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in Health &middot February 21, 2017

What’s the Value of the Affordable Care Act?

A key aspect of American political discussion over the past couple of years has been the Affordable Care Act, also known as Obamacare. From the moment it was signed in 2010, politicians who dislike the bill have been trying to dismantle it. It was something that our president promised to abolish, and as soon as the new congressional session began in January, politicians have been talking about (if not actually working on) how to achieve this. As of right now (late February, 2017), there is no concrete replacement that has been brought up; many simply want to abolish it.

As a disabled woman in her mid-twenties, the Affordable Care Act has greatly impact my life, and generally in a positive manner. While I’ve talked a lot about the ways that this bill has helped me on social media, I wanted to break it down in more detail here. I want to explain how it has helped me, as well as its value. I’m aware that it isn’t a perfect program, but it has done so much good for me personally, and I’m terrified of what might happen if it is repealed without a replacement, or if the replacement doesn’t have many of the characteristics that make it so helpful for me.

A key element of political discourse in America over the past few years has been the Affordable Care Act. In order to look at its value, I explain the different ways it helps me personally, as well as other ways it helps other people.

6 Ways the Affordable Care Act Has Helped Me

Preexisting conditions – It is now illegal for insurance companies to turn away people with pre-existing conditions (x). This should be pretty self-explanatory; without this, no insurance company would cover me, which means no medical treatments, which means extreme high pain (and potentially my arthritis going after organs because that’s a thing). Between physically living as well as having any kind of quality of life, my life depends on my treatments.

Staying on my parents’ insurance – You can stay on your parents’ insurance until you are 26, which is especially helpful for anyone who doesn’t have a job right after college, has a job that doesn’t have benefits, or can’t work (x). In my case, right after college, I was working as a teacher in Nashville, and I was able to be on my dad’s insurance so I could see my doctors in Massachusetts. I’ve been able to be on his insurance and will be until I turn 26 in June (which is TERRIFYING at the moment), which has enabled me to see my amazing medical team while I’m in grad school.

Eliminating lifeline and annual limits – Insurance companies can’t put limits on how much they pay for your healthcare per year or your life, which is an actual thing that happened (x)! Like, what?! “Oh, sorry, you were too sick this year. We’re not paying for you any more.” Whether you have a chronic illness or cancer or a car accident, you shouldn’t go into mountains of debt because something bad happened to you. This also goes back to the preexisting conditions conditions thing; if I need surgery or have an ER trip early in the year, that shouldn’t make it so I have to pay the full price of my healthcare for the rest of the year

These are just some of the ways this law has helped me, but they’re the major ones. You probably also noticed that this list doesn’t include getting insurance from the healthcare marketplace; this is because a) I’m still under 26 and have been able to stay on my parents’ insurance and b) there is so much more to this law than the insurance marketplace. A lot of people tend to focus on the marketplace on not always on the other elements of the law.

Advocating in Washington, D. C.

Is the Affordable Care Act Valuable?

The short answer? Yes, it is. It has provided insurance for many people who didn’t have it beforehand and probably saved many people’s lives. Like I said, I’m terrified of what my life would look like without the Affordable Care Act. While I get that many people prefer small government (aka the government staying out of everyone’s business), a big problem with the world is that there are industries and people who care more about making money than helping people. For example, insurance companies don’t want to insure people with preexisting conditions because they will cost more money than someone who has one physical a year and that’s it. In my opinion, the government needs to step in when it comes to situations like that to protect the citizens.

Laws like this are necessary in order to ensure than the average person is protected and doesn’t go into horrific amounts of debt because of our insurance and healthcare system. The United States has one of the highest amounts of medical costs compared to other countries like the UK, France, Australia, etc. (x). I know I’ve said this several times in this post, but it bears repeating: you shouldn’t go into hundreds of thousands of dollars of debt so you can survive. That shouldn’t happen.

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Kate the (Almost) Great | Boston Lifestyle Blog - The Deadly Consequences of Incorrect Healthcare Reform - Kate the (Almost) Great | Boston Lifestyle Blog says:
    September 15, 2017 at 8:00 am

    […] what the ACA does and doesn’t allow, and where the failings are. I’ve talked abut how the ACA is valuable to me and my situation, and I’ve mentioned extensively on social media how certain protections provided by the ACA […]

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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