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in Health &middot May 17, 2017

The Cost of Chronic Illness and How To Make It Easier + Giveaway

I’ve talked before about the different ways that chronic illness can affect your life. It affects your relationships, your education, and your life in general. But one massive way it can affect your life is through your finances. Being chronically ill isn’t cheap by any means, but so many people are unaware of the lengths to which it affects lives. Here is what exactly the cost of chronic illness is and what you can do to reduce it, including grants you can apply for to help you cover some of the costs. Plus, scroll down and you can enter to win a $50 Amazon gift card!

This is a sponsored post. All opinions are, as always, my own. Learn more here.

Whether you're new to the chronic illness life or you've been here for a while already, you probably know that it's expensive to be chronically ill. Here's a look at how expensive it can get PLUS some tips on things you can do to reduce the cost as much as possible.

Cost of Chronic Illness

Think about this: if you have two specialist appointments a month with a co-pay of $30 each, four prescriptions a month at $15 each, twelve physical therapy appointments a year with a co-pay of $30 each, two ER trips a year at $100 each, then you’re spending an extra $2,000 a year. Oh – and those figures are low. I have at least 2 medical appointments a week and I take 10+ medications that are usually over $15 each, so my annual cost is higher than that.

And let’s not think about gas costs to go to all these appointments or any appointments that aren’t covered by your insurance or if you needed a procedure. When I was in high school, we were trying to figure out what was up with my health. I spent a lot of time traveling to different medical appointments across New England. I lived in Maine and we usually were going to Boston, which is a 2 hour drive one way. The gas for those appointments couldn’t have been cheap. And then you have to remember that we were traveling within a close enough distance that we could go home and didn’t need to stay overnight in a hotel after, but some people might not be so lucky. Gas and a hotel could come up to a couple hundred extra dollar per appointment.

Maybe these figures seems like they doesn’t matter. But do you have an extra two grand for medical costs a year? I hope so because that’s still a low amount. And this is all with insurance. If you are able to work – remember how I’m not? Thank goodness I’m able to stay on my dad’s insurance because I’m disabled – then the insurance comes out of your paycheck. When I worked, I had to have extra deductions made from my paycheck because I didn’t just need regular health insurance; I also needed disability insurance in case something happened and I had to leave work for a period of time.

Want to save money? Sorry. Want to invest money for your future? Too bad. Want to travel to visit family for the holidays? Not happening. Want to make ends meet? You might not be able to.
More than likely, you’ve probably heard that money problems can causes problems in relationships of any kind. So maybe this will cause strife in your life. Or maybe the pain will.

Being chronically ill can be expensive, so here are some things you can do to make it a little bit easier.

What You Can Do To Reduce the Cost

Reimbursement plan – Some insurance plans will reimburse you for some of your medical costs, so check and see if yours has something like that.

Receipts for tax refund – Keep your receipts! When you file your taxes, add up your medical costs and they can usually help you get a higher refund.

Shop around for insurance plan – When it comes to selecting the right insurance plan, do as much research as possible. Usually, when it comes to getting insurance through your employer, you don’t get a chance of which company to through. But you do generally get to select the type of plan! Before you choose a plan, do as much research as you possibly can so you can make the best educated decision. If you are self-employed and are choosing your plan on your own, again, do as much research as possible!

If you are a parent of a chronically ill child, apply for a United Healthcare Children’s Fund grant – If you’re in the US and have a child who is 16 or younger and receives medical care in the US, you can apply for a grant to help cover costs! United Healthcare Children’s Fund is looking to award 20,000 grants by the year 2020, and 88.9% of qualified, completed medical grant applications are approved. The grants are retroactive to 60 days prior to the grand application and apply for 1 year (unless the price of the grant is reached before that). You do need to be covered by a commercial health plan, but like I said, the cost of medical expenses even with insurance is so high that the money can make a huge difference. There is a scale of financial eligibility to qualify for a medical grant, and awards will not be granted to individuals in families who do not meet that financial eligibility. The health care professional is paid directly, but exceptions can be made to reimburse the family if documentation is submitted that shows that the health care professional was paid. Here is what you need to apply for a grant. Apply for a grant here!

Amazing Gift Card Giveaway

I’ve partnered with UHCCF to help you win a $50 Amazon gift card! All you need to do is share the post. The giveaway is open until 11:59 PM EST on June 30, and it is only open to US citizens who are 18 or older.

a Rafflecopter giveaway

Like this post? Check out:

So You Were Diagnosed with a Chronic Illness: What You Should Do Next, Dating with a Chronic Illness, Why the Traditional Pain Scale Needs To Go, Why the Traditional Pain Scale Needs To Go

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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    June 17, 2017 at 1:06 pm

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Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
Week 22 of 2026 Weekly 1️⃣ Off to see my foot doc Week 22 of 2026 Weekly

1️⃣ Off to see my foot doc … and my foot is healing! Yay!
2️⃣ A very cool notification to get!
3️⃣ This is 35 🎂
4️⃣ Featuring Harley snuggles 
5️⃣ And then it was my mom’s birthday! 
6️⃣ With Harley again 

ID: 
1️⃣ Kate takes a mirror selfie 
2️⃣ a notification from WordPress saying “Receive views from 150+ counties. The United Nations has nothing on you!”
3️⃣ Kate smiles for the camera in a cafe 
4️⃣ Kate in the same outfit with Harley the golden retriever on her lap. 
5️⃣ Kate’s mom smiling in a restaurant 
6️⃣ Kate with Harley again 

#GoldenRetrieversOfInstagram #ChronicallyIll #ChronicPain #InvisibleIllness
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