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in Health &middot April 4, 2016

We Need To Talk about Ableism

As a society, we have become a lot more “politically correct” in the past decade. There a lot of people who think this is a bad thing (*cough* Donald Trump supporters *cough*). I may get into this more in another post, but my view is that political correctness is really just being a decent person. Regardless, one of the “isms” that has been mentioned more in the past year is ableism. As a disabled person, this directly affects me, but it isn’t being addressed by a lot of people out there. Quite frankly, I’m sick of that. We need to talk about ableism.

We need to talk about ableism

What is Ableism?

Ableism is “discrimination or prejudice against individuals with disabilities” (definition). Like all forms of discrimination, it can be blatant or implied. Some people might not even realize that they are being ableist. In fact, I don’t remember hearing the word before at least a year ago. That’s not to say that there wasn’t ableism – it just means that ableism wasn’t discussed. A lot of ableism tends to come from people just not being aware of people who have disabilities, what their lives are like, or how a healthy person’s actions affect them.

Obvious Examples of Ableism

Example 1: Jennifer Esposito has Celiac disease and it got to the point where her doctor told her that she had to reduce her hours on the CBS show Blue Bloods. Instead of working around her doctor-prescribed schedule, the network removed her from the show. This isn’t even an assumption on my part – “A CBS representative told The Hollywood Reporter that Esposito is ‘unable to perform the demands of her role, and we regretfully had to put her character on a leave of absence.” This is discrimination against her because of her autoimmune disease.

Example 2: Parking in handicapped spot when you aren’t handicapped and/or don’t have handicapped parking. You have to have a permit to park in these spots, even if you are just waiting on someone or something. (And if you are using someone else’s handicapped placard, you should be ashamed of yourself.) If you are in a handicapped spot with your flashers on, other than being wrong, it’s still illegal. To learn more about my horrible experience, read the post about the time I ended up sobbing in a parking lot.

Example 3: Not having handicap-accessible entrances or buildings. You probably never thought about how inaccessible some places are until you had to go on crutches. Recently, the Government Center T station reopened in Boston after being under construction for several years. As a part of this, they made it accessible for the first time. In the articles and the interviews about it, everyone kept talking about beautiful the station is now – and oh isn’t it wonderful that it’s now accessible? You shouldn’t get a pat on the back for being a decent human.

Less-Obvious Examples of Ableism

Example 1: “But you don’t look sick!” – Really? Really?

Example 2: Judgment from people when they see me walking one minute and in a wheelchair the next – Just because I’m often in a wheelchair doesn’t mean that I can’t walk. It means that I can’t walk long distances or that I shouldn’t be walking. I most commonly use wheelchairs when I’m in the airport or at a museum or amusement. Those are locations that require extra activity from everyone, and I can’t do that extra activity. But just because I sometimes use a wheelchair doesn’t mean that I’m faking. 

Example 3: “But you were fine yesterday” – No, actually, I wasn’t. You just thought I was. I don’t tell people every time I feel badly because then that would be all I talked about.

Example 4: Saying “I’m so depressed” when you’re down or feeling sad. – Depression is a disease and you shouldn’t make light of it. As the National Institute of Mental Health says, “Depression (major depressive disorder or clinical depression) is a common but serious mood disorder. It causes severe symptoms that affect how you feel, think, and handle daily activities, such as sleeping, eating, or working. To be diagnosed with depression, the symptoms must be present for at least two weeks.”

On Ableism
Image Source

Example 5: Saying “I totally had an anxiety attack” when you were a little stressed – As someone who experiences anxiety attacks, this bothers me so, so much. The closest I can compare it to is it’s kind of like spraining your ankle or, in the more extreme ones, like breaking it. But that doesn’t really do it justice. It’s not an exact comparison, but you get what I’m saying. It’s so insulting to me when someone hears that I live with extreme pain from my autoimmune arthritis and they tell me that they kind of get what that’s like because they twisted their ankle once. That’s kind of what it’s like when someone feel a little stressed and they say that they totally had an anxiety attack.

Example 6: Legally, companies can’t fire someone for being disabled. But they can fire someone because they use too many sick days or for “not being a good fit for the job” (like retail). So if someone says that they think they were let go because of their disability, don’t dismiss that out-right. 

[bctt tweet=”Are you being ableist without realizing it?” username=”kmitchellauthor”]

Why should I care about ableism?

Why do we need to talk about ableism?

Because your actions and words have consequences – Telling someone who has depression to get over it or that other people out there have it worse can have real, serious effects. If someone has serious depression and their loved ones make comments like that, they might believe that they don’t matter and no one cares about them. Do I need to draw you a map of where that can lead? And if you park in an accessible spot just to run into the supermarket, it could mean that someone who needs that spot won’t be able to go grocery shopping that day or they end up in extreme pain. If a store doesn’t have enough accessible parking spots, a disabled person might not be able to shop there.

Because there are people who look healthy but aren’t, and they’re majorly suffering due to companies and the people they love exhibiting ableist behaviors – Did you know that approximately 96% of people with illnesses have invisible ones? This means that you can’t tell that they are ill by looking at them. These people are the ones who are harassed for looking fine but being in a wheelchair, the ones who are shamed for being sick.

Again, this isn’t about being politically correct. It’s about being a relatively decent human being.

Like this post? Check out: 

Arthritis Glossary: Frequently Used Words, About the Americans with Disabilities Act, Is Chronic Illness a Disability?

 

We need to talk about ableism, ableism, discrimination against disabled people, disability, chronic illness
Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Chelsea W says

    April 4, 2016 at 11:38 am

    I want to clap and clap and clap for this post. Loved reading every second of it.
    I’m disabled and have an invisible illness, and have also experienced so many of these things.
    Probably the worst is when I was in college. LOVED my college–best experience of my life. But we had very few handicapped parking places. Very few parking places at all, really. So many people would park in the handicapped places without having a parking placard just so they could get close to the building…this meant sometimes I couldn’t even GO TO CLASS because the next available parking space (not just next handicapped one) was so far away from me. Truly horrible!

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    • Kate Mitchell says

      April 4, 2016 at 11:56 am

      That is the absolute worst. I unfortunately experienced that far too much in college. People don’t understand the effects of their actions!

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  2. Kim Pincombe-Cole says

    May 2, 2016 at 10:24 pm

    Kudos for this post. As someone who suffers from an IGA Immunodeficiency (& other subsequent immune system problems), I am part of this population of the ‘invisible’ disabled. Surgeries (I have a few less organs now than I was born with), infections, dozens of daily medications are my normal. I have found it just easier not to talk about it, as reactions from most people are so absurd…

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Trackbacks

  1. Kate the (Almost) Great | Boston Lifestyle Blog - Everyday Ableism - Kate the (Almost) Great | Boston Lifestyle Blog says:
    January 23, 2017 at 8:06 am

    […] We Need To Talk about Ableism […]

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  2. Kate the (Almost) Great | Boston Lifestyle Blog - Dating with Chronic Conditions | Kate the (Almost) Great, Boston Lifestyle says:
    January 6, 2018 at 10:48 am

    […] If you’re concerned about continuing ableism, you can send them these posts: Everyday Ableism, Examples of Ableist Language in Everyday Life, and We Need To Talk about Ableism […]

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  3. The Impact of Chronic Illness on an Individual | Kate the (Almost) Great says:
    August 10, 2024 at 4:08 pm

    […] We Need To Talk about Ableism, Traveling with an Invisible Disability: Dealing with Rude People, Examples of Ableist Language in Everyday Life, How Arthritis Affects the Body […]

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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