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120 resources for living a better life with chronic illness, www. kate the almost great .com
in Health · March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

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in Health · March 5, 2024

120 Resources for Living a Better Life with Chronic Illness

Check out these 120 resources that will help those living with chronic illness through helping patients and helping patients’ loved ones. I’ve meant to do this for a while, but I have finally compiled an updated breakdown of my health blog posts. This is not all of them, but it’s most of my health posts from the last 6-7 years. I’ve broken them down into groupings, and some posts are in multiple groupings if applicable. And, at the end of the post, I’m telling you all about my newest product: The Chronically Ill Workbook. 

This post contains affiliate links. Thank you for supporting Kate the (Almost) Great®! 

120 resources for living a better life with chronic illness, www. kate the almost great .com
Contents hide
Chronic Illness Generally
Chronic Pain
Illness Guides
POTS
Endometriosis
Arthritis
Tarsal Coalition
Living with Chronic Illness
Newsletter
Advocacy
Holidays
Mental Health
Gift Guides
COVID
Surgeries
Recipes
About The Chronically Ill Workbook

Chronic Illness Generally

What Immunocompromised Patients Need To Know

What No One Tells You About Autoimmune Diseases

Hacks for Chronic Disease Management That You Need

Do I Have a Chronic Illness? What You Should Know If You’re a New Patient

Tips To Make Independently Living with a Chronic Illness Easier

What Is Considered a Chronic Illness? And Other Chronic Illness Basics

6 Tips for How To Accept a Chronic Illness

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

So Someone Healthy Has Given You Health Advice

Living with a Suppressed Immune System in a Pandemic

What Is a Chronic Illness? And Other Frequently Asked Questions

Self-Care Tips That Chronic Illness Patients Need

What Is Self-Advocacy? An Answer + Strategies To Help

Living Life with Chronic Illness: Common Problems & Their Solutions

We Need To Talk about the “Disease Warrior” Model

Why You Must Track Symptoms of Your Chronic Illness + Freebie To Help

The Impact of Chronic Illness on an Individual

How Chronic Illness Affects Relationships

Chronic Illness and the Holidays: 10 Rules for a Great Season

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

How To Stay Healthy in Flu Season

Chronic Illness Advice: Resources for the Newly-Diagnosed Patient

Chronically Ill Tips: What To Do When a Doctor Isn’t Listening to You

Building Self Confidence When Chronically Ill

About the Americans with Disabilities Act

Is Chronic Illness a Disability?

Chronically Ill Tips: Preparing for Medical Appointments + Freebies To Help

Answering Questions about Being Chronically Ill

Resources for the Freshly-Diagnosed Chronic Illness Patient

Questions Not To Ask Someone with a Chronic Illness

So You Were Diagnosed with a Chronic Illness: What You Should Do Next

Dating with a Chronic Illness

Chronic Pain 

Can Chronic Pain Go Away? What You Should Know

What’s Chronic Pain? What You Should Know If You Love Someone with It

What’s In My Tool Box for Dealing with Chronic Pain

What You Need To Know about Living with Chronic Pain in the Winter

What To Do When Chronic Pain Becomes Too Much

Describing Pain Levels to a Doctor

How Is Chronic Pain Different from Acute Pain?

Tools for Pain Management that Aren’t Medications

What you should know about chronic illness, www. kate the almost great .com

Illness Guides 

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What Is Endometriosis Like? An FAQ

What Sjögren’s Syndrome Is: A Beginner’s Guide

What Is POTS? A POTS Frequently Asked Questions Post

What You Should Know About TMJ Arthritis

Endometriosis: The Disease Women Aren’t Talking About

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Free printable to help you prepare for chronic illness medical appointments

POTS 

8 Essential Tips for Living with POTS

The Connection Between Dysautonomia and Anxiety

What Is POTS? A POTS Frequently Asked Questions Post

What’s Heat Intolerance? An Explanation

How Does Postural Orthostatic Tachycardia Syndrome Work?

POTS Exercise Protocol Diary: Month 1

POTS Exercise Protocol Diary: Month 2

POTS Exercise Protocol Diary: Month 3

POTS Exercise Protocol Diary: Month 4

POTS Exercise Protocol Diary: Month 5

What Every POTS Syndrome Patient Needs for the Summer

POTS and Heat Intolerance

The Essential POTS Symptom Journal

Endometriosis

What Is Endometriosis Like? An FAQ

Why Is Endometriosis Misdiagnosed?

What Does Endometriosis Feel Like?

Endometriosis: The Disease Women Aren’t Talking About

Arthritis 

7 Arthritis Myths Busted: Do You Know The Truth?

What Sjögren’s Syndrome Is: A Beginner’s Guide

9 Arthritis Products That Help My Rheumatoid Arthritis

Arthritis Diagnosis: Diagnosis Stories + The Diagnostic Process Explained

What You Should Know About TMJ Arthritis

What Does Arthritis Pain Feel Like?

Beginner’s Guide: Rheumatoid Arthritis Flare Up

Free Medical Symptom Organizer

How Arthritis Affects the Body

Beginner’s Guide: Infusion for Arthritis

How Is Arthritis Treated?

Arthritis Glossary: Frequently Used Words

Caring for Rheumatoid Arthritis Patients

What Is the Difference between Osteoarthritis and Rheumatoid Arthritis?

Why Is Rheumatoid Arthritis Hard to Diagnose?

Helping Someone with RA

My Rheumatoid Arthritis Treatment + How I Got There

Problems from My Inflammatory Arthritis + How To Deal with Them

10 Things I Wish I Knew When I Received My Rheumatoid Arthritis Diagnosis

10 Ways To Find Fibromyalgia Relief

What You Need To Know about Arthritis

A Day in the Life of an Arthritis Patient

Rheumatoid Arthritis Guide A-Z (Part One, Part Two, and Part Three)

Living with chronic illness, advice for and by patients, www. kate the almost great .com

Tarsal Coalition

Living with Tarsal Coalition: My Experience with Symptoms, Surgery, and More

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

The Emotional Side to My Tarsal Coalition Surgery Recovery

On My March 26 Ankle Surgery

Living with Chronic Illness 

Tips To Make Independently Living with a Chronic Illness Easier

Resources for Chronic Illness: How Organizing Can Make It Easier

Life with Chronic Illness: One Patient’s Life with 6 Illnesses

Living Life with Chronic Illness: Common Problems & Their Solutions

Holiday Survival Guide: Living Well with Chronic Disease

How To Actually Rest When You Take Breaks

Hacks for Living with Chronic Conditions

Newsletter

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Advocacy 

What Is Advocacy? A Patient Advocate’s Guide

9 Ways To Advocate for Disability Rights

What Is Self-Advocacy? An Answer + Strategies To Help

How To Become an Advocate for Patients

Holidays

Celebrating Easter with Chronic Illness

Surviving the Holidays with Chronic Illness: How To Survive, Thrive, & Have a Great Time

10 Ideas for Self Care You Need This Holiday Season

Holiday Survival Guide: Living Well with Chronic Disease

Chronic Illness and the Holidays: 10 Rules for a Great Season

Chronic Illness Hacks for the Holidays

Text reads: free chronic illness symptom journal kate the almost great dot com Image is of someone writing in a notebook while sitting on a couch.

Mental Health

10 Ideas for Self Care You Need This Holiday Season

Mental Health and Chronic Disease Management: What You Should Know

The Connection Between Dysautonomia and Anxiety

Self-Care Tips That Chronic Illness Patients Need

Mental Health And COVID-19: How I’ve Been Managing Mine

Building Self Confidence When Chronically Ill

Chronic Illness and Mental Health

10 Simple Self Care Methods That Will Improve Your Life

Why You Should Try Meditation

The Art of Managing Anxiety

Gift Guides

Best Gift Ideas for the Holidays: New Chronic Illness Patients

Gift Ideas: Chronic Illness Must-Haves

Holiday Gift Ideas: Best Gifts for Someone with Chronic Pain & Illness

Gift Guide: Gift Ideas for Chronically Ill People

Holiday Gift Guide: Gifts for Chronic Illness Patients

Gift Guide: Chronic Illness Gifts

Text reads: Get 25 Instagram Prompts Designed To Connect with Your Chronic Illness Audience

COVID

COVID Diaries of an Immunosuppressed Patient

Mental Health And COVID-19: How I’ve Been Managing Mine

Surgeries

Crucial Ways to Prep for Surgery Recovery Ahead of Time

What To Expect After Subtalar Fusion Surgery: A Patient’s Perspective

On My March 26 Ankle Surgery

Recipes

Food for TMJ Flares: The Best Recipes To Help Heal

14 Amazing Simple Healthy Recipes for Dinner

The chronically ill workbook, a workbook to help you better manage & understand your chronic illness, www. kate the almost great .com

About The Chronically Ill Workbook

I have a new product for chronic illness patients! In fact, this is the first time I have ever charged for a chronic illness product. 

These worksheets are designed to live your best life. They can help you better understand your body and your symptoms. They can help you have better doctor’s appointments.

These worksheets are based on things I have tried to figure out about my body. They are based on documents that I’ve used for myself.

(As a reminder, though, I am not a doctor, and you should always discuss your medical treatment with a medical professional.)

There are 30+ pages of worksheets, trackers, and journals. Contents include:

  • Chronic Illness Strategies
  • Symptom Inventory
  • Symptoms & Their Impact
  • Illness & Pain Journals
  • Holiday Self-Care Plan
  • Medical Info One-Pager
  • When To Talk To Your Doctor about a Symptom
  • What I Want To Tell My Doctors

Altogether, this workbook is worth over $150 based on the work put into it and the minimum wage. Please pay what you can, whether that be the minimum of $1 or the full $150.

Get it now. 

Kate Mitchell

Kate Mitchell is a blogger, chronic illness patient, and advocate who helps people understand chronic illness and helps chronic illness patients live their best lives.

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Comments

  1. Amy Mayfield-Beyer says

    April 8, 2024 at 9:17 am

    Great list of resources!

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Live for yourself 💖 _______ Video: a series Live for yourself 💖 

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Video: a series of videos featuring Kate. This includes her working on a laptop, drinking, showing off her dress, and opening her kindle.
Week 20 of #2025Weekly ⁣ ⁣ I did very little l Week 20 of #2025Weekly ⁣
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I did very little last week! So little I forgot to schedule this post. I the week at my parents’ while recovering from my infusion. Thankfully I had a fluffy nurse to help! And then I spent the rest of the week catching up from what I missed while dealing with my infusion. ⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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ID: a golden retriever walks towards the camera on a red rug. There’s a dog toy in his mouth and another one on the rug. ⁣
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I don’t think health problems are “deserved” I don’t think health problems are “deserved” or a punishment but I do think if I didn’t have mine I would have the time and energy to take over the world, so … 

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Video: Kate runs a hand through her hair. White text reads “How I feel knowing that God gave me chronic health issues because I would be too powerful without them”. The audio says “cause I’m too messy and I’m too fuckin clean they told me to get a job”. Kate is a redheaded white woman wearing a green dress with white flowers on it, a black shawl, a silver Celtic knot necklace, and round tortoiseshell glasses 

#AlmostGreatLife #SpoonieHumor #InvisiblyIll
The most common question I get about sharing my ex The most common question I get about sharing my experience with chronic illness is "How do you deal with it?" These 3 quotes are sources of inspiration and indicative of how I do it. ⁣
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1. "Guard your time fiercely. Be generous with it, but be intentional about it." - Davd Duchemin⁣
I am SO intentional with my time. Even when I (rarely) do spur-of-the-moment fun things, I'm doing mental calculations of how to make it happen. ⁣
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2. "Find out who you are and do it on purpose." - Dolly Parton⁣
That's what my blog and advocacy work is. I figured out who I am: someone who helps other patients, who shares her story, who tries to change the world. And I'm doing it on purpose. ⁣
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3. "For God has not given us a spirit of fear and timidity, but power, love, and self-discipline." - 2 Timothy 1:7 ⁣
I will be afraid some times (we all will) but my spirit is not one of fear or timidity. My spirt of power, love, and self-discipline enables me to keep fighting for myself and others. ⁣
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I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ID: Screenshots of Bluesky posts written by Kate Mitchell | Kate the (Almost) Great with the username katethealmostgreat.bsky.social. ⁣⁣The background is dark teal. The text on each post is one of the quotes mentioned above.
Click the link in my bio to get my medical appoint Click the link in my bio to get my medical appointment freebie! 

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Video: a series of videos. The first 2 are from doctor’s offices. The most important one is the 3rd which is a screen share of the document. It shows space for medical history, current medical problems, medications, family history, and more. There are captions. 

#AlmostGreatHealth #ChronicIllness #ChronicPain #RheumatoidArthritis #RheumatoidDisease #Fibro #Endometriosis #Endo #POTS #Dysautonomia #SjogrensSyndrome #Sjogrens #Fibromyalgia
Here are just some of the things that make me happ Here are just some of the things that make me happy. Share yours in the comments!⁣
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▪ Being home in Maine⁣
▪ Spending time with family ... especially when we get to dress up!⁣
▪ Baking. It's really nice to make a finished product that then gets to be enjoyed! (Not to mention that when I cook or bake I can make meals and donuts and cookies that I can eat)⁣
▪ Medieval stuff but ESPECIALLY weird medieval stuff⁣
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Obviously I know that I'm more than my illnesses - just because I don't have a ton of followers doesn't mean that this isn't a curated account with a purpose - but this is who I am outside of the Internet.⁣
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I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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▪ A dock over a lake ⁣
▪ Kate, Kathy, Tricia, David, and Emily stand in front of a stone wall.⁣
▪ Looking down at a counter where Kate is mixing ingredients and other ingredients are ready to be used.⁣⁣
▪ Kate holds the book Weird Medieval Guys⁣
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#AlmostGreatLife #MaineLife #207 #MaineTheWay #MaineThing #BakersOfInstagram #GlutenFreeBaking #GlutenFreeLife #SpoonieLife #InvisibleIllness
Week 19 of #2025Weekly ⁣ ⁣ 1️⃣ CT scan rea Week 19 of #2025Weekly ⁣
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1️⃣ CT scan ready ⁣
2️⃣ Hours after having a panic attack because, among other things, I need another root canal. ⁣
3️⃣ Infusion time, thank God⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣I’m Kate, a chronic illness patient and advocate sharing what my life is like with 7+ chronic illnesses. Follow me for more and check out my blog at katethealmostgreat.com⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣
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1️⃣ Kate takes a mirror selfie. She's a brunette white woman wearing black leggings, a black t-shirt, a jean jacket, a black cross-body bag, aviator sunglasses, and an orange mask. ⁣
2️⃣ Kate takes a selfie. She looks unhappy. She's wearing a yellow t-shirt and round tortoiseshell glasses.⁣
3️⃣ Kate takes a selfie in an infusion chair. She's wearing a blue t-shirt, white blanket, round tortoiseshell glasses, and orange mask. ⁣
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#AlmostGreatHealth #AlmostGreatLife #ChronicallyIll #InvisibleIllness #SpoonieLife #RheumatoidArthritis #RheumatoidDisease #Autoimmune #ButYouDontLookSick #AutoimmuneDisease #SpoonieLife #DisabledAndCute
Some things I've done for this so far:⁣ ▪ Gett Some things I've done for this so far:⁣
▪ Getting professional haircuts on a regular basis⁣
▪ Got a Kindle and therefore reading more⁣
▪ Making bread regularly, even though I'm bad at it ⁣
▪ Doing my best to keep houseplants alive⁣
▪ Regularly looking for more recipes to try making and not relying on the ones I already have⁣
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I’m Kate, a chronic illness patient and advocate. Follow me for more content for chronic illness patients and their loved ones!⁣
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⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ID: Screenshots of thread posts written by Kate Mitchell | Kate the (Almost) Great with the username katethealmostgreat. ⁣⁣The background is dark teal. All text is here, with one paragraph per image:⁣
"I realized recently that, big picture, this is the best my health has been since I got sick. When I got my infection in 2018 that impacted my whole body until 2023, I wasn’t diagnosed with one of my illnesses and 3 of my diagnosed ones weren’t controlled to the level they are now.⁣
So this year my quasi-resolution is being nice to myself and focusing more on thriving than existing. Because I can, for the first time maybe ever, thinking about thriving *and* existing."⁣
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#AlmostGreatLife #AlmostGreatHealth #ChronicallyIll #SpoonieLife #ChronicallyAwesome #InvisibleIllness #ButYouDontLookSick #LivingWithIntention #Disability #Disabled #Spoonie
Some housekeeping! 1) I am not sponsored. 2) These Some housekeeping! 1) I am not sponsored. 2) These were recommended by my foot surgeon. When you have RA affecting most joints and tarsal coalitions, good sneakers are essential. 

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Video: 3 pairs of HOKA sneakers on wood floor. Kate’s hand picks up one and tosses it out of view. White text reads “My Hoka system” and there are captions in a black box. 

#AlmostGreatLife #TarsalCoalition #RheumatoidDisease #RheumatoidArthritis
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