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in Health &middot October 6, 2017

What Abled People Need To Know about Disability

I like to think that the big reason why so many people say rude things about disability and disabled people is that they just don’t know much about it. In that vein, today I want to talk about what abled people (aka not disabled) should know about disability.

There are some things about disability that every abled person needs to know. These disability facts will help you understand who is disabled and what that means, as well as some other things you should know about disabled people.

What’s the Deal with Disability?

What does it mean to be disabled? Stanford University defines disability as “a health condition or physical impairment that prevents an individual from taking full advantage of life’s opportunities such as education, vocation, recreation, and activities of daily living” (x). As you can tell, this is a really broad term that covers a variety of conditions. It includes people with physical or mental health issues such as: problems seeing, both those who are completely blind and those with partial blindness; those with difficulty hearing; those with Alzheimer’s or another form of dementia; those with depression or anxiety to the extent that it interferes with daily life; and more (x). According to the World Health Organization, disability has 3 elements: impairments in a person’s body structure, function, or mental functioning; activity limitation, like trouble seeing, hearing, walking, or problem solving; and participation restrictions in normal daily activities (x).

How many people are disabled? Nearly 1 in 5 Americans are disabled (x), and 1 in 10 Americans are severely disabled (x). In fact, 1 in 4 of today’s 20 year-olds will become disabled before they retire (x). Many people assume that most disabilities are from accidents, but most are actually from illnesses (x).

How many people use assistive devices? The official statistic is 96% of people with a disability have an invisible one (x). 6.8 million Americans use a mobility device, which is 11.99% of disabled Americans (x). I offer these two statistics because I know people who technically have an invisible disability (arthritis), but they use a scooter.

There are a lot of disability facts that you should know in order to understand what living life with a disability is all about. And also what you should know so you don't say anything rude to a disabled person.

What You, an Abled Person, Should Especially Be Aware Of

Someone doesn’t have to “look” disabled to be disabled – Hopefully, you figured this out from that assistive device statistic. If your idea of “disabled” is someone in a wheelchair, you have a very narrow view of disability.

Ableism is a huge problem – (Ableist language to come FYI.) Ableism, or the discrimination of disabled people, is unfortunately imbedded in most of our society. Our comments about someone being dumb, stupid, crazy, an idiot, a moron, etc. are all ableist comments. These comments are thrown around like nothing, but they’re based in the fact that people who have a low IQ or who have a mental illness are lesser than the rest of people. I’ve written a lot about ableism, so I’ll leave these pieces here for you to read instead of repeating myself: Everyday Ableism, Examples of Ableist Language in Everyday Life, and On Inspiration Porn.

(Ableist language over.)

The government is trying to roll back our rights – HR 620 was recently introduced to the US House of Representatives, which would reduce the value of the American’s with Disabilities Act. The ADA is responsible for making it the law that businesses need to be accessible. By reducing that, the government is saying, “We don’t care about disabled people.” And of course we can’t forget all of the attempts to repeal the ACA. Is the ACA perfect? No. But it makes it illegal for insurance companies to deny us coverage if we have a pre-existing condition, among other things.

Preference of disabled vs. person with disabilities depends on the person – I prefer to be called disabled. It saves time and it doesn’t make a difference to me. But there are a lot of people who prefer the person-first language of “person with disabilities.” Basically, if a disabled person corrects you on how you refer to them, go with what they prefer. That might be different from what another disabled person prefers; go with what that person prefers.

Disabled is not a dirty word – Disabled is an adjective. It describes one aspect of what my life is like. It isn’t a terrible to thing to be disabled. Would I love to not be in pain all of the time? Absolutely. But if for some reason all of my pain went away but I was still for some reason disabled, the world would not end. Every now and then someone will say, “Don’t call yourself disabled!” But I am disabled. If you have a problem with that, you have some issues of your own.

Wheelchairs are freeing – By the way, wheelchairs are often freeing. They are a way of being out in the world and doing things instead of being confined to our houses. I wouldn’t have been able to go to Washington, D.C., for the Advocacy Summit the last three years if it wasn’t for the scooter I rented. Don’t assume that using a wheelchair is a bad thing.

If you are an abled person and have a question, feel free to comment below with it and I will do my best to answer you. If you’re a disabled person and have something you want to add, comment with it!

Like this post? Share it and check out these posts:

A Letter to the Mom Who Yelled at Me on the Bus for My Disability, Traveling with an Invisible Disability: How To Deal with Rude People, On Inspiration Porn, Not All Disabilities Are Visible

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Reader Interactions

Comments

  1. elizabeth says

    October 9, 2017 at 12:14 pm

    Aw such an amazing post, thank you so much for this! I suffer from ME and it can be absolute hell, luckily I am on some great meds so on a good few days I can feel normal and not feeling intense flu; but even members of my family don’t accept it as a proper illness, it sucks so much >< xx

    elizabeth ♡ ”Ice Cream” whispers Clara
    (I would love to follow each other on bloglovin if you like! :D)

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    • Kate Mitchell says

      October 17, 2017 at 10:49 am

      Thank you so much! I’m so sorry that some of your family members don’t accept it. That’s ridiculous.

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  2. Alexandra Aulum says

    December 17, 2017 at 5:01 pm

    This is a really good post! I just discovered your blog, and it’s so nice to not feel alone. I am in my 20s with EDS and probably some form of arthritis. I cannot wait to get approved for a wheelchair. It can be so hard to communicate everything that I deal with on a daily basis to the people around me.

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  3. mel odra says

    October 11, 2021 at 6:03 am

    Thank you for all the insight you provide. I don’t necessarily have a problem with standing up for myself and needs. it is only in the last 8 years or so I came to the realization that I am disabled. I am USAF veteran and suffer from several ailments. PTSD – but not the military but from my mom being murdered by her boyfriend the same year I was honorably discharged and awaited coming home to see her. I also know am very involved in my MDD/bipolar diagnosis which only came about 5 years ago – that when it manifested its not so pretty self. I am educated enough now with my tools and medication management to see that it was always there. Moreover, I had a surgery right after the military that left me severely anemic and vitamin deficient in b-12, iron, and vitamin -D. It is a malabsorbtion issue. Yet I keep on fighting. however, I am starting to feel defeated. Last week I was delivered more news… I have had chronic GERD my entire life – which has took its toll piece by piece and now I have advance Barrett Esophagus. during this same time I gained a large amount of with (80lbs) in 12 months and began to experience leg and ankle swelling and asthma and now pain all over my body.

    I am frustrate! When is enough – enough! I sat back and thought to myself – why is that the VA is not listening to me, when my body is speaking to me. My heart and gut knows it not good news it is telling me – why dont the doctors know that. I have spent the last 12 months trying to obtain disability benefits. I cant keep a in office and high volume job anymore and I will daily work as hard as I can to keep going. I have a husband of 30 years and 3 children that I want to stay around for.

    I am going to take all that I have spent 3 hours reading in your blogs and put it to work – I need the doctors and VA to listen to me – to hear me say darn it – I am disabled, with too many symptoms to count- to much medication to manage and struggle day to day to care for myself and live the best life I can. I feel in my heart that doctors have the ability to assist me in my journey to live the best life and provide the correct care in guidance to live the longest life I can – but when will they listen and help my journey move forward.

    Don’t take my disposition negatively – I am so glad I came across your material – to feel like someone else gets it too. It is inspiring me. It felt good to say it out load and share my words — Thank You!

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Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Questions Not To Ask Someone with a Chronic Illness - Kate the (Almost) Great | Boston Lifestyle Blog says:
    November 29, 2017 at 8:00 am

    […]  What Abled People Need To Know about Disability, The Deadly Consequences of Incorrect Healthcare Reform, 4 More Things a Millennial with Arthritis Wants You To Know, Everyday Ableism […]

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  2. Resources for the Freshly-Diagnosed Chronic Illness Patient - Kate the (Almost) Great says:
    August 10, 2024 at 4:09 pm

    […]  Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability […]

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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