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in Health &middot October 6, 2017

What Abled People Need To Know about Disability

I like to think that the big reason why so many people say rude things about disability and disabled people is that they just don’t know much about it. In that vein, today I want to talk about what abled people (aka not disabled) should know about disability.

There are some things about disability that every abled person needs to know. These disability facts will help you understand who is disabled and what that means, as well as some other things you should know about disabled people.

What’s the Deal with Disability?

What does it mean to be disabled? Stanford University defines disability as “a health condition or physical impairment that prevents an individual from taking full advantage of life’s opportunities such as education, vocation, recreation, and activities of daily living” (x). As you can tell, this is a really broad term that covers a variety of conditions. It includes people with physical or mental health issues such as: problems seeing, both those who are completely blind and those with partial blindness; those with difficulty hearing; those with Alzheimer’s or another form of dementia; those with depression or anxiety to the extent that it interferes with daily life; and more (x). According to the World Health Organization, disability has 3 elements: impairments in a person’s body structure, function, or mental functioning; activity limitation, like trouble seeing, hearing, walking, or problem solving; and participation restrictions in normal daily activities (x).

How many people are disabled? Nearly 1 in 5 Americans are disabled (x), and 1 in 10 Americans are severely disabled (x). In fact, 1 in 4 of today’s 20 year-olds will become disabled before they retire (x). Many people assume that most disabilities are from accidents, but most are actually from illnesses (x).

How many people use assistive devices? The official statistic is 96% of people with a disability have an invisible one (x). 6.8 million Americans use a mobility device, which is 11.99% of disabled Americans (x). I offer these two statistics because I know people who technically have an invisible disability (arthritis), but they use a scooter.

There are a lot of disability facts that you should know in order to understand what living life with a disability is all about. And also what you should know so you don't say anything rude to a disabled person.

What You, an Abled Person, Should Especially Be Aware Of

Someone doesn’t have to “look” disabled to be disabled – Hopefully, you figured this out from that assistive device statistic. If your idea of “disabled” is someone in a wheelchair, you have a very narrow view of disability.

Ableism is a huge problem – (Ableist language to come FYI.) Ableism, or the discrimination of disabled people, is unfortunately imbedded in most of our society. Our comments about someone being dumb, stupid, crazy, an idiot, a moron, etc. are all ableist comments. These comments are thrown around like nothing, but they’re based in the fact that people who have a low IQ or who have a mental illness are lesser than the rest of people. I’ve written a lot about ableism, so I’ll leave these pieces here for you to read instead of repeating myself: Everyday Ableism, Examples of Ableist Language in Everyday Life, and On Inspiration Porn.

(Ableist language over.)

The government is trying to roll back our rights – HR 620 was recently introduced to the US House of Representatives, which would reduce the value of the American’s with Disabilities Act. The ADA is responsible for making it the law that businesses need to be accessible. By reducing that, the government is saying, “We don’t care about disabled people.” And of course we can’t forget all of the attempts to repeal the ACA. Is the ACA perfect? No. But it makes it illegal for insurance companies to deny us coverage if we have a pre-existing condition, among other things.

Preference of disabled vs. person with disabilities depends on the person – I prefer to be called disabled. It saves time and it doesn’t make a difference to me. But there are a lot of people who prefer the person-first language of “person with disabilities.” Basically, if a disabled person corrects you on how you refer to them, go with what they prefer. That might be different from what another disabled person prefers; go with what that person prefers.

Disabled is not a dirty word – Disabled is an adjective. It describes one aspect of what my life is like. It isn’t a terrible to thing to be disabled. Would I love to not be in pain all of the time? Absolutely. But if for some reason all of my pain went away but I was still for some reason disabled, the world would not end. Every now and then someone will say, “Don’t call yourself disabled!” But I am disabled. If you have a problem with that, you have some issues of your own.

Wheelchairs are freeing – By the way, wheelchairs are often freeing. They are a way of being out in the world and doing things instead of being confined to our houses. I wouldn’t have been able to go to Washington, D.C., for the Advocacy Summit the last three years if it wasn’t for the scooter I rented. Don’t assume that using a wheelchair is a bad thing.

If you are an abled person and have a question, feel free to comment below with it and I will do my best to answer you. If you’re a disabled person and have something you want to add, comment with it!

Like this post? Share it and check out these posts:

A Letter to the Mom Who Yelled at Me on the Bus for My Disability, Traveling with an Invisible Disability: How To Deal with Rude People, On Inspiration Porn, Not All Disabilities Are Visible

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Reader Interactions

Comments

  1. elizabeth says

    October 9, 2017 at 12:14 pm

    Aw such an amazing post, thank you so much for this! I suffer from ME and it can be absolute hell, luckily I am on some great meds so on a good few days I can feel normal and not feeling intense flu; but even members of my family don’t accept it as a proper illness, it sucks so much >< xx

    elizabeth ♡ ”Ice Cream” whispers Clara
    (I would love to follow each other on bloglovin if you like! :D)

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    • Kate Mitchell says

      October 17, 2017 at 10:49 am

      Thank you so much! I’m so sorry that some of your family members don’t accept it. That’s ridiculous.

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  2. Alexandra Aulum says

    December 17, 2017 at 5:01 pm

    This is a really good post! I just discovered your blog, and it’s so nice to not feel alone. I am in my 20s with EDS and probably some form of arthritis. I cannot wait to get approved for a wheelchair. It can be so hard to communicate everything that I deal with on a daily basis to the people around me.

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  3. mel odra says

    October 11, 2021 at 6:03 am

    Thank you for all the insight you provide. I don’t necessarily have a problem with standing up for myself and needs. it is only in the last 8 years or so I came to the realization that I am disabled. I am USAF veteran and suffer from several ailments. PTSD – but not the military but from my mom being murdered by her boyfriend the same year I was honorably discharged and awaited coming home to see her. I also know am very involved in my MDD/bipolar diagnosis which only came about 5 years ago – that when it manifested its not so pretty self. I am educated enough now with my tools and medication management to see that it was always there. Moreover, I had a surgery right after the military that left me severely anemic and vitamin deficient in b-12, iron, and vitamin -D. It is a malabsorbtion issue. Yet I keep on fighting. however, I am starting to feel defeated. Last week I was delivered more news… I have had chronic GERD my entire life – which has took its toll piece by piece and now I have advance Barrett Esophagus. during this same time I gained a large amount of with (80lbs) in 12 months and began to experience leg and ankle swelling and asthma and now pain all over my body.

    I am frustrate! When is enough – enough! I sat back and thought to myself – why is that the VA is not listening to me, when my body is speaking to me. My heart and gut knows it not good news it is telling me – why dont the doctors know that. I have spent the last 12 months trying to obtain disability benefits. I cant keep a in office and high volume job anymore and I will daily work as hard as I can to keep going. I have a husband of 30 years and 3 children that I want to stay around for.

    I am going to take all that I have spent 3 hours reading in your blogs and put it to work – I need the doctors and VA to listen to me – to hear me say darn it – I am disabled, with too many symptoms to count- to much medication to manage and struggle day to day to care for myself and live the best life I can. I feel in my heart that doctors have the ability to assist me in my journey to live the best life and provide the correct care in guidance to live the longest life I can – but when will they listen and help my journey move forward.

    Don’t take my disposition negatively – I am so glad I came across your material – to feel like someone else gets it too. It is inspiring me. It felt good to say it out load and share my words — Thank You!

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Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Questions Not To Ask Someone with a Chronic Illness - Kate the (Almost) Great | Boston Lifestyle Blog says:
    November 29, 2017 at 8:00 am

    […]  What Abled People Need To Know about Disability, The Deadly Consequences of Incorrect Healthcare Reform, 4 More Things a Millennial with Arthritis Wants You To Know, Everyday Ableism […]

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  2. Resources for the Freshly-Diagnosed Chronic Illness Patient - Kate the (Almost) Great says:
    August 10, 2024 at 4:09 pm

    […]  Chronic Illness Bloggers To Follow, 10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis, A Guide To Chronic Illness for Those Who Don’t Have One, What Abled People Need To Know about Disability […]

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SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: Kate drinks coffee giving side eye. White text box reads "My Face When Someone Says 'You Shouldn't Need a Cane At Your Age'" ⁣
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#ChronicPain #ChronicallyIll #RheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Fibromyalgia
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