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in Health &middot October 6, 2017

What Abled People Need To Know about Disability

I like to think that the big reason why so many people say rude things about disability and disabled people is that they just don’t know much about it. In that vein, today I want to talk about what abled people (aka not disabled) should know about disability.

There are some things about disability that every abled person needs to know. These disability facts will help you understand who is disabled and what that means, as well as some other things you should know about disabled people.

What’s the Deal with Disability?

What does it mean to be disabled? Stanford University defines disability as “a health condition or physical impairment that prevents an individual from taking full advantage of life’s opportunities such as education, vocation, recreation, and activities of daily living” (x). As you can tell, this is a really broad term that covers a variety of conditions. It includes people with physical or mental health issues such as: problems seeing, both those who are completely blind and those with partial blindness; those with difficulty hearing; those with Alzheimer’s or another form of dementia; those with depression or anxiety to the extent that it interferes with daily life; and more (x). According to the World Health Organization, disability has 3 elements: impairments in a person’s body structure, function, or mental functioning; activity limitation, like trouble seeing, hearing, walking, or problem solving; and participation restrictions in normal daily activities (x).

How many people are disabled? Nearly 1 in 5 Americans are disabled (x), and 1 in 10 Americans are severely disabled (x). In fact, 1 in 4 of today’s 20 year-olds will become disabled before they retire (x). Many people assume that most disabilities are from accidents, but most are actually from illnesses (x).

How many people use assistive devices? The official statistic is 96% of people with a disability have an invisible one (x). 6.8 million Americans use a mobility device, which is 11.99% of disabled Americans (x). I offer these two statistics because I know people who technically have an invisible disability (arthritis), but they use a scooter.

There are a lot of disability facts that you should know in order to understand what living life with a disability is all about. And also what you should know so you don't say anything rude to a disabled person.

What You, an Abled Person, Should Especially Be Aware Of

Someone doesn’t have to “look” disabled to be disabled – Hopefully, you figured this out from that assistive device statistic. If your idea of “disabled” is someone in a wheelchair, you have a very narrow view of disability.

Ableism is a huge problem – (Ableist language to come FYI.) Ableism, or the discrimination of disabled people, is unfortunately imbedded in most of our society. Our comments about someone being dumb, stupid, crazy, an idiot, a moron, etc. are all ableist comments. These comments are thrown around like nothing, but they’re based in the fact that people who have a low IQ or who have a mental illness are lesser than the rest of people. I’ve written a lot about ableism, so I’ll leave these pieces here for you to read instead of repeating myself: Everyday Ableism, Examples of Ableist Language in Everyday Life, and On Inspiration Porn.

(Ableist language over.)

The government is trying to roll back our rights – HR 620 was recently introduced to the US House of Representatives, which would reduce the value of the American’s with Disabilities Act. The ADA is responsible for making it the law that businesses need to be accessible. By reducing that, the government is saying, “We don’t care about disabled people.” And of course we can’t forget all of the attempts to repeal the ACA. Is the ACA perfect? No. But it makes it illegal for insurance companies to deny us coverage if we have a pre-existing condition, among other things.

Preference of disabled vs. person with disabilities depends on the person – I prefer to be called disabled. It saves time and it doesn’t make a difference to me. But there are a lot of people who prefer the person-first language of “person with disabilities.” Basically, if a disabled person corrects you on how you refer to them, go with what they prefer. That might be different from what another disabled person prefers; go with what that person prefers.

Disabled is not a dirty word – Disabled is an adjective. It describes one aspect of what my life is like. It isn’t a terrible to thing to be disabled. Would I love to not be in pain all of the time? Absolutely. But if for some reason all of my pain went away but I was still for some reason disabled, the world would not end. Every now and then someone will say, “Don’t call yourself disabled!” But I am disabled. If you have a problem with that, you have some issues of your own.

Wheelchairs are freeing – By the way, wheelchairs are often freeing. They are a way of being out in the world and doing things instead of being confined to our houses. I wouldn’t have been able to go to Washington, D.C., for the Advocacy Summit the last three years if it wasn’t for the scooter I rented. Don’t assume that using a wheelchair is a bad thing.

If you are an abled person and have a question, feel free to comment below with it and I will do my best to answer you. If you’re a disabled person and have something you want to add, comment with it!

Like this post? Share it and check out these posts:

A Letter to the Mom Who Yelled at Me on the Bus for My Disability, Traveling with an Invisible Disability: How To Deal with Rude People, On Inspiration Porn, Not All Disabilities Are Visible

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. elizabeth says

    October 9, 2017 at 12:14 pm

    Aw such an amazing post, thank you so much for this! I suffer from ME and it can be absolute hell, luckily I am on some great meds so on a good few days I can feel normal and not feeling intense flu; but even members of my family don’t accept it as a proper illness, it sucks so much >< xx

    elizabeth ♡ ”Ice Cream” whispers Clara
    (I would love to follow each other on bloglovin if you like! :D)

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    • Kate Mitchell says

      October 17, 2017 at 10:49 am

      Thank you so much! I’m so sorry that some of your family members don’t accept it. That’s ridiculous.

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  2. Alexandra Aulum says

    December 17, 2017 at 5:01 pm

    This is a really good post! I just discovered your blog, and it’s so nice to not feel alone. I am in my 20s with EDS and probably some form of arthritis. I cannot wait to get approved for a wheelchair. It can be so hard to communicate everything that I deal with on a daily basis to the people around me.

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  3. mel odra says

    October 11, 2021 at 6:03 am

    Thank you for all the insight you provide. I don’t necessarily have a problem with standing up for myself and needs. it is only in the last 8 years or so I came to the realization that I am disabled. I am USAF veteran and suffer from several ailments. PTSD – but not the military but from my mom being murdered by her boyfriend the same year I was honorably discharged and awaited coming home to see her. I also know am very involved in my MDD/bipolar diagnosis which only came about 5 years ago – that when it manifested its not so pretty self. I am educated enough now with my tools and medication management to see that it was always there. Moreover, I had a surgery right after the military that left me severely anemic and vitamin deficient in b-12, iron, and vitamin -D. It is a malabsorbtion issue. Yet I keep on fighting. however, I am starting to feel defeated. Last week I was delivered more news… I have had chronic GERD my entire life – which has took its toll piece by piece and now I have advance Barrett Esophagus. during this same time I gained a large amount of with (80lbs) in 12 months and began to experience leg and ankle swelling and asthma and now pain all over my body.

    I am frustrate! When is enough – enough! I sat back and thought to myself – why is that the VA is not listening to me, when my body is speaking to me. My heart and gut knows it not good news it is telling me – why dont the doctors know that. I have spent the last 12 months trying to obtain disability benefits. I cant keep a in office and high volume job anymore and I will daily work as hard as I can to keep going. I have a husband of 30 years and 3 children that I want to stay around for.

    I am going to take all that I have spent 3 hours reading in your blogs and put it to work – I need the doctors and VA to listen to me – to hear me say darn it – I am disabled, with too many symptoms to count- to much medication to manage and struggle day to day to care for myself and live the best life I can. I feel in my heart that doctors have the ability to assist me in my journey to live the best life and provide the correct care in guidance to live the longest life I can – but when will they listen and help my journey move forward.

    Don’t take my disposition negatively – I am so glad I came across your material – to feel like someone else gets it too. It is inspiring me. It felt good to say it out load and share my words — Thank You!

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Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Questions Not To Ask Someone with a Chronic Illness - Kate the (Almost) Great | Boston Lifestyle Blog says:
    November 29, 2017 at 8:00 am

    […]  What Abled People Need To Know about Disability, The Deadly Consequences of Incorrect Healthcare Reform, 4 More Things a Millennial with Arthritis Wants You To Know, Everyday Ableism […]

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  2. Resources for the Freshly-Diagnosed Chronic Illness Patient - Kate the (Almost) Great says:
    August 10, 2024 at 4:09 pm

    […]  Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability […]

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July is: ⁣ - Disability Pride Month ⁣ - Juvenile A July is: ⁣
- Disability Pride Month ⁣
- Juvenile Arthritis Awareness Month ⁣
- the anniversary of when I was diagnosed with autoimmune arthritis at age 19 after 9 years of symptoms ⁣
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As you can imagine, that makes me very aware of my disability via juvenile arthritis⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Screenshot of a Bluesky post. The background is dark teal, and it's written by Kate Mitchell | Kate the (Almost) Great with the username katethealmostgreat.bsky.social. ⁣The text reads what's above the first black box.⁣⁣⁣⁣⁣
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#DisabilityPride #JuvenileArthritis #RheumatoidArthritis #AutoimmuneDisease
There are a lot of reasons why you shouldn't doubt There are a lot of reasons why you shouldn't doubt someone's chronic illness, but this is one of them. ⁣
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I'm always amazed by how people can have the exact same illness or set of illnesses and still have different experiences. Sure, there will be similarities, but which symptoms are the worst, what medications you respond to, and your quality of life can vary significantly. ⁣
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It doesn't mean that one person is necessarily worse off than another; they're just different.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie. A white text box reads "Chronic Illness Looks Different in Each Person"⁣
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#ChronicallyIll #RheumatoidArthritis #Endometriosis #Fibromyalgia #POTS
This basically sums up my summer so far: Harley, a This basically sums up my summer so far: Harley, a sewing project, and my foot in a cast⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Harley the golden retriever has his head on Kate's lap. Also on her lap is an in-progress needlepoint project and Kate's leg (in a walking cast) is elevated.⁣
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#Osteoporosis #RheumatoidArthritis #GoldenRetrievers #Needlepoint #Needlework
Week 28 of 2026 Weekly A very busy week! 1️⃣ Foo Week 28 of 2026 Weekly

A very busy week!

1️⃣ Foot checkup! Walking boot is on occasionally from now until September 
2️⃣ Boston 
3️⃣ IVIG
4️⃣ Dentist 🦷 All good! 
5️⃣ Not a filter - this was the Boston area the second half of the week 
6️⃣ Physical time!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ Kate takes a selfie in a doctor’s office
2️⃣ Looking at TD Garden, the bear statue for the Bruins, and Zakim Bridge in the background 
3️⃣ Looking at tubes coming out from under Kate’s clothes. There’s a Kindle on her stomach
4️⃣ Kate takes a mirror selfie before leaving
5️⃣ Medford Square looking like there’s a yellow filter over it
6️⃣ Kate takes a selfie in a doctor’s office

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Also, if this is how you’re finding out, I’m sorry Also, if this is how you’re finding out, I’m sorry. I’m fortunate enough to have a lot of people who care about me and this is the fastest way to tell everyone. 

Video: Kate talks to the camera while putting on makeup. There are captions. 

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Week 27 of 2026 Weekly (Delayed because last Sund Week 27 of 2026 Weekly

(Delayed because last Sunday was baaaaad)

1️⃣ Due airport difficulties, we got a few more days with Emma. Harley was THRILLED!
2️⃣ Beautiful bird/squirrel visitors
3️⃣ A beautiful Maine summer day

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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1️⃣ Harley the golden retriever putting his front legs up on Emma’s legs to demand hugs.
2️⃣ A bird feeder and hummingbird feeder on a deck. There is a hummingbird at one and squirrel at the other.
3️⃣ A barn, a pond, and the Maine woods

#207 #MaineLife #MaineTheWay #NewEnglandSummer #IGMaine
Reminder: you can be proud of your disability comm Reminder: you can be proud of your disability community while wishing your body cooperated more⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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#DisabilityPride #ChronicallyIll #InvisibleIllness #Disabled #Disability
I don’t know the exact date of my RA diagnosis, bu I don’t know the exact date of my RA diagnosis, but this is from right around then in July 2010. ⁣
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When I was diagnosed, I had been having symptoms for 9 years. ⁣
- 9 years of foot pain (partially from tarsal coalition)⁣
- Arthritic damage in said food⁣
- Carpal tunnel off and on for several years⁣
- And more⁣
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I was finally diagnosed because I woke up one morning and was unable to open my jaw more than 8 mm. It turned out that I had horrible arthritic damage to my TMJs, which got me off the waiting list at MGH rheumatology. I left that appointment with an autoimmune arthritis diagnosis. ⁣
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The fact that July is not only my diagnosis anniversary but also Juvenile Arthritis Awareness Month has always seemed right. I may not have been diagnosed with JA, but given the amount of arthritis I had along with my many years of symptoms, it's generally accepted that I had it. ⁣
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This year marks 16 years since diagnosis and this fall marks 25 years since my symptoms started. It's pretty weird that so much time has already passed!⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate at 19 at Fenway Park for a Red Sox game. ⁣
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#RheumatoidArthritis #AutoimmuneDisease #Arthritis #JuvenileArthritis #JRA
Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
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