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in Health, Uncategorized &middot December 8, 2014

Surviving The Holidays with Chronic Illness

Regardless of your religion, family situation, or personal life, December through New Year’s tends to be a stressful and busy time of year – even if the only stress you feel is caught from the stress of others around you! When you have chronic illness and/or chronic pain, this can mean disaster for your health. Here are my tips for surviving the holidays while you’re dealing with chronic pain or illness.

Dealing with Chronic Pain: Holidays

DON’T stubbornly tell yourself, “Well, I’m determined to do X, so I’m just going to do it! Screw you, body!” Trust me. That unfortunately doesn’t work, and it really just hurts you in the short term and long term.

DO think of your body and its abilities like a bank account and budget it (remember spoon theory?). You only have so many spoons in your drawer. Really want to go to one event? Try to save your spoons that day so you can go. But …

DON’T beat yourself if you’re still unable to. You’re doing your best!

DO find comfortable outfits for your events. It can mean the difference between enjoying it and being miserable.

DON’T overschedule yourself. Just don’t do it.

DO make sure you’re still able to do the self-care that’s necessary. For example, I have to do yoga and go for a walk every day. Without it, my pain can rise even higher.

What do you do that helps or hurts you during the holidays?

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Previous Post: « Gift Guide: Spoonie
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Comments

  1. Kenji is Here says

    December 8, 2014 at 4:07 pm

    I'm still trying to figure this all out. Had a crazy booked weekend and I've been paying for it for two days now.. still learning.

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  2. Helene in Between says

    December 8, 2014 at 5:06 pm

    I would think keeping yourself in check is the most important! hope you're doing okay!

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  3. Suburban prep says

    December 8, 2014 at 5:29 pm

    Even during the holidays there are things that are out of your control (ie a death in the family and a young child undergoing a very serious heart surgery). the best thing to do is not put the pressure on yourself to create the idealistic scene of what the holiday should be or as you think you remember from your childhood. Make the holidays your own.
    I love to be able to sleep late, I make sure that I am drinking enough water and I also take supplements. Every once in a while I will take an ibuprofen but not much more than that. Try not to over indulge with the sugar as it can turn on you.

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  4. Kati Rose says

    December 8, 2014 at 7:04 pm

    I recently got diagnosed with a thyroid disorder and it's biggest toll has been heavy exhaustion. This holiday season is so busy and hectic and I've really had to learn to prioritize and pick what's most important to me. I can't do everything like I used to and I have to take time for myself. Glad to hear you're keeping yourself mobile with yoga and daily walks to keep the pain down! It would be hard to enjoy the holiday season with too much pain!

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  5. Amanda Lynn says

    December 9, 2014 at 2:51 am

    Great dos and donts! I make this huge list for myself and then realize I can't do it at all and just end up on the couch! And I wear comfort clothing all the time because others don't feel my leg pain or know I am not wearing any socks because its way too hot!

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  6. Sarah @ Seriously, Sarah? says

    December 9, 2014 at 9:44 pm

    Not over-scheduling is key! It is hard not to get down on myself because I have to turn down a lot of invitations–it's just the timing of my Botox shots this year–but I know that getting upset only contributes to my pain!

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There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
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Week 22 of 2026 Weekly 1️⃣ Off to see my foot doc Week 22 of 2026 Weekly

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While these are not my treatments, they have made my life better in some ways. ⁣
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What lifestyle changes have you made, for RA or another condition?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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A series of pictures. Each has a text box on them related to the picture. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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