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120 resources for living a better life with chronic illness, www. kate the almost great .com
in Health · March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

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in Health · March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

Check out these 120 resources that will help those living with chronic illness through helping patients and helping patients’ loved ones. I’ve meant to do this for a while, but I have finally compiled an updated breakdown of my health blog posts. This is not all of them, but it’s most of my health posts from the last 6-7 years. I’ve broken them down into groupings, and some posts are in multiple groupings if applicable. And, at the end of the post, I’m telling you all about my newest product: The Chronically Ill Workbook. 

This post contains affiliate links. Thank you for supporting Kate the (Almost) Great®! 

120 resources for living a better life with chronic illness, www. kate the almost great .com
Contents hide
Chronic Illness Generally
Chronic Pain
Illness Guides
POTS
Endometriosis
Arthritis
Tarsal Coalition
Living with Chronic Illness
Newsletter
Advocacy
Holidays
Mental Health
Gift Guides
COVID
Surgeries
Recipes
About The Chronically Ill Workbook

Chronic Illness Generally

What Immunocompromised Patients Need To Know

What No One Tells You About Autoimmune Diseases

Hacks for Chronic Disease Management That You Need

Do I Have a Chronic Illness? What You Should Know If You’re a New Patient

Tips To Make Independently Living with a Chronic Illness Easier

What Is Considered a Chronic Illness? And Other Chronic Illness Basics

6 Tips for How To Accept a Chronic Illness

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

So Someone Healthy Has Given You Health Advice

Living with a Suppressed Immune System in a Pandemic

What Is a Chronic Illness? And Other Frequently Asked Questions

Self-Care Tips That Chronic Illness Patients Need

What Is Self-Advocacy? An Answer + Strategies To Help

Living Life with Chronic Illness: Common Problems & Their Solutions

We Need To Talk about the “Disease Warrior” Model

Why You Must Track Symptoms of Your Chronic Illness + Freebie To Help

The Impact of Chronic Illness on an Individual

How Chronic Illness Affects Relationships

Chronic Illness and the Holidays: 10 Rules for a Great Season

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

How To Stay Healthy in Flu Season

Chronic Illness Advice: Resources for the Newly-Diagnosed Patient

Chronically Ill Tips: What To Do When a Doctor Isn’t Listening to You

Building Self Confidence When Chronically Ill

About the Americans with Disabilities Act

Is Chronic Illness a Disability?

Chronically Ill Tips: Preparing for Medical Appointments + Freebies To Help

Answering Questions about Being Chronically Ill

Resources for the Freshly-Diagnosed Chronic Illness Patient

Questions Not To Ask Someone with a Chronic Illness

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

Dating with a Chronic Illness

Chronic Pain 

Can Chronic Pain Go Away? What You Should Know

What’s Chronic Pain? What You Should Know If You Love Someone with It

What’s In My Tool Box for Dealing with Chronic Pain

What You Need To Know about Living with Chronic Pain in the Winter

What To Do When Chronic Pain Becomes Too Much

Describing Pain Levels to a Doctor

How Is Chronic Pain Different from Acute Pain?

Tools for Pain Management that Aren’t Medications

What you should know about chronic illness, www. kate the almost great .com

Illness Guides 

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What Is Endometriosis Like? An FAQ

What Sjögren’s Syndrome Is: A Beginner’s Guide

What Is POTS? A POTS Frequently Asked Questions Post

What You Should Know About TMJ Arthritis

Endometriosis: The Disease Women Aren’t Talking About

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Free printable to help you prepare for chronic illness medical appointments

POTS 

8 Essential Tips for Living with POTS

The Connection Between Dysautonomia and Anxiety

What Is POTS? A POTS Frequently Asked Questions Post

What’s Heat Intolerance? An Explanation

How Does Postural Orthostatic Tachycardia Syndrome Work?

POTS Exercise Protocol Diary: Month 1

POTS Exercise Protocol Diary: Month 2

POTS Exercise Protocol Diary: Month 3

POTS Exercise Protocol Diary: Month 4

POTS Exercise Protocol Diary: Month 5

What Every POTS Syndrome Patient Needs for the Summer

POTS and Heat Intolerance

The Essential POTS Symptom Journal

Endometriosis

What Is Endometriosis Like? An FAQ

Why Is Endometriosis Misdiagnosed?

What Does Endometriosis Feel Like?

Endometriosis: The Disease Women Aren’t Talking About

Arthritis 

7 Arthritis Myths Busted: Do You Know The Truth?

What Sjögren’s Syndrome Is: A Beginner’s Guide

9 Arthritis Products That Help My Rheumatoid Arthritis

Arthritis Diagnosis: Diagnosis Stories + The Diagnostic Process Explained

What You Should Know About TMJ Arthritis

What Does Arthritis Pain Feel Like?

Beginner’s Guide: Rheumatoid Arthritis Flare Up

Free Medical Symptom Organizer

How Arthritis Affects the Body

Beginner’s Guide: Infusion for Arthritis

How Is Arthritis Treated?

Arthritis Glossary: Frequently Used Words

Caring for Rheumatoid Arthritis Patients

What Is the Difference between Osteoarthritis and Rheumatoid Arthritis?

Why Is Rheumatoid Arthritis Hard to Diagnose?

Helping Someone with RA

My Rheumatoid Arthritis Treatment + How I Got There

Problems from My Inflammatory Arthritis + How To Deal with Them

10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis

10 Ways To Find Fibromyalgia Relief

What You Need To Know about Arthritis

A Day in the Life of an Arthritis Patient

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Living with chronic illness, advice for and by patients, www. kate the almost great .com

Tarsal Coalition

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

The Emotional Side to My Tarsal Coalition Surgery Recovery

On My March 26 Ankle Surgery

Living with Chronic Illness 

Tips To Make Independently Living with a Chronic Illness Easier

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

Living Life with Chronic Illness: Common Problems & Their Solutions

Holiday Survival Guide: Living Well with Chronic Disease

How To Actually Rest When You Take Breaks

Hacks for Living with Chronic Conditions

Newsletter

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Advocacy 

What Is Advocacy? A Patient Advocate’s Guide

9 Ways To Advocate for Disability Rights

What Is Self-Advocacy? An Answer + Strategies To Help

How To Become an Advocate for Patients

Holidays

Celebrating Easter with Chronic Illness

Surviving the Holidays with Chronic Illness: How To Survive, Thrive, & Have a Great Time

10 Ideas for Self Care You Need This Holiday Season

Holiday Survival Guide: Living Well with Chronic Disease

Chronic Illness and the Holidays: 10 Rules for a Great Season

Chronic Illness Hacks for the Holidays

Text reads: free chronic illness symptom journal kate the almost great dot com Image is of someone writing in a notebook while sitting on a couch.

Mental Health

10 Ideas for Self Care You Need This Holiday Season

Mental Health and Chronic Disease Management: What You Should Know

The Connection Between Dysautonomia and Anxiety

Self-Care Tips That Chronic Illness Patients Need

Mental Health And COVID-19: How I’ve Been Managing Mine

Building Self Confidence When Chronically Ill

Chronic Illness and Mental Health

10 Simple Self Care Methods That Will Improve Your Life

Why You Should Try Meditation

The Art of Managing Anxiety

Gift Guides

Best Gift Ideas for the Holidays: New Chronic Illness Patients

Gift Ideas: Chronic Illness Must-Haves

Holiday Gift Ideas: Best Gifts for Someone with Chronic Pain & Illness

Gift Guide: Gift Ideas for Chronically Ill People

Holiday Gift Guide: Gifts for Chronic Illness Patients

Gift Guide: Chronic Illness Gifts

Text reads: Get 25 Instagram Prompts Designed To Connect with Your Chronic Illness Audience

COVID

COVID Diaries of an Immunosuppressed Patient

Mental Health And COVID-19: How I’ve Been Managing Mine

Surgeries

Crucial Ways to Prep for Surgery Recovery Ahead of Time

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

On My March 26 Ankle Surgery

Recipes

Food for TMJ Flares: The Best Recipes To Help Heal

14 Amazing Simple Healthy Recipes for Dinner

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

About The Chronically Ill Workbook

I have a new product for chronic illness patients! In fact, this is the first time I have ever charged for a chronic illness product. 

These worksheets are designed to live your best life. They can help you better understand your body and your symptoms. They can help you have better doctor’s appointments.

These worksheets are based on things I have tried to figure out about my body. They are based on documents that I’ve used for myself.

(As a reminder, though, I am not a doctor, and you should always discuss your medical treatment with a medical professional.)

There are 30+ pages of worksheets, trackers, and journals. Contents include:

  • Chronic Illness Strategies
  • Symptom Inventory
  • Symptoms & Their Impact
  • Illness & Pain Journals
  • Holiday Self-Care Plan
  • Medical Info One-Pager
  • When To Talk To Your Doctor about a Symptom
  • What I Want To Tell My Doctors

Altogether, this workbook is worth over $150 based on the work put into it and the minimum wage. Please pay what you can, whether that be the minimum of $1 or the full $150.

Get it now. 

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Amy Mayfield-Beyer says

    April 8, 2024 at 9:17 am

    Great list of resources!

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And don’t forget that you’re so strong, even i And don’t forget that you’re so strong, even if you wish you didn’t have to be. 

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Video: A video of Kate typing on her computer before a series of videos of doctor’s offices. Text reads “ How To Win a Medical Appointment”, “ 1. Come prepared with notes of what’s been going on”, “ 2. Take notes in the appointment.”, “ 3. Wear clothes that make the exam easier”, “ 4. If you get emotional, explain why.”, “5. Remember that if they’re unhelpful or rude, that’s a reflection on them and not you. ”

#AlmostGreatHealth #ChronicallyIll #RheumatoudArthritis #SjogrensSyndrome #SjogrensDisease #Fibromyalgia #Endometriosis #Adenomyosis #POTS #Dysautonomia #trending #explore
Week 23 of #2025Weekly ⁣ ⁣ 1️⃣ A normal-is Week 23 of #2025Weekly ⁣
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1️⃣ A normal-ish start to the week ⁣
2️⃣ My nurse after I had a problematic tooth removed. Inflammation is everywhere and out to get you!⁣
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No, but seriously. A tooth that was fine in January had such a bad cavity that it was better to remove it now instead of getting a root canal this year and removing it next year. I almost definitely have periodontal disease, which is often caused by lots of long-term inflammation It was also fused to my jawbone, which is, you guessed it, often caused by inflammation.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣
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IDs: ⁣
1️⃣ Kate takes a selfie. She's a auburn-haired white woman wearing a green dress, silver Celtic knot necklace, and round tortoiseshell glasses. ⁣
2️⃣ Kate takes another selfie with a golden retriever. Her face is swollen and she looks unhappy. She's wearing a blue Patriots t-shirt and round tortoiseshell glasses.⁣
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#AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #SpoonieLife #RheumatoidArthritis #RheumatoidDisease #Autoimmune #ButYouDontLookSick #AutoimmuneDisease #SpoonieLife #InvisibleIllness #DisabledAndCute
💃🏼 Video: Kate looks around like she’s tr 💃🏼

Video: Kate looks around like she’s trying to find something. Text reads “Trying to find an eff to give when someone tells me “You shouldn’t talk about your health problems so publicly and so much”” 

#ChronicallyIll #InvisibleIllness #TrialReels
Most people who follows me have at least one illne Most people who follows me have at least one illness or love someone who does (either because that's why you followed me or just statistically). ⁣
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But if you're not the patient, you may not know just how stressful managing your illness(es) can be. ⁣
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I've been doing this for a long time, and I've got a system down pretty solidly. But that doesn't mean it isn't stressful. ⁣
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Honestly, my therapy focuses pretty equally on the emotional side of my illnesses (including PTSD) as well as the stress from just managing things. ⁣
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Managing your illnesses includes: ⁣
▪ taking all of your medications⁣
▪ keeping track of all your appointments⁣
▪ preparing for and having your appointments⁣
▪.finding the lifestyle changes that work for you and your body ⁣
▪ understanding, avoiding, and managing your symptom triggers ⁣
▪ and so much more⁣
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How do you handle the stress of managing your illness(es)?⁣
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⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣
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ID: Kate takes a selfie in an infusion chair. She is a brunette white woman wearing a Boston Red Sox shirt, blue mask, and round tortoiseshell glasses.⁣⁣ A white box reads "The Stress of Managing Illnesses".
POV My Camera Roll _______ Video: a series of POV My Camera Roll 

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Video: a series of videos. They include Kate - a redheaded white woman who wears round tortoiseshell glasses - dogs, coffee, a lake, the Maine woods, doctors offices, and more. 

#AlmostGreatLife #AlmostGreatHealth #ChronicallyIll #NewEnglandLife
Being home in Maine is always idyllic, no mater wh Being home in Maine is always idyllic, no mater what does or doesn't happen. While this past week was hectic between birthdays and my cousin's graduation, it was still really nice to just be there and take some time to rest. ⁣
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As you may or may not have noticed, I've been taking a break from blogging. I'll definitely return at some point - probably later this year - but I just need a break. Between the hecticness of normal life and going through the diagnostic process for some new conditions, I'm at my stress limit. ⁣
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On top of that, my summer is so all over the place that I don't know a single guaranteed date that I'll be in Maine. Normally, I block out my time months in advance, but I had to change those plans so often that I gave up. I have a bunch of appointments in the next few weeks, and I will absolutely have follow-ups after them that aren't scheduled yet. I also anticipate that I will have more appointments for testing, but nothing is guaranteed yet. ⁣
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I love making plans because i love knowing what is happening. But it is more stressful for me (and my family) for me to keep changing them, so I'm doing this thing called "winging it". I have vague ideas of when I'll go up and what I'll do, but I can't make those plans until I have more information. ⁣
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Until then, I'll appreciate every chance I get to be home in the woods, and I will try to not stress so much about putting things on the calendar. ⁣
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⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣
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ID: A lake as seen through a tree. There a dock partially visible.⁣
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#AlmostGreatHealth #rheumatoidarthritis #arthritis #spoonielife #autoimmune #autoimmunedisease #chronicallyill #dysautonomia #fibro #fibromyalgia #endo #chronicallyill #disability #disabled #invisibleillness #207 #MaineLife #MaineTheWay #Vacationland
🎂 Week 22 of #2025Weekly 🎂 ⁣ ⁣ Birthday 🎂 Week 22 of #2025Weekly 🎂 ⁣
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Birthday week! ⁣
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1️⃣ Finished the work day and went to read on the deck with Harley ⁣
2️⃣ I did a lot of reading outdoors last week, which was lovely.⁣
3️⃣ There is a fox family living near my mom's sheep! Here is an incredible picture she tool of one of them. 📸 @healyheritagefarm ⁣
4️⃣ Birthday cupcakes for my birthday on Thursday ⁣
5️⃣ A beautiful gift from my grandma. Now to see if I can keep it alive! ⁣
6️⃣ Harley holding his blankie between his front paws will never not be adorable ⁣
7️⃣ Friday was my lovely mother’s birthday. She and my dad went on an excursion, where he snapped this picture.⁣
8️⃣ And Saturday was my cousin’s HS graduation party. Last one of our generation!⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣
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IDs: ⁣
1️⃣ Kate takes a selfie with Harley the golden retriever. Kate is a redheaded white woman wearing jeans, a green shirt, a silver Celtic knot necklace, and round tortoiseshell glasses. She has a Kindle in a pink case on her lap.⁣
2️⃣ Kate's point of view from sitting on outdoor furniture. On her lap is a closed pink Kindle case and she's holding a color tumbler with a straw in it. ⁣
3️⃣ A fox on grass⁣
4️⃣ 12 chocolate cupcakes with vanilla frosting⁣
5️⃣ Yellow-and-purple orchids on a wood table⁣
6️⃣ Harley laying on a dog bed with a white fleece blanket between his front paws.⁣
7️⃣ A picture of Tricia taking a picture of a beautiful New England house. Tricia is a white woman with silver hair wearing a blue-and-white striped dress. ⁣
8️⃣ A picture of a poster. Top text reads “Welcome To” and the bottom text reads “The Graduation of Natalie May Healy”. In between there’s a photo of Natalie sitting on a rock in front of a pond.⁣
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#AlmostGreatHealth #AlmostGreatLife #SpoonieLife #RheumatoidArthritis #SpoonieLife #InvisibleIllness #DisabledAndCute
Don’t give up hope. (And you’re not giving up Don’t give up hope. (And you’re not giving up hope or a faker if you need a break from trying to get answers)

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Video: a lake with music playing over it. Text reads “Just because one doctor or specialty doesn’t have the answers you need doesn’t mean they aren’t out there.” There is small closed captioning. 

#AlmostGreatHealth #ChronicallyIll #ChronicPain #Spoonie #SpoonieProblems
A letter to my past self 💖 (Disclaimer: I’m o A letter to my past self 💖 (Disclaimer: I’m only speaking about myself, my life, and my experiences. My birthday is tomorrow so do NOT make me deal with comments about toxic positivity) 

Video: a series of videos of Kate, pouring coffee, a lake, pill boxes, and a doctor’s office. Kate speaks in a voiceover with an intercom style and there are captions.
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