One of my biggest issues with medical appointments as a chronic illness patient is the traditional pain scale, aka, “How much pain are you in out of 10?” I’m not the only one who feels this way – Hyperbole and a Half has an AMAZING post about this – and I’ve even had medical professionals tell me that they aren’t happy with it. Here’s why, and some ideas of where we can go from here..
The scale doesn’t feel accurate – Assigning numbers to my pain doesn’t provide a good description of it. Adjectives are a much better fit since there are different types of pain that could be the same number. For example, one day my pain could be a 6/10 and be dull and achy but the next day it could be a 6/10 and be burning and stinging. In both cases, I strongly believe a 6 is the right number, but the pain is very different. How can those numbers be accurate, then?
What the numeric values mean varies from person to person – We haven’t all experienced the same things, so we can’t all imagine the same type of pain and what of that would be a 10 (or any other number in the scale). Some hospitals or medical offices have descriptive words or phrases with the faces of an out-of-10 pain scale, but even then I’ve seen different descriptions for the same number. In some places, “mild pain” might be a 4, but in others, it’s a 2. And there’s no way that we can verify that everyone’s numbers are actually all equal with one another, which further shows that there isn’t much purpose in using the standard scales if they’re not actually standard.
The meaning of the numbers can change over time – What would have been my 10/10 when I was 10 is probably my 6 now that I’ve experienced have major surgery and no pain meds in my system (that’s a story I told here, so I’m not going to get into it now). Trust me, you can’t imagine the pain of having a 4″ screw go through your ankle unless you’ve experienced something similar. So if you’re an adult and you’ve never experienced a severe pain like that, how can you really know what your pain is? You have an idea of what’s a 10, but you’re just imagining. For the record, this is not meant to say that you don’t understand pain, just that your understand of what a 10 is is more imagining what that would be like than having concrete knowledge.
Different types of pain can be the same number – This goes back to using adjectives to describe pain. My pain might be a 6/10 and be achy or burning or stinging or whatever (you get the idea). But when describing my pain in each of these situations, I would without a doubt label them all a 6/10. These different situations generally mean different types of things are causing the pain, but it doesn’t change the fact that a doctor would ask me what number I would assign to my pain first and foremost. I’ve had some doctors then ask me to describe the pain, but others leave it at a number.
So where do we go from here? We need to decide on a new pain scale, and maybe that means taking elements of the current scale and expanding on those. For example, like I mentioned, in some places, there are descriptive phrases that go along with the numbers, such as “mild,” “unable to ignore,” and “can’t do anything.” Maybe we should create a new scale that is entirely made of phrases like this instead of using numbers. Or maybe we keep the numbers and just add descriptors that are standardized at every medical office. While we decide what will replace those annoying numbers alone, enjoy Hyperbole and a Half’s scale, which includes descriptors such as “mauled by a bear” (everyone should go read that post just because it’s amazing).
What do you think a new pain scale should include?