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in Health &middot October 19, 2018

Chronic Illness and Mental Health

Having a chronic illness can impact so many aspects of your life other than your health. It can impact your relationships, your finances, your self-esteem, and more. And that includes your mental health. As someone who has been in pain since fall 2001, I can confirm that chronic illnesses can do a number on your mental health. I personally had a bout of depression in high school when doctors kept telling me that nothing was wrong with me. (They were all wrong.) So I thought that today I would break down the connection between chronic illness and mental health, as well as some ways that you can help your mental health.

For the purpose of clarity, in this post, when I mention chronic illness, I’m discussing physical illnesses only. Mental illness can definitely be considered a chronic illness, especially when it lasts for years. But in this particular post, I want to discuss physical chronic illness and mental health, which can include mental illness.

I am not a medical professional. I have included advice from mental professionals and reputable sources, but if you are struggling with your mental health, please speak to a professional.

Do you or someone you care about have a chronic illness? Then you need to be on the look out for its impact on mental health. Chronic illness and mental health need to be considered when thinking about living with a chronic illness. Here's what you need to know.

Who Has a Chronic Illness?

First and foremost, let’s talk about what a chronic illness is and who has them. Chronic illnesses “are ongoing, generally incurable illnesses or conditions, such as heart disease, asthma, cancer, and diabetes” (x). Essentially, because there’s no cure and no reason to think they’ll ever go away, they’re chronic illnesses. This is different from a condition like a bone deformity, which would be a chronic condition. For example, my ankle condition is a chronic condition, as my ankle didn’t form correctly it isn’t healthy, but it’s not an illness that needs regular maintenance like my rheumatoid arthritis is.

Who has a chronic illness? 133 million Americans, or 40%, have a chronic illness, and that number is estimated to grow to 157 million by 2020 (x). Almost a third of the population lives with multiple chronic conditions (x).

What’s the impact? In 2009, 7 of 10 deaths in the US were due to chronic illnesses (x). Sadly, “According to the New England Journal of Medicine, people with chronic conditions receive only 56% of recommended preventive health care services,” which definitely attributes to those deaths (x). And there’s an economic effect. In 2007, chronic illness had a $1.3 trillion negative effect on the economy (x). Additionally, ” In the U.S., total spending on public and private health care amounted to approximately $2 trillion during 2005″ (x). I include all this to demonstrate something that healthy people don’t often think about when it comes to chronic illness: chronic illness can impact areas of your life other than physical health.

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Imagine that you have an illness that will never go away. In addition, it costs thousands of dollars a year, and you may or may not have that money to spare. You also have to spend too much time at doctor’s offices, which might make your job unhappy with you. That is, if you’re healthy enough to work. Your family and friends may or may not stick by you in your illness, and if they do stick by you, they might not be very nice to you about it.

As you have probably figured, that doesn’t set you up for very good mental health. Even if you don’t develop a mental illness, you will definitely have times when you’re down in the dumps, sad about your health, frustrated with the world, anxious about your future, and more.

I know, I know, this all seems fine and dandy and hypothetical. So don’t take my word for you. A 2000 study found that “The emotional dimensions of chronic conditions are often overlooked when medical care is considered” (x). Basically, “Doctors may be well equipped for the biomedical aspects of care but not for the challenges of understanding the psychological, social, and cultural dimensions of illness and health” (x). So when doctors give help for physical problems, they might not be able to provide support for the effects of those physical problems. But as I already mentioned, having a chronic illness most likely will cause some sort of mental health problems over the course of a patient’s life.

In fact, the National Institute of Mental Health found that “People with other chronic medical conditions have a higher risk of depression” (x). Depending on the illness, some illnesses can cause changes in the brain that lead directly to depression (x). Some other ways that this might happen include depression triggered by illness-related anxiety and stress, a recent illness diagnosis, or even from medications (x). Frustratingly, “Research suggests that people who have depression and another medical illness tend to have more severe symptoms of both illnesses” (x).

The gist of it is that chronic illness is a risk factor for mental illness, along with family history, traumatic experiences, stressful life experiences (which chronic illness could be included in), using illegal drugs, and lack of social support (x). Because of this, it’s important that we chronic illness patients and the loved ones of patients take care of our mental health, whether or not we have a mental illness.

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

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How To Manage Chronic Illness and Mental Health

Now that we’ve established that this is a problem we chronic illness patients needs to be aware of, let’s talk about how to deal with and manage it.

First and foremost, if you can afford it, see a therapist. If you’ve recently been diagnosed, it can’t hurt to see one to help process your feelings as you adjust to your diagnosis and new life. If you are in school, your student health services might provide counseling. You should also try therapy if you’re going through a rough patch health-wise or you feel like you’re starting to struggle mentally with everything. Basically, therapy is great. I went back to therapy when Trump won because my generalized anxiety disorder flared up due to his anti-ACA leanings. It has gotten a lot better, but I’m still seeing my therapist to help manage the mental aspect of all of my physical health issues. Because I have generalized anxiety disorder and a history of depressive episodes, it’s so important for me to be on top of my mental health. I share this so you know that I’m speaking from experience when it comes to mental health. chronic illness and therapy.

Other than therapy, how else can you manage your mental health with your chronic illness? Psychology Today says that some ways are to surround yourself with people who support and care for you, practice being aware of gratitude, mindfulness, exercise in some way, eat healthy, take breaks, and get sleep (x). The University of Michigan also suggests you avoid or reduce alcohol or drugs, set realistic goals, and learn to deal with stress (x). A UK organization called Mental Health Foundation suggests that you also stay in touch with friends and family that are far away, ask for help when you need it, do things you’re good at in your spare time, and accept who you are (x). These are things to do every day, to help take care of your mental health.

10 Simple Self-Care Methods That Will Improve Your Life

What about if you’re worried that you’ve developed a mental illness? Mental Health America has this amazing list of signs of mental illness in adults, children, and adolescents. Let’s say that you’ve taken a look at the list and are pretty sure that you have a mental illness. In this case, you should see your primary care doctor and/or a therapist to help you navigate this. You shouldn’t have to navigate mental illness on your own. If your insurance covers it and/or you can afford it, see a professional.

Some people need medication for their mental illness. And that’s okay! I need medication for my rheumatoid arthritis, so why shouldn’t I need medication for my generalized anxiety disorder? If your medical professional(s) suggest you try medication and you can afford it, then I suggest you try it. It’s important to recognize that mental illness is an imbalance of chemicals in the brain. It’s not your fault if you struggle with mental illness, and you’re not weak if you ask for help or take medication for it.

But if you’re looking for professional help with mental health, you should know that psychology and psychiatry are different. “Psychiatrists receive the same medical school education as any other medical doctor, such as an internal medicine physician or a pediatrician and, therefore, hold a doctor of medicine degree (M.D.),” Psychology Today says (x). “Psychiatrists are also responsible for diagnosing mental disorders and managing medications, as their expertise focuses on the chemical imbalances within the brain. Similar to any other physician, they can write prescriptions,” which psychologists can’t (x). More specifically, “Psychologists do not attend medical school; rather they attend graduate school and obtain a doctoral degree” (x). When you think about a therapist, you’re generally thinking about a psychologist, as “Psychologists are experts in providing psychosocial therapy and concentrate on the patient’s mind and emotions” (x).

Essentially, if you think that you might need to take medication, you want to see a psychiatrist. If you don’t think you need medication and/or just want someone to talk through things, you want to see a psychologist. Psychology Today has a tool to help you find a therapist right on their website, and many insurance companies have tools on their sites for policy holders to help their find covered medical professionals. Take advantage of that!

How do you deal with chronic illness and mental health?

Like this post? Check out:

Is Chronic Illness a Disability?, Chronically Ill Tips: Preparing for Medical Appointments, Hacks for Living with Chronic Conditions, The Art of Managing Anxiety

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Lydia says

    January 6, 2020 at 8:29 am

    What a well organized post. I enjoyed reading it. And, yeah, there is absolutely no shame in taking medications for mental illnesses. It truly is no different than taking insulin if you have diabetes or antibiotics for an infection.

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SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣ ⁣ I sh SHARING YOUR HEALTH EXPERIENCES PUBLICLY⁣⁣⁣
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I share my personal health experiences online, which I find it somewhat easy to do because I've been talking publicly - albeit to a smaller audience - since my health problems started in 2001. ⁣⁣⁣
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If you share something online, you need to be prepared for people to ask questions or argue with you. Should they? No. Will that stop them? Also do. ⁣
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That's one of the reasons that talking online about what can be trauma is not easy or for everyone. That's why it's important to practice self-care and to consciously think about what you want to share online before you do it. ⁣⁣⁣
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For example, I generally only talk publicly about a health situation once it has passed, especially if it's an emergency. I also make sure that I'm in a good place mentally before I talk about it. That way, I don't share things I'll regret sharing publicly later. It also helps me be less anxious about sharing these details.⁣⁣⁣
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And I don't share everything! There's lot of stuff that I haven't talked about not only online but with people in real life. It might seem like I share everything I've experienced, but I don't. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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IDs: Kate works on a laptop offscreen. She's a redheaded white woman wearing a beige-and-navy striped sweater, silver Claddagh necklace, and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #ChronicPain #Endometriosis #SjogrensSyndrome
Week 18 of 2026 Weekly 1️⃣ Cross-stitch and IVIG Week 18 of 2026 Weekly 

1️⃣ Cross-stitch and IVIG 
2️⃣ Another trip to the foot doctor. We’re officially in Try To Avoid My 6th Foot Surgery mode 🤞🏻 
3️⃣ At least there were lilacs?

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ Looking down at Kate’s lap. Tubes are coming out of her shirt. She’s working on a cross stitch.
2️⃣ Kate takes a selfie in a doctor’s office. She’s wearing a lilac mask.
3️⃣ A lilac bush

#IVIG #CrossStitching #ChronicIllness #ChronicallyIll #InvisibleIllness
FAQ: Have I Tried Yoga for My Pain? This is a se FAQ: Have I Tried Yoga for My Pain? 

This is a series where I answer questions I frequently get about my rheumatoid arthritis. I am not a medical professional and this is not medical advice - just saying the truth about my body in particular. 

Video: Kate speaks to camera. There are captions. A black text box reads “FAQ: Have I Tried Yoga for My Pain?” 

#RheumatoidArthritis #AutoimmuneArthritis #Arthritis #ArthritisAwarenessMonth
May is Arthritis Awareness Month, which is the per May is Arthritis Awareness Month, which is the perfect time to remind people of these facts. Here's today's fact.⁣
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Like, comment, and share to spread awareness 💖⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: Fact or Fiction? Let's Check! ⁣
Fiction⁣
Arthritis only affects people as they age.⁣
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Arthritis can affect anyone at any age, including kids as young as 3.⁣
katethealmostgreat⁣
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#ArthritisAwareness #Arthritis #RheumatoidDisease #RheumatoidArthritis #ArthritisAwarenessMonth
I’ve been on IVIG since September. So what does su I’ve been on IVIG since September. So what does success look like? ⁣
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*This is all just for me and my case!*⁣
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1️⃣ I haven't gotten sick at all since I started, not even a cold. ⁣
2️⃣ My lungs are clear of any ground glass opacities, which was what pushed us over to finally doing IVIG regularly. ⁣
3️⃣ We feel better about saying that I don't have any infections. Because symptoms are often signs of the body fighting an infection, we couldn't always trust that I wasn't sick because I didn't have symptoms. ⁣
4️⃣ Because of all of this, we're increasing my next Rituxan dose! This will mean better RA symptoms and hopefully no new illnesses for a few years.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.⁣
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ID: A bunch of IVIG supplies, including a pump. ⁣
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#ChronicallyIll #ChronicIllness #ChronicPain #AutoimmuneDisease #Autoimmune
Week 17 of 2026 Weekly 1️⃣ Making some real progr Week 17 of 2026 Weekly

1️⃣ Making some real progress with this cross stitch
2️⃣ Walking casts have multiple uses, including holding down your mat! (Don’t worry - I only did broken-foot-compatible things) 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs:
1️⃣ An in-progress cross stitch. You can see that Kate stitched 2 bears.
3️⃣ A walking cast lies on a black yoga mat 

#CrossStitching #CrossStitcher #RheumatoidArthritis #Osteoporosis #LoopsAndThreads
Can we talk about fatigue for a sec? ⁣⁣⁣ ⁣ Fatigue Can we talk about fatigue for a sec? ⁣⁣⁣
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Fatigue is so much more than being tired. It's sleeping 10 hours at night and then struggling to stay awake during the day. It's trouble focusing because, even though you just had 3 cups of coffee, you're thinking about sleep. It's needing to factor rest in during the day because you have plans at night. ⁣⁣⁣
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It's a lot. ⁣⁣⁣⁣
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It's no secret that I have multiple chronic illnesses. But did you know that all of them - all 11+ of them - have fatigue as a symptom? Sometimes the fatigue is worse than the pain and, uh, I live with a lot of pain.⁣⁣
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This picture was taken when I was super anemic and waiting for 4 iron infusions. Now, months later, I can see it. And I also don't know how I got through the months of that anemia. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a redheaded white woman wearing a gray sweater and pink glasses.⁣
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#ChronicallyIll #RheumatoidArthritis #Fibromyalgia #Endometriosis #POTS
Week 16 of 2026 This week had EVERYTHING 1️⃣ Cr Week 16 of 2026 

This week had EVERYTHING

1️⃣ Cross-stitch during virtual mass 
2️⃣ Tuesday featured a 90-minute meeting during work and then an hour advocacy work call after my day job (both were good!)
3️⃣ Wednesday started at my foot doctor’s office and I left in a walking boot. Hopefully these 3 fractured bones will heal correctly this time 🤞🏻
4️⃣ Thursday started back at MGH for my annual neurology appointment + foot CT scan
5️⃣ Then I went up to Maine … 
6️⃣ to celebrate my grandma’s 85th birthday! 

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣.

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IDs: 
1️⃣ In the foreground is an in-progress cross-stitch piece. The background shows an open laptop streaming Catholic mass.
2️⃣ Kate takes a selfie. She’s a white woman with auburn hair and green glasses.
3️⃣ Kate takes a selfie in a doctor’s office. 
4️⃣ Kate takes a selfie in a car.
5️⃣ Kate takes a selfie snuggling with a golden retriever.
6️⃣ Kate and her cousins stand with their grandmother in front of a sign saying "Happy Birthday." 

#CrossStitch #ChronicPain #ChronicallyIll #InvisibleIllness
My face comes with subtitles, so .. ⁣ ⁣ ⬛⁣⁣⁣⁣⁣ ⁣ I My face comes with subtitles, so .. ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣
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ID: Kate drinks coffee giving side eye. White text box reads "My Face When Someone Says 'You Shouldn't Need a Cane At Your Age'" ⁣
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#ChronicPain #ChronicallyIll #RheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Fibromyalgia
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