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While you might not realize it, the questions you ask people with chronic illnesses might be offensive. Here is an explanation of why those questions are a problem and alternative questions to ask instead.
in Health &middot November 29, 2017

Questions Not To Ask Someone with a Chronic Illness

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in Health &middot November 29, 2017

Questions Not To Ask Someone with a Chronic Illness

One of the great things about the holidays is we are around our friends and families more often. But one of the downsides of that can be some of the conversations that we have. How’s school? Are you dating anyone? Why aren’t you dating anyone? We’re all familiar with them. But when you have a chronic illness, you’re asked some other questions that are … not awesome. I know that it comes from a place of love or wanting to know more about our lives, but that doesn’t change how frustrating or even hurtful these questions can be. Today I’m addressing these questions and explaining why we dislike them, as well as giving you some alternative questions to ask.

While you might not realize it, the questions you ask people with chronic illnesses might be offensive. Here is an explanation of why those questions are a problem and alternative questions to ask instead.

You’re still sick? When will you be better? Chronic illness means chronic. We can have times when we’re better and times when we’re worse. And a lot of illness (like arthritis) can be more severe than is commonly thought. I have an autoimmune disease does not have a cure; I could maybe one day be in remission (low disease activity), but even then I’ll still have RA.

Instead, ask: How are you feeling?

Do you really need to take so many medications? Yes, I do. Some people are convinced that patients take so many pills because Big Pharma has doctors in their pockets. Big Pharma makes my medications expensive because of capitalism, but I still need to take these medications. My medications are necessary in order for me to live an enjoyable life. And – I’m sure this might not be true for all conditions, but it is for me – there are no supplements that can do what my medications do.

Instead, ask: What does your treatment look like?

Have you tried [treatment]? This is usually split between suggesting actual treatments and suggesting what you think is a treatment. When it’s the first, I get less annoyed because for most conditions, all someone might know about a condition is from a commercial for a medication. Of course, the treatments that have commercials are only the tip of the iceberg; the only RA treatment I respond to does not have a commercial, and all the ones that have commercials don’t do anything for me. But you should really avoid giving medical advice because you know only a small bit of someone’s health, even if you do have a medical degree. Suggesting natural treatments (including something like yoga) can be really offensive because the message you’re sending is you don’t believe that the person with the condition is doing enough to feel better. The person who has the condition is more likely to be an expert on their body and their condition than you are.

Instead, ask: What treatments have worked?

Here are questions you can ask people with chronic illnesses that are less (or not) offensive than what you might ask.

What’s wrong with you? Hopefully I don’t need to explain how rude of a question this is. If you’re trying to figure out what someone’s condition or illness is, there are better ways to phrase this. But if you’re not sure if they’ve ever said anything explicitly, don’t ask. It is not a requirement of chronic illness that we share our medical histories, and some people aren’t comfortable with it. If you know that someone has shared the name for their condition before but you can’t remember it, then it might be okay to ask. But if you don’t think they have, then don’t.

Instead, ask: Remind me – what condition do you have? OR How does your condition affect your life?

Why can’t you help with [meal, cleaning, etc.]? When you have a chronic illness (for many of them), everything is more difficult than it is for the non-chronically ill. Everything takes more out of you and it takes longer to recover. Additionally, we have to budget our energy if we want to do things later in the day. And some days are better than others, so we might be up for something on Monday but aren’t up for the same thing on Tuesday. We have to take so much more into consideration when it comes to our daily lives.

Instead, ask: Are you feeling up for [less-strenuous assistance]?

Why are you still living at home? Don’t you want to move out? Yes, I would love to live independently again. But right now, I’m not at a place where I can do that, and it hurts when people remind me of that by asking why I still live at home. And there are several things that go into this: I need to be able to cook meals for myself and/or meal prep, I need to be able to clean or at least tidy up, and I need to be healthy enough to work full-time and/or financially support myself. Also, as a reminder to those of you who aren’t a millennial, most millennials have a significant amount of student loan debt, and more young adults than before are living at home because of that.

Instead, ask: What does your future look like?

What do you wish people didn’t ask you about your life with chronic illness?

Like this post? Check out:

 What Abled People Need To Know about Disability, The Deadly Consequences of Incorrect Healthcare Reform, 4 More Things a Millennial with Arthritis Wants You To Know, Everyday Ableism

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Erin Ortiz says

    November 29, 2017 at 6:56 pm

    I’ve gotten so many of these questions. I really enjoy reading your chronic illness posts because I really feel like someone else out there understands. I’ve been dealing with endometriosis, ovarian cysts, and migraines for a few years now and it’s really something that most people don’t understand. I really hate it when people make you feel lazy for not having the energy levels to just go, go, go.

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I personally have rheumatoid arthritis, fibromyalg I personally have rheumatoid arthritis, fibromyalgia, and Sjögren's syndrome, which makes 3 forms of arthritis.⁣
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May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖 ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis means only 1 thing.⁣
Fact⁣
There are over 100 kinds of arthritis, including osteoarthritis, rheumatoid arthritis, ankylosing spondylitis, and more!⁣
katethealmostgreat⁣
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#ArthritisAwareness #RheumatoidArthritis #Fibromyalgia #SjogrensSyndrome #Arthritis
SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
⁣
Like, comment, and share to spread awareness 💖⁣
⁣
⬛⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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⬛⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
Fact⁣
Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
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