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in Health &middot April 4, 2016

We Need To Talk about Ableism

As a society, we have become a lot more “politically correct” in the past decade. There a lot of people who think this is a bad thing (*cough* Donald Trump supporters *cough*). I may get into this more in another post, but my view is that political correctness is really just being a decent person. Regardless, one of the “isms” that has been mentioned more in the past year is ableism. As a disabled person, this directly affects me, but it isn’t being addressed by a lot of people out there. Quite frankly, I’m sick of that. We need to talk about ableism.

We need to talk about ableism

What is Ableism?

Ableism is “discrimination or prejudice against individuals with disabilities” (definition). Like all forms of discrimination, it can be blatant or implied. Some people might not even realize that they are being ableist. In fact, I don’t remember hearing the word before at least a year ago. That’s not to say that there wasn’t ableism – it just means that ableism wasn’t discussed. A lot of ableism tends to come from people just not being aware of people who have disabilities, what their lives are like, or how a healthy person’s actions affect them.

Obvious Examples of Ableism

Example 1: Jennifer Esposito has Celiac disease and it got to the point where her doctor told her that she had to reduce her hours on the CBS show Blue Bloods. Instead of working around her doctor-prescribed schedule, the network removed her from the show. This isn’t even an assumption on my part – “A CBS representative told The Hollywood Reporter that Esposito is ‘unable to perform the demands of her role, and we regretfully had to put her character on a leave of absence.” This is discrimination against her because of her autoimmune disease.

Example 2: Parking in handicapped spot when you aren’t handicapped and/or don’t have handicapped parking. You have to have a permit to park in these spots, even if you are just waiting on someone or something. (And if you are using someone else’s handicapped placard, you should be ashamed of yourself.) If you are in a handicapped spot with your flashers on, other than being wrong, it’s still illegal. To learn more about my horrible experience, read the post about the time I ended up sobbing in a parking lot.

Example 3: Not having handicap-accessible entrances or buildings. You probably never thought about how inaccessible some places are until you had to go on crutches. Recently, the Government Center T station reopened in Boston after being under construction for several years. As a part of this, they made it accessible for the first time. In the articles and the interviews about it, everyone kept talking about beautiful the station is now – and oh isn’t it wonderful that it’s now accessible? You shouldn’t get a pat on the back for being a decent human.

Less-Obvious Examples of Ableism

Example 1: “But you don’t look sick!” – Really? Really?

Example 2: Judgment from people when they see me walking one minute and in a wheelchair the next – Just because I’m often in a wheelchair doesn’t mean that I can’t walk. It means that I can’t walk long distances or that I shouldn’t be walking. I most commonly use wheelchairs when I’m in the airport or at a museum or amusement. Those are locations that require extra activity from everyone, and I can’t do that extra activity. But just because I sometimes use a wheelchair doesn’t mean that I’m faking. 

Example 3: “But you were fine yesterday” – No, actually, I wasn’t. You just thought I was. I don’t tell people every time I feel badly because then that would be all I talked about.

Example 4: Saying “I’m so depressed” when you’re down or feeling sad. – Depression is a disease and you shouldn’t make light of it. As the National Institute of Mental Health says, “Depression (major depressive disorder or clinical depression) is a common but serious mood disorder. It causes severe symptoms that affect how you feel, think, and handle daily activities, such as sleeping, eating, or working. To be diagnosed with depression, the symptoms must be present for at least two weeks.”

On Ableism
Image Source

Example 5: Saying “I totally had an anxiety attack” when you were a little stressed – As someone who experiences anxiety attacks, this bothers me so, so much. The closest I can compare it to is it’s kind of like spraining your ankle or, in the more extreme ones, like breaking it. But that doesn’t really do it justice. It’s not an exact comparison, but you get what I’m saying. It’s so insulting to me when someone hears that I live with extreme pain from my autoimmune arthritis and they tell me that they kind of get what that’s like because they twisted their ankle once. That’s kind of what it’s like when someone feel a little stressed and they say that they totally had an anxiety attack.

Example 6: Legally, companies can’t fire someone for being disabled. But they can fire someone because they use too many sick days or for “not being a good fit for the job” (like retail). So if someone says that they think they were let go because of their disability, don’t dismiss that out-right. 

[bctt tweet=”Are you being ableist without realizing it?” username=”kmitchellauthor”]

Why should I care about ableism?

Why do we need to talk about ableism?

Because your actions and words have consequences – Telling someone who has depression to get over it or that other people out there have it worse can have real, serious effects. If someone has serious depression and their loved ones make comments like that, they might believe that they don’t matter and no one cares about them. Do I need to draw you a map of where that can lead? And if you park in an accessible spot just to run into the supermarket, it could mean that someone who needs that spot won’t be able to go grocery shopping that day or they end up in extreme pain. If a store doesn’t have enough accessible parking spots, a disabled person might not be able to shop there.

Because there are people who look healthy but aren’t, and they’re majorly suffering due to companies and the people they love exhibiting ableist behaviors – Did you know that approximately 96% of people with illnesses have invisible ones? This means that you can’t tell that they are ill by looking at them. These people are the ones who are harassed for looking fine but being in a wheelchair, the ones who are shamed for being sick.

Again, this isn’t about being politically correct. It’s about being a relatively decent human being.

Like this post? Check out: 

Arthritis Glossary: Frequently Used Words, About the Americans with Disabilities Act, Is Chronic Illness a Disability?

 

We need to talk about ableism, ableism, discrimination against disabled people, disability, chronic illness
Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Chelsea W says

    April 4, 2016 at 11:38 am

    I want to clap and clap and clap for this post. Loved reading every second of it.
    I’m disabled and have an invisible illness, and have also experienced so many of these things.
    Probably the worst is when I was in college. LOVED my college–best experience of my life. But we had very few handicapped parking places. Very few parking places at all, really. So many people would park in the handicapped places without having a parking placard just so they could get close to the building…this meant sometimes I couldn’t even GO TO CLASS because the next available parking space (not just next handicapped one) was so far away from me. Truly horrible!

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    • Kate Mitchell says

      April 4, 2016 at 11:56 am

      That is the absolute worst. I unfortunately experienced that far too much in college. People don’t understand the effects of their actions!

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  2. Kim Pincombe-Cole says

    May 2, 2016 at 10:24 pm

    Kudos for this post. As someone who suffers from an IGA Immunodeficiency (& other subsequent immune system problems), I am part of this population of the ‘invisible’ disabled. Surgeries (I have a few less organs now than I was born with), infections, dozens of daily medications are my normal. I have found it just easier not to talk about it, as reactions from most people are so absurd…

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Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Everyday Ableism - Kate the (Almost) Great | Boston Lifestyle Blog says:
    January 23, 2017 at 8:06 am

    […] We Need To Talk about Ableism […]

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  2. Kate the (Almost) Great | Boston Lifestyle Blog - Dating with Chronic Conditions | Kate the (Almost) Great, Boston Lifestyle says:
    January 6, 2018 at 10:48 am

    […] If you’re concerned about continuing ableism, you can send them these posts: Everyday Ableism, Examples of Ableist Language in Everyday Life, and We Need To Talk about Ableism […]

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  3. The Impact of Chronic Illness on an Individual | Kate the (Almost) Great says:
    August 10, 2024 at 4:08 pm

    […] We Need To Talk about Ableism, Traveling with an Invisible Disability: Dealing with Rude People, Examples of Ableist Language in Everyday Life, How Arthritis Affects the Body […]

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SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
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Arthritis only affects people as they age.⁣
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Arthritis can affect anyone at any age, including kids as young as 3.⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: Kate drinks coffee giving side eye. White text box reads "My Face When Someone Says 'You Shouldn't Need a Cane At Your Age'" ⁣
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