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in Health &middot September 18, 2015

Take Action: Email the CDC

It has come to my attention that the CDC is discussing the adoption of new guidelines for prescribing opioids for chronic pain patients. Adopting these guidelines could hurt many patients who suffer enough already. The CDC is accepting written comments until September 18, 2015 at 5 PM EST. Pain News Network explained the guidelines and some of the responses to them, and I advise reading about them. If you would like to contact the CDC to comment, you can email opioidcomments@cdc.gov. If you do not know what exactly to say, you can use the following form that I came up with – just replace the bracketed sections with your information. I also suggest reaching out to your representatives in congress and letting them know about your concerns.

Email The CDC

To whom it may concern:

My name is [___] and I understand that you are considering new guidelines on prescribing opioid medications. While I understand the concern of patients becoming addicted, these restrictions could pose a real problem for patients. According to the NIH, only 5% of patients on opioid medication for more than a year become addicted. Please consider the 95% who could suffer significantly because of these guidelines.

Before I explain my position, let me say a little about who I am and why I care. [___] Because of this, I feel quite strongly about this issue. Here are the problems I have with the new guidelines.

  1. It often takes weeks, if not months, for non-pharmacological therapy (and especially non-opioid therapy) to reduce pain to the point where a patient who might need opioids does not any more. This especially applies to patients who have permanent damage to their bodies from illnesses or injuries. It’s difficult to get through life in the meantime, let alone go to work or school. In my experience, it is difficult to [___] without a medication, let alone opioids. Not having [___] would mean that I couldn’t [___].
  2. Many patients simply want to live without experiencing excruciating pain. What if they do not experience improvement in their general health while on opioids, but they at least do not live in complete misery? Is it more important to you that someone doesn’t take opioids than if they are unable to do anything other than lie in bed because they are in too much pain?
  3. Short-acting opioids simply mean that many patients will have to take more pills to get through a tough pain period. That seems a little contradictory to your goals.
  4. Anyone who is convinced that the majority of patients with acute chronic pain not related to trauma or surgery will have significantly reduced pain in 3 or fewer days has never experienced extreme acute pain. And if that patient has an underlying health issue that causes that acute pain, such as autoimmune arthritis, it will definitely not be solved in 3 days. In my experience, [___].

Overall, I have a question for you: why are you treating chronic pain patients like drug addicts? In the name of preventing addiction and overdose, people with severe legitimate pain are paying the price. [We/They] already suffer enough – why is the government trying to make [our/their] lives even more difficult?

Sincerely,

[___]

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. The Best of Kate the (Almost) Great in 2015 - Kate the (Almost) Great says:
    December 30, 2015 at 8:01 am

    […] Take Action: Email the CDC – In this post, I explain how the CDC is making life even more difficult for the 95% of chronic pain patients who are prescribed narcotic pain medications but do not become addicted to them. […]

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July is: ⁣ - Disability Pride Month ⁣ - Juvenile A July is: ⁣
- Disability Pride Month ⁣
- Juvenile Arthritis Awareness Month ⁣
- the anniversary of when I was diagnosed with autoimmune arthritis at age 19 after 9 years of symptoms ⁣
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As you can imagine, that makes me very aware of my disability via juvenile arthritis⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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There are a lot of reasons why you shouldn't doubt There are a lot of reasons why you shouldn't doubt someone's chronic illness, but this is one of them. ⁣
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I'm always amazed by how people can have the exact same illness or set of illnesses and still have different experiences. Sure, there will be similarities, but which symptoms are the worst, what medications you respond to, and your quality of life can vary significantly. ⁣
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It doesn't mean that one person is necessarily worse off than another; they're just different.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie. A white text box reads "Chronic Illness Looks Different in Each Person"⁣
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This basically sums up my summer so far: Harley, a This basically sums up my summer so far: Harley, a sewing project, and my foot in a cast⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Harley the golden retriever has his head on Kate's lap. Also on her lap is an in-progress needlepoint project and Kate's leg (in a walking cast) is elevated.⁣
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Week 28 of 2026 Weekly A very busy week! 1️⃣ Foo Week 28 of 2026 Weekly

A very busy week!

1️⃣ Foot checkup! Walking boot is on occasionally from now until September 
2️⃣ Boston 
3️⃣ IVIG
4️⃣ Dentist 🦷 All good! 
5️⃣ Not a filter - this was the Boston area the second half of the week 
6️⃣ Physical time!

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ Kate takes a selfie in a doctor’s office
2️⃣ Looking at TD Garden, the bear statue for the Bruins, and Zakim Bridge in the background 
3️⃣ Looking at tubes coming out from under Kate’s clothes. There’s a Kindle on her stomach
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Video: Kate talks to the camera while putting on makeup. There are captions. 

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(Delayed because last Sunday was baaaaad)

1️⃣ Due airport difficulties, we got a few more days with Emma. Harley was THRILLED!
2️⃣ Beautiful bird/squirrel visitors
3️⃣ A beautiful Maine summer day

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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1️⃣ Harley the golden retriever putting his front legs up on Emma’s legs to demand hugs.
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Reminder: you can be proud of your disability comm Reminder: you can be proud of your disability community while wishing your body cooperated more⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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I don’t know the exact date of my RA diagnosis, bu I don’t know the exact date of my RA diagnosis, but this is from right around then in July 2010. ⁣
⁣
When I was diagnosed, I had been having symptoms for 9 years. ⁣
- 9 years of foot pain (partially from tarsal coalition)⁣
- Arthritic damage in said food⁣
- Carpal tunnel off and on for several years⁣
- And more⁣
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I was finally diagnosed because I woke up one morning and was unable to open my jaw more than 8 mm. It turned out that I had horrible arthritic damage to my TMJs, which got me off the waiting list at MGH rheumatology. I left that appointment with an autoimmune arthritis diagnosis. ⁣
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The fact that July is not only my diagnosis anniversary but also Juvenile Arthritis Awareness Month has always seemed right. I may not have been diagnosed with JA, but given the amount of arthritis I had along with my many years of symptoms, it's generally accepted that I had it. ⁣
⁣
This year marks 16 years since diagnosis and this fall marks 25 years since my symptoms started. It's pretty weird that so much time has already passed!⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate at 19 at Fenway Park for a Red Sox game. ⁣
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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
⁣
⁣⁣⬛⁣⁣⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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