 150+ counties. The United Nations has nothing on you!”
3️⃣ Kate smiles for the camera in a cafe 
4️⃣ Kate in the same outfit with Harley the golden retriever on her lap. 
5️⃣ Kate’s mom smiling in a restaurant 
6️⃣ Kate with Harley again 

#GoldenRetrieversOfInstagram #ChronicallyIll #ChronicPain #InvisibleIllness
Lifestyle Changes I Made for My Rheumatoid Arthrit Lifestyle Changes I Made for My Rheumatoid Arthritis⁣
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While these are not my treatments, they have made my life better in some ways. ⁣
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What lifestyle changes have you made, for RA or another condition?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: ⁣
A series of pictures. Each has a text box on them related to the picture. ⁣
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1️⃣ Lifestyle changes I made for my rheumatoid arthritis⁣
2️⃣ Wearing a mask⁣
3️⃣ Using a cane⁣
4️⃣ Changing my diet⁣
5️⃣ Working from home⁣
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#ChronicIllness #RheumatoidArthritis #AutoimmuneDisease #Arthritis #ChronicallyIll
What helps you mentally get through a tough time?⁣ What helps you mentally get through a tough time?⁣
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I'm struggling right now with my broken foot, which brings back a lot of tough memories. That plus being due for Rituxan and the heat starting up has made things hard. ⁣
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Here are somethings I do: ⁣
▪ Stick with my routine⁣
▪ Make recipes that I really enjoy⁣
▪ Work on embroidery projects so I can do something productive that involves stabbing fabric⁣
▪ Cut myself slack ⁣
▪ Get Harley hugs⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate and Harley the golden retriever hugging. Kate is a redheaded white woman wearing a black dress, pink sweater, and round pink glasses.⁣
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Week 21 of 2026 Weekly 1️⃣ First real cross-stit Week 21 of 2026 Weekly 

1️⃣ First real cross-stitch project: done! 
2️⃣ The magic machine that is hopefully healing my broken foot 
3️⃣ When your 2 refrigerated medications are delivered on the same day

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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1️⃣ A completed cross-stitch project, which shows 2 bears walking past a lake, trees, and mountains.
2️⃣ An Exogen machine showing use 13 days in a row
3️⃣ A couple of styrofoam refridgerated containers for medication

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You guessed it, I'm one of that 25%. ⁣ ⁣ May is Ar You guessed it, I'm one of that 25%. ⁣
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May is Arthritis Awareness Month. Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
You only have rheumatoid arthritis if your rheumatoid factor tests positive.⁣
Fact⁣
As many as 25% of RA patients test negative, which is called being seronegative.⁣
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Things are tough (all over pain, heat with POTS, i Things are tough (all over pain, heat with POTS, in a walking cast waiting to see if I need my 6th foot surgery), but so am I.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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Week 20 of #2026Weekly 1️⃣ IVIG + Kindle reading Week 20 of #2026Weekly 

1️⃣ IVIG + Kindle reading 
2️⃣ Almost done!!!!!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Infusion tubes coming out from under her shirt. There’s a Kindle on her lap.
2️⃣ An almost-finished cross-stitch project

#IVIG #ChronicallyIll #CrossStitcher #CrossStitchersOfInstagram
FAQ: Have you tried [insert supplement here]? As FAQ: Have you tried [insert supplement here]?

As with all things, what’s true for me might not be true for others. I’m sure there are plenty of RA patients who do respond well to supplements; I’m just not one of them. 

Additionally, at one point, I refer to being on chemo since 2012. As always, the chemo I’m referring to is Rituxan, which is my RA treatment. I do not have cancer nor have I ever claimed to. 

Video: Kate talks to the camera. Text at the beginning reads “FAQ: Have you tried [insert supplement here]?” and other text later reads “*24” to correct when she says “symptoms for 21 years”. There are captions. 

#RheumatoidArthritis #AutoimmuneDisease #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
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