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in Writing & Blogging &middot August 1, 2016

Why I Can’t Stop Journaling

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in Writing & Blogging &middot August 1, 2016

Why I Can’t Stop Journaling

Why I Can’t Stop Journaling

Why I Can't Stop Journaling.

If I stopped carrying my journal everywhere with me, I would lose a quintessential part of myself. My friends can tell you that I always carry my journal with me; and if it’s not in my hand, it’s likely in my book-bag.

If I stopped carrying my journal with me, I would lose a quintessential part of myself.

I’ve been thinking lately about why I carry my journal with me–many may say this was a silly habit; and I might agree with them occasionally, as often it’s only adding weight, and doesn’t prove necessary, or useful.

It may be silly–I go for days without writing at all, weeks without writing a single word that I’ll care about later, but in a few years I won’t remember what I wrote, and then I can go back through my journals and laugh about it all, and remember things I never would have remembered without them. I can do that even now–my first journal I started when I was 9, and it has the most atrocious spelling. (I think that was the year I began doing spelling in school. I needed the help.) Well, that tiny little journal didn’t get finished until I was 13. After that my journals have gotten progressively larger, and have been finished much faster.

Now, there is much to say for writing as I am now, of course–this is writing for others, as well as writing for yourself. This can be recipes or explanations on how to do things, encouragement, asking or offering help with problems, all many of things…

But a journal. There is something uniquely personal about a journal. No other writing is quite as private as what you write between those covers. What you write there is for you, and you only.

No matter how much writing online I do, between blogging, school, and creative writing, I cannot let go of my pen and paper. I spill my secrets there–I write down memories that make me smile, or even cringe. I jot down ideas for stories, or novels, and lists of things I need to do; I’ve cried on these pages when I’ve felt hopeless, laughed when writing down funny experiences, drawn with my nieces and nephews, planned out my future over and over again, never the same way, written out problems and found solutions, copied quotes from lots and lots of favorite books, pressed petals in the pages, and misspelled many an odd word.

And I have thought about leaving it, but I know I would return to these pages. Even as I lapse and leave these pages untouched time and time again, I still continuously carry them with me, knowing I’ll return. Because there’s something in my nature that will always return to the pen and the paper. I want the familiar smell and feel of home–of books.

There's something in my nature that will always return to the pen and paper

I know now that I can’t stop journaling. Some days I feel like it, because I open up my journal to write down a quote and realize I haven’t written in weeks, and wonder why I bother?

But you see–these blank books, as I fill them and put them away for the future, they remind me of home. Of family. Of experiences. Of places I may never see, and things I may never do again. Of my favorite books, and books I’ve forgotten. Of my best days, and my worst days. It gives me a place to come back to, even when I’m far away, or when the weight of the world seems to be on my shoulders, or anxiety is the only thing that seems to fit in my heart. I come back to these pages, and there I spill. I ‘fess. I open up my heart and scribble as much as I wish– plans, goals, hope, love, praise, pain; leaving my worries and fears on the page mixed with tears and ink blots.

That’s why I carry my journal with me. I couldn’t leave it at home any more than I could leave my heart; I’ve had this ‘silly habit’ for so long now that journaling is as much a part of me as my right hand. I go out the door, and automatically slip my current journal in my purse. I go on a trip, and jot down what I see, what I hear, what I taste. I stay home, and write about how we just got a new puppy, or that we blew off school and went sledding onto our pond instead. I despair about ever having a day without a headache, and have a place to go and tell of my pain, and how it hurts too much to hope anymore. . . and then I’ll look back, and this same journal that lets me despair also cheers me up, because on that page from way back when, there’s a drawing from my precious niece, or a note from my friend, or a quote from Jane Austen.

Journaling is one thing that I know I’ll leave again and again, I’ll forgot. . . but I also know that it’s one thing I’ll always come back to. No one can say it quite as well as Kafka:

Kafka Quote

That’s why I journal. Do you journal as well? Tell me, why do you journal?

Untitled design(1)

Amalia is a home school senior who blogs at SecondBreakfast.us about reading and writing, life on a small farm in Nebraska, photography, food, and her ongoing struggle with Chronic Daily Headaches.

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Previous Post: « Living with Arthritis: My Goals for a Positive and Happy Life
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  1. Erin_Unsophisticated Blogger says

    August 1, 2016 at 10:30 am

    I love this! I have always journaled as well, although I don’t carry one with me on a regular basis. I too will go days, weeks, sometimes months without writing anything down, but I don’t ever question why I do. I’ve only kept a few journals from the years that I’ve been writing, but I love looking back on them to see how I’ve changed and grown. My favorite is looking back and reading how passionate I was about past relationships.

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

⬛⁣⁣⁣

IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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⬛⁣⁣⁣⁣⁣⁣⁣⁣⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

⬛⁣⁣⁣⁣⁣⁣⁣⁣

I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

⬛⁣

IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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