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in Health &middot October 19, 2018

Chronic Illness and Mental Health

Having a chronic illness can impact so many aspects of your life other than your health. It can impact your relationships, your finances, your self-esteem, and more. And that includes your mental health. As someone who has been in pain since fall 2001, I can confirm that chronic illnesses can do a number on your mental health. I personally had a bout of depression in high school when doctors kept telling me that nothing was wrong with me. (They were all wrong.) So I thought that today I would break down the connection between chronic illness and mental health, as well as some ways that you can help your mental health.

For the purpose of clarity, in this post, when I mention chronic illness, I’m discussing physical illnesses only. Mental illness can definitely be considered a chronic illness, especially when it lasts for years. But in this particular post, I want to discuss physical chronic illness and mental health, which can include mental illness.

I am not a medical professional. I have included advice from mental professionals and reputable sources, but if you are struggling with your mental health, please speak to a professional.

Do you or someone you care about have a chronic illness? Then you need to be on the look out for its impact on mental health. Chronic illness and mental health need to be considered when thinking about living with a chronic illness. Here's what you need to know.

Who Has a Chronic Illness?

First and foremost, let’s talk about what a chronic illness is and who has them. Chronic illnesses “are ongoing, generally incurable illnesses or conditions, such as heart disease, asthma, cancer, and diabetes” (x). Essentially, because there’s no cure and no reason to think they’ll ever go away, they’re chronic illnesses. This is different from a condition like a bone deformity, which would be a chronic condition. For example, my ankle condition is a chronic condition, as my ankle didn’t form correctly it isn’t healthy, but it’s not an illness that needs regular maintenance like my rheumatoid arthritis is.

Who has a chronic illness? 133 million Americans, or 40%, have a chronic illness, and that number is estimated to grow to 157 million by 2020 (x). Almost a third of the population lives with multiple chronic conditions (x).

What’s the impact? In 2009, 7 of 10 deaths in the US were due to chronic illnesses (x). Sadly, “According to the New England Journal of Medicine, people with chronic conditions receive only 56% of recommended preventive health care services,” which definitely attributes to those deaths (x). And there’s an economic effect. In 2007, chronic illness had a $1.3 trillion negative effect on the economy (x). Additionally, ” In the U.S., total spending on public and private health care amounted to approximately $2 trillion during 2005″ (x). I include all this to demonstrate something that healthy people don’t often think about when it comes to chronic illness: chronic illness can impact areas of your life other than physical health.

chronic illness and mental health, chronic illness, chronic pain, impact of chronic pain, mental illness, cost of chronic illness

Imagine that you have an illness that will never go away. In addition, it costs thousands of dollars a year, and you may or may not have that money to spare. You also have to spend too much time at doctor’s offices, which might make your job unhappy with you. That is, if you’re healthy enough to work. Your family and friends may or may not stick by you in your illness, and if they do stick by you, they might not be very nice to you about it.

As you have probably figured, that doesn’t set you up for very good mental health. Even if you don’t develop a mental illness, you will definitely have times when you’re down in the dumps, sad about your health, frustrated with the world, anxious about your future, and more.

I know, I know, this all seems fine and dandy and hypothetical. So don’t take my word for you. A 2000 study found that “The emotional dimensions of chronic conditions are often overlooked when medical care is considered” (x). Basically, “Doctors may be well equipped for the biomedical aspects of care but not for the challenges of understanding the psychological, social, and cultural dimensions of illness and health” (x). So when doctors give help for physical problems, they might not be able to provide support for the effects of those physical problems. But as I already mentioned, having a chronic illness most likely will cause some sort of mental health problems over the course of a patient’s life.

In fact, the National Institute of Mental Health found that “People with other chronic medical conditions have a higher risk of depression” (x). Depending on the illness, some illnesses can cause changes in the brain that lead directly to depression (x). Some other ways that this might happen include depression triggered by illness-related anxiety and stress, a recent illness diagnosis, or even from medications (x). Frustratingly, “Research suggests that people who have depression and another medical illness tend to have more severe symptoms of both illnesses” (x).

The gist of it is that chronic illness is a risk factor for mental illness, along with family history, traumatic experiences, stressful life experiences (which chronic illness could be included in), using illegal drugs, and lack of social support (x). Because of this, it’s important that we chronic illness patients and the loved ones of patients take care of our mental health, whether or not we have a mental illness.

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

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How To Manage Chronic Illness and Mental Health

Now that we’ve established that this is a problem we chronic illness patients needs to be aware of, let’s talk about how to deal with and manage it.

First and foremost, if you can afford it, see a therapist. If you’ve recently been diagnosed, it can’t hurt to see one to help process your feelings as you adjust to your diagnosis and new life. If you are in school, your student health services might provide counseling. You should also try therapy if you’re going through a rough patch health-wise or you feel like you’re starting to struggle mentally with everything. Basically, therapy is great. I went back to therapy when Trump won because my generalized anxiety disorder flared up due to his anti-ACA leanings. It has gotten a lot better, but I’m still seeing my therapist to help manage the mental aspect of all of my physical health issues. Because I have generalized anxiety disorder and a history of depressive episodes, it’s so important for me to be on top of my mental health. I share this so you know that I’m speaking from experience when it comes to mental health. chronic illness and therapy.

Other than therapy, how else can you manage your mental health with your chronic illness? Psychology Today says that some ways are to surround yourself with people who support and care for you, practice being aware of gratitude, mindfulness, exercise in some way, eat healthy, take breaks, and get sleep (x). The University of Michigan also suggests you avoid or reduce alcohol or drugs, set realistic goals, and learn to deal with stress (x). A UK organization called Mental Health Foundation suggests that you also stay in touch with friends and family that are far away, ask for help when you need it, do things you’re good at in your spare time, and accept who you are (x). These are things to do every day, to help take care of your mental health.

10 Simple Self-Care Methods That Will Improve Your Life

What about if you’re worried that you’ve developed a mental illness? Mental Health America has this amazing list of signs of mental illness in adults, children, and adolescents. Let’s say that you’ve taken a look at the list and are pretty sure that you have a mental illness. In this case, you should see your primary care doctor and/or a therapist to help you navigate this. You shouldn’t have to navigate mental illness on your own. If your insurance covers it and/or you can afford it, see a professional.

Some people need medication for their mental illness. And that’s okay! I need medication for my rheumatoid arthritis, so why shouldn’t I need medication for my generalized anxiety disorder? If your medical professional(s) suggest you try medication and you can afford it, then I suggest you try it. It’s important to recognize that mental illness is an imbalance of chemicals in the brain. It’s not your fault if you struggle with mental illness, and you’re not weak if you ask for help or take medication for it.

But if you’re looking for professional help with mental health, you should know that psychology and psychiatry are different. “Psychiatrists receive the same medical school education as any other medical doctor, such as an internal medicine physician or a pediatrician and, therefore, hold a doctor of medicine degree (M.D.),” Psychology Today says (x). “Psychiatrists are also responsible for diagnosing mental disorders and managing medications, as their expertise focuses on the chemical imbalances within the brain. Similar to any other physician, they can write prescriptions,” which psychologists can’t (x). More specifically, “Psychologists do not attend medical school; rather they attend graduate school and obtain a doctoral degree” (x). When you think about a therapist, you’re generally thinking about a psychologist, as “Psychologists are experts in providing psychosocial therapy and concentrate on the patient’s mind and emotions” (x).

Essentially, if you think that you might need to take medication, you want to see a psychiatrist. If you don’t think you need medication and/or just want someone to talk through things, you want to see a psychologist. Psychology Today has a tool to help you find a therapist right on their website, and many insurance companies have tools on their sites for policy holders to help their find covered medical professionals. Take advantage of that!

How do you deal with chronic illness and mental health?

Like this post? Check out:

Is Chronic Illness a Disability?, Chronically Ill Tips: Preparing for Medical Appointments, Hacks for Living with Chronic Conditions, The Art of Managing Anxiety

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Lydia says

    January 6, 2020 at 8:29 am

    What a well organized post. I enjoyed reading it. And, yeah, there is absolutely no shame in taking medications for mental illnesses. It truly is no different than taking insulin if you have diabetes or antibiotics for an infection.

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Dos and don'ts for when someone in your life is di Dos and don'ts for when someone in your life is diagnosed with autoimmune arthritis! What are some that you would add?⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: "So someone you know was diagnosed with Autoimmune Arthritis". Under the Do column (indicated with a green checkmark) is:⁣
"As how they feel about it⁣
Offer specific ways to help⁣
Treat them normally⁣
Ask follow-up questions⁣
Wear a mask around them when sick."⁣
Under the don't don't column (indicated with an x in a red circle) is:⁣
"Say “At least it’s not xyz!”⁣
Say that and not follow through⁣
Assume nothing about their lives has changed⁣
Conflate autoimmune arthritis with osteoarthritis⁣
Pass your cold to an immunosuppressed person".⁣
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#AutoimmuneDisease #RheumatoidArthritis #PsoriaticArthritis #AnkylosingSpondylitis #JuvenileArthritis
Weekj 26 of 2026 Weekly Scenes of a summer week Weekj 26 of 2026 Weekly 

Scenes of a summer week in Maine! So glad I work from home, which means I can work from my real home (Maine, if that wasn’t clear)

1️⃣ Lots of Harley time
2️⃣ Working from home means saving my PTO for fun things!
3️⃣ Lots of duck families (📸 my dad)
4️⃣ What a lot of my days look like - Harley and my current project (needlepoint). And, yes, I’m still in a cast.
5️⃣ Learned how to play Mahjong, which my parents love
6️⃣ Lake views on the 4th

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs:
1️⃣ Harley the golden retriever on a deck as seen through some plants
2️⃣ Kate takes a selfie
3️⃣ A duck with little ducklings following on a lake
4️⃣ Harley coming up to Kate. Her legs are out on an ottoman, 1 foot in a walking cast, and an in-progress needlepoint project
5️⃣ Looking down at a Mahjong table with the game set up
6️⃣ A kayak on the shore of a lake 

#MaineTheWay #MaineSummer #Needlepoint #MaineLife
Living with chronic pain is really hard. You’re wi Living with chronic pain is really hard. You’re winning every day you’re still here.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: The background image is a lake at sunset. Text reads what's above the first square and also "katethealmostgreat".⁣
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#ChronicIllness #ChronicPain #RheumatoidArthritis #Fibromyalgia #Endometriosis
I've been spending a fair amount of time at my foo I've been spending a fair amount of time at my foot surgeon's office this year, and boy has it been messing with my head. ⁣
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I spent a lot of time from 2001-2010 dealing with my left foot. Long story short, it took until this foot surgeon saw me in 2010 after fixing this foot for me to be diagnosed with rheumatoid arthritis. But I spent those 9 years going from doctor to doctor, having surgery after surgery, trying to figure out what was causing my pain and to fix it. ⁣
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Was it the tarsal coalition? Did I have another chronic health issue? Etc. ⁣
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I spent from age 10 to 19 unsure what exactly was wrong with me and in huge amounts of pain. We thought we figured it out, and then something else happened. ⁣
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We know exactly what is wrong with this foot this time around: in 2024, I got 3 stress fractures, and no one put me in a boot. They almost fully healed before breaking in 2025, and then the same thing happened in 2026. ⁣
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This is a different part of the foot than I used to deal with, but any problems with my feet and especially my left foot messes with me. While this doctor eventually fixed the problems and even got me diagnosed with RA, every time I go back to his office, I have to fight not to become 17 again. ⁣
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PTSD is a bitch.⁣
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(PS - if you want to know why I'm going back to this guy when it messes with me, it's because I don't trust anyone else to fix my foot.)⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Kate takes a selfie in a doctor's office. ⁣
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#PTSDAwareness #ChronicallyIll #TarsalCoalition #RheumatoidArthritis #Osteoporosis
Week 25 of #2026Weekly Happy to be in Maine for Week 25 of #2026Weekly 

Happy to be in Maine for a few weeks! I didn’t get up to a lot, so another week of very few pictures

1️⃣ IVIG 
2️⃣ Lots of beautiful birds have been coming to my mom’s bird feeder!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. Tubes are coming out from under her shirt and there’s a Kindle
2️⃣ Birds arriving at a bird feeder as seen through a window

#ChronicallyIll #InvisibleIllness #ChronicPain #IVIG
What do you have to do every day for your chronic What do you have to do every day for your chronic illnesses? ⁣
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For context, I have rheumatoid arthritis, fibromyalgia, endometriosis, POTS, heart disease, osteoporosis, and more. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: ⁣
Things I Do Every Day for My Chronic Illnesses⁣
Take pills at least 4 times a day⁣
Don’t eat gluten, dairy, corn, soy, or eggs⁣
Sleep 7+ hours a night⁣
Consume 80-100 grams of protein, 120 mg of calcium, 5-10 grams of sodium⁣
Wear a mask whenever I leave the house⁣
Do pilates 4+ days a week⁣
Work from home⁣
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#ChronicallyIll #InvisibleIllness #RheumatoidArthritis #Fibromyalgia
Filmed this back in April (hence the sweater) but Filmed this back in April (hence the sweater) but it applies to whenever I have appointments! 

Video: Kate talks to the camera while holding a purse. She holds up individual items mentioned in the video before putting them in the bag. There are captions. 

#ChronicallyIll #RheumatoidArthritis #Osteoporosis #ChronicPain
There are a lot of medical advancements that I'm g There are a lot of medical advancements that I'm grateful for, but one of them is the ability to do IVIG at home. ⁣
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I'm on IVIG - or, in my case, subcutaneous immunoglobulin replacement therapy - because I have to kill the better part of my immune system. There are, in fact, some parts of my immune system that don't attack me, which is why we add them back in. This helps reduce my chance of serious infection and also made my rheumatologist feel comfortable enough to increase my Rituxan dose. ⁣
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This is a weekly treatment that I do, but it's so much better that I can do it at home than going into the hospital. It takes around 2.5 hours from taking my pre-meds to tossing my needles into a Sharps container. While it's another thing that I have to do, because I do it at home, I don't have to risk exposure to infections at the hospital or deal with Boston traffic, which would add another hour to the process. ⁣
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I can finish my treatment and then go about my day, which I'm very grateful for.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A Kindle on Kate's legs. There are tubes for an infusion coming out of her shirt.⁣
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#IVIG #ChronicallyIll #RheumatoidArthritis #Autoimmune #AutoimmuneDisease
Weeks 23 and 24 of 2026 Weekly! The last two wee Weeks 23 and 24 of 2026 Weekly! 

The last two weeks were prepping for my infusion, having/recovering from my infusion, and getting caught up after. This meant things were very busy but also I don’t have a lot to show for them. 

1️⃣ New glasses! I really like having multiple pairs so I can switch them as I want.
2️⃣ One of my current projects. I got this standing hoop for my birthday and I’m working on an alphabet (uppercase and lower, although I’m still working on the lower) with extra floss.
3️⃣ Infusion time! I got my higher dose so hopefully my symptoms improve a lot in the upcoming weeks🤞🏻

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣⁣

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IDs: 
1️⃣ Kate takes a selfie. Her new glasses are thin silver circles
2️⃣ An in-progress cross-stitched alphabet in a special hoop stand that Kate is sitting on.
3️⃣ Kate takes a selfie in an infusion chair.

#ChronicallyIll #RheumatoidArthritis #AutoimmuneDisease #CrossStitcher
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