A question that I get asked a lot is how to help someone who has a chronic illness. There’s only so much that a loved one can do, but a big way to help is by watching how you speak about their illness.
If you have a chronic illness, you’ve probably heard some crazy things. The most common is usually, “Have you tried [insert random natural treatment that will supposedly fix all ills]?” But we have heard plenty of other things, too. I turned to social media to ask what ridiculous things a healthy person has said to us people with chronic illnesses. Whether you laugh, cry, or somewhere in between, I hope that this post is informative to those of you healthy people and makes you spoonies out there feel a little less alone. And, whatever you do, by avoiding saying these things, you will help someone who has chronic illness.
I have included the first names of people who submitted them to me, and I’ve also included their handle/social media network. If you were featured and did not indicate that you want to remain anonymous, but would like to be, just let me know and I’ll change it.
- “Everybody feels pain, Victoria” – Victoria (@povertyluxe on Twitter)
- “You’re sick again?” – Mommah
- “Aren’t you tired of always being sick?” – Mommah
- “How’d you get that” (implying I’m done something wrong in my life to become sick) – Megan (@chronicRAlly on Twitter)
- “If you take [said supplement] you will be HEALED I PROMISE. It worked for my coworker’s cousin’s husband” – Megan (@chronicRAlly)
- “These are supposed to be the best years of your life” Thanks. That’s a great thing to say to my former 31 year old dysautonomic self – Melanie Elizabeth (on Twitter @MelBeth_D)
- “You don’t have arthritis, your energy is just out of alignment” – (@KitSpy on Twitter)
- “I know what you’re saying about your condition, but I’ve been going all day and haven’t stopped” (Do you have to work with fibro?) – Melanie Elizabeth
- “‘Well, I take more pills than that every day, so you’ll be fine.’ Yes, grandma, and you’re 73 and I’m 23.” – Natasha (@nrulason on Twitter)
- “You’re young! It can’t be that bad.” – Natasha @nrulason
- “Why are you so tired? It’s not like you do anything around here” – Karl Austin (@Porkchop275 on Twitter)
- “People think it’s so funny to call me a grandma or old because some days I can barely sit without intense pain. Or I’ve had people say it’s impossible that I have arthritis at 29. Right. Ugh!” – Shelby
- “‘Maybe it’s only bad because you’re depressed.’ I said, ‘The only time I get upset is when people say dumb shit like that.'” – Elizabeth April (@elizabethadrina on Twitter)
- “‘Oh … did you know that it’s curable?’ Um. First off it’s not. Second off don’t diminish my pain and say I could get over it if I tried. Don’t you think I would if I could?” – Amy Jo
- “My insurance case manager basically told me to be glad I didn’t have cancer as he denied my claim. Helpful.” – Sarah (@sarahsmosaic on Twitter)
- “When I went vegan, all my symptoms like that went away so clearly you haven’t tried everything.” – @spoonbirb (on Tumblr)
- “Maybe you should just go to bed earlier” – Ashley (@ohiwannabakecookiesonyourstomach on Tumblr)
- “My son is chronically ill with arthritis (he was diagnosed at 11). Some days are very painful for him. The comments we have received have ranged from “Maybe he should just exercise and get in shape so he can be stronger” to “My nephew has arthritis, too. His is so much worse. he hurts all over.” For the record – my son hurts all over all the time, too. And, he cannot “get in shape” because we are trying to save his joints as long as possible – he is 21 and they don’t want him to do repetitive things for fear of wearing out his knees, shoulders, etc. The longer we can delay joint replacement the better. I’ve also had someone ask whether his illness is a result of my drug use during pregnancy – I have NEVER used drugs!” – Anonymous
- “You’re using your pain as an excuse to be lazy, not work, & do nothing around the house.'” – Tamika (@jelover9 on Twitter)
- “Well my mother has fibro, moves through the pain beautifully, doesn’t complain on social media, & is useful.” – Tamika
- “One of the most ridiculous thing I’ve been told about my juvenile arthritis (which I’ve had since childhood!) is that my cats (which I had only had for 2 years at the time) were the cause of my illness so I should get rid of them!” – Heather
- “But you must get some good drugs!! Maybe you could share them <wink wink>?” – Anna (@sixhips on Twitter)
- “Also told that I was “lucky” I was prescribed Oxycontin for my last surgery… And also that I should sell them” – Anna
- “‘a girl at work has ms & she still manages to show up….’ & ‘at least it’s not cancer’ – Sarah (@SarahFrisonHC on Twitter)
- “Being at Walmart on one of the motorized carts & a lady said “you might actually need that one day.”” – Bai (@baileeynoel on Twitter)
- “I think most of them start with ‘well, why can’t you just ….'” – Sarah
- ” I hear it’s come a long way, or there’s a lot they can do for that now” – Bridget http://brideythebride.blogspot.com/
- “I was having a good day (yay) and a lady I worked with said ‘you’re very energetic, I thought you were meant to be tired all the time’.” – Beth
- “Oh, but can’t you just have surgery?” – Hollie
- “You need to do yoga/move around a lot more than you do/sit as still as possible/have acupuncture/see a chiropractor/see this practitioner/lose weight/try this method of treatment…” – Hollie
- “A GP (PCP) once told me “young people don’t have more than one thing wrong with them”, so I politely asked him to take a look at my records” – Zoe Clark
- “Before I was diagnosed one of my GP’s told me fainting was normal, then in the next sentence said it was caused by anxiety, he also told me my joint pain and dislocations were just anxiety… (I have POTS and EDS by the way!)” – Anon
- “Seeing a specialist about my hands dislocating when I try to do anything she said ‘I cant feel anything wrong. Anyway when there’s this much wrong there’s not much we can do about it’ that’s the point when I realised she had very little idea what she was looking at/ what was happening and asked for a second opinion!” – Anon
- “I think you are just faking all this to get attention. You look healthy to me.” – Haley
Aren’t these crazy? Thank you to everyone who submitted theirs! And remember: these things hurt the people who heard them, so help someone who has a chronic illness by avoiding these things.
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