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120 resources for living a better life with chronic illness, www. kate the almost great .com
in Health &middot March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

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in Health &middot March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

Check out these 120 resources that will help those living with chronic illness through helping patients and helping patients’ loved ones. I’ve meant to do this for a while, but I have finally compiled an updated breakdown of my health blog posts. This is not all of them, but it’s most of my health posts from the last 6-7 years. I’ve broken them down into groupings, and some posts are in multiple groupings if applicable. And, at the end of the post, I’m telling you all about my newest product: The Chronically Ill Workbook. 

This post contains affiliate links. Thank you for supporting Kate the (Almost) Great®! 

120 resources for living a better life with chronic illness, www. kate the almost great .com
Contents hide
Chronic Illness Generally
Chronic Pain
Illness Guides
POTS
Endometriosis
Arthritis
Tarsal Coalition
Living with Chronic Illness
Newsletter
Advocacy
Holidays
Mental Health
Gift Guides
COVID
Surgeries
Recipes
About The Chronically Ill Workbook

Chronic Illness Generally

What Immunocompromised Patients Need To Know

What No One Tells You About Autoimmune Diseases

Hacks for Chronic Disease Management That You Need

Do I Have a Chronic Illness? What You Should Know If You’re a New Patient

Tips To Make Independently Living with a Chronic Illness Easier

What Is Considered a Chronic Illness? And Other Chronic Illness Basics

6 Tips for How To Accept a Chronic Illness

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

So Someone Healthy Has Given You Health Advice

Living with a Suppressed Immune System in a Pandemic

What Is a Chronic Illness? And Other Frequently Asked Questions

Self-Care Tips That Chronic Illness Patients Need

What Is Self-Advocacy? An Answer + Strategies To Help

Living Life with Chronic Illness: Common Problems & Their Solutions

We Need To Talk about the “Disease Warrior” Model

Why You Must Track Symptoms of Your Chronic Illness + Freebie To Help

The Impact of Chronic Illness on an Individual

How Chronic Illness Affects Relationships

Chronic Illness and the Holidays: 10 Rules for a Great Season

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

How To Stay Healthy in Flu Season

Chronic Illness Advice: Resources for the Newly-Diagnosed Patient

Chronically Ill Tips: What To Do When a Doctor Isn’t Listening to You

Building Self Confidence When Chronically Ill

About the Americans with Disabilities Act

Is Chronic Illness a Disability?

Chronically Ill Tips: Preparing for Medical Appointments + Freebies To Help

Answering Questions about Being Chronically Ill

Resources for the Freshly-Diagnosed Chronic Illness Patient

Questions Not To Ask Someone with a Chronic Illness

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

Dating with a Chronic Illness

Chronic Pain 

Can Chronic Pain Go Away? What You Should Know

What’s Chronic Pain? What You Should Know If You Love Someone with It

What’s In My Tool Box for Dealing with Chronic Pain

What You Need To Know about Living with Chronic Pain in the Winter

What To Do When Chronic Pain Becomes Too Much

Describing Pain Levels to a Doctor

How Is Chronic Pain Different from Acute Pain?

Tools for Pain Management that Aren’t Medications

What you should know about chronic illness, www. kate the almost great .com

Illness Guides 

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What Is Endometriosis Like? An FAQ

What Sjögren’s Syndrome Is: A Beginner’s Guide

What Is POTS? A POTS Frequently Asked Questions Post

What You Should Know About TMJ Arthritis

Endometriosis: The Disease Women Aren’t Talking About

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Free printable to help you prepare for chronic illness medical appointments

POTS 

8 Essential Tips for Living with POTS

The Connection Between Dysautonomia and Anxiety

What Is POTS? A POTS Frequently Asked Questions Post

What’s Heat Intolerance? An Explanation

How Does Postural Orthostatic Tachycardia Syndrome Work?

POTS Exercise Protocol Diary: Month 1

POTS Exercise Protocol Diary: Month 2

POTS Exercise Protocol Diary: Month 3

POTS Exercise Protocol Diary: Month 4

POTS Exercise Protocol Diary: Month 5

What Every POTS Syndrome Patient Needs for the Summer

POTS and Heat Intolerance

The Essential POTS Symptom Journal

Endometriosis

What Is Endometriosis Like? An FAQ

Why Is Endometriosis Misdiagnosed?

What Does Endometriosis Feel Like?

Endometriosis: The Disease Women Aren’t Talking About

Arthritis 

7 Arthritis Myths Busted: Do You Know The Truth?

What Sjögren’s Syndrome Is: A Beginner’s Guide

9 Arthritis Products That Help My Rheumatoid Arthritis

Arthritis Diagnosis: Diagnosis Stories + The Diagnostic Process Explained

What You Should Know About TMJ Arthritis

What Does Arthritis Pain Feel Like?

Beginner’s Guide: Rheumatoid Arthritis Flare Up

Free Medical Symptom Organizer

How Arthritis Affects the Body

Beginner’s Guide: Infusion for Arthritis

How Is Arthritis Treated?

Arthritis Glossary: Frequently Used Words

Caring for Rheumatoid Arthritis Patients

What Is the Difference between Osteoarthritis and Rheumatoid Arthritis?

Why Is Rheumatoid Arthritis Hard to Diagnose?

Helping Someone with RA

My Rheumatoid Arthritis Treatment + How I Got There

Problems from My Inflammatory Arthritis + How To Deal with Them

10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis

10 Ways To Find Fibromyalgia Relief

What You Need To Know about Arthritis

A Day in the Life of an Arthritis Patient

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Living with chronic illness, advice for and by patients, www. kate the almost great .com

Tarsal Coalition

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

The Emotional Side to My Tarsal Coalition Surgery Recovery

On My March 26 Ankle Surgery

Living with Chronic Illness 

Tips To Make Independently Living with a Chronic Illness Easier

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

Living Life with Chronic Illness: Common Problems & Their Solutions

Holiday Survival Guide: Living Well with Chronic Disease

How To Actually Rest When You Take Breaks

Hacks for Living with Chronic Conditions

Newsletter

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Advocacy 

What Is Advocacy? A Patient Advocate’s Guide

9 Ways To Advocate for Disability Rights

What Is Self-Advocacy? An Answer + Strategies To Help

How To Become an Advocate for Patients

Holidays

Celebrating Easter with Chronic Illness

Surviving the Holidays with Chronic Illness: How To Survive, Thrive, & Have a Great Time

10 Ideas for Self Care You Need This Holiday Season

Holiday Survival Guide: Living Well with Chronic Disease

Chronic Illness and the Holidays: 10 Rules for a Great Season

Chronic Illness Hacks for the Holidays

Text reads: free chronic illness symptom journal kate the almost great dot com Image is of someone writing in a notebook while sitting on a couch.

Mental Health

10 Ideas for Self Care You Need This Holiday Season

Mental Health and Chronic Disease Management: What You Should Know

The Connection Between Dysautonomia and Anxiety

Self-Care Tips That Chronic Illness Patients Need

Mental Health And COVID-19: How I’ve Been Managing Mine

Building Self Confidence When Chronically Ill

Chronic Illness and Mental Health

10 Simple Self Care Methods That Will Improve Your Life

Why You Should Try Meditation

The Art of Managing Anxiety

Gift Guides

Best Gift Ideas for the Holidays: New Chronic Illness Patients

Gift Ideas: Chronic Illness Must-Haves

Holiday Gift Ideas: Best Gifts for Someone with Chronic Pain & Illness

Gift Guide: Gift Ideas for Chronically Ill People

Holiday Gift Guide: Gifts for Chronic Illness Patients

Gift Guide: Chronic Illness Gifts

Text reads: Get 25 Instagram Prompts Designed To Connect with Your Chronic Illness Audience

COVID

COVID Diaries of an Immunosuppressed Patient

Mental Health And COVID-19: How I’ve Been Managing Mine

Surgeries

Crucial Ways to Prep for Surgery Recovery Ahead of Time

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

On My March 26 Ankle Surgery

Recipes

Food for TMJ Flares: The Best Recipes To Help Heal

14 Amazing Simple Healthy Recipes for Dinner

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

About The Chronically Ill Workbook

I have a new product for chronic illness patients! In fact, this is the first time I have ever charged for a chronic illness product. 

These worksheets are designed to live your best life. They can help you better understand your body and your symptoms. They can help you have better doctor’s appointments.

These worksheets are based on things I have tried to figure out about my body. They are based on documents that I’ve used for myself.

(As a reminder, though, I am not a doctor, and you should always discuss your medical treatment with a medical professional.)

There are 30+ pages of worksheets, trackers, and journals. Contents include:

  • Chronic Illness Strategies
  • Symptom Inventory
  • Symptoms & Their Impact
  • Illness & Pain Journals
  • Holiday Self-Care Plan
  • Medical Info One-Pager
  • When To Talk To Your Doctor about a Symptom
  • What I Want To Tell My Doctors

Altogether, this workbook is worth over $150 based on the work put into it and the minimum wage. Please pay what you can, whether that be the minimum of $1 or the full $150.

Get it now. 

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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  1. Amy Mayfield-Beyer says

    April 8, 2024 at 9:17 am

    Great list of resources!

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  1. Rheumatoid Arthritis Guide A-Z: Part One says:
    October 19, 2025 at 8:57 am

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Me: I had this test on a Friday so I won’t hear un Me: I had this test on a Friday so I won’t hear until Monday at the earliest⁣
Also me: Well maybe this time will be different. I should check the portal every couple of hours just in case.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Screenshot of a thread post. The background is dark teal, and it's written by katethealmostgreat. ⁣The text reads what's above the first black box.⁣⁣
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This is the face of coronary artery disease⁣ ⁣ Yup This is the face of coronary artery disease⁣
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Yup, I have heart disease. ⁣
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I've mentioned this in bits and pieces over the last year, but in 2025, I was diagnosed with coronary artery disease.To be clear, I have basically the lowest amount of artery calcification possible to still have heart disease, but I still have it. ⁣
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Coronary artery disease is a complication of rheumatoid arthritis, as cholesterol can be increased by inflammation. As I hung around the border of coronary artery disease, I got COVID. ⁣
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COVID is also an inflammatory condition, which is why research shows that COVID can increase risk of heart disease. ⁣
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We're keeping an eye on it now, and increasing my cholesterol medication has helped keep my cholesterol down. Which is good because I already eat a pretty heart-healthy diet and exercise is tricky for me. ⁣
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If you have an inflammatory condition like RA or Crohn's, you should know that that inflammation can contribute towards cholesterol levels and therefore heart disease, especially if you've had COVID (and every time you get it increases your risks). ⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Kate takes a selfie. She's a white woman with auburn hair wearing a white sweater, silver Claddagh necklace, and pink glasses.⁣
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#RheumatoidArthritis #CoronaryArteryDisease #HeartDisease #ChronicallyIll #AutoimmuneDisease
I have a rheumatology appointment soon! Here are t I have a rheumatology appointment soon! Here are the things I’m thinking about ahead of time. 

#RheumatoidArthritis #SjogrensSyndrome #Fibromyalgia #AutoimmuneDisease 

Video: Kate’s hand writes in a notebook. She voices over what she’s writing and there are captions.
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#NewMonthNewGoals #ContentCreator #Blogger #HealthBlogger
💐 Week 8 of 2026 Weekly 💐 1️⃣ When you’ve got to 💐 Week 8 of 2026 Weekly 💐

1️⃣ When you’ve got to do IVIG but also empty the dishwasher (aka chronic illness in a nutsehll)
2️⃣ In progress 
3️⃣ New glasses!

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣

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IDs:
1️⃣ Kate takes a mirror selfie. She has a small black bag over her shoulder connected to tubes that go under her shirt. She’s a white woman with auburn hair wearing pink glasses, a Geaghan’s Pub & Brewery sweatshirt, and sweatpants. 
2️⃣ An in-progress embroidery project of flowers. 
3️⃣ Kate takes a selfie. She’s wearing a blue and white striped rugby shirt with white writing that reads "University of Maine" and green glasses. 

#IVIG #ChronicallyIll #SjogrensSyndrome #Sjogrens #PunchNeedle
“Why don’t you take having 10+ chronic illnesses m “Why don’t you take having 10+ chronic illnesses more seriously”Because I have a ridiculous number of illnesses. Anything over 7 feels made up. Like, obviously it’s not, but I’m up to 10. That’s a ridiculous number.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣
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ID: Screenshot of a thread post. The background is dark teal, and it's written by katethealmostgreat. ⁣The text reads what's above the first black box.⁣⁣
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#RheumatoidArthritis #SjogrensSyndrome #HeartDisease #AutoimmuneDisease
What do you do during infusions?⁣ ⁣ With Rituxan, What do you do during infusions?⁣
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With Rituxan, iron, and IVIG, I spend a lot of time in the infusion chair. That's a lot of time to kill!⁣
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Here is how I spend that time: ⁣
▪ Read on my Kindle⁣
▪ Play games on my phone⁣
▪ Listen to audiobooks⁣
▪ Work - hey, I need all my PTO possible with my health issues. Sometimes I need to work during my iron infusions!⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣⁣
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ID: In a hospital. Kate’s legs are under a white blanket and her hand (with an IV in the wrist) is next to her Kindle⁣
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#RheumatoidArthritis #ChronicAnemia #IVIG #AutoimmuneDisease #Autoimmune
View from this weekend as I worked on my next blog View from this weekend as I worked on my next blog post! I’ve posted 3 so far in 2026, including a fibromyalgia FAQ, so go to the blog to read them. Click the link in my bio or go to katethealmostgreat.com 

#HealthBlogger #Fibromyalgia #FibromyalgiaAwareness #ChronicIllnessBlog
👓 Week 7 of 2026 Weekly 👓 1️⃣ IVIG 2️⃣ Annual ey 👓 Week 7 of 2026 Weekly 👓

1️⃣ IVIG 
2️⃣ Annual eye doc appointment! New glasses coming soon, but eye health (especially Sjögren’s) looked good
3️⃣ Needing lots of blood work means more kindle time while waiting 
4️⃣ Getting ready to start my next punch needle project 👀

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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 10+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣.⁣⁣⁣⁣⁣⁣⁣

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IDs: 
1️⃣ Looking at Kate’s lap. There are clear tubes coming out from under her shirt going to a pump next to Kate. Her laptop is open and a closed Kindle is on the bed.
2️⃣ Kate takes a selfie. She’s a redheaded white woman wearing a green scarf, beige mask, and pink glasses.
3️⃣ Looking at Kate’s lap. Her Kindle is on her coat on her lap. Her pink cane is in front of her legs. 
4️⃣ The start of an embroidery project, with a printed (but not started) frame, box with the finished project shown, and 2 open packets with instructions. 

#ChronicallyIll #DisabledAndCute #PunchNeedle #DMC #SjogrensSyndrome
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