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in Lifestyle &middot April 18, 2016

Where I Went the Past 2 Weeks + an Etsy Giveaway

I’m back! I (obviously) took an unexpected 2-week blog vacation, but I’m back now. If you follow me on Twitter, you know that I had a small medical emergency last week, which triggered an arthritis flare, and I spent most of last week in a hotel. Today we’re talking about what happened over the past 2 weeks, what’s going on with me, and you also have the chance to win a $50 Etsy gift card!

Life Update

Life Update

Why did I take an impromptu blog vacation? After 3 months of 2-4 blog posts a week, I was starting to get a little drained. I’m also at the beginning of finals because finals in a grad school program for literature lasts 4-6 weeks. By May 16, I have 3 papers to write culminating in 40-50 pages. And as much as I love blogging – and I really do – I’m paying thousands of dollars to study for a degree. I’m going to put a fair amount of effort in to really learn and get my money’s worth. Plus, my sister’s college graduation is right in the middle of my finals, so I need to get my papers done a little bit early.

So I decided to take a week off of blogging to mentally recharge and focus on school, especially since I had a presentation on April 7 and I was supposed to have another one on April 11 (but then I had some medical issues, as discussed below). After my ER trip on the 11th and due to mold issues (again, see below), I had to stay in a hotel in order to recover from everything and I was doing poorly. I was there for Tuesday to Saturday and was in pretty bad shape until Friday or Saturday.

A photo posted by Kate (@katethealmostgreat) on Apr 9, 2016 at 7:08am PDT

What’s everything look like going forward? Like I said, my finals have started. I’m going to aim for 3 points a week per usual, but it’s very possible that it will get down to 2 when May comes around. The good news, though, is that after that I have 3.5 months off! I’m really looking forward to that.

Health Update

The Event – Randomly on Saturday afternoon, I felt incredibly nauseated. I spent the next 48 hours on the bathroom floor or in bed. I couldn’t eat anything and I had abdominal pain. I couldn’t really drink anything either. I took Pepto Bismal pills every couple of hours but it just made me comfortable enough to sleep. I tried to get an appointment with my PCP on Monday, but they couldn’t fit me in, and my nurse told me to go to walk-in care. Once I got there, they put me through triage and admitted me before taking me to the ER. I couldn’t walk. I couldn’t stand straight. The only reason I stopped crying was I was too dehydrated. After a couple of hours at the hospital – I hate how slow the ER moves – I was examined by a PA and then the doctor. They decided to give me fluids, morphine, and zofran (nausea medicine). After that was done, I started feeling better. I even got an appetite for the first time in 48 hours! The ended up doing a CT scan to see what was going on, and it turned out that at least one if not multiple ovarian cysts had ruptured, and I currently have another one. They gave me more fluids after I almost passed out – whoops – and then I was finally discharged. I went home and slept for 8-10 hours, during which I apparently woke up screaming twice due to morphine. Before 1 PM, I had managed to have several bowls of Cheerios, drink a fair amount of Gatorade, and take my pills for the first day in a couple of days!

Lungs – I’m still having asthma issues, but the hope is that the worst of it is behind me because I’m on a whole bunch of asthma meds now and the mold is out of our house! The mold mediators – yes, that’s what they’re called – removed SO much mold from my bedroom. As in, up to 40″ of it on 3 walls of my bedroom. Not only is living in mold bad for you, but I’m also allergic to it. And I’m immunocompromised, aka my immune system is suppressed by my medication since I have an autoimmune disease. The combination of all of that leads to my body basically freaking out.

Arthritis – I’m waiting on my Stelara to kick in, which could happen any time in between now and the end of June. But between the events of last week and the mold, I’ve also entered an arthritis flare. Basically, my immune system has revved up and is attacking my body even more than normal. Think larger amounts of pain and fatigue (which is super fun when you have anemia).

Enter the Etsy Giveaway

$50 Etsy Giveaway

Kate the (Almost) Great | Bourbon, Lipstick, and Stilettos | Travelvan | Rhyme & Ribbons | Hey, It’s Kate | Collectively Caitlin

We’re giving away a $50 Etsy gift card! This contest is only open to the US (sorry!) and you must be over the age of 18. The giveaway begins 4/18/2016 at 12:00 AM and ends at 4/24/2016 at 11:59 PM. If you lie in your entries, you will be disqualified. The winner will be chosen within 48 hours of the giveaway ending; once they are chosen, they have 48 hours to reply to the email they’ll receive to confirm their win. Good luck!

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Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Reader Interactions

Comments

  1. Emily of Em Busy Living says

    April 18, 2016 at 8:41 am

    Oh my goodness! I am so sorry to hear about your horrible recent health ordeals! (As if you don’t have enough of that to deal with anyway!) I can’t imagine the pain and discomfort of multiple rupturing cysts. Yikes. I hope you can get to feeling much better soon.

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    • Kate Mitchell says

      April 18, 2016 at 12:37 pm

      Thank you! I’m definitely recovered from the cysts, but I’m unfortunately flaring now because of it all. I’ve already been on high dose of steroids for my asthma (which is also the response to a flare), so hopefully that will help.

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      • Emily of Em Busy Living says

        April 20, 2016 at 3:52 pm

        Oh goodness, friend. I hope you feel better soon 🙁

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  2. Becca Dorr says

    April 18, 2016 at 11:04 am

    It looks like you’ve been feeling better, from Snapchat. I didn’t realize your place had mold though — that SUCKS. As if you needed that to make everything worse.

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    • Kate Mitchell says

      April 18, 2016 at 12:40 pm

      Yup. It has been awful. There was just a HUGE amount of it in my bedroom. We now have a mold guy and we’re doing more testing to make sure that it’s all gone. Things getting wild out here!

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  3. JRRMS says

    April 25, 2016 at 4:55 pm

    I understand being in pain. I have chronic pain too. Mine is due from different things but I do have the arthritis and fibro too! A pharmacist recommended me a vitamin for my fibro because the Lyrica made me sick. The vitamin helps with the flu like symptoms fibro makes us have. If you ever need it please let me know and I’ll give ya the name of it. I’m hoping for the best for you and many prayers as well. ~Jeanie

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    • Kate Mitchell says

      April 25, 2016 at 5:24 pm

      Thanks for the offer! I’m not on Lyrica, but thank you anyway.

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Trackbacks

  1. $50 Etsy Giveaway! - Collectively Caitlin says:
    April 18, 2016 at 4:31 pm

    […] to make your Monday just a little bit less Monday-ish! I am so excited to be teaming up with Kate The Almost Great and some other wonderful bloggers to be able to give away $50 in Etsy $$$$! Etsy is one of my […]

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  2. How Studying Abroad Can Change Your Future - Kate the (Almost) Great | Boston Lifestyle Blog says:
    April 22, 2016 at 8:01 am

    […] Have you entered to win a $50 gift card to Etsy? […]

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  3. Chronic Pain Confessions - Kate the (Almost) Great | Boston Lifestyle Blog says:
    May 19, 2016 at 8:03 am

    […] I’m really tired of living in high pain all the time. I knew that these couple of months of trying a new medication would be tough, but this has exceeded my expectations. (See: 2 ER trips in April) […]

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  4. Kate the (Almost) Great | Boston Lifestyle Blog - 2016 So Far - Kate the (Almost) Great | Boston Lifestyle Blog says:
    July 22, 2016 at 8:01 am

    […] – Compared to April, March was amazing. April was awful. I had 2 ER trips for severe abdominal pain (which we’re still trying to figure out), and it turned out that there was a ton of mold in […]

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  5. Kate the (Almost) Great | Boston Lifestyle Blog - How To Get Blog Traffic: My Blogging Advice To Actually Grow Your Blog says:
    February 2, 2017 at 8:02 am

    […] an unexpected blog break from 1/13-1/19 due to abdominal pain episode; this included no new blog posts and scheduled shares of blog […]

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    Reply
  6. Kate the (Almost) Great | Boston Lifestyle Blog - Endometriosis: The Disease Women Aren't Talking About says:
    October 23, 2017 at 8:00 am

    […] with the ovaries, it can create ovarian cysts. That’s how I got diagnosed – I started having episodes where 3-7 ovarian cysts ruptured over a space of 2ish days (like, I was in the ER 4 times in 3 months). They ruled all other […]

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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